A specific database for providing local and national level of integration of clinical data in cystic fibrosis

Journal of Cystic Fibrosis

Volumn 6, Issue 3, 2007, Pages 187-193

  Leal, T ^a   Reychler, G ^a   Mailleux, P ^b   Gigi, J ^a   Godding, V ^a   Lebecque, P ^a  

^a UNIVERSITÉ CATHOLIQUE DE LOUVAIN   (Belgium)

^b NONE

Author keywords

Cystic fibrosis; Database; Registry

Indexed keywords

ACCREDITATION; ARTICLE; BACTERIOLOGY; BELGIUM; CLINICAL RESEARCH; COMPUTER PROGRAM; CYSTIC FIBROSIS; DATA BASE; HUMAN; INFORMATION PROCESSING; MEDICAL INFORMATION; OUTCOMES RESEARCH; QUESTIONNAIRE; REGISTER;

BELGIUM; CYSTIC FIBROSIS; DATABASE MANAGEMENT SYSTEMS; DATABASES, FACTUAL; HUMANS; INFORMATION STORAGE AND RETRIEVAL; REGISTRIES;

EID: 34147136061     PISSN: 15691993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jcf.2006.07.002     Document Type: Article

References (21)

1. Davis P.B. Cystic fibrosis since 1938. Am J Respir Crit Care Med 173 (2006) 475-482
2. Mahadeva R., Webb K., Westerbeek R.C., Carroll N.R., Dodd M.E., Bilton D., et al. Clinical outcome in relation to care in centres specializing in cystic fibrosis: cross sectional study. BMJ 316 (1998) 1771-1775
3. Johnson C., Butler S.M., Konstan M.V., Morgan W., and Wohl M.E. Factors influencing outcomes in cystic fibrosis. A center based analysis. Chest 123 (2003) 20-27
4. Kerem E., Conway S., Elborn S., and Heijerman H. Consensus Committee. Standards of care for patients with cystic fibrosis: a European consensus. J Cyst Fibros 4 (2005) 7-26
5. Reychler G., Mailleux P., Gigi J., Leal T., Godding V., and Lebecque P. A CF-specific database as a clinical and epidemiological tool. J Cyst Fibros 3 (2004) S115
6. Knudson R., Lebowitz M., Holberg C., and Burrows B. Changes in the normal maximal expiratory flow-volume curve with growth and aging. Am Rev Respir Dis 127 (1983) 725-734
7. Eigen H., Bieler H., Grant D., Christopher K., Terril D., Heilman D., et al. Spirometric pulmonary function in healthy preschool children. Am J Respir Crit Care Med 163 (2001) 619-623
8. Cole T.J. The LMS method for constructing normalized growth standards. Eur J Clin Nutr 44 (1990) 45-60
9. Poustie V.J., Watling R.M., Ashby D., and Smith R.L. Reliability of percentage ideal weight for height. Arch Dis Child 83 (2000) 183-184
10. Lee T., Brownlee K., Conway S., Denton M., and Littlewood J. Evaluation of a new definition for chronic Pseudomonas aeruginosa infection in cystic fibrosis patients. J Cyst Fibros 2 (2003) 29-34
11. Cystic Fibrosis Foundation, Patient Registry 2004 Annual Report, Bethesda, Maryland
12. Mehta G., Sims E.J., Culross F., McCormick J.D., and Mehta A. Potential benefits of the UK cystic fibrosis database. J R Soc Med 97 Suppl 44 (2004) 60-71
13. Caldwell E.J., and Dziodzio J.T. CF-specific computerized clinical patient data management system. Pediatr Pulmonol S9 (1993) 285-286
14. Caldwell E.J., Dziodzio J.T., and Cairns A.M. Team-oriented clinical management system for cystic fibrosis. Pediatr Pulmonol S13 (1996) 345
15. Caldwell E.J., Dziodzio J.T., and Cairns A.M. Integrated cystic fibrosis clinical data management system for Microsoft® Windows. Pediatr Pulmonol S17 (1998) 409
16. Caldwell E.J., Dziodzio J.T., Cairns A.M., and Zuckerman J.B. Quality assurance in the clinical record: tracking clinical practice via an electronic medical record system. Pediatr Pulmonol S20 (2000) 341-342
17. Haan C.K., Adams M., and Cook R. Improving the quality of data in your database: lessons from a cardiovascular center. Jt Comm Qual Saf 30 (2004) 681-688
18. Belgish Mucoviscidose Register-Registre Belge de la Mucoviscidose-1999, 2000, 2001, 2002. Annual Data Report, Belgium.
19. Sims E., McCorninck J., Green M.W., Mehta G., Culross F., and Mehta A. Call for standardisation of national registry reports - the problem outlined. J Cyst Fibros 2 (2003) S383
20. Sims E.J., McCorninck J., Green M.W., Mehta G., Culross F., and Mehta A. Call for standardisation of national CF database reports - an interim solution. J Cyst Fibros 2 (2003) S384
21. McCorninck J., Sims E.J., Green M.W., Mehta G., Culross F., and Mehta A. Comparative analysis of cystic fibrosis registry data from the UK with USA, France and Australia. J Cyst Fibros 4 (2005) 115-122