Development of structured support groups for HIV-positive women in South Africa

Sahara J

Volumn 2, Issue 3, 2005, Pages 333-343

  Visser, Maretha ^a   Mundell, Jonathan ^a   De Villiers, Annelize ^a   Sikkema, Kathleen ^b   Jeffery, Bridget ^a  

^a UNIVERSITY OF PRETORIA   (South Africa)

^b YALE UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

HIV positive women; South Africa; Support groups

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; FEMALE; HEALTH CARE QUALITY; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERVENTION STUDY; NEEDS ASSESSMENT; ORGANIZATION AND MANAGEMENT; PROGRAM DEVELOPMENT; PSYCHOLOGICAL ASPECT; SELF HELP; SOCIAL PSYCHOLOGY; SOUTH AFRICA;

ADOLESCENT; ADULT; FEMALE; HIV INFECTIONS; HUMANS; INTERVENTION STUDIES; NEEDS ASSESSMENT; PREJUDICE; PROGRAM DEVELOPMENT; PROGRAM EVALUATION; SELF-HELP GROUPS; SOUTH AFRICA;

EID: 34247667882     PISSN: 17290376     EISSN: 18134424     Source Type: Journal    
DOI: 10.1080/17290376.2005.9724858     Document Type: Article

References (53)

1. Amon, J.J. (2002). Preventing HIV infections in children and adolescents in sub-Saharan Africa through integrated care and support activities: a review of the literature. African Journal of AIDS Research, 1, 143-149.
2. Angelino, A.F. & Treisman, G.J. (2001). Management of psychiatric disorders in patients infected with human immunodeficiency virus. Clinical Infectious Disorder, 33, 847-856.
3. Bhana, A. (1999). Participatory action research: a practical guide for realistic radicals. In: M.Terre Blance & K. Durrheim (Eds.), Research in practice, applied methods for social sciences (pp. 227-238). Cape Town: University of Cape Town Press.
4. Blaney, N.T., Fernandez, M.I., Ethier, K.A., Wilson, T.E., Walter, E. & Koenig, L.J. (2004). Psychosocial and behavioural correlates of depression among HIV-infected pregnant women. AIDS Patient Care and STD's, 18 (7), 405-415.
5. Bond, V., Chase, E. & Aggleton, P. (2002). Stigma, HIV/AIDS and prevention of mother-to-child transmission in Zambia. Evaluation and programme planning, 25(4), 347-356.
6. Capra, F. (1997). The Web of Life, a new synthesis of mind and matter. London: Flamingo.
7. Chase, E. & Aggleton, P. (2001). Stigma, HIV/AIDS and prevention of mother-to-child transmission. A pilot study in Zambia, India, Ukraine and Burkina Faso.Thomas Coram Research Unit, Institute of Education, University of London.
8. Coward, D.D. (1995).The lived experience of self-transcendence in women with AIDS. Journal of Obstetrics, Gynecological and Neonatal Nursing, 24, 314-318.
9. Crocker, J., Major, B. & Steele, C. (1998). Social stigma. In: D.T. Gilbert & S.T. Fiske (Eds), The handbook of Social Psychology (pp. 504–553). Boston: McGraw-Hill.
10. Department of Health (2005). National HIV and syphilis antenatal sero-prevalence survey in South Africa, 2004. Pretoria: Directorate Health Systems Research and Epidemiology, Department of Health.
11. Department of Social Development (2002). HIV/AIDS case studies in South Africa Volume 1. Pretoria: Chief Directorate Population and Development, Department of Social Development.
12. El-Sadr, W. (2001). Challenges in proving treatment for woman. Paper at the third International Conference on Global Strategies for the Prevention of HIV Transmission from Mothers to Infants, Uganda, Kampala, September 9-13.
13. Forehand, R., Steele, R., Armistead, L., Morse, E., Simon, P. & Clark, L. (1998).The Family Health Project: Psychosocial adjustment of children whose mothers are HIV infected. Journal of Consulting and Clinical Psychology, 66, 513-520.
14. Gielen, A.C., Mcdonnel, K.A., Wu, A.W., O’Campo, P. & Faden, R. (2001). Quality of life among women living with HIV: the importance of violence, social support and self care behaviors. Social Science and Medicine, 52, 315-322.
15. Hanson, B.G. (1995). General systems theory beginning with wholes. Toronto: Taylor & Francis.
16. Hodgkinson, C.A. & Maree, J.G. (1998). Action research: some guidelines for first-time researchers in education. Journal of Education and Training, 19(2), 51-65.
17. Hollingsworth, S., Nofke, S.E., Walker, M. & Winter, R. (1997). Epilogue: What have we learned from these cases on action research and educational reform? In: S. Hollingsworth (Ed.), International Action Research: A casebook for educational reform (pp. 312-317). London: The Falmer Press.
18. Holzemer, W.L. & Uys, L.R. (2004). Managing AIDS stigma. Journal of Social Aspects of HIV/AIDS, 1(3), 165-174.
19. Hudson, A.L., Lee, K.A., Miramontes, H. & Portillo, C.J. (2001). Social interactions, perceived support and level of distress in HIV-positive women. Journal of the Association of Nurses in AIDS Care, 12(4), 68-76.
20. Ickovics, J.R., Hamburger, M.E., Vlahov, D., Schoenbaum, E.E., Schuman, P., Boland, R.J. & Moore, J. (2001). Mortality, CD4 cell count decline, and depressive symptoms among HIV-Seropositive women. Longitudinal analysis from the HIV Epidemiology Research Study. Journal of the American Medical Association, 285 (11), 1466-1473.
21. Jackson, M.H. (1992). Health insurance: The battle over limits on coverage. In: N.D. Hunter & W.B. Rubenstein (Eds), AIDS agenda: Emerging issues in civil rights (pp. 147-180). New York (NJ): New Press.
22. Jackson, M.H. & Hunter, N.D. (1992).The very fabric of health care: The duty of health care providers to treat people infected by HIV. In: N.D. Hunter & W.B. Rubenstein (Eds), AIDS agenda: Emerging issues in civil rights (pp. 123-146). New York (NJ): New Press.
23. Kalichman, S.C. & Sikkema, K.J. (1996). People living with HIV infection who attend and do not attend support groups: a pilot study of needs characteristics and experiences. AIDS Care, 8(5).
24. Kalichman, S.C., DiMarco, M., Austin, J., Luke, W. & DiFonzo, K. (2003). Stress, social support and HIV-status disclosure to family and friends among HIV-positive men and women. Journal of Behavioral Medicine, 26(4), 315-332.
25. Klein, K., Armistead, L., Devine, D., Kotchick, B., Forehand, R., Morse, E., Simon, P., Stock, M. & Clark, L. (2000). Socio-emotional support in African American families coping with maternal HIV: An examination of mothers’ and children’s psychosocial adjustment. Behaviour Therapy, 31, 1-26.
26. Kubler-Ross, E. (1989). On death and dying. London: Tavistock/Routledge.
27. Larazus, R.S. & Folkman, S. (1984). Stress, appraisal and coping. NewYork: Springer.
28. Leserman, J., Petitto, J.M. & Perkins, D.O. (1997). Severe stress, depressive symptoms and changes in lymphocyte subsets in human immunodeficiency virus-infected men. Archives of General Psychiatry, 54 (3), 279-285.
29. Lie, G. & Biswalo, P. (1994). Perceptions of the appropriate HIV/AIDS counselor in Arusha and Kilimanjaro regions of Tanzania: Implications for hospital counseling. AIDS Care, 6(2), 139-151.
30. Lyketsos, C.G., Hoover, D.R., Guccione, M. & Dew, M.A. (1996). Changes in depressive symptoms as AIDS develops. American Journal of Psychiatry, 153, 1430-1437.
31. Manning, A. (2000). HIV/AIDS programmes should focus on improved access. British Medical Journal, 321, 963.
32. McNiff, J. (1988). Action research: Principles and practice. Hong Kong: MacMillan Education.
33. Miles, M.B. & Huberman, A.M. (1994). Qualitative data analysis, an expanded sourcebook (2nd Ed.). Thousand Oaks: Sage.
34. Mellins, C., Ehrhardt, A., Rapkin, B. & Havens, J. (2000). Psychosocial factors associated with adaptation in HIV-infected mothers. AIDS and Behaviour, 4, 317-328.
35. Miller, G.E. & Cole, S.W. (1998). Social relationships and the progression of human immunodeficiency virus infection: A review of evidence and possible underlying mechanisms. Annual Behavioural Medicine, 18(1), 49-57.
36. Moskowitz, J.T. (2003). Positive affect predicts lower risk of AIDS mortality. Psychosomatic Medicine, 65, 620-626.
37. National Association of People with AIDS (1992). HIV in America: A profile of the challenges facing Americans living with HIV. Washington, DC: Author.
38. Page-Shafer, K., Delorenze, G.N. & Satariano, W. (1996). Comorbidity and survival in HIV-infected men in the San Francisco Men’s Health Survey. Annals of Epidemiology, 6(5), 420-430.
39. Parker, R., Aggleton, P., Attawell, K., Pulerwits, J. & Brown, L. (2002). HIV/AIDS-related stigma and discrimination: A conceptual framework and an agenda for action. Horizons Programme. New York: The Population Council.
40. Phillips, L.J. (1998). Anxiety, depression and HIV. Department of Psychiatry, University of Alberta Hospital, Edmonton.
41. Roth, N. L. & Nelson, M. S. (1997). HIV diagnosis rituals and identity narratives. AIDS Care, 9, 161–179.
42. Serovich, J.M., Kimberley, J.A., Mosack, K.E. & Lewis, T.L. (2001).The role of family and friend social support in reducing emotional distress among HIV-positive women. AIDS Care, 13(3), 335-341.
43. Silver, E.J., Bauman, L.J., Camacho, S. & Hudis, J. (2003). Factors associated with psychological distress in urban mothers with late-stage HIV/AIDS. AIDS and Behaviour, 7(4), 421-431.
44. Skinner, D. & Mfecane, S. (2004). Stigma, discrimination and the implications for people living with HIV/AIDS in South Africa. Journal of Social Aspects of HIV/AIDS, 1(3), 157-164.
45. Smith, C.L. (2004).The memory book-and its close relations. AIDS Bulletin, July, 23-26.
46. Spirig, R.N. (1998). Support groups for people living with HIV/AIDS: A review of the literature. Journal of the Association of Nurses in AIDS Care, 9(4), 43-55.
47. Summers, J., Robinson, R. C. L., Zisook, S., Atkinson, J.H., McCutchan, E., Deutsch, R., Patterson, T. & Grant, I. (2000).The influence of HIV-related support groups in survival in women who lived with HIV: A pilot study. Psychosomatics, 41, 262-268.
48. Turner-Cobb, J.M., Gore-Felton, C., Marouf, F., Koopman, C., Kim, P., Israelski, D. & Spiegel, D. (2002). Coping, social support and attachment style as psychosocial correlates of adjustment in men and women with HIV/AIDS. Journal of Behavioural Medicine, 25(4), 337-353.
49. UNAIDS/WHO (2002). Fighting HIV-related intolerance: Exposing the links between racism, stigma and discrimination. Geneva: UNAIDS/WHO.
50. Walker, M. (1998). Action research and participatory research in South Africa. In: J. Mouton, J. Muller, P. Franks & T. Sono (Eds), Theory and method in South African human sciences research: Advances and innovations (pp. 239-253). Pretoria: Human Sciences Research Council.
51. WHO/UNAIDS (2000). Draft working document: Key elements in HIV/AIDS care and support. Geneva: UNAIDS.
52. Yalom, I.D. (1995). The theory and practice of group psychotherapy. NewYork: Basic Books.
53. Zuniga, J. (1999). Out of Africa: Uganda and UNAIDS advance a bold experiment. Journal of the International Association of Physicians in AIDS Care, 5(10), 48-60.