Unique Patient Concept: A key choice for European epidemiology

International Journal of Medical Informatics

Volumn 76, Issue 5-6, 2007, Pages 419-426

  Quantin, Catherine ^a   Cohen, Olivier ^b   Riandey, Benoît ^c   Allaert, François André ^d  

^a DIJON UNIVERSITY HOSPITAL   (France)

^b LABORATOIRE TIMC IMAG   (France)

^c INSTITUT NATIONAL D'ÉTUDES DÉMOGRAPHIQUES   (France)

^d W2 Data Security European Federation of Medical Informatics   (France)

Author keywords

Electronic health records; Security; Unique patient identifier

Indexed keywords

EPIDEMIOLOGY; HEALTH CARE; INTERNATIONAL COOPERATION; PUBLIC POLICY; SOCIETIES AND INSTITUTIONS;

ELECTRONIC HEALTH RECORDS; PATIENT IDENTIFIERS; SECURE PROCEDURES;

MEDICAL COMPUTING;

ARTICLE; COMPUTER SECURITY; ELECTRONIC MEDICAL RECORD; FOLLOW UP; FRANCE; HEALTH CARE POLICY; MEDICAL RECORD; PATIENT CODING; PRIORITY JOURNAL;

COMPUTER SECURITY; EPIDEMIOLOGIC STUDIES; FRANCE; HEALTH POLICY; HUMANS; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; PATIENT IDENTIFICATION SYSTEMS;

EID: 33947655894     PISSN: 13865056     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijmedinf.2006.09.006     Document Type: Article

References (32)

1. GMSIH - Publication - Etude - Identification du Patient - Annexe 3, Etude de l'existant: Expériences internationales des systèmes de santé, de la politique d'informatisation des systèmes de santé et de la politique d'identification-Version 1.
2. Health Connect-a health information network for all Australians, Health Connect Project Plan 2003/05, URL: http://www.healthconnect.gov.au/pdf/hcpp0305r.pdf.
3. http://www.nursingworld.org/ojin/search/ojsrchrs.cfm
4. http://hcro.,enigma.co.nz/website/index.cfm?fuseaction=articledispaly FeatureID=040304
5. J. Konijn, W. Brouwer, Inventarisatie partijen in de zorg, Versie 09, 11-12-2002, URL: http://www.nictiz.nl/kr_nictiz/uploaddb/downl_object.asp?atoom=2162&VolgNr=1.
6. http://www.telemed.no/getfile.php/259490.357.ccccccetef/Ref_Patient_+data_on_demandK%F8benhavn-0-02-2006.doc
7. http://www.ehto.org/ht_projects/trends/finland.html
8. http://www.seebeyond.com/industries/organizations.asp
9. Department of Health and Human Services: Unique Health Identifier for Individuals, A white paper-1998.
10. http://www.ircm.qc.ca/bioethique/english/telehealth/documents/cartesante_sicotte_doc.pd
11. http://www.gdaus.com.au/pdf/Industry%20and%20Government/Health%20Cards.pdf
12. Inforoute Santé du Canada, Inforoute fera la promotion de l'interopérabilité entre les systèmes d'information sur la santé grâce à une initiative Logiciel libre, URL: http://www.infoway-inforoute.ca/fr/News-Events/InTheNews_long.aspx?uid=147.
13. Blobel B., and Pharow P. Patient data to go. Germany's national smart card project. J. Ahima 76 2 (2005) 48-51
14. Roger France F.H., De Clercq E., and Bangels M. Purposes of health identification cards in Belgium. In: Engelbrecht R., Geissbuhler A., Clovis C., and Mihalas G. (Eds). Connecting Medical Informatics and Bio-Informatics. Proceedings of MIE 2005 (2005), IOS Press, Amsterdam
15. Borst F., Allaert F.A., and Quantin C. The Swiss solution for anonymously chaining patient files. MEDINFO 10 Pt 1 (2001) 1239-1241
16. C. Quantin, F.A. Allaert, B. Gouyon, O. Cohen, Proposal for the creation of a European healthcare identifier, MIE 2005, 28-31 août 2005, Genève.
17. P. Enel, Relation internationale: vers une carte de santé européenne, Bulletin de l'ordre des médecins, décembre 2000.
18. Health Connect-a health information network for all Australians, Health Connect Project Plan 2003/05.
19. Académie des sciences, Rapport Science et Technologie Comité RST "Epidémiologie: conditions de son développement, et rôle des mathématiques", Animateur Alain-Jacques VALLERON, 11 janvier 2005.
20. Walley T. Using personal health information in medical research. Br. Med. J. 332 (2006) 130-131
21. Ward H., Cousens S., Smith-Bathgate B., et al. Obstacles to conducting epidemiological research in the UK general population. Br. Med. J. 329 (2004) 277-279
22. Verity C., and Nicholl A. Consent, confidentially and the threat to public health surveillance. Br. Med. J. 324 (2002) 1210-1213
23. Iversen A., Liddell K., Fear N., Hotopf M., and Wessely S. Consent, confidentiality and the Data Protection Act. Br. Med. J. 332 (2006) 165-169
24. Quantin C., Bouzelat H., Allaert F.A., Benhamiche A.M., Faivre J., and Dusserre L. Automatic record hash coding and linkage for epidemiological follow-up data confidentiality. Methods Inf. Med. 37 (1998) 271-277
25. Quantin C., Bouzelat H., Allaert F.A., Benhamiche A.M., Faivre J., and Dusserre L. How to ensure data security of an epidemiological follow-up: quality assessment of an anonymous record linkage procedure. Int. J. Med. Inform. 49 (1998) 117-122
26. C. Quantin, B. Gouyon, F.A. Allaert, L. Dusserre, O. Cohen, Méthodologie pour le chaînage de données sensibles tout en respectant l'anonymat: application au suivi des informations médicales, Courrier des statistiques 113-114 (2005) 15-26, URL: http://www.insee.fr/fr/ffc/docs_ffc/cs113e.pdf.
27. X. Wang, Cryptanalysis of SHA-1 Hash Function, Cryptographic Hash Workshop National Institute of Standards and Technology, October 31, 2005, http://www.csrc.nist.gov/pki/HashWorkshop/2005/Oct31_Presentations/Wang_SHA1-New-Result.pdf, accessed November 30, 2005.
28. FOIN: fonction d'occultation d'information nominative (cf. G. Trouessin, F.A. Allaert, 1997. FOIN: a nominative information occultation function. MIE 97; 43: 196-200).
29. Cornet B., Gouyon J.B., Binquet C., Sagot P., Ferdynus C., Métral P., and Quantin C. Using discharge abstracts as a tool to assess a regional perinatal network. Rev. Epidemiol. Santé Publique 49 (2001) 583-593
30. ®: a web site based on an international human cytogenetic database. Nucleic Acids Res. 29 (2001) 305-307
31. F. Lenormand, Le système d'information de l'assurance maladie, le SNIIR-AM et les échantillons de beneficiaries, Courrier des Statistiques 113-114 (2005) 33-51.
32. Quantin C., Binquet C., Allaert F.A., Cornet B., Pattisina R., Le Teuff G., Ferdynus C., and Gouyon J.B. Decision analysis for the assessment of a record linkage procedure: application to a perinatal network. Methods Inf. Med. 44 (2005) 72-79