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Volumn 9, Issue 5, 2007, Pages 275-282

Selection of family members for communication of cancer risk and barriers to this communication before and after genetic cancer risk assessment

Author keywords

Breast cancer; Cancer risk communication; Communication barriers; Family communication; Genetic counseling

Indexed keywords

ADULT; AGED; ARTICLE; BREAST CANCER; CANCER RISK; CHI SQUARE TEST; CONTROLLED STUDY; DEMOGRAPHY; FAMILY HISTORY; FEMALE; GENETIC COUNSELING; GENETIC RISK; HEALTH SURVEY; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MCNEMAR TEST; OVARY CANCER; RISK ASSESSMENT; STATISTICAL ANALYSIS; STATISTICAL SIGNIFICANCE; STUDENT T TEST;

EID: 34249014374     PISSN: 10983600     EISSN: None     Source Type: Journal    
DOI: 10.1097/GIM.0b013e31804ec075     Document Type: Article
Times cited : (55)

References (49)
  • 2
    • 0033980134 scopus 로고    scopus 로고
    • Cancer risk estimates for family members of a population-based family registry for breast and ovarian cancer
    • Ziogas A, Gildea M, Cohen P, Bringman D, et al. Cancer risk estimates for family members of a population-based family registry for breast and ovarian cancer. Cancer Epidemiol Biomarkers Prev 2000;9 (1):103-111.
    • (2000) Cancer Epidemiol Biomarkers Prev , vol.9 , Issue.1 , pp. 103-111
    • Ziogas, A.1    Gildea, M.2    Cohen, P.3    Bringman, D.4
  • 3
    • 34249086995 scopus 로고    scopus 로고
    • Narod SA, Olsson H. Risk of ovarian cancer in breast-cancer patients with a family history of either. Lancet 2003;361:(9352):179; author reply 179-180.
    • Narod SA, Olsson H. Risk of ovarian cancer in breast-cancer patients with a family history of either. Lancet 2003;361:(9352):179; author reply 179-180.
  • 4
    • 0027979310 scopus 로고
    • Autosomal dominant inheritance of early-onset breast cancer: Implications for risk prediction
    • Claus EB, Risch N, Thompson WD. Autosomal dominant inheritance of early-onset breast cancer: implications for risk prediction. Cancer 1994;73:643-651.
    • (1994) Cancer , vol.73 , pp. 643-651
    • Claus, E.B.1    Risch, N.2    Thompson, W.D.3
  • 5
    • 0028801693 scopus 로고    scopus 로고
    • NIH Consensus Conference. Ovarian cancer. Screening, treatment, and follow-up. NIH Consensus Development Panel on Ovarian Cancer. JAMA 1995;273:491-497.
    • NIH Consensus Conference. Ovarian cancer. Screening, treatment, and follow-up. NIH Consensus Development Panel on Ovarian Cancer. JAMA 1995;273:491-497.
  • 6
    • 17344365851 scopus 로고    scopus 로고
    • Genetic heterogeneity and penetrance analysis of the BRCA1 and BRCA2 genes in breast cancer families. The Breast Cancer Linkage Consortium
    • Ford D, Easton DF, Stratton M, Narod S, et al. Genetic heterogeneity and penetrance analysis of the BRCA1 and BRCA2 genes in breast cancer families. The Breast Cancer Linkage Consortium. Am J Hum Genet 1998;62:676-689.
    • (1998) Am J Hum Genet , vol.62 , pp. 676-689
    • Ford, D.1    Easton, D.F.2    Stratton, M.3    Narod, S.4
  • 7
    • 0030910022 scopus 로고    scopus 로고
    • The risk of cancer associated with specific mutations of BRCA1 and BRCA2 among Ashkenazi Jews
    • Struewing JP, Hartge P, Wacholder S, Baker SM, et al. The risk of cancer associated with specific mutations of BRCA1 and BRCA2 among Ashkenazi Jews. N Engl J Med 1997;336 (20):1401-1408.
    • (1997) N Engl J Med , vol.336 , Issue.20 , pp. 1401-1408
    • Struewing, J.P.1    Hartge, P.2    Wacholder, S.3    Baker, S.M.4
  • 8
    • 2942739225 scopus 로고    scopus 로고
    • Contralateral breast cancer in BRCA1 and BRCA2 mutation carriers
    • Metcalfe K, Lynch HT, Ghadirian P, Tung N, et al. Contralateral breast cancer in BRCA1 and BRCA2 mutation carriers. J Clin Oncol 2004;22 (12):2328-2335.
    • (2004) J Clin Oncol , vol.22 , Issue.12 , pp. 2328-2335
    • Metcalfe, K.1    Lynch, H.T.2    Ghadirian, P.3    Tung, N.4
  • 9
    • 10044254427 scopus 로고    scopus 로고
    • The risk of ovarian cancer after breast cancer in BRCA1 and BRCA2 carriers
    • Metcalfe KA, Lynch HT, Ghadirian P, Tung N, et al. The risk of ovarian cancer after breast cancer in BRCA1 and BRCA2 carriers. Gynecol Oncol 2005;96 (1):222-226.
    • (2005) Gynecol Oncol , vol.96 , Issue.1 , pp. 222-226
    • Metcalfe, K.A.1    Lynch, H.T.2    Ghadirian, P.3    Tung, N.4
  • 10
    • 12144251440 scopus 로고    scopus 로고
    • Genetics nursing practice enters a new era with credentialing
    • Available at:, Accessed April 6, 2007
    • Greco KE, Mahon SM. Genetics nursing practice enters a new era with credentialing. The Internet Journal of Advanced Nursing Practice 2003;5(2). Available at: http://www.ispub.com/ostial/index.php?xmlFilePath= journals/jhan/front.xml. Accessed April 6, 2007.
    • (2003) The Internet Journal of Advanced Nursing Practice , vol.5 , Issue.2
    • Greco, K.E.1    Mahon, S.M.2
  • 12
    • 33845449938 scopus 로고    scopus 로고
    • The power of partnership: Extending comprehensive cancer center expertise in clinical cancer genetics to breast care in community centers
    • in press
    • MacDonald DJ, Sand S, Kass FC, Blazer KR, et al. The power of partnership: extending comprehensive cancer center expertise in clinical cancer genetics to breast care in community centers. Semin Breast Dis in press.
    • Semin Breast Dis
    • MacDonald, D.J.1    Sand, S.2    Kass, F.C.3    Blazer, K.R.4
  • 13
    • 0031991614 scopus 로고    scopus 로고
    • Professional disclosure of familial genetics information
    • American Society of Human Genetics
    • American Society of Human Genetics. Professional disclosure of familial genetics information. Am J Hum Genet 1998;62:474-483.
    • (1998) Am J Hum Genet , vol.62 , pp. 474-483
  • 14
    • 0038501057 scopus 로고    scopus 로고
    • American Society of Clinical Oncology policy statement update: Genetic testing for cancer susceptibility
    • ASCO
    • ASCO. American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility. J Clin Oncol 2003;21:(12):2397-2406.
    • (2003) J Clin Oncol , vol.21 , Issue.12 , pp. 2397-2406
  • 15
    • 4544245238 scopus 로고    scopus 로고
    • The "duty to warn" a patient's family members about hereditary disease risks
    • Offit K, Groeger E, Turner S, Wadsworth EA, et al. The "duty to warn" a patient's family members about hereditary disease risks. JAMA 2004;292 (12):1469-1473.
    • (2004) JAMA , vol.292 , Issue.12 , pp. 1469-1473
    • Offit, K.1    Groeger, E.2    Turner, S.3    Wadsworth, E.A.4
  • 16
    • 16544391857 scopus 로고    scopus 로고
    • Duty to warn of genetic harm in breach of patient confidentiality
    • Keeling SL. Duty to warn of genetic harm in breach of patient confidentiality. J Law Med 2004;12 (2):235-253.
    • (2004) J Law Med , vol.12 , Issue.2 , pp. 235-253
    • Keeling, S.L.1
  • 18
    • 0005831905 scopus 로고    scopus 로고
    • Ethical, legal, and social issues related to predisposition testing for breast cancer risk: What nurses need to know
    • MacDonald DJ. Ethical, legal, and social issues related to predisposition testing for breast cancer risk: what nurses need to know. Quality of Life-A Nursing Challenge 1997;6:8-14.
    • (1997) Quality of Life-A Nursing Challenge , vol.6 , pp. 8-14
    • MacDonald, D.J.1
  • 19
    • 0032043448 scopus 로고    scopus 로고
    • Genetic predisposition testing for cancer: Effects on families' lives
    • MacDonald DJ. Genetic predisposition testing for cancer: effects on families' lives. Holist Nurs Pract 1998;12 (3):9-19.
    • (1998) Holist Nurs Pract , vol.12 , Issue.3 , pp. 9-19
    • MacDonald, D.J.1
  • 20
    • 2642517884 scopus 로고    scopus 로고
    • We are talking, but are they listening? Communication patterns in families with a history of breast/ovarian cancer (HBOC)
    • Kenen R, Arden-Jones A, Eeles R. We are talking, but are they listening? Communication patterns in families with a history of breast/ovarian cancer (HBOC). Psychooncology 2004;13 (5):335-345.
    • (2004) Psychooncology , vol.13 , Issue.5 , pp. 335-345
    • Kenen, R.1    Arden-Jones, A.2    Eeles, R.3
  • 21
    • 2942515248 scopus 로고    scopus 로고
    • The impact of proband mediated information dissemination in families with a BRCA1/2 gene mutation
    • Sermijn E, Goelen G, Teugels E, Kaufman L, et al. The impact of proband mediated information dissemination in families with a BRCA1/2 gene mutation. J Med Genet 2004;41 (3):E23.
    • (2004) J Med Genet , vol.41 , Issue.3
    • Sermijn, E.1    Goelen, G.2    Teugels, E.3    Kaufman, L.4
  • 22
    • 9644310312 scopus 로고    scopus 로고
    • Family communication about positive BRCA1 and BRCA2 genetic test results
    • McGivern B, Everett J, Yager GG, Baumiller RC, et al. Family communication about positive BRCA1 and BRCA2 genetic test results. Genet Med 2004;6 (6):503-509.
    • (2004) Genet Med , vol.6 , Issue.6 , pp. 503-509
    • McGivern, B.1    Everett, J.2    Yager, G.G.3    Baumiller, R.C.4
  • 23
    • 0037216727 scopus 로고    scopus 로고
    • Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients
    • Claes E, Evers-Kiebooms G, Boogaerts A, Decruyenaere M, et al. Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients. Am J Med Genet A 2003;116 (1):11-19.
    • (2003) Am J Med Genet A , vol.116 , Issue.1 , pp. 11-19
    • Claes, E.1    Evers-Kiebooms, G.2    Boogaerts, A.3    Decruyenaere, M.4
  • 24
    • 0042319194 scopus 로고    scopus 로고
    • Communication of BRCA1 and BRCA2 results to at-risk relatives: A cancer risk assessment program's experience
    • Costalas JW, Itzen M, Malick J, Babb JS, et al. Communication of BRCA1 and BRCA2 results to at-risk relatives: a cancer risk assessment program's experience. Am J Med Genet 2003;119C (1):11-18.
    • (2003) Am J Med Genet , vol.119 C , Issue.1 , pp. 11-18
    • Costalas, J.W.1    Itzen, M.2    Malick, J.3    Babb, J.S.4
  • 25
    • 18244374810 scopus 로고    scopus 로고
    • All in the family: Evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results
    • Hughes C, Lerman C, Schwartz M, Peshkin BN, et al. All in the family: evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results. Am J Med Genet 2002;107 (2):143-150.
    • (2002) Am J Med Genet , vol.107 , Issue.2 , pp. 143-150
    • Hughes, C.1    Lerman, C.2    Schwartz, M.3    Peshkin, B.N.4
  • 26
    • 0041818170 scopus 로고    scopus 로고
    • Breast cancer survivors' attitudes about communication of breast cancer risk to their children
    • Miesfeldt S, Cohn WF, Jones SM, Ropka ME, et al. Breast cancer survivors' attitudes about communication of breast cancer risk to their children. Am J Med Genet C Semin Med Genet 2003;119(1):45-50.
    • (2003) Am J Med Genet C Semin Med Genet , vol.119 , Issue.1 , pp. 45-50
    • Miesfeldt, S.1    Cohn, W.F.2    Jones, S.M.3    Ropka, M.E.4
  • 27
    • 0036071366 scopus 로고    scopus 로고
    • Concerns of women presenting to a comprehensive cancer center for genetic cancer risk assessment
    • MacDonald DJ, Choi J, Ferrell B, Sand S, et al. Concerns of women presenting to a comprehensive cancer center for genetic cancer risk assessment. J Med Genet 2002;39:526-530.
    • (2002) J Med Genet , vol.39 , pp. 526-530
    • MacDonald, D.J.1    Choi, J.2    Ferrell, B.3    Sand, S.4
  • 28
    • 0030074994 scopus 로고    scopus 로고
    • Emotional and behavioral responses to genetic testing to cancer
    • Lerman C, Croyle RT. Emotional and behavioral responses to genetic testing to cancer. Oncology 1996;19:191-199.
    • (1996) Oncology , vol.19 , pp. 191-199
    • Lerman, C.1    Croyle, R.T.2
  • 29
    • 0035160552 scopus 로고    scopus 로고
    • Parental communication of BRCA1/2 genetic test results to children
    • Tercyak KP, Hughes C, Main D, Snyder C, et al. Parental communication of BRCA1/2 genetic test results to children. Patient Educ Couns 2001;42:213-224.
    • (2001) Patient Educ Couns , vol.42 , pp. 213-224
    • Tercyak, K.P.1    Hughes, C.2    Main, D.3    Snyder, C.4
  • 30
    • 0036283684 scopus 로고    scopus 로고
    • Parent-child factors and their effect on communicating BRCA1/2 test results to children
    • Tercyak K, Peshkin B, DeMarco T, Brogan B, et al. Parent-child factors and their effect on communicating BRCA1/2 test results to children. Patient Educ Couns 2002;47(2):145.
    • (2002) Patient Educ Couns , vol.47 , Issue.2 , pp. 145
    • Tercyak, K.1    Peshkin, B.2    DeMarco, T.3    Brogan, B.4
  • 31
    • 0032905994 scopus 로고    scopus 로고
    • Communication of BRCA1/2 test results in hereditary breast cancer families
    • Hughes C, Lynch H, Durham C, Snyder C, et al. Communication of BRCA1/2 test results in hereditary breast cancer families. Canc Res Ther Contr 1999;8:51-59.
    • (1999) Canc Res Ther Contr , vol.8 , pp. 51-59
    • Hughes, C.1    Lynch, H.2    Durham, C.3    Snyder, C.4
  • 32
    • 0001594559 scopus 로고    scopus 로고
    • Family communication and genetic counseling: The case of hereditary breast and ovarian cancer
    • Green J, Richards M, Murton F, Statham H, et al. Family communication and genetic counseling: the case of hereditary breast and ovarian cancer. J Genet Couns 1997;6:45-60.
    • (1997) J Genet Couns , vol.6 , pp. 45-60
    • Green, J.1    Richards, M.2    Murton, F.3    Statham, H.4
  • 33
    • 33644848688 scopus 로고    scopus 로고
    • Sharing BRCA1/2 test results with first-degree relatives: Factors predicting who women tell
    • Patenaude AF, Dorval M, DiGianni LS, Schneider KA, et al. Sharing BRCA1/2 test results with first-degree relatives: factors predicting who women tell. J Clin Oncol 2006;24(4):700-706.
    • (2006) J Clin Oncol , vol.24 , Issue.4 , pp. 700-706
    • Patenaude, A.F.1    Dorval, M.2    DiGianni, L.S.3    Schneider, K.A.4
  • 34
    • 0141921347 scopus 로고    scopus 로고
    • To tell or not to tell: Barriers and facilitators in family communication about genetic risk
    • Forrest K, Simpson SA, Wilson BJ, van Teijlingen ER, et al. To tell or not to tell: barriers and facilitators in family communication about genetic risk. Clin Genet 2003;64(4):317-326.
    • (2003) Clin Genet , vol.64 , Issue.4 , pp. 317-326
    • Forrest, K.1    Simpson, S.A.2    Wilson, B.J.3    van Teijlingen, E.R.4
  • 35
    • 0032755240 scopus 로고    scopus 로고
    • Tailored risk notification for women with a family history of breast cancer
    • Bastani R, Maxwell AE, Bradford C, Das IP, et al. Tailored risk notification for women with a family history of breast cancer. Prev Med 1999;29(5):355-364.
    • (1999) Prev Med , vol.29 , Issue.5 , pp. 355-364
    • Bastani, R.1    Maxwell, A.E.2    Bradford, C.3    Das, I.P.4
  • 37
    • 48249109311 scopus 로고    scopus 로고
    • Bomar PJ, editors. Promoting health in families applying family research and theory to nursing practice, Philadelphia: Saunders
    • Loveland-Cherry CJ, Bomar PJ. Family health promotion and health protection. In: Bomar PJ, editors. Promoting health in families applying family research and theory to nursing practice, Vol. 3. Philadelphia: Saunders, 2004;61-89.
    • (2004) Family health promotion and health protection , vol.3 , pp. 61-89
    • Loveland-Cherry, C.J.1    Bomar, P.J.2
  • 38
    • 0035029160 scopus 로고    scopus 로고
    • Cancer screening among Korean Americans
    • Sarna L, Tae YS, Kim YH, Brecht ML, et al. Cancer screening among Korean Americans. Cancer Pract 2001;9(3):134-140.
    • (2001) Cancer Pract , vol.9 , Issue.3 , pp. 134-140
    • Sarna, L.1    Tae, Y.S.2    Kim, Y.H.3    Brecht, M.L.4
  • 39
    • 25844503774 scopus 로고    scopus 로고
    • Health beliefs of women with and without breast cancer seeking genetic cancer risk assessment
    • MacDonald DJ, Sarna L, Uman GC, Grant M, et al. Health beliefs of women with and without breast cancer seeking genetic cancer risk assessment. Cancer Nurs 2005;28(5):372-379.
    • (2005) Cancer Nurs , vol.28 , Issue.5 , pp. 372-379
    • MacDonald, D.J.1    Sarna, L.2    Uman, G.C.3    Grant, M.4
  • 40
    • 0028208432 scopus 로고
    • Attitudes about genetic testing for breast-ovarian cancer susceptibility
    • Lerman C, Daly M, Masny A, Balshem A. Attitudes about genetic testing for breast-ovarian cancer susceptibility. J Clin Oncol 1994;12:843-850.
    • (1994) J Clin Oncol , vol.12 , pp. 843-850
    • Lerman, C.1    Daly, M.2    Masny, A.3    Balshem, A.4
  • 41
    • 0029015447 scopus 로고
    • Interest in genetic testing among first-degree relatives of breast cancer patients
    • Lerman C, Seay J, Balshem A, Audrain J. Interest in genetic testing among first-degree relatives of breast cancer patients. Am J Med Genet 1995;57(3):385-392.
    • (1995) Am J Med Genet , vol.57 , Issue.3 , pp. 385-392
    • Lerman, C.1    Seay, J.2    Balshem, A.3    Audrain, J.4
  • 42
    • 19244362434 scopus 로고    scopus 로고
    • Attitudes towards cancer predictive testing and transmission of information to the family
    • Julian-Reynier C, Eisinger F, Vennin P, Chabal F, et al. Attitudes towards cancer predictive testing and transmission of information to the family. J Med Genet 1996;33(9):731-736.
    • (1996) J Med Genet , vol.33 , Issue.9 , pp. 731-736
    • Julian-Reynier, C.1    Eisinger, F.2    Vennin, P.3    Chabal, F.4
  • 43
    • 33646828769 scopus 로고    scopus 로고
    • Cancer screening and risk reducing behaviors of women seeking genetic cancer risk assessment for breast and ovarian cancers
    • MacDonald DJ, Sarna L, Uman GC, Grant M, et al. Cancer screening and risk reducing behaviors of women seeking genetic cancer risk assessment for breast and ovarian cancers. Oncol Nurs Forum 2006;33(2):E27-35.
    • (2006) Oncol Nurs Forum , vol.33 , Issue.2
    • MacDonald, D.J.1    Sarna, L.2    Uman, G.C.3    Grant, M.4
  • 45
    • 0036692184 scopus 로고    scopus 로고
    • Women's decisions regarding management of breast cancer risk
    • MacDonald DJ. Women's decisions regarding management of breast cancer risk. Medsurg Nurs 2002;11:183-186.
    • (2002) Medsurg Nurs , vol.11 , pp. 183-186
    • MacDonald, D.J.1
  • 46
    • 9644288112 scopus 로고    scopus 로고
    • Associations between relationship support and psychological reactions of participants and partners to BRCA1 and BRCA2 testing in a clinic-based sample
    • Manne S, Audrain J, Schwartz M, Main D, et al. Associations between relationship support and psychological reactions of participants and partners to BRCA1 and BRCA2 testing in a clinic-based sample. Ann Behav Med 2004;28(3):211-225.
    • (2004) Ann Behav Med , vol.28 , Issue.3 , pp. 211-225
    • Manne, S.1    Audrain, J.2    Schwartz, M.3    Main, D.4
  • 47
    • 2342518843 scopus 로고    scopus 로고
    • Comparison of motivations and concerns for genetic testing in hereditary colorectal and breast cancer syndromes
    • Balmana J, Stoffel EM, Emmons KM, Garber JE, et al. Comparison of motivations and concerns for genetic testing in hereditary colorectal and breast cancer syndromes. J Med Genet 2004;41(4):e44.
    • (2004) J Med Genet , vol.41 , Issue.4
    • Balmana, J.1    Stoffel, E.M.2    Emmons, K.M.3    Garber, J.E.4
  • 48
    • 0036163160 scopus 로고    scopus 로고
    • Cancer patients who experienced diagnostic genetic testing for cancer susceptibility: Reactions and behavior after the disclosure of a positive test result
    • Bonadona V, Saltel P, Desseigne F, Mignotte H, et al. Cancer patients who experienced diagnostic genetic testing for cancer susceptibility: reactions and behavior after the disclosure of a positive test result. Cancer Epidemiol Biomarkers Prev 2002;11(1):97-104.
    • (2002) Cancer Epidemiol Biomarkers Prev , vol.11 , Issue.1 , pp. 97-104
    • Bonadona, V.1    Saltel, P.2    Desseigne, F.3    Mignotte, H.4
  • 49
    • 0036591548 scopus 로고    scopus 로고
    • Voluntary disclosure of BRCA1 mutation test results
    • Smith KR, Zick CD, Mayer RN, Botkin JR. Voluntary disclosure of BRCA1 mutation test results. Genet Test 2002;6(2):89-92.
    • (2002) Genet Test , vol.6 , Issue.2 , pp. 89-92
    • Smith, K.R.1    Zick, C.D.2    Mayer, R.N.3    Botkin, J.R.4


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