Physical impairment and social adaptation in adult survivors of childhood and adolescent rhabdomyosarcoma: A report from the Childhood Survivors Study

Psycho-Oncology

Volumn 16, Issue 1, 2007, Pages 26-37

  Punyko, Judith A ^a   Gurney, James G ^a   Baker, K Scott ^a   Hayashi, Robert J ^c   Hudson, Melissa M ^b   Liu, Yan ^d   Robison, Leslie L ^a,b   Mertens, Ann C ^a  

^a UNIVERSITY OF MINNESOTA MEDICAL SCHOOL   (United States)

^b ST JUDE CHILDREN S RESEARCH HOSPITAL   (United States)

^c CHILDREN S HOSPITALS AND CLINICS OF MINNESOTA   (United States)

^d Fred Hutchinson Cancer Research Center   (United States)

Author keywords

Cancer; Late effects; Life attainment; Oncology; Physical function; Rhabdomyosarcoma; Survivors

Indexed keywords

ANTINEOPLASTIC AGENT;

ADOLESCENCE; ADULT; ARTICLE; CANCER CHEMOTHERAPY; CANCER PAIN; CANCER RADIOTHERAPY; CANCER SURGERY; CANCER SURVIVOR; CHILDHOOD; CONTROLLED STUDY; DAILY LIFE ACTIVITY; FEMALE; FUNCTIONAL ASSESSMENT; HEALTH SURVEY; HIGH SCHOOL; HUMAN; MAJOR CLINICAL STUDY; MALE; MARRIAGE; PHYSICAL DISEASE; QUALITY OF LIFE; RHABDOMYOSARCOMA; SELF REPORT; SIBLING; SOCIAL ADAPTATION; WORK;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; EDUCATIONAL STATUS; HEALTH STATUS; HUMANS; MARITAL STATUS; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; RHABDOMYOSARCOMA; SIBLINGS; SOCIAL ADJUSTMENT; SURVIVORS;

EID: 33846681951     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.1072     Document Type: Article

References (33)

1. Ries LAG EM, Kosary CL, Hankey BF et al. (eds). SEER Cancer Statistics Review, 1975-2001. National Cancer Institute: Bethesda, MD, 2004. http://seer.cancer.gov/csr/1975_2001/
2. Raney RB, Anderson JR, Kollath J et al. Late effects of therapy in 94 patients with localized rhabdomyosarcoma of the orbit: report from the intergroup Rhabdomyosarcoma Study (IRS)-III, 1984-1991. Med Ped Oncol 2000;34(6):413-420.
3. Oberlin O, Rey A, Anderson J, Carli M, Raney RB, Treuner J et al. Treatment of orbital rhabdomyosarcoma: survival and late effects of treatment - results of an international workshop. J Clin Oncol 2001;19(1): 197-204.
4. Hughes LL, Baruzzi MJ, Ribeiro RC et al. Paratesticular rhabdomyosarcoma: delayed effects of multimodality therapy and implications for current management. Cancer 1994;73(2):476-482.
5. Raney RB, Asmar L, Vassilopoulou-Sellin R et al. Late complications of therapy in 213 children with localized, nonorbital soft-tissue sarcoma of the head and neck: a descriptive report from the Intergroup Rhabdomyosarcoma Studies (IRS)-II and -III. IRS Group of the Children's Cancer Group and the Pediatric Oncology Group. Med Ped Oncol 1999;33(4):362-371.
6. Raney RB, Stoner JA, Walterhouse DO et al. Results of treatment of fifty-six patients with localized retroperitoneal and pelvic rhabdomyosarcoma: a report from The Intergroup Rhabdomyosarcoma Study-IV, 1991-1997. Ped Blood Cancer 2004;42(7):618-625.
7. Heyn R. Raney Jr RB, Hays DM et al. Late effects of therapy in patients with paratesticular rhabdomyosarcoma. Intergroup Rhabdomyosarcoma Study Committee. J Clin Oncol 1992;10(4):614-623.
8. Maciejewski M. Generic measures. In Understanding Health Care Outcomes Research, Kane R (ed.). Aspen Publishers, Inc.: Gaithersburg, MD, 2002;19-52.
9. Spilker B (ed.). Quality of Life and Pharmacoeconomics in Clinical Trials. Raven Press: New York, NY, 1996.
10. Eiser C, Havermans T. Long term social adjustment after treatment for childhood cancer. Arch Dis Child 1994;70:66-70.
11. Green DM, Zevon MA, Hall B. Achievement of life goals by adult survivors of modern treatment for childhood cancer. Cancer 1991;67:206-213.
12. Hays DM, Landsverk J, Sallan SE et al. Educational, occupational, and insurance status of childhood cancer survivors in their fourth and fifth decades of life. J Clin Oncol 1992;10:1397-1406.
13. Haupt R, Fears TR, Robison LL et al. Educational attainment in long-term survivors of childhood acute lymphoblastic leukemia. JAMA 1994;272: 1427-1432.
14. Kelaghan J, Myers MH, Mulvihill JJ et al. Educational achievement of long-term survivors of childhood and adolescent cancer. Med Pediatr Oncol 1988;16: 320-326.
15. Lannering B, Marky I, Lundberg A, Olsson E. Long-term sequelae after pediatric brain tumors: their effect on disability and quality of life. Med Pediatr Oncol 1990;18:304-310.
16. Mostow EN, Byrne J, Connelly RR, Mulvihill JJ. Quality of life in long-term survivors of CNS tumors of childhood and adolescence. J Clin Oncol 1991;9: 592-599.
17. Rauck AM, Green DM, Yasui Y, Mertens A, Robison LL. Marriage in the survivors of childhood cancer: a preliminary description from the Childhood Cancer Survivor Study. Med Pediatr Oncol 1999;33:60-63.
18. Nagarajan R, Neglia JP, Clohisy DR et al. Education, employment, insurance, and marital status among 694 survivors of pediatric lower extremity bone tumors: a report from the Childhood Cancer Survivor Study. Cancer 2003;97:2554-2564.
19. Robison LL, Mertens AC, Boice JD et al. Study design and cohort characteristics of the Childhood Cancer Survivor Study: a multi-institutional collaborative project. Med Pediatr Oncol 2002;38:229-239.
20. Percy C, van Holten V, Muir C (eds). International Classification of Diseases for Oncology (2nd edn). World Health Organization: Geneva, 1990.
21. Liang K, Zeger S. Longitudinal data analyses using generalized linear models. Biometrika 1986;73:1-22.
22. Kleinbaum DG, Klein M. Logistic Regression: A Self-Learning Text. Springer: New York, NY, 2002.
23. Hudson MM, Mertens AC, Yasui Y et al. Health status of adult long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. JAMA 2003;290:1583-1592.
24. Pastore G, Mosso ML, Magnani C, Luzzatto L, Bianchi M, Terracini B. Physical impairment and social life goals among adult long-term survivors of childhood cancer: a population-based study from the childhood cancer registry of Piedmont, Italy. Tumori 2001;87:372-378.
25. Meadows AT, McKee L, Kazak AE. Psychosocial status of young adult survivors of childhood cancer: a survey. Med Pediatr Oncol 1989;17:466-470.
26. US Department of Justice. Americans with Disabilities Act (ADA), 2004. Home Page. Available at: http://www.usdoj.gov/crt/ada/adahom1.htm. Accessed April 4, 2004.
27. Aziz NM. Cancer survivorship research: challenge and opportunity. J Nutr 2002;132:3494S-3503S.
28. Mitby PA, Robison LL, Whitton JA et al. Utilization of special education services and educational attainment among long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Cancer 2003;97:1115-1126.
29. Crom DB, Chathaway DK, Tolley EA, Mulhern RK, Hudson MM. Health status and health-related quality of life in long-term adult survivors of pediatric solid tumors. Int J Cancer Suppl 1999;12: 25-31.
30. Heal LW, Rusch FR. Predicting employment for students who leave special education high school programs. Except Child 1995;61:472-487.
31. Thorsen L, Nystad W, Dahl O et al. The level of physical activity in long-term survivors of testicular cancer. Eur J Cancer 2003;39:1216-1221.
32. Serlin RC, Mendoza TR, Nakamura Y, Edwards KR, Cleeland CS. When is cancer pain mild, moderate or severe? Grading pain severity by its interference with function. Pain 1995;61:277-284.
33. Lyne ME, Coyne PJ, Watson AC. Pain management issues for cancer survivors. Cancer Pract 2002;10:S27-S32.