Health-related quality of life - Testing the reliability of the MSQOL-54 instrument among MS patients

Scandinavian Journal of Caring Sciences

Volumn 21, Issue 2, 2007, Pages 199-206

  Heiskanen, Satu ^a   Meriläinen, Pirkko ^a   Pietilä, Anna Maija ^a  

^a UNIVERSITY OF EASTERN FINLAND   (Finland)

Author keywords

Health related quality of life; MSQOL 54; Multiple sclerosis; Reliability; Validity

Indexed keywords

ADULT; FEMALE; HUMAN; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; REPRODUCIBILITY; REVIEW; VALIDATION STUDY;

ADULT; FEMALE; HUMANS; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS;

EID: 34249865366     PISSN: 02839318     EISSN: 14716712     Source Type: Journal    
DOI: 10.1111/j.1471-6712.2007.00456.x     Document Type: Review

References (40)

1. Hawkins S, Donnell G. Benign multiple sclerosis? Clinical course, long term follow up assessment of prognostic factors. J Neurol Neurosurg Psychiatry 1999 67 : 148 52.
2. Cook S. Handbook of Multiple Sclerosis, 3rd edn. 2001, Basel, New York.
3. Sumelahti M-L, Tienari PJ, Wikström J, Palo J, Hakama M. Increasing prevalence of multiple sclerosis in Finland. Acta Neurol Scand 2001 103 : 153 58.
4. Benito-Leon J, Morales J, Rivera-Navarro J. Health-related quality of life and its relationship to cognitive and emotional functioning in multiple sclerosis patients. Eur J Neurol 2002 9 : 497 502.
5. Miller D. Health-related quality of life. Mult Scler 2002 8 : 269 70.
6. Miller D, Rudick R, Baier M, Cutter G et al. Factors that predict health-related quality of life in patients with relapsing remitting multiple sclerosis. Mult Scler 2003 9 : 1 5.
7. Freeman J, Langdon DW, Hobart JC et al. Inpatient rehabilitation in multiple sclerosis: do the benefits carry out over into the company Neurology 1999 52 : 50 56.
8. Hafler D. Multiple sclerosis. J Clin Invest 2004 113 : 788 94.
9. Gill TM, Feinstein AR. A critical appraisal of quality-of-life measurements. J Am Med Assoc 1994 272 : 619 26.
10. King C, Hinds P. Quality of Life: From Nursing and Patients Perspectives. 1998, Toronto, Jones and Bartlett Publishers.
11. Zhan I. Quality of life: conceptual and measurement issues. J Adv Nurs 1999 17 : 795 800.
12. Nicholl C, Lincoln N, Francis V et al. Assessing quality of life in people with multiple sclerosis. Disabil Rehabil 2001 14 : 597 603.
13. Hakim E, Bakheit A, Bryant T et al. The social impact of multiple sclerosis - a study of 305 MS-patients and their relatives. Disabil Rehabil 2000 15 : 299 303.
14. Nortvedt M, Riise T, Myhr K-M et al. Quality of life as predictor for change in disability in MS. Neurology 2000 55 : 51 54.
15. O'Brien M. Multiple sclerosis: the relationship among self-esteem, social support and coping behavior. Appl Nurs Res 1993 6 : 54 63.
16. Mohr D, Dick L, Russo D et al. The psychosocial impact of multiple sclerosis: exploring the patient's perspective. Health Psychol 1999 18 : 376 82.
17. Heiskanen S. Multippeliskleroosia sairastavien potilaiden hoitohenkilökunnalta tarvitsema ja saama emotionaalinen tuki sairastumisen alkuvaiheessa (The Existing Needs of Emotional Support and its Realization Among Multiple Sclerosis Patients in the Early Stage of the Illness). 2000, Kuopio, University of Kuopio, Department of Nursing Science (In Finish).
18. Harrison T, Stuifbergen A. Disability, social support and concern for children: depression in mothers with multiple sclerosis. J Obstet Gynecol Neonatal Nurs 2002 31 : 444 53.
19. Patti F, Cacopardo M, Palermo F et al. Health-related quality of life and depression in an italian sample of multiple sclerosis patients. J Neurol Sci 2002 211 : 55 62.
20. Jennings B, Staggers L, Brosch L. A classification scheme for outcome indicators. J Nurs Scholars 1999 31 : 381 88.
21. Hinshaw M. Knowledge for the 21 century: opportunities and challenges. J Nurs Scholars 1999 32 : 117 23.
22. Northrup D, Purkis M. Building the science of health promotion practice from a human science perspective. Nurs Philos 2001 2 : 62 71.
23. Bowling A. Measuring Disease, 2nd edn. 2001, Philapelphia, PA, Open University Press.
24. Solari A. Role of health-related quality of life measures in the MS-people with multiple sclerosis. Health Qual Life Outcomes 2005 3 : 16.
25. Hyland ME. Defining and measuring quality of life in medicine. J Am Med Assoc 1998 11 : 430 31.
26. Pollmann W, Busch C, Voltz R. Quality of life in multiple sclerosis. Measures, relevance, problems and perspectives. Nervenarzt 2005 76 : 154 69.
27. Acquadro C., Lafortune L, Mear I. Quality of life in multiple sclerosis: translation in French Canadian of the MSQOL-54. Healt Qual Life Outcomes 2003 1 : 70.
28. Gulick E. Research priorities for nurses caring for patients with multiple sclerosis. J Neurol Sci 1996 28 : 314 21.
29. Gulick E. Correlates of quality of life among persons with multiple sclerosis. Nurs Res 1997 46 : 305 11.
30. Guyatt H, Jaeschke R, Feeny DH et al. Measurement in clinical trials: choosing the right approach. In Quality of life and Pharmacoeconomics in Clinical Trials, 2nd edn (Spilker B ed 1996, Philadelphia, PA, Lippincott-Raven.
31. Balcer L. Clinical outcome measures for research in multiple sclerosis. J Neuroophtalmol 2001 21 : 296 301.
32. Vickrey BG, Hays RD, Harooni R et al. A health related quality of life measure for multiple sclerosis. Qual Life Res 1995 4 : 187 206.
33. Solari A, Filippiini G, Mendozzi L et al. Validation of Italian multiple sclerosis quality of life 54 questionnaire. J Neurol Neurosurg Psychiatry 1999 67 : 158 162.
34. Perälä M-L. Potilaan hoidon laadun arviointi: Laatumittarin (QUALPASC) validaatio (The Quality Assessment of Patient Care: Validation of a Quality Measure (QUALPACS)). Stakes tutkimuksia 56. 1995, Jyväskylä, Gummerus (in Finish).
35. Hoitotyön tutkimuksen eettiset ohjeet Pohjoismaissa. Vård i Norden 2003 4 : 12 15.
36. Steiner D, Norman G. Health Measurement Scales: A Practical Guide to Their Development and Use, 2nd edn. 1995, Oxford, University Press.
37. Burns N, Grove S. The Practise of Nursing Research: Conduct, Critique and Utilisation, 4th edn. 2001, Philadelphia, PA, W.B. Saunders Co.
38. Cohen J. Statistical Power Analysis for the Behavioral Sciences, 2nd edn. 1988, Academic Press, New York.
39. Sintonen H. The 15D instrument of the health-related quality of life: properties and application. Ann Med 2001 33 : 328 36.
40. Sintonen H. The 15-D instrument of health-related quality of life. Properties and applivations. Ann Med 2001 33 : 328 36.