Caring for people with motor neurone disease

International Journal of Therapy and Rehabilitation

Volumn 13, Issue 8, 2006, Pages 351-355

  Hocking, Clare ^a   Paddy, Ann ^a   Brott, Tamzin ^b  

^a AUCKLAND UNIVERSITY OF TECHNOLOGY   (New Zealand)

^b WAITEMATA DISTRICT HEALTH BOARD   (New Zealand)

Author keywords

Daily activity; Health care team; Participation; Phenomenology

Indexed keywords

EID: 33846892209     PISSN: 17411645     EISSN: 1759779X     Source Type: Journal    
DOI: 10.12968/ijtr.2006.13.8.351     Document Type: Article

References (16)

1. Amyotrophic Lateral Sclerosis Survival Guide (2003) Vital statistics. Retrieved October 22, 2003, from http://www. alssurvivalguide.com/als_pages/journal.htm.
2. Dawson S, Kristjanson LJ (2003) Mapping the journey: family carers' perceptions of issues related to end-stage care of individuals with muscular dystrophy or motor neurone disease. J Palliative Care 19(1): 36-42.
3. Heidegger M (1962) Being and Time. (J. Macquarrie & E. Robinson, Trans.). Blackwell, Oxford.
4. Hornsey J (1994) Empowering patient and carer through terminal MND. Nursing Times 90(29): 37-9.
5. Hughes RA, Sinha A, Higginson I, Down K, Leigh PN (2005) Living with motor neurone disease: Lives, experiences of services and suggestions for change. Health and Social Care in the Community 13(1): 64-74.
6. Liebetanz D, Hagemann K, von Lewinski F, Kahler E, Paulus W (2004) Extensive exercise is not harmful in amyotrophic lateral sclerosis. European J Neuroscience 20(11): 3115-20.
7. Lou J-S, Reeves A, Benice T, Sexton G (2003) Fatigue and depression are associated with poor quality of life in ALS. Neurol 60: 122-3.
8. Morgan A (2003) Understanding motor neurone disease. Kai Tiaki Nursing New Zealand 9(5): 22-3.
9. Motor Neurone Disease Association of Australia (2003) Presentation. Retrieved November 8, 2003, http://home.vicnet.net.au/~mndaust/presentation.html.
10. O’Brien M.R (2004a) Healthcare professionals' knowledge of motor neurone disease. Br J Nurs 13(18): 1080-4.
11. O’Brien M.R (2004b) Information-seeking behaviour among people with motor neurone disease. Br J Nurs 13(16): 964-8.
12. Paddy A (2000) Experiencing the relationship: The client and the community occupational therapist. A phenomenological study. Unpublished Masters thesis, Auckland University of Technology, Auckland, New Zealand.
13. Polit DF, Hungler BP (1997) Essentials of Nursing Research: Methods, Appraisals, and Utilization 4th edn. Lippincott- Raven, Philadelphia.
14. Skelton J (2005) Nursing role in the multidisciplinary management of motor neurone disease. Br J Nurs 14(1): 20-4.
15. Townsend E, ed (1995) Enabling Occupation: An Occupational Therapy Perspective. Canadian Association of Occupational Therapists, Ottawa.
16. van Manen M. (1990) Researching Lived Experience: Human Science for an Action Sensitive Pedagogy. State University of New York Press, London, Ontario.