Evaluation of a consumer-personal assistant training project

Disability and Rehabilitation

Volumn 29, Issue 5, 2007, Pages 403-410

  Schopp, Laura H ^a   Clark, Mary J ^a   Hagglund, Kristofer J ^a   Mokelke, Emily K ^a   Stout, Brian J ^b   Mazurek, Micah O ^a  

^a UNIVERSITY OF MISSOURI   (United States)

^b University of Missouri   (United States)

Author keywords

Disabled persons; Education; Personal assistance services; Personal assistants; Spinal cord injuries

Indexed keywords

ADULT; AGED; ARTICLE; CEREBRAL PALSY; CONSUMER; DISABILITY; FEMALE; HEALTH BEHAVIOR; HEALTH EDUCATION; HEALTH PROGRAM; HUMAN; INTERVENTION STUDY; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MULTIPLE SCLEROSIS; NEUROLOGIC DISEASE; PRIORITY JOURNAL; SPINAL CORD DISEASE; SPINAL CORD INJURY; WELLBEING; DISABLED PERSON; EDUCATION; EVALUATION; HEALTH CARE PERSONNEL; HEALTH CARE QUALITY; HEALTH SERVICE; HOME CARE; HUMAN RELATION; MIDDLE AGED; ORGANIZATION AND MANAGEMENT;

ADULT; AGED; CONSUMER SATISFACTION; DISABLED PERSONS; FEMALE; HEALTH BEHAVIOR; HOME HEALTH AIDES; HOMEMAKER SERVICES; HUMANS; INTERPERSONAL RELATIONS; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; PERSONAL HEALTH SERVICES; PROGRAM EVALUATION; SPINAL CORD INJURIES;

EID: 34247887753     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.1080/09638280600835903     Document Type: Article

References (31)

1. Batavia, A. I., DeJong, G. and McNew, L. B. (1991) Toward a national personal assistance program: The independent living model of long-term care for persons with disabilities. J Health Politics, Policy Law, 16:3, pp. 523-545.
2. Nosek, M. A. (1991) Relationships between personal assistance and productivity among Japanese adults with severe physical disabilities. Rehab Counsel Bull, 35:2, pp. 105-118.
3. National Institute on Consumer-Directed Long-Term Services (1996) Principles of consumer-directed home and community-based services, The National Council on the Aging, Inc., Washington, DC
4. Glendinning, C. H., Jacob, S., Rummery, K. and Tyrer, J. (2000) New kinds of care, new kinds of relationships: How purchasing services affects relationships in giving and receiving personal assistance. Health Soc Care Community, 8:3, pp. 201-211.
5. Hagglund, K. J., Clark, M. J., Farmer, J. E. and Sherman, A. K. (2004) A comparison of consumer-directed and agency-directed personal assistance service programs. Disabil Rehab, 26:9, pp. 518-527.
6. Kennedy, J. (2001) Unmet and undermet need for activities of daily living and instrumental activities of daily living assistance among adults with disabilities. Med Care, 29:12, pp. 1305-1312.
7. Benjamin, A. E., Matthias, R. and Franke, T. M. (2000) Comparing consumer-direct and agency models for providing supportive services at home. Health Serv Res, 35:1, pp. 351-366.
8. Doty, P., Kasper, J. and Litvak, S. (1996) Consumer-direct models of personal care: Lessons from Medicaid. Milbank Quart, 74:3, pp. 377-409.
9. Mattson-Prince, J. (1997) A rational approach to long-term care: Comparing the independent living model with agency-based care for persons with high spinal cord injuries. Spinal Cord, 35, pp. 326-331.
10. DeVivo, M. J., Kartus, P. L. and Stover, S. L. (1989) Cause of death for patients with spinal cord injuries. Arch Internal Med, 149, pp. 1761-1776.
11. Anson, C. A. and Shepherd, C. (1996) Incidence of secondary complications in spinal cord injury. Int J Rehab Res, 19, p. 55.
12. Johnson, R. L., Gerhart, K. A., McCray, J., Menconi, J. C. and Whiteneck, G. G. (1998) Secondary conditions following spinal cord injury in a population based sample. Spinal Cord Injury Nursing, 36, pp. 45-50.
13. Johnson, R. L., Brooks, C. A. and Whiteneck, G. G. (1996) Cost of traumatic spinal cord injury in a population-based registry. Spinal Cord, 34, pp. 470-480.
14. Hagglund, K. J., Clark, M. J., Schopp, L. H., Sherman, A. K. and Acuff, M. E. (2005) Consumer-assistant education to reduce the occurrence of urinary tract infections among persons with spinal cord injury. Top Spinal Cord Rehab, 10:3, pp. 53-62.
15. Wyatt, D. A. and White, G. W. (2000) Reducing secondary conditions for spinal-cord-injured patients: Pilot testing a risk assessment and feedback instrument. Top Spinal Cord Injury Rehab, 6:4, pp. 9-22.
16. Barber, D. B., Woodard, F. L., Rogers, S. J., Able, P. D. and Able, A. C. (1999) The efficacy of nursing education as an intervention in the treatment of recurrent urinary tract infections in individuals with spinal cord injury. Spinal Cord Injury Nursing, 16:2, pp. 54-56.
17. Anderson, T. P., Newman, E., Dryja, R. and Price, M. (1983) Urinary tract care: Improvement through patient education. Arch Phys Med Rehab, 64:7, pp. 314-316.
18. Clark, M. J., Hagglund, K. J. and Stout, B. J. (2004) Job experiences of personal assistants employed in a consumer-directed personal assistance program. Rehab Nursing, 29:5, pp. 174-179.
19. Benjamin, A. E., Matthias, R. E., Franke, T., Stoddard, S. and Kraus, L. (1998) Comparing client-directed and agency models for providing supportive services at home, UCLA, Angeles, CA
20. Matsuda, S. J., Clark, M. J., Schopp, L. H., Hagglund, K. J. and Mokelke, E. K. (2005) Barriers and satisfaction associated with personal assistance services: Results of consumer and personal assistant focus groups. OTJR: Occupation, Participation and Health, 25:2
21. Clarke, V. A., Lovegrove, H., Williams, A. and Machperson, M. (2000) Unrealistic optimism and the health belief model. J Behavioral Med, 23, pp. 367-376.
22. Adams, J. and Scott, J. (2000) Predicting medication adherence in severe mental disorders. Acta Psychiatrica Scand, 101, pp. 119-124.
23. Maiman, L. A. and Becker, M. H. (1974) The health belief model: Origins and correlates. Health Educ Monographs, 2:4, pp. 336-353.
24. Beauchamp, T. L. and McCullough, L. B. (1984) Medical ethics. The moral responsibilities of physicians, Prentice-Hall, Inc., Englewood Cliffs, NJ
25. Paraprofessional Health Care Institute (2003) The personal assistance services and direct-support workforce: A literature review. Research on the adequacy and availability of personal assistance services for persons of all ages with a disability or long-term illness, Centers for Medicare and Medicaid Services
26. Hauber, R. P., Vesmarovich, S. and Dufour, L. (2002) The use of computers and the Internet as a source of health information for people with disabilities. Rehab Nursing, 27:4, pp. 142-145.
27. Smith, S. P. (2002) Internet visits: A new approach to chronic disease management. J Med Pract Manage, 17:6, pp. 330-332.
28. Schopp, L. H., Johnstone, B. R. and Merveille, O. C. (2000) Multidimensional telecare strategies for rural residents with brain injury. J Telemed Telecare, 6, pp. S146-S149.
29. Cabrera, R Herruzo, Arrazola, A Leturia, Alcaide, M J Vizcaino, Arjona, M Fernandez and Calero, J Rey (1994) Analytic epidemiology of clinical urinary tract infection in spinal cord injury. Eur J Epidemiol, 10, pp. 23-27.
30. Waites, K. B., Canupp, K. C. and DeVivo, M. J. (1993) Epidemiology and risk factors for urinary tract infection following spinal cord injury. Arch Phys Med Rehab, 74, pp. 691-695.
31. Noreau, L., Proulx, P., Gagnon, L., Drolet, M. and Laramee, M. T. (2000) Secondary impairments after spinal cord injury: A population-based study. Am J Phys Med Rehab, 79, pp. 526-535.