Guardianship planning among HIV-infected parents in the United States: Results from a nationally representative sample

Pediatrics

Volumn 119, Issue 2, 2007, Pages

  Cowgill, Burton O ^a,b,f   Beckett, Megan K ^c   Corona, Rosalie ^a,d   Elliott, Marc N ^c   Parra, Michelle T ^e   Zhou, Annie J ^c   Schuster, Mark A ^a,b,c  

^a MATTEL CHILDREN S HOSPITAL   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

^c RAND CORPORATION   (United States)

^d VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

^e Los Angeles County Department of Public Health   (United States)

^f UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Children and adolescents; HIV

Indexed keywords

ANTIVIRUS AGENT;

ADOLESCENT; ADOPTION; ADULT; AGED; ARTICLE; CD4 LYMPHOCYTE COUNT; CLINICAL ARTICLE; CONTROLLED STUDY; FEMALE; GRANDPARENT; HEALTH CARE; HEALTH CARE PLANNING; HIGHLY ACTIVE ANTIRETROVIRAL THERAPY; HUMAN; HUMAN EXPERIMENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTED PATIENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; INTERVIEW; LOGISTIC REGRESSION ANALYSIS; MALE; OUTCOME ASSESSMENT; PARENT; PARENTAL BEHAVIOR; PRIORITY JOURNAL; SPOUSE; UNITED STATES;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; FEMALE; HIV INFECTIONS; HUMANS; INFANT; INFANT, NEWBORN; LEGAL GUARDIANS; MALE; MIDDLE AGED; PARENTS; UNITED STATES;

EID: 33947129637     PISSN: 00314005     EISSN: 02105721     Source Type: Journal    
DOI: 10.1542/peds.2006-1459     Document Type: Article

References (43)

1. Tompkins TL, Henker B, Whalen CK, Axelrod J, Comer LK. Motherhood in the context of HIV infection: reading between the numbers. Cultur Divers Ethnic Minor Psychol. 1999;5:197-208
2. Bauman LJ, Draimin BH, Levine C, Hudis J. Who will care for me? Planning the future care and custody of children orphaned by HIV/AIDS. In: Pequegnat W, Szapocznik J, eds. Working With Families in the Era of HIV/AIDS. Thousand Oaks, CA: Sage Publications, Inc; 2000:155-189
3. Draimin BH, Gamble I, Shire A, Hudis J. Improving permanency planning in families with HIV disease. Child Welfare. 1998;77:180-194
4. Gardner W, Preator K. Children of seropositive mothers in the U.S. AIDS epidemic. J Soc Issues. 1996;52:177-195
5. Dane BO, Levine C, eds. AIDS and the New Orphans: Coping With Death. Westport, CT: Auburn House/Greenwood Publishing Group; 1994
6. Rotheram-Borus MJ, Weiss R, Alber S, Lester P. Adolescent adjustment before and after HIV-related parental death. J Consult Clin Psychol. 2005;73:221-228
7. Pelton J, Forehand R. Orphans of the AIDS epidemic: an examination of clinical level problems of children. J Am Acad Child Adolesc Psychiatry. 2005;44:585-591
8. Rotheram-Borus MJ, Leonard NR, Lightfoot M, Franzke LH, Tottenham N, Lee S-J. Picking up the pieces: caregivers of adolescents bereaved by parental AIDS. Clin Child Psychol Psychiatry. 2002;7:115-124
9. Forehand R, Pelton J, Chance M, et al. Orphans of the AIDS epidemic in the United States: transition-related characteristics and psychosocial adjustment at 6 months after mother's death. AIDS Care. 1999;11:715-722
10. Armistead L, Forehand R. For whom the bell tolls: parenting decisions and challenges faced by mothers who are HIV seropositive. Clin Psychol Sci Prac. 1995;2:239-250
11. Mason S. Custody planning with HIV-affected families: considerations for child welfare workers. Child Welfare. 1998;77:161-177
12. Faithful J HIV-positive and AIDS-infected women: challenges to mothering. Am J Orthopsychiatry. 1997;67:144-151
13. Ingram D, Hutchinson SA. Defensive mothering in HIV-positive mothers. Qual Health Res. 1999;9:243-258
14. Rotheram-Borus MJ, Lester P, Wang PW, Shen Q. Custody plans among parents living with human immunodeficiency virus infection. Arch Pediatr Adolesc Med. 2004;158:327-332
15. Simoni JM, Davis ML, Drossman JA, Weinberg BA. Mothers with HIV/AIDS and their children: disclosure and guardianship issues. Women Health. 2000;31:39-54
16. Rotheram-Borus MJ, Draimin BH, Reid HM, Murphy DA. The impact of illness disclosure and custody plans on adolescents whose parents live with AIDS. AIDS. 1997;11:1159-1164
17. Lightfoot M, Rotheram-Borus MJ. Predictors of child custody plans for children whose parents are living with AIDS in New York City. Soc Work. 2004;49:461-468
18. Shapiro MF, Berk ML, Berry SH, et al. National probability samples in studies of low-prevalence diseases. Part I: perspectives and lessons from the HIV cost and services utilization study. Health Serv Res. 1999;34:951-968
19. Frankel MR, Shapiro MF, Duan N, et al. National probability samples in studies of low-prevalence diseases. Part II: designing and implementing the HIV cost and services utilization study sample. Health Serv Res. 1999;34:969-992
20. Schuster MA, Kanouse DE, Morton SC, et al. HIV-infected parents and their children in the United States. Am J Public Health. 2000;90:1074-1081
21. Berry SH, Brown JA, Athey LA, et al. HCSUS Baseline Patient Questionnaire Documentation. Santa Monica, CA: RAND; 1998
22. Cunningham WE, Rana HM, Shapiro MF, Hays RD. Reliability and validity of self-report CD4 counts-in persons hospitalized with HIV disease. J Clin Epidemiol. 1997;50:829-835
23. Hosmer DW, Lemeshow S. Applied Logistic Regression. New York, NY: Wiley; 1989
24. Brandt R. Assessing Proportionality in the proportional odds model for ordinal logistic regression. Biometrics. 1990;46:1171-1178
25. Taylor A, West S, Aiken L. Loss of power in logistic, ordinal logistic, and probit regression when an outcome variable is coarsely categorized. Educ Psychol Meas. 2006;66:228-239
26. Harrell F, Lee K, Mark D. Multivariable prognostic models: issues in developing models, evaluating assumptions and adequacy, and measuring and reducing errors. Stat Med. 1996;15:361-387
27. Cohen J. Statistical Power Analysis for the Behavioral Sciences. Hillsdale, NJ: Erlbaum; 1988
28. Duan N, McCaffrey DF, Frankel MR, et al. HCSUS Baseline Methods Technical Report: Weighting, Imputation, and Variance Estimation. Santa Monica, CA: RAND; 1999. MR-1060-AHCPR
29. Stata Statistical Software [computer software]. Release 7.0. College Station, TX: Stata Corporation; 2001
30. Williams R. Generalized ordered logit/partial proportional odds models for ordinal dependent variables. Stata J. 2006;6:58-82
31. Hudis F, Brown J. Custody and permanency planning. In: Joslin D, ed. Invisible Caregivers: Older Adults Raising Children in the Wake of HIV/AIDS. New York, NY: Columbia University Press; 2002
32. Herb A. Standby Guardianship: a viable legal option for the future care of children. J Am Med Womens Assoc. 1995;50:95-98
33. Coon L LJ, Manes C, Palmer C. Guide to Future Care and Custody Planning for Children: With Recommendations for State Legislation. Berkeley, CA: National Abandoned Infants Assistance Resource Center, University of California; 2005
34. Brown S CD, Wheeler R. African American extended families and kinship care: how relevant is the foster care model to kinship care. Child Youth Serv Rev. 2002;24:53-77
35. Chatters LTR, Jayakody R. Fictive kinship relations in black extended families. J Comp Fam Stud. 1994;25:297-313
36. Vidal C. Godparenting among Hispanic Americans. Child Welfare. 1988;67:453-459
37. Lee LM, Fleming PL. Estimated number of children left motherless by AIDS in the United States, 1978-1998. J Acquir Immune Defic Syndr. 2003;34:231-236
38. Gange SJ, Barron Y, Greenblatt RM, et al. Effectiveness of highly active antiretroviral therapy among HIV-1 infected women. J Epidemiol Community Health. 2002;56:153-159
39. Louie JK HL, Osmond DH, Katz MH, Schwarcz. Trends in causes of death among persons with acquired immunodeficiency syndrome in the era of highly active antiretroviral therapy, San Francisco, 1994 -1998. J Infect Dis. 2002;186:1023-1027
40. Willis L, Peck M, Sells S, Rodabaugh KJ. Custody planning. A retrospective review of oncology patients who were single parents. J Pain Symptom Manage. 2001;21:380-384
41. Cooper E. HIV-infected parents and the law: issues of custody, visitation, and guardianship. In: Hunter N, Rubenstein W, eds. AIDS Agenda: Emerging Issues in Civil Rights. New York, NY: New Press; 1992
42. McCue K. How to Help Children Through a Parent's Serious Illness. New York, NY: St Martin's Griffin; 1996
43. Goldman L. Breaking the Silence: A Guide to Help Children With Complicated Grief: Suicide, Homicide, AIDS, Violence, and Abuse. New York, NY: Brunner-Routledge; 2001