Validity, Reliability, and Responsiveness of a New Measure of Health-Related Quality of Life in Children with Immune Thrombocytopenic Purpura: The Kids' ITP Tools

Journal of Pediatrics

Volumn 150, Issue 5, 2007, Pages

  Klaassen, Robert J ^a   Blanchette, Victor S ^b,c   Barnard, Dorothy ^d   Wakefield, Cindy D ^b   Curtis, Christine ^b   Bradley, Catharine S ^b   Neufeld, Ellis J ^e   Buchanan, George R ^f   Silva, Mariana P ^g   Chan, Anthony K C ^h   Young, Nancy L ^b,i  

^a CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d IWK HEALTH CENTRE   (Canada)

^e BOSTON CHILDREN S HOSPITAL   (United States)

^f UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER   (United States)

^g KINGSTON GENERAL HOSPITAL   (Canada)

^h MCMASTER CHILDREN S HOSPITAL   (Canada)

ⁱ LAURENTIAN UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CHILD; COGNITION; CORRELATION ANALYSIS; DISEASE COURSE; DISEASE SEVERITY; FAMILY; FEMALE; HEALTH CENTER; HUMAN; IDIOPATHIC THROMBOCYTOPENIC PURPURA; INSTRUMENTATION; INVENTORY CONTROL; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PEDIATRIC QUALITY OF LIFE INVENTORY; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCORING SYSTEM; TEST RETEST RELIABILITY; THROMBOCYTOPENIC PURPURA; UNITED STATES; VALIDATION PROCESS;

EID: 34247101841     PISSN: 00223476     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpeds.2007.01.037     Document Type: Article

References (18)

1. Sutor A.H., Harms A., and Kaufmehl K. Acute immune thrombocytopenia (ITP) in childhood: retrospective and prospective survey in Germany. Semin Thromb Hemost 27 (2001) 253-267
2. Zeller B., Rajantie J., Hedlund-Treutiger I., Tedgard U., Wesenberg F., Jonsson O.G., et al. Childhood idiopathic thrombocytopenic purpura in the Nordic countries: epidemiology and predictors of chronic disease. Acta Paediatr 94 (2005) 178-184
3. Kuhne T., Buchanan G.R., Zimmerman S., Michaels L.A., Kohan R., Berchtold W., et al. A prospective comparative study of 2540 infants and children with newly diagnosed idiopathic thrombocytopenic purpura (ITP) from the Intercontinental Childhood ITP Study Group. J Pediatr 143 (2003) 605-608
4. Iyori H., Bessho F., Ookawa H., Konishi S., Shirahata A., Miyazaki S., et al., Japanese Study Group on childhood ITP. Intracranial hemorrhage in children with immune thrombocytopenic purpura. Ann Hematol 79 (2000) 691-695
5. Lilleyman J.S., and Paediatric Haematology Forum of the British Society for Haematology. Intracranial haemorrhage in idiopathic thrombocytopenic purpura. Arch Dis Child 71 (1994) 251-253
6. Eiser C., and Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child 84 (2001) 205-211
7. Eiser C., and Morse R. The measurement of quality of life in children: past and future perspectives. J Dev Behav Pediatr 22 (2001) 248-256
8. Varni J.W., Burwinkle T.M., Seid M., and Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 3 (2003) 329-341
9. Barnard D., Woloski M., Feeny D., McCusker P., Wu J., David M., et al. Development of disease-specific health-related quality-of-life instruments for children with immune thrombocytopenic purpura and their parents. J Pediatr Hematol Oncol 25 (2003) 56-62
10. Jobe J.B. Cognitive psychology and self-reports: models and methods. Qual Life Res 12 (2003) 219-227
11. Connelly M., and Rapoff M.A. Assessing health-related quality of life in children with recurrent headache: reliability and validity of the PedsQLTM 4.0 in a pediatric headache sample. J Pediatr Psychol 31 (2006) 698-702
12. Varni J.W., Burwinkle T.M., Sherman S.A., Hanna K., Berrin S.J., Malcarne V.L., et al. Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children. Dev Med Child Neurol 47 (2005) 592-597
13. Stein R.E., and Jessop D.J. The impact on family scale revisited: further psychometric data. J Dev Behav Pediatr 24 (2003) 9-16
14. Buchanan G.R., and Adix L. Grading of hemorrhage in children with idiopathic thrombocytopenic purpura. J Pediatr 141 (2002) 683-688
15. Landis J.R., and Koch G.G. The measurement of observer agreement for categorical data. Biometrics 33 (1977) 159-174
16. Revicki D.A., Osoba D., Fairclough D., Barofsky I., Berzon R., Leidy N.K., et al. Recommendations on health-related quality of life research to support labeling and promotional claims in the United States. Qual Life Res 9 (2000) 887-900
17. Varni J.W., Burwinkle T.M., Katz E.R., Meeske K., and Dickinson P. The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer 94 (2002) 2090-2106
18. Young N.L., Bradley C.S., Wakefield C.D., Barnard D., Blanchette V.S., and McCusker P.J. How well does the Canadian Haemophilia Outcomes-Kids' Life Assessment Tool (CHO-KLAT) measure the quality of life of boys with haemophilia?. Pediatr Blood Cancer 47 (2006) 305-311