Improving on-line information for potential living kidney donors

Kidney International

Volumn 71, Issue 10, 2007, Pages 1062-1070

  Moody, E M ^a   Clemens, K K ^a   Storsley, L ^b   Waterman, A ^c   Parikh, C R ^d   Garg, A X ^a,e  

^a UNIVERSITY OF WESTERN ONTARIO   (Canada)

^b UNIVERSITY OF MANITOBA   (Canada)

^c WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d YALE UNIVERSITY   (United States)

^e LONDON HEALTH SCIENCES CENTRE   (Canada)

Author keywords

Health information; Internet; Living kidney donation; Worldwide web

Indexed keywords

ARTICLE; GRAFT RECIPIENT; HEALTH EDUCATION; HUMAN; INTERNET; KIDNEY DONOR; LIVING DONOR; MEDICAL INFORMATICS; MEDICAL INFORMATION; PRIORITY JOURNAL; RISK ASSESSMENT;

HUMANS; INFORMATION DISSEMINATION; INTERNET; KIDNEY TRANSPLANTATION; LIVING DONORS; TISSUE AND ORGAN PROCUREMENT;

EID: 34248392610     PISSN: 00852538     EISSN: 15231755     Source Type: Journal    
DOI: 10.1038/sj.ki.5002168     Document Type: Article

References (49)

1. Terasaki PI, Cecka JM, Gjertson DW, Takemoto S. High survival rates of kidney transplants from spousal and living unrelated donors. N Engl J Med 1995; 333: 333-336.
2. Terasaki PI, Cecka JM, Gjertson DW et al. Risk rate and long-term kidney transplant survival. In: Cecka JM, Terasaki PI (eds). Clinical transplants. LA: UCLA Tissue Typing Laboratory, 1996, pp 443-458.
3. 2001 Report, Volume 1. Dialysis and Renal Transplantation, Canadian Organ Replacement Register, Canadian Institute for Health Information, Ottawa, Ontario, 2001.
4. Waterman AD, Stanley SL, Covelli T et al. Living donation decision making: recipients' concerns and educational needs. Prog Transplant 2006; 16: 17-24.
5. Pradel FG, Mullins CD, Bartlett ST. Exploring donors' and recipients' attitudes about living donor kidney transplantation. Prog Transplant 2003; 13: 203-210.
6. Cabrer C, Oppenhaimer F, Manyalich M et al. The living kidney donation process: the donor perspective. Transplant Proc 2003; 35: 1631-1632.
7. Hiller J, Sroka M, Weber R et al. Identifying donor concerns to increase live organ donation. J Transpl Coord 1998; 8: 51-54.
8. Waterman AD, Covelli T, Caisley L et al. Potential living kidney donors' health education use and comfort with donation. Prog Transplant 2004; 14: 233-240.
9. Fox S, Rainie L, Pew Internet & American Life Project. Vital Decisions. How Internet users decide what information to trust when they or their loved ones are sick, http://www pewinternet org/, 2002.
10. HON code of conduct (HONcode) for medical and health Web sites, http://www.hon.ch/, 3 February 2007.
11. Berland GK, Elliott MN, Morales LS et al. Health information on the internet: accessibility, quality, and readability in English and Spanish. JAMA 2001; 285: 2612-2621.
12. Dickerson S, Reinhart AM, Feeley TH et al. Patient internet use for health information at three urban primary care clinics. J Am Med Inform Assoc 2004; 11: 499-504.
13. Waterman AD, Stanley SL, Barrett AC et al. Renal patients' use of the internet to learn about transplantation. Transplantation 2006; 82: 594.
14. Calderon JL, Zadshir A, Norris K. Structure and Content of Chronic Kidney Disease Information on the World Wide Web: Barriers to public understanding of a pandemic. Nephrol News Issues 2004; 18: 76, 78-79, 81-84.
15. Birkeland SA. Kidney donation - all gifts have a price. Transplantation 2006; 81: 1259-1260.
16. Boudville N, Prasad GV, Knoll G et al. Meta-analysis: risk for hypertension in living kidney donors. Ann Intern Med 2006; 145: 185-196.
17. Delmonico F, Council of the Transplantation Society. A report of the Amsterdam Forum on the Care of the Live Kidney Donor: Data and Medical Guidelines. Transplantation 2005; 79: S53-S66.
18. Ellison MD, McBride MA, Taranto SE et al. Living kidney donors in need of kidney transplants: a report from the organ procurement and transplantation network. Transplantation 2002; 74: 1349-1351.
19. Ommen ES, Winston JA, Murphy B. Medical risks in living kidney donors: absence of proof Is not proof of absence. Clin J Am Soc Nephrol 2006; 1: 885-895.
20. Estey A, Musseau A, Keehn L. Patient's understanding of health information: a multihospital comparison. Patient Education and Counseling 1994; 24: 73-78.
21. Klarenbach S, Garg AX, Vlaicu S. Living organ donors face financial barriers: a national reimbursement policy is needed. Can Med Am J 2006; 174: 797-798.
22. Sullivan D. comScore Media Metrix search engine ratings, http://searchenginewatch.com/, 2006 15 May 2006.
23. Brooks N. The Atlas Rank Report. How search engine rank impacts traffic, http://www.atlassolutions.com/, 2006 5-16-2006.
24. Sacchetti P, Zvara P, Plante MK. The Internet and patient education - resources and their reliability: focus on a select urologic topic. Urology 1999; 53: 1117-1120.
25. Hotchkiss G. Inside the searcher's mind. It's a jungle in here, http://searchenginewatch.com/, 2004 16 May 2006.
26. Widexl.com Internet solutions. Link popularity check, http://www.widexl.com/, 2006 2 May 2006.
27. Kincaid J, Fishburne RPJ, Rogers RL, Chissom BS. Derivation of new readability formulas (Automated Readability Index, Fog Count and Flesch Reading Ease Formula) for Navy enlisted personnel. Research Branch Report 8-75 Millington TN: Naval Technical Training US Naval Air Station, Memphis 8-75 Springfield, VA: National Technical Information Service, 1975.
28. Flesch R. A new readability yardstick. J Appl Psychol 1948; 32: 221-251.
29. Friedman DB, Hoffman-Goetz L. A systematic review of readability and comprehension instruments used for print and web-based cancer information. Health Educ Behav 2006; 33: 352-373.
30. McCall WA, Crabbs LM. Standard test lessons in reading. New York: Teachers College Press, 1961.
31. Charnock D. The DISCERN Handbook. Abingdon, Oxford: Radcliffe Medical Press, 1998.
32. Charnock D, Shepperd S, Needham G, Gann R. DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. J Epidemiol Community Health 1999; 53: 105-111.
33. Whiting JF, Kiberd B, Kalo Z et al. Cost-effectiveness of organ donation: evaluating investment into donor action and other donor initiatives. Am J Transplant 2004; 4: 569-573.
34. Tarantino A. Why should we implement living donation in renal transplantation? Clin Nephrol 2000; 53 (Suppl):55-56.
35. Davis CL, Delmonico FL. Living-donor kidney transplantation: a review of the current practices for the live donor. J Am Soc Nephrol 2005; 16: 2098-2110.
36. Dasgupta P, Challacombe B, Compton F, Khan S. A systematic review of hand-assisted laparoscopic live donor nephrectomy. Int J Clin Pract 2004; 58: 474-478.
37. Lennerling A, Blohme I, Ostraat O et al. Laparoscopic or open surgery for living donor nephrectomy. Nephrol Dial Transplant 2001; 16: 383-386.
38. Rocca X, Espinoza O, Hidalgo F, Gonzalez F. Laparoscopic nephrectomy: safe and comfortable surgical alternative for living donors and for good results of graft function. Transplant Proc 2005; 37: 3349-3350.
39. Matas AJ, Bartlett ST, Leichtman AB, Delmonico FL. Morbidity and mortality after living kidney donation, 1999-2001: survey of United States transplant centers. Am J Transplant 2003; 3: 830-834.
40. Johnson EM, Remucal MJ, Gillingham KJ et al. Complications and risks of living donor nephrectomy. Transplantation 1997; 64: 1124-1128.
41. Peters TG, Repper SM, Vincent MC et al. One hundred consecutive living kidney donors: modern issues and outcomes. Clin Transplant 16; 2002(Suppl 7): 62-68.
42. Garg AX, Muirhead N, Knoll G et al. Proteinuria and reduced kidney function in living kidney donors: a systematic review, meta-analysis and meta-regression. Kidney Int 2006; 70: 1801-1810.
43. Clemens KK, Thiessen-Philbrook H, Brown JB et al. Psychosocial health of living kidney donors: a systematic review. Am J Transplant 2006; 6: 2965-2977.
44. Zand MS. Immunosuppression and immune monitoring after renal transplantation. Semin Dial 2005; 18: 511-519.
45. Choy BY, Chan TM, Lai KN. Recurrent glomerulonephritis after kidney transplantation. Am J Transplant. 2006; 6: 2535-2542.
46. Ogutmen B, Yildirim A, Sever MS et al. Health-related quality of life after kidney transplantation in comparison intermittent hemodialysis, peritoneal dialysis, and normal controls. Transplant Proc 2006; 38: 419-421.
47. Clarke KS, Klarenbach S, Vlaicu S et al. The direct and indirect economic costs incurred by living kidney donors-a systematic review. Nephrol Dial Transplant 2006; 21: 1952-1960.
48. Yang RC, Thiessen-Philbrook H, Klarenbach S et al. Insurability of living kidney donors: a systematic review. Under review 2006.
49. Abecassis M, Adams M, Adams P et al. Consensus statement on the live organ donor. JAMA 2000; 284: 2919-2926.