Characteristics of deaths occurring in hospitalised children: Changing trends

Journal of Medical Ethics

Volumn 33, Issue 5, 2007, Pages 255-260

  Ramnarayan, Padmanabhan ^a   Craig, Finella ^a   Petros, Andy ^a   Pierce, Christine ^a  

^a GREAT ORMOND STREET HOSPITAL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CAUSE OF DEATH; CHILD; CHILD HOSPITALIZATION; CHRONIC DISEASE; ETHICS; HOSPITAL; HUMAN; INFANT; INTENSIVE CARE; METHODOLOGY; MORTALITY; NEWBORN; PATIENT CARE; PRESCHOOL CHILD; STATISTICS;

ADOLESCENT; ADULT; CAUSE OF DEATH; CHILD; CHILD, HOSPITALIZED; CHILD, PRESCHOOL; CHRONIC DISEASE; HOSPITAL MORTALITY; HOSPITALS, PEDIATRIC; HUMANS; INFANT; INFANT, NEWBORN; INTENSIVE CARE UNITS, PEDIATRIC; PATIENT CARE;

EID: 34248562458     PISSN: 03066800     EISSN: None     Source Type: Journal    
DOI: 10.1136/jme.2005.015768     Document Type: Article

References (39)

1. Office of National Statistics, UK, 2001. www.statistics.gov.uk.
2. National Centre for Health Statistics, USA (2002). http://www.cdc.gov/ nchs/about/major/dvs/mortdata.htm.
3. Feudtner C, Hays RM, Haynes G, et al. Deaths attributed to paediatric complex chronic conditions: national trends and implications for supportive care services. Pediatrics 2001;107:E99.
4. American Academy of Pediatrics, Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics 2000;106:351-7.
5. Thompson BT, Cox PN, Antonelli M, et al. American Thoracic Society; European Respiratory Society; European Society of Intensive Care Medicine; Society of Critical Care Medicine; Societede Reanimation de Longue Francoise. Challenges in end-of-life care in the ICU: statement of the 5th Intemational Consensus Conference in Critical Care, Brussels, Belgium, April 2003:executive summary. Crit Care Med 2004;32:1781-4.
6. Committee on Palliative and end-of-life care for children and their families, Board an Health Sciences Policy, Institute of Medicine. When children die: improving palliative and end-of-life care for children and their families. Washington, DC: National Academies Press, 2003.
7. Goldman A. Recent advances in palliative care. Importance of palliative care for children is being increasingly recognised. BMJ 2001;322:234.
8. Townsend J, Frank AO, Fermont D, et al. Terminal cancer care and patients' preference for place of death: a prospective study. BMJ 1990;301:415-17.
9. McCormick WC, Inui TS, Deyo RA, et al. Long-term care preferences of hospitalised patients with AIDS. J Gen Intern Med 1991;6:524-8.
10. Bedell SE, Pelle D, Maher PL, et al. Do-not-resuscitate orders for critically ill patients in the hospital. How are they used and what is their impact? JAMA 1986;256:233-7.
11. Layson RT, Adelman HM, Wallach PM, et al. Discussions about the use of life-sustaining treatments: a literature review of physicians' and patients' attitudes and practices. End of Life Study Group. J Clin Ethics 1994,5:195-203.
12. Lantos JD, Berger AC, Zucker AR. Do-not-resuscitate orders in a children's hospital. Crit Care Med 1993;21:52-5.
13. Robinson WM, Ravilly S, Berde C, et al. End-of-life care in cystic fibrosis. Pediatrics 1997;100:205-9.
14. McWhinney IR, Bass MJ, Orr V. Factors associated with location of death (home or hospital) of patients referred to a palliative care team. CMAJ 1995;152:361-7.
15. Feudtner C, Silveira MJ, Christakis DA. Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998. Pediatrics 2002;109:656-60.
16. Nitschke R, Meyer WH, Sexauer CL, et al. Care of terminally ill children with cancer. Med Pediatr Oncol 2000;34:268-70.
17. Klopfenstein KJ, Hutchison C, Clark C, et al. Variables influencing end-of-life care in children and adolescents with cancer. J Pediatr Hematol Oncol 2001;23:481-6.
18. Carter BS, Howenstein M, Gilmer MJ, et al. Circumstances surrounding the deaths of hospitalised children: opportunities for pediatric palliative care. Pediatrics 2004;114:e361-6.
19. McCallum DE, Byrne P, Bruera E. How children die in hospital. J Pain Symptom Manage 2000;20:417-23.
20. Van der Wal ME, Renfurm LN, van Vught AJ, et al. Circumstances of dying in hospitalised children. Eur J Pediatr 1999;158:560-5.
21. Feudtner C, Christakis DA, Zimmerman FJ, et al. Characteristics of deaths occuring in children's hospitals: implications for supportive care services. Pediatrics 2002;109:887-93.
22. Mink RB, Pollock MM. Resuscitation and withdrawal of therapy in pediatric intensive care. Pediatrics 1992;89:961-3.
23. Balfour-Lynn IM, Tasker RC. At the coalface - medical ethics in practice. Futility and death in paediatric medical intensive care. J Med Ethics 1996;22:279-81.
24. Martinot A, Grandbastien B, Leteurtre S, et al. No resuscitation orders and withdrawal of therapy in French paediatric intensive care units. Groupe Francophone do Reanimation et d'Urgences Pediatriques. Acta Paediatr 1998;87:769-73.
25. Royal College of Paediatrics and Child Health. Withholding or withdrawing life saving treatment in children: a framework for practice. London, UK: Royal College of Paediatrics and Child Health, 1997.
26. Royal of College Paediatrics and Child Health. Withholding or withdrawing life saving treatment in children: a framework for practice. London, UK: Royal College of Paediatrics and Child Health, 2004.
27. Crain N, Dalton H, Slonim A. End-of-life care for children: bridging the gaps. Crit Care Med 2001;29:695-6.
28. Garros D, RosyChuk PJ, Cox PN. Circumstances surrounding end of life in a pediatric intensive care unit. Pediatrics 2003; 112:e371.
29. Meyer EC, Bums JP, Griffith A, et al. Parental perspectives on end-of-life care in the pediatric intensive care unit. Crit Care Med 2002;30:226-31.
30. McGrath P. Caregivers' insights on the dying trajectory in hematology oncology. Cancer Nurs 2001;24:413-21.
31. Sahler OJ, Frager G, Levetown M, et al. Medical education about end-of-life care in the pediatric setting: principles, challenges, and opportunities. Pediatrics 2000;105(Pt 1):575-84.
32. Meyer EC, Snelling LK, Myren-Manbeck LK. Pediatric intensive care: the parents' experience. AACN Clin Issues 1998,9:64-74.
33. Liben S, Goldman A. Home care for children with life-threatening illness. J Palliat Care 1998;14:33-8.
34. Martinson IM. Improving care of dying children. West J Med 1995;163:258-62.
35. Froger G. Pediatric palliative care: building the model, bridging the gaps. J Palliat Care 1996;12:9-12.
36. Mulhern RK, Lauer ME, Hoffman RG. Death of a child at home or in the hospital: subsequent psychological adjustment of the family. Pediatrics 1983;71:743-7.
37. Craig F, Peters M, Rajapakse D, et al. Emerging role of palliative care in paediatric intensive care unit: 3 years' experience of working in partnership. Arch Dis Child 2006;91(Suppl 1):A83-5.
38. Morrison RS, Siu AL, Leipzig RM, et al. The hard task of improving the quality of care at the end of life. Arch Intern Med 2000;160:743-7.
39. Burns JP, Rushton CH. End-of-life care in the pediatric intensive care unit: research review and recommendations. Crit Care Clin 2004;20:467-85.