Factors influencing the use and provision of respite care services for older families of people with a severe mental illness: Feature article

International Journal of Mental Health Nursing

Volumn 16, Issue 2, 2007, Pages 96-107

  Jeon, Yun Hee ^a,b,e   Chenoweth, Lynn ^b,c   McIntosh, Helen ^d  

^a AUSTRALIAN NATIONAL UNIVERSITY   (Australia)

^b UNIVERSITY OF TECHNOLOGY SYDNEY   (Australia)

^c South Eastern Sydney and Illawarra Area Health Service   (Australia)

^d PRINCE OF WALES HOSPITAL   (Australia)

^e AUSTRALIAN NATIONAL UNIVERSITY   (Australia)

Author keywords

Mental illness; Older carer; Qualitative research; Respite care

Indexed keywords

ARTICLE; AUSTRALIA; CAREGIVER; FEMALE; HEALTH SERVICE; HOME CARE; HUMAN; MALE; MENTAL DISEASE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; PSYCHOLOGY; RESPITE CARE; SOCIAL SUPPORT; UTILIZATION REVIEW;

AUSTRALIA; CAREGIVERS; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HOME NURSING; HUMANS; MALE; MENTAL DISORDERS; MIDDLE AGED; PSYCHOLOGY; RESPITE CARE; SOCIAL SUPPORT;

EID: 33847619646     PISSN: 14458330     EISSN: 14470349     Source Type: Journal    
DOI: 10.1111/j.1447-0349.2007.00452.x     Document Type: Article

References (48)

1. Aged and Community Care Division (1996). The Respite Review Report. Canberra, ACT: Australian Government Publishing Service: Aged and Community Care Division, Commonwealth Department of Health and Family Services.
2. Ageing and Aged Care Division (2002). Access to Respite Care. [Cited 18 Aug 2003]. Available from: URL: http://www. ageing.health.gov.au/ carers/research/accresp.htm
3. Ageing and Disability Department (1999). Older People in NSW: Older Carers. Sydney, NSW: Ageing and Disability Department, NSW Government.
4. Ashworth, M. & Baker, A. (2000). 'Time and space': Carers' views about respite care. Health and Social Care in the Community, 8 (1), 50-56.
5. Australian Bureau of Statistics (ABS) (2000). Australian Demographic Statistics. (Catalogue No. 3101.0). Canberra, ACT: ABS.
6. Australian Bureau of Statistics (ABS) (2004). Disability, Ageing and Carers: Summary of Findings Australia, 2003. (Catalogue No. 4430.0). Canberra, ACT: ABS.
7. Bland, R. (1996). Episodic care of people with a mental illness. In: Towards a National Agenda for Carers: Workshop Papers. Canberra, ACT: Australian Government Publishing Service: Aged and Community Care Division, DHSH.
8. Braithwaite, V. (1998). Institutional respite care: Breaking chores or breaking social bonds? Gerontologist, 38 (5), 610- 617.
9. Carers NSW (2002). Submission to NSW Legislative Council Select Committee on Mental Health: Inquiry into Mental Health Services in NSW. Sydney, NSW: Carers NSW.
10. Clarke, R. M. & Finucane, P. (1995). Care-receivers' and caregivers' experience and perceptions of respite care: Implications for service provision. Australian Journal on Ageing, 13(4), 183-187.
11. Cox, C. (1997). Findings from a statewide program of respite care: A comparison of service users, stoppers, and nonusers. Gerontologist, 37 (4), 511-517.
12. Coyne, J. C. (1976). Depression and response to others. Journal of Abnormal Psychology, 85 (2), 186-193.
13. Coyne, J. C., Kessler, R. C., Tal, M., Turnbull, J., Wortman, C. B. & Greden, J. F. (1987). Living with a depressed person. Journal of Consulting and Clinical Psychology, 55 (3), 347- 352.
14. Department of Family and Community Services (2003). Commonwealth Disability Services Census 2001. Canberra, ACT: Commonwealth Department of Family and Community Services.
15. Department of Health and Ageing (2002). National Respite for Carers Program Commonwealth Carer Respite Centres and Commonwealth Carer Resource Centres Minimum Data Set Draft Data Dictionary, Version 1.3. December 2002. Canberra, ACT: Commonwealth Department of Health and Ageing.
16. Department of Health and Family Services (1996). Review of Respite Care Services Provided in the Community. Canberra, ACT: Aged and Community Care Division of the Commonwealth, Australian Government Publishing Service.
17. Department of Human Services and Health (1995). Aged and community care service development and evaluation reports: The efficiency and effectiveness review of the home and community care program. Final report. Australian Government Publishing Service, Canberra, ACT.
18. Duckett, S. J. (2000). The Australian Health Care System. Melbourne, Vic.: Oxford University Press.
19. Evert, H. & Kukulska, E. (1996). Polish carers, their dependents and respite care services. Australian Journal on Ageing, 15(4), 182-186.
20. Fine, M. (1992). Community Support Services and Their Users: The First Eighteen Months (Report 100). Kensington, NSW: Social Policy Research Centre, University of New South Wales.
21. Gray, L. (2001). Two Year Review of Aged Care Reforms. Canberra, ACT: Commonwealth Department of Health and Aged Care.
22. Groom, G., Hickie, I. & Davenport, T. (2003). Out of Hospital, Out of Mind! A report detailing mental health services in Australia in 2002 and community priorities for national mental health policy for 2003-2008. Canberra, ACT: Mental Health Council of Australia.
23. Hanson, E., Tetley, J. & Clarke, A. (1999). Respite care for frail older people and their family carers: concept analysis and user focus group findings of a pan-European nursing research project. Journal of Advanced Nursing, 30 (6), 1396-1407.
24. Jarrott, S. E., Zarit, S. H., Parris-Stephens, M. A., Townsend, A. & Greene, R. (1999). Caregiver satisfaction with adult day service programs. American Journal of Alzheimer's Disease, 14 (4), 233-244.
25. Jeon, Y.-H. (1994). Respite care for people with a chronic mental disorder and their caregivers: A critical review. Australian Journal of Mental Health Nursing, 3 (1), 10-15.
26. Jeon, Y.-H. (1995). The lived experience of caring for a family member with chronic mental illness: A phenomenological study (Master of Nursing thesis). Newcastle, NSW: University of Newcastle.
27. Jeon, Y.-H. (2004). Shaping mutuality as the core process of nurse-family caregiver interactions. International Journal of Mental Health Nursing., 13 (2), 126-134.
28. Jeon, Y.-H. & Madjar, I. (1998). Caring for a family member with chronic mental illness. Qualitative Health Research, 8(5), 694-706.
29. Jeon, Y.-H., Brodaty, H. & Chesterson, J. (2005). Respite revisited: Critical review of respite care for people with a mental illness and their caregivers. Journal of Advanced Nursing, 49 (3), 297-306.
30. Kosloski, K. & Montgomery, R. J. (1993). The effects of respite on caregivers of Alzheimer's patients: One-year evaluation of the Michigan Model Respite Programs. Journal of Applied Gerontology, 12 (1), 4-17.
31. Malcolm, K., Rowlands, P. & Inch, H. (1998). Assessment of respite needs for carers of persons with severe mental illness. Psychiatric Bulletin, 22 (6), 354-355.
32. Mental Health Council of Australia (2000). Carers of people with mental illness. Final report. Commonwealth Department of Health and Aged Care, Canberra, ACT.
33. Mohide, E. (2002). Caregivers described how an Alzheimer's disease respite programme gave them time to attend to their own needs. Evidence-Based Mental Health, 5 (1), 32.
34. Morse, J. & Field, P. A. (1995). Qualitative Research Methods for Health Professionals, 2nd edn. Thousand Oaks, CA: Sage.
35. Murphy, B. (1999). Literature Review Relevant to the NSW Carers' Framework. Sydney, NSW: The Ageing and Disability Department and the NSW Health Department.
36. National Mental Health Strategy Evaluation Steering Committee (1997). Evaluation of the national mental health strategy. Final report prepared for the Australian Health Ministers Advisory Council (064236706X). Mental Health Branch, Commonwealth Department of Health and Family Services, Canberra, ACT.
37. Perry, J. & Bontinen, K. (2001). Evaluation of a weekend respite program for persons with Alzheimer disease. Canadian Journal of Nursing Research, 33 (1), 81-95.
38. Petch, A. (1996). Cairdeas House: developing good practice in short breaks for individuals with mental health problems. In: K. Stalker (Ed.). Development in Short-Term Care: Breaks and Opportunities (pp. 136-153). Bristol, PA: Jessica Kingsley Publishers.
39. Rosenman, L. & Le Broque, R. (1996). The price of care. In: Towards a National Agenda for Carers: Workshop Papers. Canberra, ACT: Australian Government Publishing Service: Aged and Community Care Division, DHSH.
40. SANE Australia (1998a). A Long Way to Go: National Survey of Services for Carers of People with a Mental Illness. South Melbourne: Sane Australia.
41. SANE Australia (1998b). Planned Respite Care. South Melbourne: Sane Australia.
42. South East Health (2004). South East Health Annual Report 2002/2003. Sydney, NSW: South Eastern Sydney Area Health Service.
43. Strang, V. R. & Haughey, M. (1998). Factors influencing the caregiver's ability to experience. Journal of Family Nursing, 4 (3), 231-254.
44. Strang, V. R. & Haughey, M. (1999). Respite - a coping strategy for family caregivers. Western Journal of Nursing Research, 21 (4), 450-471.
45. Twigg, J. & Atkin, K. (1994). Carers Perceived: Policy and Practice in Informal Care. Buckingham: Open University Press.
46. Winefield, H. (1996). Caring for the carers of the mentally ill: A report on a forum. Carers' Association of SA, Unley, SA.
47. Witt, E., Chenoweth, L. & Jeon, Y.-H. (2004). Respite services for older persons and their family carers in southern Sydney. Collegian., 11 (4), 29-33.
48. Worcester, M. & Hedrick, S. (1997). Dilemmas in using respite for family caregivers of frail elders. Family and Community Health, 19 (4), 31-48.