Informed consent, deception, and research freedom in qualitative research

Qualitative Inquiry

Volumn 13, Issue 3, 2007, Pages 417-436

  Marzano, Marco ^a  

^a UNIVERSITY OF BERGAMO   (Italy)

Author keywords

Cancer; Ethnography; Informed consent; IRB; Research ethics

Indexed keywords

EID: 34147095138     PISSN: 10778004     EISSN: 15527565     Source Type: Journal    
DOI: 10.1177/1077800406297665     Document Type: Article

References (42)

1. Adler, P.A., & Adler, P. (1994). Observational techniques. In N. K. Denzin & Y. Lincoln (Eds.), Handbook for qualitative research (pp. 377-392). Thousand Oaks, CA: Sage.
2. Adler, P.A., & Adler, P. (2002). Do university lawyers and the police define research values? In W. C. van den Hoonard (Ed.), Walking the tightrope: Ethical issue for qualitative researchers (pp. 34-42). Toronto, Canada: University of Toronto Press,
3. Atkinson, P. (1997). The clinical experience: The construction and reconstruction of medical reality (2nd ed.). Aldershot, UK: Ashgate.
4. Beauchamp, T., Faden, R. R., Wallace, R. J. J., & Walters, L. (Eds.). (1982). Ethical issues in social science research. Baltimore: Johns Hopkins University Press.
5. Becker, H. (1982). Whose side are we on? Social Problems, 14(3), 239-248.
6. Bok, S. (1978). Lying: Moral choice and private and public life. Hassocks, UK: Harvester Press.
7. Bulmer, M. (1982). Social research ethics: An examination of the merits of covert participant observation. London: Macmillan.
8. Corrigan, O. (2003). Empty ethics: The problem with informed consent. Sociology of Health and Illness, 25(3), 768-792.
9. Dalton, M. (1959). Men who manage. New York: John Wiley.
10. de Laine, M. (2000). Fieldwork, participation and practice: Ethics and dilemmas in qualitative research. Thousand Oaks, CA: Sage.
11. Denzin, N. (1997). Interpretive ethnography: Ethnographic practices for the 21st century. Thousand Oaks, CA: Sage.
12. Ellis, C. (1995). Emotional and ethical quagmires in returning to the field. Journal of Contemporary Ethnography, 24(1), 68-98.
13. Elms, A.C. (1982). Keeping deception honest: Justifying conditions for social scientific research strategems. In T. Beauchamp, R. R. Faden, R. J. J. Wallace, & L. Walters (Eds.), Ethical issues in social science research (pp. 232-245). Baltimore: Johns Hopkins University Press.
14. Goffman, E. (1961). Asylum. Garden City, NY: Doubleday/Anchor.
15. Gordon, D.R. (1990). Embodying illness, embodying cancer. Culture, Medicine and Psychiatry, 14(2), 275-297.
16. Gordon, D.R., & Paci, E. (1997). Disclosure practices and cultural narratives: Understanding concealment and silence about cancer in Tuscany, Italy. Social Science and Medicine, 44(10), 1433-1452.
17. Hammersley, M., & Atkinson, P.A. (1995). Ethnography: Principles in practice London: Routledge.
18. Humphreys, L. (1975). Tearoom trade: Impersonal sex in public places. Chicago: Aldine.
19. Kipnis, K. (1979). Case study: An undergraduate's experience with human subjects review committees. In M. L. Wax & J. Cassel (Eds.), Federal regulations: Ethical issues and social research (pp. 219 - 239). Boulder, CO: Westview.
20. Kristjanson, L.J., Hanson, E.J., & Balneaves, L. (1994). Research in palliative care populations: Ethical issues. Journal of Palliative Care, 10(3), 10-15.
21. Kvale, S. (1996). Interviews: Introduction to qualitative research interviewing. Thousand Oaks, CA: Sage.
22. Lawton, J. (2000). The dying process. Patients' experiences of palliative care. London: Routledge.
23. Lawton, J. (2001). Gaining and maintaining consent: Ethical concerns raised in a study of dying patients. Qualitative Health Research, 11(5), 693-705.
24. Lee, S., & Kristjanson, L. (2003). Human research ethics committees: Issues in palliative care research. Journal of Palliative Nursing, 9(1), 13-18.
25. Liberman, K. (1999). From walkabout to meditation: Craft and ethics in qualitative inquiry. Qualitative Inquiry, 5(1), 47-63.
26. Lincoln, Y.S., & Guba, E.S. (1989). Ethics: The failure of positivist science. Review of Higher Education, 12(2), 221-241.
27. Macklin, R. (1982). The problem of adequate disclosure in social science research. In T. Beauchamp, R. R. Faden, R. J. J. Wallace, & L. Walters (Eds.), Ethical issues in social science research (pp. 193-214). Baltimore: Johns Hopkins University Press.
28. Martin, J. (1992). Cultures in organizations. New York: Oxford University Press.
29. Marzano, M. (2004). Scene finali. Morire di cancro in Italia [Closure: Dying of cancer in Italy]. Bologna, Italy: Il Mulino.
30. Murphy, E., & Dingwall, R. (2001). The ethics of ethnography. In P. Atkinson, A. Coffey, S. Delamont, J. Loftland, & L. H. Loftland (Eds.), Handbook of ethnography (pp. 339-351). London: Sage.
31. Murphy, M.D., & Johannsen, A. (1990). Ethical obligations and federal regulations in ethnographic research and anthropological educations. Human Organization, 49(2), 127-134.
32. Pearce, M. (2002). Challenging the system: Rethinking ethics review of social research in Britain's National Health Service. In W. C. van den Hoonard (Ed.), Walking the tightrope: Ethical issues for qualitative researchers (pp. 43-58). Toronto, Canada: University of Toronto Press.
33. Pinkard, T. (1982). Invasions of privacy in social science research. In T. Beauchamp, R. R. Faden, R. J. J. Wallace, & L. Walters (Eds.), Ethical issues in social science research (pp. 257-273). Baltimore: Johns Hopkins University Press.
34. Punch, M. (1994). Politics and ethics in qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 83-97). Thousand Oaks, CA: Sage.
35. Schwandt, T.A. (1995). Thoughts on the moral career of the interpretive inquirer. Studies in Symbolic Interaction, 19, 131-140.
36. Seymour, J., & Ingleton, C. (1999). Ethical issues in qualitative research at the end of life. International Journal of Palliative Nursing, 5(2), 65-73.
37. Thorne, B. (1980). "You still takin notes?" Fieldwork and problems of informed consent. Social Problems, 27(3), 284-296.
38. Timmermans, S. (1995). Cui bono? Institutional review board ethics and ethonographic research. Studies in Symbolic Interaction, 19, 153-173.
39. Timmermans, S. (1999). Sudden death and the myth of CPR. Philadelphia: Temple University Press.
40. Van Maanen, J. (1983). The moral fix: On the ethics of fieldwork. In R. M. Emerson (Ed.), Contemporary field research (pp. 269-287). Prospect Heights, IL: Waveland Press.
41. Wax, M.L. (1980). Paradoxes of "consent" to the practice of fieldwork. Social Problems, 27(3), 272-283.
42. Whyte, W.F. (1955). Street corner society: The social structure of an Italian slum. Chicago: University of Chicago Press.