The heart in haart: Quality of life of patients enrolled in the public sector antiretroviral treatment programme in the free State Province of South Africa

Social Indicators Research

Volumn 81, Issue 2, 2007, Pages 283-329

  Booysen, F Le R ^a   Van Rensburg, H C J ^a   Bachmann, M ^b   Louwagie, G ^a   Fairall, L ^c  

^a UNIVERSITY OF THE FREE STATE   (South Africa)

^b UNIVERSITY OF EAST ANGLIA   (United Kingdom)

^c UNIVERSITY OF CAPE TOWN   (South Africa)

Author keywords

Antiretroviral treatment; Happiness; HIV AIDS; Life satisfaction; South Africa

Indexed keywords

HEALTH CARE; HEALTH SERVICES; PUBLIC SECTOR; QUALITY OF LIFE;

AFRICA; SOUTH AFRICA; SOUTHERN AFRICA; SUB-SAHARAN AFRICA;

EID: 33847009484     PISSN: 03038300     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11205-006-9011-4     Document Type: Article

References (85)

1. Abadía-Barrero, C. and A. Castro: 2006, 'Experiences of stigma and access to HAART in children and adolescents living with HIV/AIDS in Brazil', Social Science & Medicine 62(5), pp. 1219-1228
2. Alexandrova A., 2005. Subjective well-being and Kahneman's "objective happiness" Journal of Happiness Studies 6: 301-324
3. Alubo O., Zwandor A., Jolayemi T., Omudu E., 2002. Acceptance and stigmatisation of PLWA in Nigeria AIDS Care 14(1): 117-126
4. Biswas-Diener R., Diener E., 2001. Making the best of a bad situation: satisfaction in the slums of Calcutta Social Indicators Research 55: 329-352
5. Bowling A., 2005. Measuring Health: A Review of Quality of Life Measurement Scales. Open University Press, New York
6. Brecht J.R., Breitbart B., Galietta M., Krivo S, Rosenfeld B., 2001. The use of highly active antiretroviral therapy (HAART) in patients with advanced HIV infection: Impact on Medical, Palliative Care, and QoL outcomes Journal of Pain and Symptom Management 21(1): 41-51
7. Burgoyne R., Renwick R., 2004. Social support and quality of life over time among adults living with HIV in the HAART era Social Science & Medicine 58: 1353-1366
8. Busza J.R., 2001. Promoting the positive: Responses to stigma and discrimination in Southeast Asia AIDS Care 13(4): 441-456
9. Carrieri P., Spire B., Duran S., Katlama C., Peyramond D., Francois C., Chêne G., Lang J.M., Moatti J.P., Leport C., APROCO Study Group 2003. Health-related quality of life after 1 year of highly active antiretroviral therapy Journal of Acquired Immune Deficiency Syndromes 32(1): 38-47
10. Chen J., Choe M.J., Chen S., Zhang S., 2005. Community Environment and HIV/AIDS-related Stigma in China AIDS Education and Prevention 17(1): 1-11
11. Cleary, S., A. Boulle, D. McIntyre and D. Coetzee: 2004. Cost-effectiveness of antiretroviral treatment for HIV-positive adults in a South African township (Cape Town, Health Systems Trust, MSF and University of Cape Town)
12. Cobb M., De Chabert T., 2002. HIV/AIDS and care provider attributions: Who's to blame? AIDS Care 14(4): 545-548
13. Coetzee D., Hildebrand K., Boulle A., Maartens G., Louis F., Labatala F., Reuter H., Ntwana N., Goemaere E., 2004. Outcomes after two years of providing antiretroviral treatment in Khayelitsha, South Africa AIDS 18: 887-895
14. Council for Medical Schemes, 2003. Annual report of the Registrar of Medical Schemes 2002-2003. Council for Medical Schemes, Pretoria
15. Creese A., Floyd K., Alban A., Guiness L., 2002. Cost-effectiveness of HIV/AIDS interventions in Africa: A systematic review of the evidence The Lancet 359: 1635-1642
16. Crook J., Browne G., Roberts J., Gafni A., 2005. Impact of support services provided by a community-based AIDS service organization on persons living with HIV/AIDS Journal of the Association of Nurses in AIDS Care 16(4): 39-49
17. D'Angelo L.J., Abdalian S.E., Sarr M., Hoffman N., Belzer M., The Adolescent Medicine HIV/AIDS Research Network, 2001. Disclosure of serostatus by HIV infected youth: The experience of the REACH study Journal of Adolescent Health 29S: 72-79
18. Delate T., Coons S.J., 2001. The use of 2 health-related quality-of-life measures in a sample of persons infected with human immunodeficiency virus Clinical Infectious Diseases 32: E47-E52
19. Dorrington R.E., Bradshaw D., Johnson L., Budlender D., 2004. The Demographic Impact of HIV/AIDS in South Africa: National Indicators for 2004. Centre for Actuarial Research, South African Medical Research Council and Actuarial Society of South Africa, Cape Town
20. Drummond M., Pang F., 2001. Transferability of economic evaluation results. In: Drummond M., McGuire A. (eds) Economic Evaluation in Health Care: Merging Theory with Practice. Oxford University Press, Oxford
21. Echteld M.A., Deliens L., Ooms M.E., Ribbe M.W., Van der Wal G., 2005. Quality of life change and response shift in patients admitted to palliative care units: A pilot study Palliative Medicine 19: 381-388
22. Eriksson L.E., Nordström G., Berglund T., Sandström E., 2000. The health-related quality of life in a Swedish sample of HIV-infected persons Journal of Advanced Nursing 32(5): 1213-1223
23. Essink-Bot M.L., Krabbe P.F., Bonsel G.J., Aaronson N.K., 1997. An empirical comparison of four generic health status measures. The Nottingham Health Profile, the Medical Outcomes Study 36-item Short-Form Health Survey, the COOP/WONCA charts, and the Euroqol instrument Medical Care 35: 522-537
24. Evans S., Huxley P., 2005. Adaptation, response-shift and quality of life ratings in mentally well and unwell groups Quality of Life Research 14(7): 1719-1732
25. Forman L., Pillay Y., Sait L., 2004. Health Legislation 1994-2003. South African Health Review 2003/2004. Health Systems Trust, Durban
26. Forsythe S., Gilks C., 1999. Economic issues and antiretroviral therapy in developing countries Transactions of the Royal Society of Tropical Medicine and Hygiene 93: 1-3
27. Freedberg K.A., Losina E., Weinstein M., Paltiel A.D., Cohen C.J., Seage G.R., Craven D.E., Zhang H., April D., Kimmel A.B., Goldie S.J., 2001. The cost effectiveness of combination antiretroviral therapy for HIV disease New England Journal of Medicine 344(11): 824-831
28. Free State Department of Health, 2005. Implementation of the Comprehensive Care, Management and Treatment of HIV and AIDS patients: Outcomes of the first year, 2004. Free State Department of Health, Bloemfontein
29. Free State Department of Health, 2006. Monthly Update on Antiretroviral Treatment Programme. Free State Department of Health, Bloemfontein
30. Gielen A.C., McDonnell K.A., Wu A.W., O'Campo P., Faden R., 2001. Quality of life among women living with HIV: The importance of violence, social support, and self care behaviors Social Science & Medicine 52: 315-322
31. Hajiran H., 2006. Toward a quality of life theory: Net domestic product of happiness Social Indicators Research 75: 31-43
32. Hughes J., Jelsma J., Maclean E., Parder M., Tinise X., 2004. The health-related Quality of life of people living with HIV/AIDS Disability and Rehabilitation 26(6): 371-376
33. Hurst N.P., Kind P., Ruta D., Hunter M., Stubbings A., 1997. Measuring health-related quality of life in rheumatoid arthritis: Validity, responsiveness and reliability of EuroQol (EQ-5D) British Journal of Rheumatology 36: 551-559
34. Ijumba P., Poole C., George G., Gray A., 2004. Access to Antiretroviral Therapy. South African Health Review 2003/04. Health Systems Trust, Durban, pp 319-338
35. Jack W., 1999. Principles of Health Economics for Developing Countries. World Bank, Washington, DC
36. Jefferson T., Demicheli V., Mugford M., 2000. Elementary Economic Evaluation in Health Care. BMJ Books, London
37. Jelsma J., Ferguson G., 2004. The determinants of self-reported health-related quality of life in a culturally and socially diverse South African Community Bulletin of the World Health Organisation 82: 206-212
38. Jelsma J., Mkoka S., Amosun L., Nieuwveldt J., 2004. The reliability and validity of the Xhosa version of the EQ-5D Disability and Rehabilitation 26: 103-108
39. Kalichman S.C., Simbayi L., 2004. Traditional beliefs about the cause of AIDS and AIDS-related stigma in South Africa AIDS Care 16(5): 572-580
40. Kim-Prieto C., Diener E., Tamir M., Scollon C., Diener M., 2005. Integrating the diverse definitions of happiness: A time-sequential framework of subjective well-being Journal of Happiness Studies 6: 261-300
41. Kind P., Dolan P., Gudex C., Williams A., 1998. Variations in population health status: Results from a United Kingdom national questionnaire survey British Medical Journal 316: 736-41
42. Klein S.J., Karchner W.D., O'Connell D.A., 2002. Interventions to prevent HIV-related stigma and discrimination: Findings and recommendations for public health practice Journal of Public Health Management Practice 8(6): 44-53
43. Klitzman R.L., Kirshenbaum S.B., Dodge B., Remien R.H., Ehrhardt A.A., Johnson M.O., Kittel L.E., Daya S., Morin S.F., Kelly J., Lightfoot M., Rotheram-Borus M.J., the NIHM Health Living Trial Group 2004. Intricacies and inter-relationships between HIV disclosure and HAART: A qualitative study AIDS Care 16(5): 628-640
44. Krabbe P., Weijnen T., 2003. Guidelines for analysing and reporting EQ-5D outcomes. In: Brooks R., Rabin R., de Charro F. (Eds) The Measurement and Valuation of Health Status Using EQ-5D: A European Perspective. Kluwer Academic Publisher, DordrechtLondon, pp 7-19
45. Lau J.T.F., Tsui H.Y., Li C.K., Chung R.W.Y., Chan M.W., Molassiotis A., 2003. Needs assessment and social environment of people living with HIV/ AIDS in Hong Kong Aids Care 15(5): 699-706
46. Laurent C., Kouanfack C., Koulla-Shiro S., Nkoué N., Bourgeois A., Calmy A., Lactuock B., Nzeusseu V., Mougnutou R., Peytavin G., Liégeois F., Nerrienet F., Tardy M., Peeters M., Andrieux-Meyer I., Zekeng L., Kazatchkine M., Mpoudi-Ngolé E., Delaporte E., 2004. Effectiveness and safety of a generic fixed-dose combination of nevirapine, stavudine, and lamivudine in HIV-1-infected adults in Cameroon: Open-label multicentre trial The Lancet 364: 29-34
47. Lavalle C., Aguilar J.C.D., Peña F., Estrada-Aguilar J.L., Aviña-Zubieta J.A., Madrazo M., 2000. Reduction in hospitalization costs, morbidity, disability, and mortality in patients with AIDS treated with protease inhibitors Archives of Medical Research 31: 515-519
48. Louwagie, G., K. Meyer, M. Bachmann, F. le R. Booysen, L. Fairall and C. Heunis: 2006. 'Health-related Quality of Life in patients selected for antiretroviral treatment in a South African Province: A cross-sectional analytical study', Mimeo. Bloemfontein, University of the Free State
49. Makoae L.N., Seboni S.M., Molosiwa K., Moleko M., Human S., Sukati N.A., Holzemer W.L., 2005. The symptom experience of people living with HIV/ AIDS in Southern Africa Journal of the Association of Nurses in AIDS Care 16(3): 22-32
50. Marseille E., Hoffman P.B., Kahn J.G., 2002. HIV prevention before HAART in sub-Saharan Africa The Lancet 359: 1851-1856
51. Messeri P.A., Abramson D.M., Aidala A.A., Lee F., Lee G., 2002. The impact of ancillary HIV services on engagement in medical care in New York City AIDS Care 14(Supplement 1): S15-S29
52. Michalos A.C., 2004. Social indicators research and health-related quality of life research Social Indicators Research 65: 27-72
53. Miners A.H., Sabin C.A., Trueman P., Youle M., Mocroft A., Johnson M., Beck E.J., 2001. Assessing the cost-effectiveness of highly active antiretroviral therapy for adults with HIV in England HIV Medicine 2: 52-58
54. Møller V., 1998. Quality of life in South Africa: Post-apartheid trends Social Indicators Research 43(1): 27-68
55. Møller V., 1999. South African quality of life trends in the late 1990s: Major divides in perceptions Society in Transition 30(2): 93-105
56. MMøller V., Dickow H., 2002. The role of quality of life surveys in managing change in democratic transitions: The South African case Social Indicators Research 58(3): 267-292
57. MMøller V., Schlemmer L., 1983. Quality of life in South Africa: Towards an instrument for the assessment of quality of life and basic needs Social Indicators Research 12(3): 225-279
58. Moore R.D., 2000. Cost effectiveness of combination HIV therapy: 3 Years later Pharmacoeconomics 17(4): 325-330
59. Murri R., Fantoni M., Del Borgo C., Visona R., Barracco A., Zambelli A., Testa L., Orchi N., Tozzi V., Bosco O., Wu A.W., 2003. Determinants of health-related quality of life in HIV-infected patients AIDS Care 15(4): 581-590
60. National Department of Health, 2003. Operational Plan for Comprehensive HIV and AIDS Care, Management and Treatment for South Africa. National Department of Health, Pretoria
61. National Department of Health, 2004. National Antiretroviral Treatment Guidelines. National Department of Health, Pretoria
62. Ogden J., Nyblade L., 2005. Common at its Core: HIV-Related Stigma Across Contexts. International Centre for Research on Women, Washington, DC
63. Paxton S., 2002. The paradox of public HIV disclosure AIDS Care 14(4): 559-567
64. Paxton S., Gonzales G., Uppakaew K., Abraham K.K., Okta S., Green C., Nair K.S., Parwati-Merati T., Thephthien B., Marin M., Quesada A., 2005. Aids-related discrimination in Asia AIDS Care 17(4): 413-424
65. Pearmain D., 2000. Impact of Changes to the Medical Schemes Act. South African Health Review 2000. Health Systems Trust, Durban
66. Poundstone K.E., Strathdee S.A., Celentano D.D., 2004. The social epidemiology of human immunodeficiency virus/acquired immunodeficiency syndrome Epidemiologic Reviews 26: 22-35
67. Préau M., Leport C., Salmon-Ceron D., Carrieri P., Portier H., Chene G., Spire B., Choutet P., Raffi F., Morin M., the APROCO Study Group 2004. Health-related quality of life and patient-provider relationships in HIV-infected patients during the first 3 years after starting PI-containing antiretroviral treatment AIDS Care 16(5): 649-661
68. Reidpath D.D., Chan K.Y., 2005. A method for the quantitative analysis of the layering of HIV-related stigma AIDS Care 17(4): 425-432
69. Sendi P.P., Bucher H.C., Harr T., Craig B.A., Schwietert M., Pfluger D., Gafni A., Battegay M., 1999. Cost effectiveness of highly active antiretroviral therapy in HIV-infected patients AIDS 13: 1115-1122
70. Sendi P., Schellenberg F., Ungsedhapand C., Kaufmann G.R., Bucher H.C., Weber R., Battegay M., Swiss HIV Cohort Study 2004. Productivity costs and determinants of productivity in HIV-infected patients Clinical Therapeutics 26(5): 791-800
71. Siegel K., Schrimshaw E.W., 2005. Stress, appraisal, and coping: A comparison of HIV-infected women in the pre-HAART and HAART eras Journal of Psychosomatic Research 58: 225-233
72. Stein, A., H. McLeod and Z. Achmat: 2002. The cover provided for HIV/ AIDS benefits in medical schemes in 2002. CARE Monograph No. 10. University of Cape Town: Centre for Actuarial Research
73. Stewart K.E., Cianfrini L.R., Walker J.F., 2005. Stress, social support and housing are related to health status among HIV-positive persons in the Deep South of the United States AIDS Care 17(3): 350-358
74. Stewart R., Loveday M., 2005. The Operation Plan: Implementation of the Antiretroviral Therapy Component. South African Health Review 2005. Health Systems Trust, Durban
75. Sugimoto N., Ichikawa M., Siriliang B., Nakahara S., Jimba M., Wakai S., 2005. Herbal medicine use and quality of life among people living with HIV/AIDS in northeastern Thailand AIDS Care 17(2): 252-262
76. Teixeira P.R., Vitoria M.A., Barcarolo J., 2004. Antiretroviral treatment in resource-poor settings: The Brazilian experience AIDS 18(3): S5-S7
77. The EuroQol Group, 1990. EuroQol - a new facility for the measurement of health-related quality of life. Health Policy 16: 199-208
78. Tramarin A., Campostrini S., Postma M.J., Calleri G., Tolley K., Parise N., De Lalla F., 2004. A multicentre study of patient survival, disability, quality of life and cost of care among patients with AIDS in Northern Italy Pharmacoeconomics 22(1): 43-53
79. Van Praag B.M.S., Ferrer-I-Carbonell A., 2004. Happiness Quantified: A Satisfaction Calculus Approach. Oxford University Press, New York
80. Veenhoven R., 2000. The four qualities of life: Ordering concepts and measures of the good life Journal of Happiness Studies 1: 1-39
81. Weidle P.J., Malamba S., Mwebaze R., Sozi C., Rukundo G., Downing R., Hanson D., 2002. Assessment of a pilot antiretroviral drug therapy programme in Uganda: Patients' response, survival, and drug resistance The Lancet 360: 34-40
82. Williams P., Narciso L., Browne G., Roberts J., Weir R., Gafni A., 2005. Characteristics of people living with HIV who use community-based services in Ontario, Canada: Implications for service providers Journal of the Association of Nurses in AIDS Care 16(4): 50-63
83. WHO, 2005. "3 × 5" Progress Report. WHO and UNAIDS, Geneva
84. Wood E., Braitstein P., Montaner J.S.G., Schechter M.T., Tyndall M.W., O'Shaughnessy M.V., Hogg R.S., 2000. Extent to which low-level use of antiretroviral treatment could curb the AIDS epidemic in sub-Saharan Africa The Lancet 355: 2095-100
85. Wu A.W., Jacobson K.L., Frick K.D., Clark R., Revicki D.A., Freedberg K.A., Scott-Lennox J., Feinberg J., 2002. Validity and responsiveness of the Euroqol as a measure of health-related quality of life in people enrolled in an AIDS clinical trial Quality of Life Research 11: 273-82