Components of coordinated care:A new instrument to assess caregivers' and care recipients' experiences with networks of dementia care

Dementia

Volumn 5, Issue 1, 2006, Pages 51-66

  Cockerill, Rhonda ^a   Jaglal, Susan ^a   Charles, Louise Lemieux ^a   Chambers, Larry ^b   Brazil, Kevin ^c   Cohen, Carole ^a  

^a UNIVERSITY OF TORONTO   (Canada)

^b UNIVERSITY OF OTTAWA   (Canada)

^c MCMASTER UNIVERSITY   (Canada)

Author keywords

continuity of care; effectiveness; program evaluation

Indexed keywords

EID: 34247635946     PISSN: 14713012     EISSN: None     Source Type: Journal    
DOI: 10.1177/1471301206059754     Document Type: Article

References (45)

1. Alter, C. (1988). The changing structure of elderly service delivery systems. The Gerontologist, 28(1), 91–98.
2. Alter, C., & Hage, J. (1993). Organizations working together. London: Sage.
3. Aneshensel, C., Pearlin, L., Mullan, J., Zarit, S., & Whitlach, C. (1995). Profiles in caregiving: The unexpected career. San Diego, CA: Academic Press.
4. Benson, J., & Nasser, F. (1997). On the use of factor analysis as a research tool. Journal of Vocational Educational Research, 23(1), 13–33.
5. Bergman, H., Beland, F., Lebel, P., Contandriopoulos, A., Tousignant, P., Brunelle, Y., et al. (1997). Care for Canada's frail elderly population: Fragmentation or integration? Canadian Medical Association Journal, 157(8), 1116–1121.
6. Brampton, S. (2000). Commentary: A patient's perspective of continuity. British Medical Journal, 321, 735–736.
7. Campbell, S., Roland, M., & Buetow, S. (2000). Defining quality of care. Social Science and Medicine, 51(11), 1611–1625.
8. Canadian Consensus Conference on Dementia. (1999). The recognition, assessment and management of dementing disorders. Canadian Medical Association Journal, 160(12,supplement), S1–S20.
9. Charles, C., Gauld, M., Chambers, L.W., O'Brien, B., Haynes, R.B., & Labelle, R. (1994). How was your hospital stay? Patients report about their care in Canadian hospitals. Canadian Medical Association Journal, 150(11), 1813–1822.
10. Cleary, P., Edgman-Levitan, S., Roberts, M., Moloney, T., McMullen, W., Walker, J., et al. (1991). Patients evaluate their hospital care: A national survey. Health Affairs, 10(4), 254–267.
11. Cramer, J., & Spilker, B. (1998). Quality of life and pharmacoeconomics. Philadelphia, PA: Lippincott-Raven.
12. Denton, M. (1999). The linkages between informal and formal care of the elderly. Canadian Journal on Aging, 16, 30–50.
13. Donaldson, M. (2001). Continuity of care: A reconceptualization. Medical Care Research Review, 58(3), 255–290.
14. Ejlertsson, G., & Berg, S. (1984). Continuity of care measures. An analytic and empirical comparison. Medical Care, 22, 231–239.
15. Evashwick, C. (1989). Creating the continuum of care. Health Matrix, 7(1), 30–39.
16. George, L. (1987). Easing caregiver burden: The role of informal andformal supports. In R. Ward & S. Tobin (Eds.), Health in aging: Sociological issues and policydirections(pp. 121–139). New York: Springer.
17. Harris, P. (2002). The Person with Alzheimer's disease:Pathways to the experience. Baltimore, MD: The Johns Hopkins University Press.
18. Health Services Restructuring Commission. (1995). Report of the Ontario Health Care RestructuringCommission. Toronto: Government of Ontario Press.
19. Hennen, B.K. (1975). Continuity of care in family practice. Part 1: Dimensions of continuity. Journal of Family Practice, 2(5), 371–372.
20. Keating, N., Fast, J., Frederick, J., Cranswick, K., & Perrier, C. (1999). Eldercare in Canada: Context, content andconsequences. Ottawa: Statistics Canada.
21. Kim, J., & Mueller, C. (1978) Factor analysis: Statistical methods and practicalissues. Beverly Hills, CA: Sage.
22. Levesque, L. (1993). Quebec home care services: A program at the localcommunity level. In S. Zariet, L. Pearlin, & K. Warner Schiae (Eds.), Caregiving systems: Formal and informal helpers(pp.217–232). Hillsdale, NJ: Lawrence Erlbaum.
23. Lou, W. (2000). A new measure for continuity of care: The Alpha index. Health Services and Outcomes Research Methodology, 1, 277–289.
24. Montgomery, R., & Kosloski, K. (2000). Family caregiving: Change, continuity anddiversity. In M. Lawton & R. Rubestein (Eds.), Interventions in dementia care: Towards improving quality oflife(pp. 143–171). New York: Springer.
25. Mullan, J. (1993). Barriers to the use of formal services amongAlzheimer's caregivers. In S. Zariet, L. Pearlin, & K. Warner Schiae (Eds.), Caregiving systems: Formal and informal helpers(pp.241–259). Hillsdale, NJ: Lawrence Erlbaum.
26. Ory, M. (2000). Dementia caregiving at the end of the 20thcentury. In M. Lawton & R. Rubenstein (Eds.), Interventions in Dementia Care: Towards Improving Quality ofLife (pp. 173–179). New York: Springer.
27. Patterson, C.J., Gauthier, S., Bergman, H., Cohen, C., Feightner, J., Feldman, H., et al. (1999). Canadian consensus conference on dementia: A physician's guide tousing the recommendations. Canadian Medical Association Journal, 160(12), 1738–1742.
28. Provan, K.G., & Sebastian. J.G. (1998). Networks within networks: Service link overlap, organizational cliques, andnetwork effectiveness. Academy of Management Journal, 41(4), 453–463.
29. Reid, R., Haggerty, J., & McKendry, R. (2002). Defusing the confusion: Concepts and measures ofcontinuity of healthcare. Report prepared for the Canadian HealthServices Research Foundation, the Canadian Institute for Health Information, andthe Advisory Committee on Health Services of the Federal/Provincial/TerritorialDeputy Ministers of Health.
30. Rogers, J., & Curtis, P. (1980). The concept and measurement of continuity in primary care. American Journal of Public Health, 70, 122–127.
31. Romanow, R. (2002). Building on values: The future of health care inCanada. (Cat. No. CP32–85/2002E-IN). Saskatoon: Government of Canada.
32. Sabat, S. (2001). The experience of Alzheimer's disease: Lifethrough a tangled veil. Malden, MA: Blackwell.
33. Shortell, S.M. (1976). Continuity of medical care: Conceptualization and measurement. Medical Care, 14(5), 377–391.
34. Starfield, B., Simborg, D., Johns, C., & Horn, S. (1977). Coordination of care and its relationship to continuity and medical records. Medical Care, 15, 929–938.
35. Stevens, J. (1996). Applied multivariate statistics for the socialsciences. Mahwah, NJ: Lawrence Erlbaum Associates.
36. Swan, J., & Estes, C. (1990). Changes in aged populations served by home health agencies. Journal of Aging and Health, 2, 373–394.
37. Tabachnick, B.G., & Fidell, L.S. (1989). Using multivariate statistics(2ndedition). New York: Harper Collins.
38. Von Korff, M., & Wagner, E. (1999). The role of the older person in managingillness. In E. Calkins, C. Bould, E. Wagner, & J. Pacala (Eds.), New ways to care for older people: Building systems based onevidence(pp. 210–226). New York: Springer.
39. Ware, N., Tugenberg, T., Dickey, B., & McHorney, C. (1999). An ethnographic study of the meaning of continuity of care in mental health services. Psychiatric Services, 50(3), 395–400.
40. Whitlatch, C. (1993). The direction of home based community care inQuebec: The effects on caregiving families. In S. Zariet, L. Pearlin, & K. Warner Schiae (Eds.), Caregiving systems: Formal and informal helpers(pp.33–240). Hillsdale, NJ: Lawrence Erlbaum.
41. Willoughby, J., & Keating, N. (1991). Being in control: The process of caring for a relative withAlzheimer's disease. Qualitative Health Research, 1(1), 27–50.
42. Wilson, H. (1989a). Family caregivers and the experience of Alzheimer's disease. Applied Nursing Research, 2(1), 40–45.
43. Wilson, H. (1989b). Family caregiving for a relative with Alzheimer's dementia: Copingwith negative choices. Nursing Research, 38(2), 94–98.
44. Woodward, C.A., Abelson, J., Tedford, S., & Hutchison, B. (2004). What is important to continuity in home care? Perspectives of key stakeholders. Social Science & Medicine, 58, 177–192.
45. Wuest, J., Ericson, P., & Stern, P. (1994). Becoming strangers: The changing family caregiving relationship inAlzheimer's disease. Journal of Advanced Nursing, 20, 437–443.