A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions

Cardiology in the Young

Volumn 17, Issue 2, 2007, Pages 151-157

  Kendall, Lynne ^a   Parsons, Jonathan M ^a   Sloper, Patricia ^b   Lewin, Robert J P ^b  

^a LEEDS GENERAL INFIRMARY   (United Kingdom)

^b UNIVERSITY OF YORK   (United Kingdom)

Author keywords

Congenital heart defects; Exercise prescription; Multidisciplinary team; Physical activity; Physiotherapy; Risk behaviour

Indexed keywords

ACCURACY; ADOLESCENT; ARTICLE; CHILD BEHAVIOR; COHORT ANALYSIS; CONGENITAL HEART DISEASE; CONTROLLED STUDY; CORRELATION ANALYSIS; FEMALE; FOLLOW UP; HEALTH BELIEF; HEALTH CARE NEED; HEALTH EDUCATION; HEALTH SURVEY; HELP SEEKING BEHAVIOR; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; OUTPATIENT DEPARTMENT; PATIENT EDUCATION; PATIENT SAFETY; PHYSICAL ACTIVITY; PHYSIOTHERAPIST; QUESTIONNAIRE; RISK ASSESSMENT; RISK REDUCTION; SCHOOL CHILD; SELF REPORT; TELECONSULTATION; TERTIARY HEALTH CARE;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; AMBULATORY CARE FACILITIES; CHILD; CLINICAL COMPETENCE; FEMALE; FOLLOW-UP STUDIES; HEART DEFECTS, CONGENITAL; HUMANS; MALE; PATIENT EDUCATION; PHYSICIAN-PATIENT RELATIONS; PROGNOSIS; PSYCHOTHERAPEUTIC PROCESSES; QUESTIONNAIRES; RETROSPECTIVE STUDIES; RISK ASSESSMENT; RISK-TAKING;

EID: 34247242604     PISSN: 10479511     EISSN: 14671107     Source Type: Journal    
DOI: 10.1017/S1047951107000285     Document Type: Article

References (16)

1. Cheuk DKL, Wong SMY, Choi YP, Chau AK, Cheung YF. Parents' understanding of their child's congenital heart disease. Heart 2004; 90: 435-439.
2. Moons P, De Volder E, Budts W, et al. What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured patient education. Heart 2001; 86: 74-80.
3. Kendall L, Sloper P, Lewin RJP, Parsons JM. The views of young people with congenital cardiac disease on designing the services for their treatment. Cardiol Young 2003; 13: 11-19.
4. Kendall L, Sloper P, Lewin RJP, Parsons JM. The views of parents concerning the planning of services for rehabilitation of families of children with congenital cardiac disease. Cardiol Young 2003; 13: 20-27.
5. Kamphuis M, Ottenkamp J, Vliegen HW, et al. Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart 2002; 87: 356-362.
6. Swan L, Hillis WS. Exercise prescription in adults with congenital heart disease: A long way to go. Heart 2000; 83: 685-687.
7. Maron BJ, Chaitman BR, Ackerman MJ, et al. Recommendations for physical activity and recreational sports participation for young patients with genetic cardiovascular diseases. Circulation 2004; 109: 2807-2816.
8. Fletcher GF, Balady G, Blair SN, et al. Statement on exercise: Benefits and recommendations for physical activity programs for all Americans: A statement for health professionals by the Committee on Exercise and Cardiac Rehabilitation of the Council on Clinical Cardiology, American Heart Association. Circulation 1996; 94: 857-862.
9. Thompson PD, Buchner D, Piña IL, et al. Exercise and physical activity in the prevention and treatment of atherosclerotic cardiovascular disease: A statement from the Council on Clinical Cardiology (subcommittee on Exercise, Rehabilitation, and Prevention) and the Council on Nutrition, Physical Activity, and Metabolism (subcommittee on Physical Activity). Circulation 2003; 107: 3109-3116.
10. Graham TP, Driscoll DJ, Gersony WM, Newburger JW, Rocchini A, Towbin A. 36th Bethesda Conference: Eligibility recommendations for competitive athletes with cardiovascular abnormalities. Task Force 2: Congenital heart disease. J Am Coll Cardiol 2005; 45: 1326-1333.
11. Gutgesell HP, Gessner IH, Vetter VL, Yabek SM, Norton Jr JB. Recreational and occupational recommendations for young patients with heart disease. A Statement for Physicians by the Committee on Congenital Cardiac Defects of the Council on Cardiovascular Disease in the Young, American Heart Association. Circulation 1986; 74: 1195A-1198A.
12. Pelliccia A, Fagard R, Bjornstad HH, et al. Recommendations for competitive sports participation in athletes with cardiovascular disease. Eur Heart J 2005; 26: 1422-1445.
13. Kennedy I. The Report of the Public Inquiry into children's heart surgery at the Bristol Royal Infirmary 1984-1995. 2001; www.bristol-inquiry.org.uk.
14. Department of Health. Paediatric and Congenital Cardiac Services Review. 2003/0519. www.doh.gov.uk/childcardiac.
15. Lewin RJP, Kendall L, Sloper P. Provision of services for rehabilitation of children and adolescents with congenital cardiac disease: A survey of centres for paediatric cardiology in the United Kingdom. Cardiol Young 2002; 12: 412-414.
16. Danford DA. Parents of children with congenital heart disease lack knowledge needed for optimal care. American Academy of Pediatrics Grand Rounds 2004; 11: 61-62.