Mitochondrial disease: Needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase

Journal of Inherited Metabolic Disease

Volumn 30, Issue 3, 2007, Pages 333-340

  Noorda, G ^a   Hermans Peters, M ^a   Smeitink, J ^a   van Achterberg, T ^a   Kemps, H ^b   Goverde, W ^a   Schoonhoven, L ^a  

^a RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^b HAN UNIVERSITY OF APPLIED SCIENCES   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CHILD CARE; DAILY LIFE ACTIVITY; DISORDERS OF MITOCHONDRIAL FUNCTIONS; HEALTH CARE NEED; HUMAN; INTERVIEW; MEDICAL INFORMATION; PATIENT EDUCATION; PHENYLKETONURIA; PILOT STUDY; PSYCHOSOCIAL CARE; QUALITATIVE ANALYSIS; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; QUESTIONNAIRE; SOCIOECONOMICS; SYSTEMATIC REVIEW;

ADULT; CHILD; HUMANS; INTERVIEWS; MITOCHONDRIAL DISEASES; PARENT-CHILD RELATIONS; PARENTS; PATIENT SELECTION; PILOT PROJECTS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; RESEARCH DESIGN;

EID: 34249992512     PISSN: 01418955     EISSN: 15732665     Source Type: Journal    
DOI: 10.1007/s10545-007-0426-0     Document Type: Article

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