Health-related quality of life measured by the Short Form 36 in immune thrombocytopenic purpura: A cross-sectional survey in China

European Journal of Haematology

Volumn 78, Issue 6, 2007, Pages 518-523

  Zhou, Zeping ^a   Yang, Li ^b   Chen, Zhenping ^a   Chen, Xiaoli ^a   Guo, Ye ^a   Wang, Xiaoyan ^a   Dong, Xunwei ^a   Wang, Tingting ^a   Zhang, Lei ^a   Qiu, Zhiyong ^a   Yang, Renchi ^a  

^a INSTITUTE OF HEMATOLOGY AND BLOOD DISEASES HOSPITAL   (China)

^b TIANJIN UNIVERSITY   (China)

Author keywords

China; Health related quality of life; Idiopathic thrombocytopenic purpura; Short Form 36

Indexed keywords

ADOLESCENT; ADULT; AGE DISTRIBUTION; AGED; ARTICLE; BLEEDING; CHINA; CONTROLLED STUDY; COST OF ILLNESS; EMOTIONAL DISORDER; FEAR; FEMALE; HUMAN; IDIOPATHIC THROMBOCYTOPENIC PURPURA; INCOME; MAJOR CLINICAL STUDY; MALE; PAIN; PHYSICAL CAPACITY; PRIORITY JOURNAL; QUALITY OF LIFE; SCORING SYSTEM; SHORT FORM 36; SOCIAL STATUS; STATISTICAL SIGNIFICANCE; THROMBOCYTE COUNT;

ADOLESCENT; ADULT; AGED; CHINA; CROSS-SECTIONAL STUDIES; DATA COLLECTION; FEMALE; HUMANS; MALE; MIDDLE AGED; PURPURA, THROMBOCYTOPENIC; QUALITY OF LIFE;

EID: 34248562392     PISSN: 09024441     EISSN: 16000609     Source Type: Journal    
DOI: 10.1111/j.1600-0609.2007.00844.x     Document Type: Article

References (22)

1. Yang R, Han ZC. Pathogenesis and management of chronic idiopathic thrombocytopenic purpura: an update. Int J Hematol 2000 71 : 18 24.
2. Coopamah MD, Garvey MB, Freedman J, Semple JW. Cellular immune mechanisms in autoimmune thrombocytopenic purpura: an update. Transfus Med Rev 2003 17 : 69 80.
3. Cines DB, Blanchette VS. Immune thrombocytopenic purpura. N Engl J Med 2002 346 : 995 1008.
4. Provan D, Newland AC, Norfolk D, Bolton-Maggs P, Lilleyman J, Greer I, May A, Murphy M, Ouwehand W, Watson S. Guidelines for the investigation and management of idiopathic thrombocytopenic purpura in adults, children and in pregnancy. Br J Haematol 2003 120 : 574 96.
5. Provan D, Moss AJ, Newland AC, Bussel JB. Efficacy of mycophenolate mofetil as single-agent therapy for refractory immune thrombocytopenic purpura. Am J Hematol 2006 81 : 19 25.
6. Wang T, Xu M, Ji L, Han ZC, Yang R. Splenectomy for adult chronic idiopathic thrombocytopenic purpura: experience from a single center in China. Eur J Haematol 2005 75 : 424 9.
7. Bussel JB. Novel approaches to refractory immune thrombocytopenic purpura. Blood Rev 2002 16 : 31 6.
8. Barnard D, Woloski M, Feeny D, et al. Development of disease-specific health-related quality-of-life instruments for children with immune thrombocytopenic purpura and their parents. J Pediatr Hematol Oncol 2003 25 : 56 62.
9. Li L, Wang HM, Shen Y. Chinese SF-36 Health Survey: translation, cultural adaptation, validation, and normalisation. J Epidemiol Community Health 2003 57 : 259 63.
10. Wang T, Zhao H, Ren H, Guo J, Xu M, Yang R, Han ZC. Type 1 and type 2 T-cell profiles in idiopathic thrombocytopenic purpura. Haematologica 2005 90 : 914 23.
11. Koh ET, Leong KP, Tsou IY, Lim VH, Pong LY, Chong SY, Seow A. The reliability, validity and sensitivity to change of the Chinese version of SF-36 in oriental patients with rheumatoid arthritis. Rheumatology (Oxford) 2006 45 : 1023 8.
12. Gomez-Besteiro MI, Santiago-Perez MI, Alonso-Hernandez A, Valdes-Canedo F, Rebollo-Alvarez P. Validity and reliability of the SF-36 questionnaire in patients on the waiting list for a kidney transplant and transplant patients. Am J Nephrol 2004 24 : 346 51.
13. Thumboo J, Fong KY, Machin D, Chan SP, Leon KH, Feng PH, Thio ST, Boe ML. A community-based study of scaling assumptions and construct validity of the English (UK) and Chinese (HK) SF-36 in Singapore. Qual Life Res 2001 10 : 175 88.
14. Failde I, Ramos I. Validity and reliability of the SF-36 Health Survey Questionnaire in patients with coronary artery disease. J Clin Epidemiol 2000 53 : 359 65.
15. Ware JE, Snow KK, Kosinski M, Gandek B. SF-36 Health Survey: Manual and Interpretation Guide. Boston, MA : The Health Institute, New England Medical Center, 1993.
16. Portielje JE, Westendorp RG, Kluin-Nelemans HC, Brand A. Morbidity and mortality in adults with idiopathic thrombocytopenic purpura. Blood 2001 97 : 2549 54.
17. Buchanan GR, Adix L. Outcome measures and treatment endpoints other than platelet count in childhood idiopathic thrombocytopenic purpura. Semin Thromb Hemost 2001 27 : 277 85.
18. Buchanan GR, Adix L. Current challenges in the management of children with idiopathic thrombocytopenic purpura. Pediatr Blood Cancer 2006 47 : 681 4.
19. von Mackensen S, Nilsson C, Jankovic M, Mirra N, D'Angelo E, Borkhardt A, Ljung R. Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL). Pediatr Blood Cancer 2006 47 : 688 91.
20. Szende A, Schramm W, Flood E, Larson P, Gorina E, Rentz AM, Snyder L. Health-related quality of life assessment in adult haemophilia patients: a systematic review and evaluation of instruments. Haemophilia 2003 9 : 678 87.
21. Posthouwer D, Plug I, van der Bom JG, Fischer K, Rosendaal FR, Mauser-Bunschoten EP. Hepatitis C and health-related quality of life among patients with hemophilia. Haematologica 2005 90 : 846 50.
22. Cohen YC, Djulbegovic B, Shamai-Lubovitz O, Mozes B. The bleeding risk and natural history of idiopathic thrombocytopenic purpura in patients with persistent low platelet counts. Arch Intern Med 2000 160 : 1630 8.