Research-based interventions for children and youth with a Fetal Alcohol Spectrum Disorder: Revealing the gap

Child: Care, Health and Development

Volumn 33, Issue 4, 2007, Pages 389-397

  Premji, Shahirose ^a   Benzies, K ^a   Serrett, K ^b   Hayden, K A ^a  

^a UNIVERSITY OF CALGARY   (Canada)

^b Renfrew Educational Services   (Canada)

Author keywords

Children; Fetal Alcohol Spectrum Disorder; Intervention; Systematic review; Youth

Indexed keywords

ASCORBIC ACID; DEXAMPHETAMINE; METHYLPHENIDATE; PEMOLINE; PEMOLINE MAGNESIUM; PLACEBO; PSYCHOSTIMULANT AGENT;

ACCESS TO INFORMATION; ADOLESCENT; ADULT; ARTICLE; CHILD; CLINICAL EFFECTIVENESS; CLINICAL TRIAL; COGNITION; COGNITIVE THERAPY; EXPERIMENTAL STUDY; FETAL ALCOHOL SYNDROME; HUMAN; INFANT; INFORMATION RETRIEVAL; INTERNET; INTERVENTION STUDY; METHODOLOGY; NEWBORN; PEER REVIEW; PRIORITY JOURNAL; QUASI EXPERIMENTAL STUDY; SAMPLE SIZE; SYSTEMATIC REVIEW;

ADOLESCENT; BEHAVIORAL SYMPTOMS; CHILD; CHILD ABUSE; CHILD, PRESCHOOL; FEMALE; FETAL ALCOHOL SYNDROME; HEALTH SERVICES RESEARCH; HUMANS; INFANT; INFANT, NEWBORN; PHYSICIAN'S ROLE; PHYSICIAN-PATIENT RELATIONS; PREGNANCY; PRENATAL EXPOSURE DELAYED EFFECTS; QUESTIONNAIRES; SOCIAL SUPPORT;

EID: 34250351295     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2006.00692.x     Document Type: Article

References (52)

1. Abel, E. L. & Sokol, R. J. (1991) A revised conservative estimate of the incidence of fetal alcohol syndrome and its economic impact. Alcoholism: Clinical and Experimental Research, 15, 514-524.
2. Astley, S. J., Bailey, D., Talbot, C. & Clarren, S. K. (2000) Fetal alcohol syndrome (FAS) primary prevention through FAS diagnosis. I. Identification of high-risk birth mothers through diagnosis of their children. Alcohol and Alcoholism, 35, 499-508.
3. Baumbach, J. (2002) Some implications of prenatal alcohol exposure for the treatment of adolescents with sexual offending behaviors. Sexual Abuse: Journal of Research and Treatment, 14, 313-327.
4. Bertrand, J., Floyd, L. L. & Weber, M. K. Fetal Alcohol Syndrome Prevention Team, Division of Birth Defects and Developmental Disabilities, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention (CDC). (2005) Guidelines for identifying and referring persons with fetal alcohol syndrome. Morbidity and Mortality Weekly Report. Recommendations and Reports, 54, 1-14.
5. Burd, L., Cotsonas-Hassler, T., Martsolf, J. & Kerbeshian, J. (2003) Recognition and management of fetal alcohol syndrome. Neurotoxicology and Teratology, 25, 681-688.
6. Burd, L., Klug, M. G., Martsolf, C., Deal, E. & Kerbeshian, J. (2006) A staged screening strategy for prenatal alcohol exposure and maternal risk stratification. Journal of the Royal Society for the Promotion of Health, 126, 86-94.
7. Burgess, D. (1994) Helping prepare children with FAS or FAE for school and beyond. Alcohol Health and Research World, 18, 73.
8. Canadian Paediatric Society. (2002) Fetal alcohol syndrome. Paediatrics and Child Health, 7, 161-174.
9. Coles, C. (2003) Individuals Affected by Fetal Alcohol Spectrum Disorder (FASD) and Their Families. Prevention, Intervention, and Support. Available at: http://www.excellence-jeunesenfants.ca/documents/ ColesANGxp.pdf (accessed 23 June 2006).
10. Coles, C., Platzman, C., Raskin-Hood, C., Brown, R., Falek, A. & Smith, I. (1997) A comparison of children affected by prenatal alcohol exposure and attention deficit, hyperactivity disorder. Alcoholism: Clinical and Experimental Research, 21, 150-161.
11. Connor, P. & Streissguth, A. (1996) Effects of prenatal exposure to alcohol across the life span. Alcohol Health and Research World, 20, 170-174.
12. Fast, D. & Conry, J. (2004) The challenge of fetal alcohol syndrome in the criminal legal system. Addiction Biology, 9, 161-166.
13. Graefe, S. (1998) Parenting Children Affected by Fetal Alcohol Syndrome: A Guide for Daily Living. Society of Special Needs Adoptive Parents with cooperation from Adoption Council of Canada, Ottawa, ON, Canada.
14. Green, H. L., Diaz-Gonzalez de Ferris, M. E., Vasquez, E., Lau, E. & Yusim, J. (2001) Long-lasting care for the child exposed to alcohol in utero. Contemporary Paediatrics, 18, 72-80.
15. Hartness, C. (1998) Fetal Alcohol Syndrome and Fetal Alcohol Related Conditions: A Training Manual for Trainers. Seattle-King County Department of Public Health, Seattle, WA, USA.
16. Hess, D. & Kenner, C. (1998) Families caring for children with fetal alcohol syndrome: The nurse's role in early identification and intervention. Holistic Nursing Practice, 12, 47-54.
17. Institute of Medicine. (1996) Fetal Alcohol Syndrome: Diagnosis, Epidemiology, Prevention, and Treatment. National Academy Press, Washington, DC, USA.
18. Jadad, A. R., Moore, R. A., Carroll, D., Jenkins, C., Reynolds, D. J., Gayaghan, D. J. & McQuary, H. J. (1996) Assessing the quality of reports of randomized clinical trails: Is blinding necessary? Controlled Clinical Trials, 17, 1-12.
19. Khan, K., Riet, G. T., Glanville, J., Snowden, A. & Kleijnen, J. (2001) Undertaking Systematic Reviews of Research on Effectiveness: CRD Guidelines for Those Carrying Out or Commissioning Reviews, 2nd Edn. York Publishing Services, York, UK.
20. Little, B. B., Snell, L. M., Rosenfeld, C. R., Gilstrap, L. C. III & Grant, N. F. (1990) Failure to recognize fetal alcohol syndrome in newborn infants. American Journal of Diseases of Children, 144, 1142-1146.
21. Maxwell, L. & Geschwint-Rabin, J. (1996) Substance abuse risk factors and childhood language disorders. In: Childhood Language Disorders (eds M. Smith & J. Damico), pp. 235-271. Medical Publishers, New York, NY, USA.
22. May, P. A. & Gossage, J. P. (2001) Estimating the prevalence of fetal alcohol syndrome: A summary. Alcohol Research and Health, 25, 159-167.
23. May, P. A., Brooke, L., Gossage, J. P., Croxford, J., Adnams, C., Jones, K., Robinson, L. & Viljoen, D. (2000) Epidemiology of fetal alcohol syndrome in a South African community in the western cape province. American Journal of Public Health, 90, 1905-1912.
24. Nagahara, A. & Handa, R. (1999) Fetal alcohol-exposed rats exhibit differential responses to cholinergic drugs on a delay- dependent memory task. Neurobiology of Learning and Memory, 72, 230-243.
25. Nanson, J. & Hiscock, M. (1990) Attention deficits in children exposed to alcohol prenatally. Alcoholism: Clinical and Experimental Research, 14, 656-661.
26. Oesterheld, J., Kofoed, L., Tervo, R., Fogasm, B., Wilson, A. & Fiechtner, H. (1998) Effectiveness of methylphenidate in Native American children with fetal alcohol syndrome and attention deficit/hyperactivity disorder: A controlled pilot study. Journal of Child and Adolescent Psychopharmacology, 8, 39-48.
27. Olson, H., O'Connor, M. & Fitzgerald, H. (2001) Lessons learned from study of the developmental impact of parental alcohol use. Infant Mental Health Journal, 22, 271-290.
28. O'Malley, K. & Hagerman, R. (1999) Developing clinical practice guidelines for pharmacological interventions with alcohol-affected children. In: Intervening with Children Affected by Prenatal Alcohol Exposure. Proceedings of a Special Focus Session of the Interagency Coordinating Committee on Fetal Alcohol Syndrome; 1998, September 10-11; Chevy Chase, MD (eds Centers for Disease Control and Prevention), pp. 145-177. National Institute of Alcohol Abuse and Alcoholism, Bethesda, MD, USA.
29. O'Malley, K. & Streissguth, A. (2003) Clinical Intervention and Support for Children Aged Zero to Five Years with Fetal Alcohol Spectrum Disorder and Their Parents/Caregivers. Available at: http://excellence-jeunesenfants.ca/documents/Omalley-streissguthANGxp.pdf (accessed 23 June 2006).
30. Page, K. (2001) Fetal alcohol spectrum: The hidden epidemic in our courts. Juvenile and Family Court Journal, 52, 21-31.
31. Phelps, L. (1995) Psychoeducational outcomes of fetal alcohol syndrome. School Psychology Review, 24, 200-212.
32. Phelps, L. & Grabowski, J. (1992) Fetal alcohol syndrome: Diagnostic features and psychoeducational risk factors. School Psychology Quarterly, 7, 112-128.
33. Poitra, B. A., Marion, S., Dionne, M., Wilkie, E., Dauphinais, P., Wilkie-Pepion, M., Martsolf, J. T., Klug, M. G. & Burd, L. (2003) A school-based screening program for fetal alcohol syndrome. Neurotoxicology and Teratology, 25, 725-729.
34. Premji, S., Serrett, K., Benzies, K. & Hayden, K. A. (2004) The State of the Evidence Review: Interventions for Children and Youth with a Fetal Alcohol Spectrum Disorder (FASD). Alberta Centre for Child, Family & Community Research, Calgary, AB, Canada.
35. Riley, E. P., Mattson, S. N., Li, T. K., Jacobson, S. W., Coles, C. D., Kodituwakku, P. W., Adnams, C. M. & Korkman, M. I. (2003) Neurobehavioral consequences of prenatal alcohol exposure: An international perspective. Alcoholism: Clinical and Experimental Research, 27, 362-373.
36. Roberts, G. & Nanson, J. (2001) Best Practices: Fetal Alcohol Syndrome/Fetal Alcohol Effects and the Effects of Other Substance Use During Pregnancy. Minister of Public Works and Government Services Canada, Health Canada, Ottawa, ON, Canada.
37. Robinson, G. C., Conry, J. L. & Conry, R. F. (1987) Clinical profile and prevalence of fetal alcohol syndrome in an isolated community in British Columbia. Canadian Medical Association Journal, 137, 203-207.
38. Schulz, K., Chalmers, I., Hayes, R. & Altman, D. (1995) Empirical evidence of bias. Dimensions of methodological quality associated with estimates of treatment effects in controlled trials. Journal of the American Medical Association, 273, 408-412.
39. Snyder, J., Nanson, J., Snyder, R. & Block, G. (1997) A study of stimulant medication in children with FAS. In: The Challenge of Fetal Alcohol Syndrome Overcoming Secondary Disabilities (eds A. Streissguth & J. Kanter), pp. 64-77. University of Washington Press, Seattle, WA, USA.
40. Steinhausen, H., Willms, J. & Spohr, H. (1993) Long-term psychopathological and cognitive outcome of children with fetal alcohol syndrome. Journal of the American Academy of Child and Adolescent Psychiatry, 32, 990-994.
41. Stoler, J. & Holmes, L. B. (1999) Under-recognition of prenatal alcohol effects in infants of known alcohol abusing women. Journal of Pediatrics, 135, 430-436.
42. Streissguth, A. (1997) Fetal Alcohol Syndrome: A Guide for Families and Communities. Paul H. Brookes, Toronto, ON, Canada.
43. Streissguth, A. & Giunta, C. (1988) Mental health and health needs of infants and preschool children with fetal alcohol syndrome. International Journal of Family Psychiatry, 9, 29-47.
44. Streissguth, A. & O'Malley, K. (2000) Neuropsychiatric implications and long-term consequences of fetal alcohol spectrum disorders. Seminars in Clinical Neuropsychiatry, 5, 177-190.
45. Streissguth, A., Asae, J., Clarren, S., Randels, S., LaDue, R. & Smith, D. (1991) Fetal alcohol syndrome in adolescents and adults. Journal of the American Medical Association, 265, 1961-1967.
46. Streissguth, A. P., Sampson, P. D., Olson, H. C., Bookstein, F. L., Barr, H. M., Scott, M., Feldman, J. & Mirsky, A. F. (1994) Maternal drinking during pregnancy: Attention and short-term memory in 14-year-old offspring -a longitudinal prospective study. Alcoholism: Clinical and Experimental Research, 18, 202-218.
47. Streissguth, A., Barr, H., Kogan, J. & Bookstein, F. (1996) Understanding the Occurrence of Secondary Disabilities in Clients with Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effects (FAE). Department of Psychiatry and Behavioral Sciences, University of Washington School of Medicine, Seattle, WA, USA.
48. Streissguth, A., Barr, H., Kogan, J. & Bookstein, F. (1997) Primary and secondary disabilities in fetal alcohol syndrome. In: The Challenge of Fetal Alcohol Syndrome Overcoming Secondary Disabilities (eds A. Streissguth & J. Kanter), pp. 25-29. University of Washington Press, Seattle, WA, USA.
49. Streissguth, A., Bookstein, F., Barr, H., Sampson, P., O'Malley, K. & Young, J. (2004) Risk factors for adverse life outcomes in fetal alcohol syndrome and fetal alcohol effects. Journal of Developmental and Behavioral Pediatrics, 25, 228-238.
50. Weiner, L. & Morse, B. (1991) Facilitating development for children with fetal alcohol syndrome. Brown University Child and Adolescent Behavior Letter, 7, 1-4.
51. Williams, R. J., Odaibo, F. S. & McGee, J. M. (1999) Incidence of fetal alcohol syndrome in northeastern Manitoba. Canadian Journal of Public Health, 90, 192-194.
52. Zevenbergen, A. & Ferraro, F. (2001) Assessment and treatment of fetal alcohol syndrome in children and adolescents. Journal of Developmental and Physical Disabilities, 13, 123-136.