Experience of rehabilitation following spinal cord injury: A meta-synthesis of qualitative findings

Spinal Cord

Volumn 45, Issue 4, 2007, Pages 260-274

  Whalley Hammell, K ^a,b  

^a Research   (Canada)

^b Box 515 ^*  (Canada)

Author keywords

Meta synthesis; Qualitative research; Rehabilitation; Spinal cord injury

Indexed keywords

CINAHL; DATA BASE; EVIDENCE BASED MEDICINE; HEALTH CARE PERSONNEL; HEALTH SERVICE; HUMAN; MEDICAL LITERATURE; MEDLINE; PEER GROUP; PRIORITY JOURNAL; PUBLICATION; QUALITATIVE ANALYSIS; QUALITATIVE RESEARCH; REVIEW; SPINAL CORD INJURY;

EVIDENCE-BASED MEDICINE; HUMANS; INPATIENTS; PATIENT PARTICIPATION; SPINAL CORD INJURIES;

EID: 34147165101     PISSN: 13624393     EISSN: 14765624     Source Type: Journal    
DOI: 10.1038/sj.sc.3102034     Document Type: Review

References (93)

1. Twible RL. Consumer participation in planing health promotion programmes: a case study using the nominal group technique. Aust Occup Ther J 1992; 39: 13-18.
2. Clark C, Scott E, Krupa T. Involving clients in programme evaluation and research: a new methodology. Can J Occup Ther 1993; 60: 192-199.
3. NHS Executive. Rehabilitation: A Guide. Department of Health: Leeds 1997.
4. NHS Executive. Patient and Public Involvement in the New NHS. Department of Health: London 1999.
5. Cusack L, Sealey-Lapeš C. Clinical governance and user involvement. B J Occup Ther 2000; 63: 539-546.
6. Carpenter C. The experience of spinal cord injury: The individual's perspective - implications for rehabilitation practice. Phys Ther 1994; 74: 614-629.
7. Laskiwski S, Morse JM. The patient with spinal cord injury: the modification of hope and expressions of despair. Can J Rehabil 1993; 6: 143-153.
8. Corbet B. Bully pulpit: bound for glory. New Mobility 2000; 11: 4.
9. Hammell KW. From the neck up: quality in life following high spinal cord injury. PhD thesis. University of British Columbia: Vancouver, Canada 1998.
10. Morris J. Able Lives. Women's Experience of Paralysis. Women's Press: London 1989.
11. Cant R. Rehabilitation following a stroke: a participant perspective. Disabil Rehabil 1997; 19: 297-304.
12. Lewinter M, Mikkelsen S. Patients' experience of rehabilitation after stroke. Disabil Rehabil 1995; 17: 3-9.
13. Oliver M, Zarb G, Silver J, Moore M, Salisbury V. Walking into Darkness. The Experience of Spinal Cord Injury. Macmillan: Basingstoke 1988.
14. Seymour W. Remaking the Body. Rehabilitation and Change. Routledge: London 1998.
15. Popay J, Williams G. Qualitative research and evidence-based healthcare. J Roy Soc Med 1998; 91(Suppl 35): 32-37.
16. Hammell KW. Using qualitative research to inform the client-centred evidence-based practice of occupational therapy. Br J Occup Ther 2001; 64: 228-234.
17. Estabrooks CA, Field PA, Morse JM. Aggregating qualitative findings: an approach to theory development. Qual Health Res 1994; 4: 503-511.
18. Sandelowski M, Docherty S, Emden C. Qualitative metasynthesis: issues and techniques. Res Nurs Health 1997; 20: 365-371.
19. Mays N, Pope N. Quality in qualitative health research. In: Pope C, Mays N (eds). Qualitative Research in Health Care. BMJ: London 2000, pp 89-101.
20. Campbell R et al. Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care. Soc Sci Med 2003; 56: 671-684.
21. Sandelowski M. Rigor or rigor mortis: the problem of rigor in qualitative research revisited. Adv Nurs Sci 1993; 16: 1-8.
22. Morse J. Qualitative verification. In: Morse J, Swanson J, Kuzel A (eds). The Nature Of Qualitative Evidence. Sage: London 2001, pp 203-220.
23. Noblit GW, Hare RD. Meta-Ethnography: Synthesizing Qualitative Studies. Sage: London 1988.
24. Hammell KW. Quality of life after spinal cord injury: a meta-synthesis of qualitative findings. Spinal Cord 2007; 45: 124-139.
25. Jensen LA, Allen MN. A synthesis of qualitative research on wellness-illness. Qual Health Res 1994; 4: 349-369.
26. Jensen LA, Allen MN. Meta-synthesis of qualitative findings. Qual Health Res 1996; 6: 553-560.
27. Popay J, Rogers A, Williams G. Rationale and standards for the systematic review of qualitative literature in health services research. Qual Health Res 1998; 8: 341-351.
28. Dixon-Woods M, Fitzpatrick R. Qualitative research in systematic reviews. BMJ 2001; 323: 765-766.
29. Law M, Stewart D, Letts L, Pollock N, Bosch J, Westmorland M. Guidelines for critical review of qualitative research 1998. Available at http://www.fhs.mcmaster.ca/rehab/ebp/.
30. Baxter J, Eyles J. Evaluating qualitative research in social geography: establishing 'rigour' in interview analysis. Trans Inst Br Geog 1997; 22: 505-525.
31. Hammell KW. Informing client-centred practice through qualitative inquiry: evaluating the quality of qualitative research. Br J Occup Ther 2002; 65: 175-184.
32. Hammersley M. What's Wrong With Ethnography?. Routledge: London 1992.
33. Sandelowski M. The problem of rigor in qualitative research. Adv Nurs Sci 1986; 8: 27-37.
34. Lincoln YS, Guba EG. Naturalistic Inquiry. Sage: Beverley Hills, CA 1985.
35. Robson C. Real World Research. A Resource for Social Scientists and Practitioner-Researchers. Blackwell: Oxford 1993.
36. Carpenter C, Hammell KW. Evaluating qualitative research. In: Hammell KW, Carpenter C, Dyck I (eds). Using Qualitative Research. A Practical Introduction for Occupational and Physical Therapists. Churchill Livingstone: Edinburgh 2000, pp 107-119.
37. Kirsch GE. Ethical Dilemmas in Feminist Research. The Politics of Location, Interpretation and Publication. State University of New York Press: Albany, NY 1999.
38. Barclay L. Exploring the factors that influence the goal setting process for occupational therapy intervention with an individual with spinal cord injury. Aust Occup Ther J 2002; 49: 3-13.
39. Creighton C, Dijkers M, Bennett N, Brown K. Reasoning and the art of therapy for spinal cord injury. Am J Occup Ther 1995; 49: 311-317.
40. Rintala DH, Young ME, Spencer JC, Bates PS. Family relationships and adaptation to spinal cord injury: a qualitative study. Rehabil Nurs 1996; 21: 67-74.
41. Bates PS, Spencer JC, Young ME, Rintala DH. Assistive technology and the newly disabled adult: adaptation to wheelchair use. Am J Occup Ther 1993; 47: 1014-1021.
42. Newman JA, Reed BJ. Mexican-American males with a spinal cord injury. SCI Psychosoc Process 1998; 11: 14-19.
43. Lohne V, Severinsson E. Hope and despair: the awakening of hope following acute spinal cord injury - an interpretive study. Int J Nurs Stud 2004; 41: 881-890.
44. Lohne V, Severinsson E. Hope during the first months after acute spinal cord injury. J Adv Nurs 2004; 47: 279-286.
45. Yoshida KK. Institutional impact on self-concept among persons with spinal cord injury. Int J Rehabil Res 1994; 17: 95-107.
46. Spencer J, Young ME, Rintala DH, Bates S. Socialization to the culture of a rehabilitation hospital: an ethnographic study. Am J Occup Ther 1995; 49: 53-62.
47. McAlonan S. Improving sexual rehabilitation services: The patient's perspective. Am J Occup Ther 1996; 50: 826-834.
48. Brillhart B, Johnson K. Motivation and the coping process of adults with disabilities: a qualitative study. Rehabil Nurs 1997; 22: 249-256.
49. Lucke KT. Knowledge acquisition and decision-making: spinal cord injured individuals perceptions of caring during rehabilitation. SCI Nurs 1997; 14: 87-95.
50. Lucke KT. Outcomes of nurse caring as perceived by individuals with spinal cord injury during rehabilitation. Rehabil Nurs 1999; 24: 247-253.
51. Frank AW. The Wounded Storyteller. Body, Illness and Ethics. University of Chicago Press: Chicago 1995.
52. Kleiber DA, Brock SC, Lee Y, Datillo J, Caldwell L. The relevance of leisure in an illness experience: realities of spinal cord injury. J Leis Res 1995; 27: 283-299.
53. Duggan CH, Lysack C, Dijkers M, Jeji T. Daily life in a nursing home: impact on quality of life after a spinal cord injury. Topics Spinal Cord Inj Rehabil 2002; 7: 112-131.
54. Bach JR, Tilton MC. Life satisfaction and well-being measures in ventilator assisted individuals with traumatic tetraplegia. Arch Phys Med Rehabil 1994; 75: 626-632.
55. Gerhart KA, Koziol-McLain J, Lowenstein SR, Whiteneck GG. Quality of life following spinal cord injury: knowledge and attitudes of emergency care providers. Ann Emerg Med 1994; 23: 801-812.
56. deLateur BJ. Quality of life: a patient-centered outcome. Arch Phys Med Rehabil 1997; 78: 237-239.
57. Abberley P. Disabling ideology in Health and Welfare: the case of occupational therapy. Disabil Soc 1995; 10: 221-232.
58. Johnson R. 'Attitudes don't just hangin the air...': Disabled people's perceptions of physiotherapists. Physiotherapy 1993; 79: 619-627.
59. Corring D, Cook J. Client-centred care means that I am a valued human being. Can J Occup Ther 1999; 66: 71-82.
60. Hutchinson SL, Kleiber DA. Heroic masculinity following spinal cord injury: implications for therapeutic recreation practice and research. Therap Rec J 2000; First quarter: 42-54.
61. Crewe NM. Gains and losses due to spinal cord injury: views across 20 years. Topics Spinal Cord Inj Rehabil 1996; 2: 46-57.
62. Keany KC, Glueckauf RL. Disability and value change: an overview and reanalysis of acceptance of loss theory. Rehabil Psychol 1993; 38: 199-210.
63. McMillen JC, Cook CL. The positive by-products of spinal cord injury and their correlates. Rehabil Psychol 2003; 48: 77-85.
64. Hammell KW. Quality of life among people with high spinal cord injury living in the community. Spinal Cord 2004; 42: 607-620.
65. Trieschmann RB. Spinal Cord Injuries - Psychological, Social and Vocational Rehabilitation, 2nd edn. Demos Publications: New York 1988.
66. Coyle CP, Lesnik-Emas S, Kinney WB. Predicting life satisfaction among adults with spinal cord injuries. Rehabil Psychol 1994; 39: 95-111.
67. Kleiber DA, Hutchinson SL. Heroic masculinity in the recovery from spinal cord injury. In: Sparkes A, Silvennoinen M (eds). Talking Bodies: Men's Narratives of the Body and Sport. University of Jyväskylä: Jyväskylä, Finland SoPhi 1999, pp 135-155.
68. Smith B, Sparkes A. Men, sport, and spinal cord injury: an analysis of metaphors and narrative types. Disabil Soc 2004; 19: 613-626.
69. Gerschick TJ, Miller AS. Coming to terms. Masculinity and physical disability. In: Sabo D, Gordon D (eds). Men's Health and Illness. Sage: London 1995, pp 183-204.
70. Sparkes A, Smith B. Disrupted selves and narrative reconstructions. In: Sparkes A, Silvennoinen M (eds). Talking Bodies: Men's Narratives of the Body and Sport. University of Jyväskylä: Jyväskylä, Finland, SoPhi 1999, pp 76-92.
71. Hammell KW. Perspectives on Disability and Rehabilitation: Contesting Assumptions, Challenging Practice. Churchill Livingstone: Edinburgh 2006.
72. Duggan CH, Dijkers M. Quality of life - peaks and valleys: a qualitative analysis of the narratives of persons with spinal cord injuries. Can J Rehabil 1999; 12: 181-191.
73. Steele DJ, Blackwell B, Guttman M, Jackson T. The activated patient: Dogma, dream or desideratum? Patient Educ Couns 1987; 10: 3-23.
74. van Bennekom C, Jelles F, Lankhorst G, Kuik D. Value of measuring perceived problems in a stroke population. Clin Rehabil 1996; 10: 288-294.
75. Ford S, Schofield T, Hope T. What are the ingredients for a successful evidence-based patient choice consultation? A qualitative study. Soc Sci Med 2003; 56: 589-602.
76. Charles C, Gafni A, Whelan T. Shared clinical decision-making in the medical encounter: what does it mean? (Or it takes at least two to tango). Soc Sci Med 1997; 44: 681-692.
77. Guadagnoli E, Ward P. Patient participation in decision-making. Soc Sci Med 1998; 47: 329-339.
78. Neistadt M. Methods of assessing clients' priorities: A survey of adult physical dysfunction. Am J Occup Ther 1995; 49: 428-436.
79. Towle A, Godolphin W. Framework for teaching and learning informed shared decision making. BMJ 1999; 319: 766-769.
80. Law M. Does client-centred practice make a difference? In: Law M (ed). Client-Centered Occupational Therapy. Slack: Thorofare, NJ 1998, pp 19-27.
81. Yoshida KK. Reshaping of self: a pendular reconstruction of self and identity among adults with traumatic spinal cord injury. Sociol Health Illn 1993; 15: 217-245.
82. Sparkes A, Smith B. Sport, spinal cord injury, embodied masculinities, and the dilemmas of narrative identity. Men Masculinities 2002; 4: 258-285.
83. Levins SM, Redenbach DM, Dyck I. Individual and societal influences on participation in physical activity following spinal cord injury: a qualitative study. Phys Ther 2004; 84: 496-509.
84. Lee Y, Datillo J, Kleiber DA, Caldwell L. Exploring the meaning of continuity of recreation activity in the early stages of adjustment for people with spinal cord injury. Leis Sci 1996; 18: 209-225.
85. Toombs SK. Disability and the self. In: Brinthaupt TM, Lipka RP (eds). Changing the Self: Philosophies, Techniques and Experiences. SUNY Press: Albany, NY 1994, pp 337-357.
86. Thompson NJ, Coker J, Krause JS, Henry E. Purpose in life as a mediator of adjustment after spinal cord injury. Rehabil Psychol 2003; 48: 100-108.
87. Canadian Association of Occupational Therapists. Enabling Occupation. An Occupational Therapy Perspective. Author: Ottawa, ON 2002.
88. French S. Enabling relationships in therapy practice. In: Swain J, Clark J, Parry K, French S, Reynolds F (eds). Enabling Relationships in Health and Social Care. Butterworth-Heinemann: Oxford 2004, pp 95-107.
89. Blank A. Clients' experience of partnership with occupational therapists in community mental health. Br J Occup Ther 2004; 67: 118-124.
90. Marquis R, Jackson R. Quality of life and quality of service relationships: experiences of people with disabilities. Disabil Soc 2000; 15: 411-425.
91. Bibyk B et al. Who's in charge here? The client's perspective on client-centred care. OT Now 1999; Sept/Oct: 11-12.
92. Corring DJ. The missing perspective on client-centred care. OT Now 1999; Jan-Feb: 8-10.
93. Rebeiro K. How qualitative research can inform and challenge occupational therapy practice. In: Hammell KW, Carpenter C (eds). Qualitative Research in Evidence-Based Rehabilitation. Churchill Livingstone: Edinburgh 2004, pp 89-102.