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Winkler MF. Quality of life in adult home parenteral nutrition patients. JPEN J Parenter Enteral Nutr 2005; 29:162-170.
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Baxter JP, Fayers PM, McKinlay AW. A review of the instruments used to assess the quality of life of adult patients with chronic intestinal failure receiving parenteral nutrition at home. Br J Nutr 2005; 94:633-638.
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31
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A comprehensive review of the QoL of patients on HPN which highlights that the evaluation of this population group requires the distinction between the HPN therapy and underlying disease
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Baxter JP, Fayers PM, McKinlay AW. A review of the quality of life of adult patients treated with long-term parenteral nutrition. Clin Nutr 2006; 25:543-553. A comprehensive review of the QoL of patients on HPN which highlights that the evaluation of this population group requires the distinction between the HPN therapy and underlying disease.
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Howard L. Home parenteral nutrition: survival, cost, and quality of life. Gastroenterology 2006; 130 (2 Suppl 1):S52-S59. A review article that focuses on cost and survival in HPN, and also includes some QoL data.
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Howard L. Home parenteral nutrition: survival, cost, and quality of life. Gastroenterology 2006; 130 (2 Suppl 1):S52-S59. A review article that focuses on cost and survival in HPN, and also includes some QoL data.
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33
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33845247802
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An invited review that focuses on the role technology plays in HPN, which concludes a greater level of preparedness for managing technology at home may improve QoL
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Winkler MF, Ross VM, Piamjariyakul U, et al. Technology dependence in home care: impact on patients and their family caregivers. Nutr Clin Pract 2006; 21:544-556. An invited review that focuses on the role technology plays in HPN, which concludes a greater level of preparedness for managing technology at home may improve QoL.
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Winkler, M.F.1
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34
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Persoon A, Huisman-de Waal G, Naber TA, et al. Impact of long-term HPN on daily life in adults. Clin Nutr 2005; 24:304-313.
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Persoon, A.1
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Naber, T.A.3
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35
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Fortune DG, Varden J, Parker S, et al. Illness beliefs of patients on home parenteral nutrition (HPN) and their relation to emotional distress. Clin Nutr 2005; 24:896-903.
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Fortune, D.G.1
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33744920576
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Chambers A, Hennessy E, Powell-Tuck J. Longitudinal trends in quality of life after starting home parenteral nutrition: a randomised controlled study of telemedicine. Clin Nutr 2006; 25:505-514. An original communication which studies 30 patients new to HPN and over the first year. Results show QoL improved over the first 6 months, especially in Mental Health and Emotional Role. No difference was found in QoL between those receiving telemedicine or telephone contact with the base hospital.
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Chambers A, Hennessy E, Powell-Tuck J. Longitudinal trends in quality of life after starting home parenteral nutrition: a randomised controlled study of telemedicine. Clin Nutr 2006; 25:505-514. An original communication which studies 30 patients new to HPN and over the first year. Results show QoL improved over the first 6 months, especially in Mental Health and Emotional Role. No difference was found in QoL between those receiving telemedicine or telephone contact with the base hospital.
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37
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33847307101
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Home parenteral nutrition and the psyche: Psychological challenges for patient and family
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case histories to demonstrate how many factors can influence the patients reaction to HPN and highlights the role of a dedicated Psychological Medicine Unit closely allied to a nutrition service
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Stern J. Home parenteral nutrition and the psyche: Psychological challenges for patient and family. Proc Nutr Soc 2006; 65:222-226. This paper uses three case histories to demonstrate how many factors can influence the patients reaction to HPN and highlights the role of a dedicated Psychological Medicine Unit closely allied to a nutrition service.
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Proc Nutr Soc 2006; 65:222-226. This paper uses
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Stern, J.1
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33746056876
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Wengler A, Micklewright A, Hebuterne X, et al. Monitoring of patients on home parenteral nutrition (HPN) in Europe: a questionnaire based study on monitoring practice in 42 centres. Clin Nutr 2006; 25:693-700. This paper is useful as it describes the QoL assessment routinely being performed throughout Europe. Out of the 10 centres which monitored QoL, six used SF-36 and four used nonvalidated instruments.
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Wengler A, Micklewright A, Hebuterne X, et al. Monitoring of patients on home parenteral nutrition (HPN) in Europe: a questionnaire based study on monitoring practice in 42 centres. Clin Nutr 2006; 25:693-700. This paper is useful as it describes the QoL assessment routinely being performed throughout Europe. Out of the 10 centres which monitored QoL, six used SF-36 and four used nonvalidated instruments.
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39
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0030697965
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Outcome of cancer patients receiving home parenteral nutrition. Italian Society of Parenteral and Enteral Nutrition (SINPE)
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Cozzaglio L, Balzola F, Cosentino F, et al. Outcome of cancer patients receiving home parenteral nutrition. Italian Society of Parenteral and Enteral Nutrition (SINPE). JPEN J Parenter Enteral Nutr 1997; 21:339-342.
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Cozzaglio, L.1
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Bozzetti F, Cozzaglio L, Biganzoli E, et al. Quality of life and length of survival in advanced cancer patients on home parenteral nutrition. Clin Nutr 2002; 21:281-288.
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Bozzetti, F.1
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Biganzoli, E.3
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Considers legalities and ethical issues surrounding the provision of parenteral nutrition
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Sayers GM, Lloyd DA, Gabe SM. Parenteral nutrition: ethical and legal considerations. Postgrad Med J 2006; 82:79-83. Considers legalities and ethical issues surrounding the provision of parenteral nutrition.
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Sayers, G.M.1
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Violante G, Alfonsi L, Santarpia L, et al. Adult home parenteral nutrition: a clinical evaluation after a 3-year experience in a Southern European centre. Eur J Clin Nutr 2006; 60:58-61. This study shows the high number of HPN patients with cancer. Of 140 patients studied, 88% of the HPN recipients had cancer.
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Violante G, Alfonsi L, Santarpia L, et al. Adult home parenteral nutrition: a clinical evaluation after a 3-year experience in a Southern European centre. Eur J Clin Nutr 2006; 60:58-61. This study shows the high number of HPN patients with cancer. Of 140 patients studied, 88% of the HPN recipients had cancer.
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The path from oral nutrition to home parenteral nutrition: A qualitative interview study of the experiences of advanced cancer patients and their families
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Orrevall Y, Tishelman C, Herrington MK, Permert J. The path from oral nutrition to home parenteral nutrition: a qualitative interview study of the experiences of advanced cancer patients and their families. Clin Nutr 2004; 23:1280-1287.
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Orrevall, Y.1
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44
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Home parenteral nutrition: A qualitative interview study of the experiences of advanced cancer patients and their families
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Orrevall Y, Tishelman C, Permert J. Home parenteral nutrition: a qualitative interview study of the experiences of advanced cancer patients and their families. Clin Nutr 2005; 24:961-970.
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Orrevall, Y.1
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HPN=home palliative care?
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Jonkers-Schuitema CF. HPN=home palliative care? Clin Nutr 2004; 23:1253-1255.
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Should patients with advanced, incurable cancers ever be sent home with total parenteral nutrition? A single institution's 20-year experience
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Hoda D, Jatoi A, Burnes J, et al. Should patients with advanced, incurable cancers ever be sent home with total parenteral nutrition? A single institution's 20-year experience. Cancer 2005; 103:863-868.
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Adult patients receiving home parenteral nutrition in Denmark from 1991 to 1996: Who will benefit from intestinal transplantation?
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Jeppesen PB, Staun M, Mortensen PB. Adult patients receiving home parenteral nutrition in Denmark from 1991 to 1996: who will benefit from intestinal transplantation? Scand J Gastroenterol 1998; 33:839-846.
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Van Gossum A, Vahedi K, Abdel M, et al. Clinical, social and rehabilitation status of long-term home parenteral nutrition patients: results of a European multicentre survey. Clin Nutr 2001; 20:205-210.
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Van Gossum, A.1
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Brook G. Quality of life issues: parenteral nutrition to small bowel transplantation - a review. Nutrition 1998; 14:813-816.
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Fryer JP. Intestinal transplantation: an update. Curr Opin Gastroenterol 2005; 21:162-168.
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Fryer, J.P.1
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Candidates for intestinal transplantation: A multicenter survey in Europe
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This study reports that along with other criteria, current indications for intestinal transplantation include underlying disease and poor QoL-related criteria
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Pironi L, Hebuterne X, Van Gossum A, et al. Candidates for intestinal transplantation: a multicenter survey in Europe. Am J Gastroenterol 2006; 101:1633-1643. This study reports that along with other criteria, current indications for intestinal transplantation include underlying disease and poor QoL-related criteria.
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Am J Gastroenterol
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Pironi, L.1
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Results of intestinal and multivisceral transplantation in adult patients: Italian experience
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Lauro A, Dazzi A, Ercolani G, et al. Results of intestinal and multivisceral transplantation in adult patients: Italian experience. Transplant Proc 2006; 38:1696-1698. This report highlights the early referral of patients, especially in cases of parenteral nutrition liver disease, is mandatory to obtain good outcomes and avoid high mortality rates on the transplant waiting list.
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Transplant Proc 2006; 38:1696-1698. This report highlights the early referral of patients, especially in cases of parenteral nutrition liver disease, is mandatory to obtain good outcomes and avoid high mortality rates on the transplant waiting list
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Lauro, A.1
Dazzi, A.2
Ercolani, G.3
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Bozzetti F. Home total parenteral nutrition in incurable cancer patients: a therapy, a basic humane care or something in between? Clin Nutr 2003; 22:109-111.
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Bozzetti, F.1
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