Parents of children with cerebral palsy: A review of factors related to the process of adaptation

Child: Care, Health and Development

Volumn 33, Issue 2, 2007, Pages 161-169

  Rentinck, I C M ^a   Ketelaar, M ^a,b   Jongmans, M J ^c   Gorter, J W ^a,b  

^a Center of Excellence for Rehabilitation Medicine   (Netherlands)

^b University Medical Centre   (Netherlands)

^c UTRECHT UNIVERSITY   (Netherlands)

Author keywords

Cerebral palsy; Coping; Parental adjustment; Parents; Psychological stress; Systematic review

Indexed keywords

ADAPTATION; CAREGIVER BURDEN; CEREBRAL PALSY; CHILD PARENT RELATION; COPING BEHAVIOR; FAMILY COPING; FAMILY COUNSELING; FAMILY LIFE; FAMILY STRESS; HUMAN; MENTAL HEALTH; PARENTAL ATTITUDE; PARENTAL STRESS; PRIORITY JOURNAL; PSYCHOLOGICAL WELL BEING; REVIEW; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; CEREBRAL PALSY; CHILD; CHILD, PRESCHOOL; FAMILY; FEMALE; HUMANS; INFANT; MALE; PARENTS; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 33846891836     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2006.00643.x     Document Type: Review

References (33)

1. Baird, G., McConachie, H. & Scrutton, D. (2000) Parents' perceptions of disclosure of the diagnosis of cerebral palsy. Archives of Disease in Childhood, 83, 475-480.
2. Britner, P. A., Morog, M. C., Pianta, R. C. & Marvin, R. S. (2003) Stress and coping: A comparison of self report measures of functioning in families of young children with cerebral palsy or no medical diagnosis. Journal of Child and Family Studies, 12, 335-348.
3. Bronfenbrenner, U. & Morris, P. A. (1998) The ecology of developmental processes. In: Handbook of Child Psychology (ed. R. M. Lerner), pp. 996-1028. Wiley, New York, USA.
4. Button, S., Marvin, R. S. & Pianta, R. C. (2001) Partner support and maternal stress in families raising young children with cerebral palsy. Journal of Developmental and Physical Disabilities, 13, 61-81.
5. Cadman, D., Rosenbaum, P., Boyle, M. & Offord, D. R. (1991) Children with chronic illness: Family and parent demographic characteristics and psychosocial adjustment. Pediatrics, 87, 884-889.
6. Florian, V. & Findler, L. (2001) Mental health and marital adaptation among mothers of children with cerebral palsy. American Journal on Orthopsychiatry, 71, 358-367.
7. Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., Krauss, M. W., Sayer, A. & Upshur, C. C. (2001) II. Children with disabilities: theoretical perspectives and empirical evidence. Monographs of the Society for Research in Child Development, 66, 6-21.
8. Hirose, T. & Ueda, R. (1990) Long-term follow-up study of cerebral palsy children and coping behaviour of parents. Journal of Advanced Nursing, 15, 762-770.
9. Horton-Vensters, T. & Wallander, J. L. (2001) Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46, 382-399.
10. King, G., King, S., Rosenbaum, P. & Goffin, R. (1999) Family-centered caregiving and wellbeing of parents of children with disabilities: Linking process with outcome. Journal of Pediatric Psychology, 24, 41-53.
11. Knussen, C. & Sloper, P. (1992) Stress in families of children with disability: A review of risk and resistance factors. Journal of Mental Health, 1, 241-257.
12. Lambrenos, K., Weindling, A. M., Calam, R. & Cox, A. D. (1996) The effect of a child's disability on mother's mental health. Archives of Disease in Childhood, 74, 115-120.
13. Lin, S. L. (2000) Coping and adaptation in families of children with cerebral palsy. Exceptional Children, 66, 201-218.
14. McCubbin, M. A. (1989) Family stress and family strengths: A comparison of single- and two-parent families with handicapped children. Research in Nursing and Health, 12, 101-110.
15. McCubbin, M. A. & McCubbin, H. I. (1992) Family coping with health crisis: The resilience model of family stress, adjustment and adaptation. In: Families, Health and Illness (eds C. Danielson, B. Hamel-Bissel & P. Winstead-Fry), pp. 21-63. Mosby, New York, USA.
16. Manuel, J., Naughton, M. J., Balkrishnan, R., Paterson, S. B. & Koman, L. A. (2003) Stress and adaptation in mothers of children with cerebral palsy. Journal of Pediatric Psychology, 28, 197-201.
17. Miller, A. C., Gordon, R. M., Daniele, R. J. & Diller, L. (1992) Stress, appraisal, and coping in mothers of disabled and nondisabled children. Journal of Pediatric Psychology, 17, 587-605.
18. Mobarak, R., Khan, N. Z., Munir, S., Zaman, S. S. & McConachie, H. (2000) Predictors of stress in mothers of children with cerebral palsy in Bangladesh. Journal of Pediatric Psychology, 25, 427-433.
19. Molteno, C. & Lachman, P. (1996) Stress in mothers of handicapped children. Southern African Journal of Child and Adolescent Mental Health, 8, 13-20.
20. Olson, D. H. L., Sprenkle, D. H. & Russel, C. S. (1979) Model of Marital and family systems: Cohesion and adaptability dimensions, family types and clinical applications. Family Process, 18, 3-28.
21. Ong, L. C., Afifah, I., Sofiah, A. & Lye, M. S. (1998) Parenting stress among mothers of Malaysian children with cerebral palsy: predictors of child- and parent-related stress. Annals of Tropical Paediatrics, 18, 301-307.
22. Osofsky, J. D. & Thompson, M. D. (2000) Adaptive and maladaptive parenting: Perspectives on risk and protective factors. In: Handbook of Early Childhood Intervention (eds J. P. Shonkoff & S. J. Meisels), pp. 54-75. Cambridge University Press, Cambridge, UK.
23. Piggot, J., Paterson, J. & Hocking, C. (2002) Participation in home therapy programs for children with cerebral palsy: A compelling challenge. Qualitative Health Research, 12, 1112-1129.
24. Piggot, J., Hocking, C. & Paterson, J. (2003) Parental adjustment to having a child with cerebral palsy and participation in home therapy programs. Physical and Occupational Therapy in Pediatrics, 23, 5-29.
25. Raina, P., O'Donnell, M., Schwellnus, H., Rosenbaum, P., King, G., Brehaut, J., Russell, D., Swinton, M., King, S., Wong, M., Walter, S. D. & Wood, E. (2004) Caregiving process and caregiver burden: conceptual models to guide research and practice. BMC Pediatrics, 4, http://www.biomedcentral.com/1471-2431/4/1
26. Saddler, A. L., Hillman, S. B. & Benjamins, D. (1993) The influence of disabling condition visibility on family functioning. Journal of Pediatric Psychology, 18, 425-439.
27. Sloper, P. & Turner, S. (1993) Risk and resistance factors in the adaptation of parents of children with severe physical disability. Journal of Child Psychology and Psychiatry, 34, 167-188.
28. Smith, T. B., Oliver, M. N. I. & Innocenti, M. S. (2001) Parenting stress in families of children with disabilities. American Journal on Orthopsychiatry, 72, 257-261.
29. Wallander, J. L., Varni, J. W., Babani, L., Banis, H. T. & Wilcox, K. T. (1989) Family resources as resistance factors for psychological maladjustment in chronically ill and handicapped children. Journal of Pediatric Psychology, 14, 157-173.
30. Wanamaker, C. E. & Glenwick, D. S. (1998) Stress, coping and perceptions of child behavior in parents of preschoolers with cerebral palsy. Rehabilitation Psychology, 43, 297-312.
31. Weinhouse, D., Weinhouse, M. & Nelson, J. G. (1992) Stress factors in families of young children with exceptional educational needs. School Psychology International, 13, 51-59.
32. Weiss, K. L., Marvin, R. S. & Pianta, R. C. (1997) Etnographic detection and description of family strategies for child care: applications to the study of cerebral palsy. Journal of Pediatric Psychology, 22, 263-278.
33. Wiegner, S. & Donders, J. (2000) Predictors of parental distress after congenital disabilities. Journal of Developmental and Behavioral Pediatrics, 21, 271-277.