Review of specialist dietitian services in patients with inherited metabolic disease in the United Kingdom

Journal of Human Nutrition and Dietetics

Volumn 20, Issue 2, 2007, Pages 84-94

  Burton, Hilary ^a,f   Sanderson, S ^b   Dixon, M ^c   Hallam, P ^d   White, F ^e  

^a Public Health Genetics Unit   (United Kingdom)

^b UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^c GREAT ORMOND STREET HOSPITAL   (United Kingdom)

^d NATIONAL HOSPITAL FOR NEUROLOGY AND NEUROSURGERY   (United Kingdom)

^e MANCHESTER UNIVERSITY NHS FOUNDATION TRUST   (United Kingdom)

^f UNIVERSITY OF CAMBRIDGE   (United Kingdom)

Author keywords

Inherited metabolic disease; Need sassessment; Quality of care; Service provision; specialist dietitian

Indexed keywords

ISOLEUCINE; VALINE;

ADULT; CAREER; CONTINUOUS HEMOFILTRATION; CONTROLLED STUDY; DIET SUPPLEMENTATION; DIET THERAPY; DIETITIAN; HUMAN; INBORN ERROR OF METABOLISM; INFORMATION PROCESSING; LEADERSHIP; MEDICAL AUDIT; MEDICAL SPECIALIST; NEEDS ASSESSMENT; NUTRITION SERVICE; PATIENT EDUCATION; PHYSICIAN ATTITUDE; PRIMARY PREVENTION; QUESTIONNAIRE; REVIEW; UNITED KINGDOM;

ADULT; DATA COLLECTION; DIETETICS; FOCUS GROUPS; GREAT BRITAIN; HUMANS; METABOLISM, INBORN ERRORS; MIDDLE AGED; NEEDS ASSESSMENT; QUESTIONNAIRES; SPECIALISM; WORKLOAD;

EID: 33947432357     PISSN: 09523871     EISSN: 1365277X     Source Type: Journal    
DOI: 10.1111/j.1365-277X.2007.00752.x     Document Type: Review

References (7)

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2. Burton H. (2005) Metabolic Pathways: Networks of Care. A Needs Assessment and Review of Services for People with Inherited Metabolic Disease in the United Kingdom. Cambridge, UK: Public Health Genetics Unit.
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4. Sanderson, S., Green, A., Preece, MA. & Burton, H. (2006) The incidence of inherited metabolic disorders in the West Midlands, UK. Arch. Dis. Child. 91, 896-899.
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7. Walter, J.H. (2004). Specialist service for children and adults with metabolic disease: Training and resource allocation. In Inborn Errors of Metabolism - Pathways into Adulthood. Symposium Proceedings. eds P. Burgard, P.J. Lee, U. Wendel. SPS, Verlagsgeseilschaft, 26-28.