Recognition of emerging adulthood in UK rheumatology: The case for young adult rheumatology service developments

Rheumatology

Volumn 46, Issue 2, 2007, Pages 188-191

  Jordan, A ^a,b   McDonagh, J E ^a,b  

^a BIRMINGHAM CHILDREN S HOSPITAL NHS FOUNDATION TRUST   (United Kingdom)

^b UNIVERSITY OF BIRMINGHAM   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

DISEASE MODIFYING ANTIRHEUMATIC DRUG;

ADULTHOOD; CLINICAL PRACTICE; COST BENEFIT ANALYSIS; CULTURAL FACTOR; DEPRESSION; EDITORIAL; EDUCATION; EMPLOYMENT; GOVERNMENT; HEALTH CARE NEED; HEALTH CARE POLICY; HEALTH PROGRAM; HEALTH SERVICE; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MORBIDITY; MUSCULOSKELETAL PAIN; PATIENT TRANSPORT; PHYSICAL DISABILITY; PRIORITY JOURNAL; PROGNOSIS; RHEUMATOLOGY; RISK ASSESSMENT; SOCIAL CLASS; SYSTEMIC LUPUS ERYTHEMATOSUS; UNITED KINGDOM; WORKLOAD;

ADOLESCENT; ADOLESCENT HEALTH SERVICES; ADULT; ARTHRITIS, JUVENILE RHEUMATOID; CONTINUITY OF PATIENT CARE; DELIVERY OF HEALTH CARE; GREAT BRITAIN; HUMANS; RHEUMATOLOGY; STATE MEDICINE;

EID: 33846679144     PISSN: 14620324     EISSN: 14620332     Source Type: Journal    
DOI: 10.1093/rheumatology/kel368     Document Type: Editorial

References (51)

1. McDonagh JE, Foster H, Hall MA, Chamberlain MA, on behalf of the BPRG. Audit of rheumatology services for adolescents and young adults in the UK. Rheumatology 2000;39:596-602.
2. Shaw KL, Southwood TR, McDonagh JE, on behalf of the British Paediatric Rheumatology Group. User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford). 2004;43:770-8.
3. Department of Health. Getting the right start: National Service Framework for Children, Young People and Maternity Services: Standard for Hospital Services. April 2003.
4. Department of Health. National Service Framework for Children, Young People and Maternity Services. September 2004. www.dh.gov.uk
5. Department of Health. Transition: Getting it right for young people. Improving the transition of young people with long-term conditions from children's to adult health services. Department of Health Publications, 2006, London. www.dh.gov.uk/transition
6. Royal College of Paediatrics and Child Health. Bridging the gap: Health care for adolescents. June 2003. www.rcpch.ac.uk
7. Royal College of Nursing. Adolescent transition care: Guidance for nursing staff. 2004, London. www.rcn.org.uk
8. Suris JC, Michaud PA, Viner R. The adolescent with a chronic condition. Part 1: Developmental issues. Arch Dis Child 2004;89:938-42.
9. Arnett JJ. Emerging adulthood: A theory of development from the late teens through the twenties. Am Psychol 2000;55:469-80.
10. Dovey-Pearce G, Hurrell R, May C, Walker C, Doherty Y. Young adults' (16-25 years) 'suggestions for providing developmentally appropriate diabetes services: A qualitative study. Health Soc Care Community 2005;13:409-19.
11. Department for Education and Employment (DfEE). Connexions: The best start in life for every young person. DfEE, 2000, Nottingham, UK.
12. Office of the Deputy Prime Minister. Transitions: Young adults with complex needs. ODPM Publications. Wetherby, UK. www.socialexclusion.gov.uk. 2005.
13. European Commission. Report on the state of young people's health in the European Union. 2000, Luxembourg.
14. Symmons D, Asten P, McNally R, Webb R. Health care need assessment for musculoskeletal diseases. The first step - estimating the number of incident and prevalent cases. 2nd edn. Chesterfield, Derbyshire: Arthritis Research Campaign, 2002.
15. Turner G, Symmons D, Bamji A, Palferman T. Consultant rheumatology workforce in the UK: Changing patterns of provision 1997-2001. Rheumatology 2002;41:680-4.
16. Adam V, St-Pierre Y, Fautrel B, Clarke AE, Duffy CM, Penrod JR. What is the impact of adolescent arthritis and rheumatism? Evidence from a national sample of Canadians. J Rheumatol 2005;32:354-61.
17. Roth-Isigkeit A, Thyen U, Stoven H, Schwarzenberger J, Schmucker P. Pain among children and adolescents: Restrictions in daily living and triggering factors. Pediatrics 2005; 115:e152-62.
18. Brattberg G. Do pain problems in young school children persist into early adulthood? A 13 year follow-up. Eur J pain 2004;8:187-199.
19. Eccleston C, Malleson P, Clinch J, Connell H, Sourbut C. Chronic pain in adolescents: Evaluation of a programme of interdisciplinary cognitive behaviour therapy. Arch Dis Child 2003;88:881-5.
20. Sleed M, Eccelston C, Beecham J, Knapp M, Jordan A. The economic impact of chronic pain in adolescence: Methodological considerations and a preliminary costs-of-illness study. Pain 2005;119:183-190.
21. Shaw KL, Southwood TR, McDonagh JE, on behalf of the British Society of Paediatric, and Adolescent Rheumatology. Growing up and moving on in rheumatology: A multicentre cohort of adolescents with juvenile idiopathic arthritis. Rheumatology 2005;44:806-12.
22. Campbell-Stokes P, Hackett J, Johnson B, Freeman N, Shaw KL, McDonagh JE. Audit of outcome 24 months following participation in a multicentre transitional care research project. Arch Dis Child 2006;91(Suppi 1):A46.
23. Boyle MP, Farukhi Z, Nosky ML. Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatr Pulmonol 2001;32:428-36.
24. Zack J, Jacobs CP, Keenan PM et al. Perspectives of patients with cystic fibrosis on preventive counselling and transition to adult care. Pediatr Pulmonol 2003;36:376-83.
25. Minden K, Niewerth M, Listing J, Biedermarm T, Schontube M, Zink A. Burden and cost of illness in patients with juvenile idiopathic arthritis. Ann Rheum Dis 2004;63:836-42.
26. Packham JC, Hall MA, Pimm TJ. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: Predictive factors for mood and pain. Rheumatology (Oxford) 2002;41:1444-9.
27. Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis:sOcial function, relationships and sexual activity. Rheumatology (Oxford) 2002;41:1440-3.
28. Ostensen M, Almberg K, Koksvik HS. Sex, reproduction and gynecological disease in young adults with a history of juvenile chronic arthritis. J Rheumatol 2000;27:1783-7.
29. Peterson LS, Mason T, Nelson AM, Fallon W, Gabriel SE. Psychosocial outcomes and health studies in adults who have had juvenile arthritis: A controlled population based study. Arthritis Rheum 1997;40:2235-40.
30. French AR, Mason T, Nelson AM et al. Osteopenia in adults with a history of juvenile rheumatoid arthritis. A population based study. J Rheumatol 2002;29:1065-70.
31. Oen K, Malleson PN, Cabral DA, Rosenberg AM, Petty RE, Cheang M. Disease course and outcome of juvenile rheumatoid arthritis in a multicentre cohort. J Rheumatol 2002;29:1989-99.
32. Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: Education and employment. Rheumatology (Oxford) 2002;41:1436-9.
33. Marshall N, Myers A, Dunkley P, Griffiths ID. Outcome in adults with juvenile idiopathic arthritis. Arthritis Rheum 2003;48:767-75.
34. Suris JC, Parera N. Sex, drugs and chronic illness: Health behaviours among chronically ill youth. Eur J Public Health 2005;15:484-8.
35. Britto MT, Garrett JM, Dugliss MAJ et al. Risky behaviours in teens with cystic fibrosis or sickle cell disease: A multicentre study. Pediatrics 1998;101:250-4.
36. Burchardt T. The education and employment of disabled young people: frustrated ambition. The Policy Press, Marston Book Services, Bristol, 2005.
37. Richards M, Vostanis P. Interprofessional perspectives on transitional mental health services for young people aged 16-19 years. J Interprofessional Care 2004;18:115-28.
38. Tucker LB, Cabral DA. Transition of the adolescent patient with rheumatic disease: Issues to consider. Pediatr Clin North Am 2005;52:641-52.
39. Sherry DD, Wallace CA, Kelley C, Kidder M, Sapp L. Short and longterm outcomes of children with complex regional pain syndrome type I treated with exercise therapy. Clin J Pain 1999;15:218-23.
40. Department of Health. You're welcome quality criteria. Making health services young people friendly. London, 2005. www.dh.gov.uk.
41. Viner R, Barker M. Young people's health: The need for action. B Med J 2005;330:901-3.
42. Telfair J, Alexander LR, Loosier PS, Alleman-Velez PL, Simmons J. Providers' perspectives and beliefs regarding transition to adult care for adolescents with sickle cell disease. J Health Care Poor Underserved 2004;15:443-61.
43. Bent N, Tennant A, Swift T, Posnett J, Scuffham P, Chamberlain MA. Team approach versus ad hoc health services for young people with physical disabilities: A retrospective cohort study. Lancet 2002;360:1280-86.
44. Orr DP, Fineberg NS, Gray DL. Glycaemic control and transfer of health care among adolescents with insulin dependent diabetes mellitus. J Adol Health 1996;18:44-7.
45. Vallis M, Charette M, Murray A, Latta R. Transition of care: Researching the needs of young adults with type 1 diabetes. Canadian J Diabetes 2005;29:203-10.
46. Miles K, Edwards S, Clapson M. Transition from paediatric to adult services: Experiences of HIV-positive adolescents. AIDS Care 2004;16:305-14.
47. Ullrich G, Muller C, Fabel H, von der Hardt H. Transition of adult patients with cystic fibrosis from paediatric to adult care - the patients' perspective before and after start-up of an adult clinic. Eur J Med Res 2001;6:85-92.
48. Kipps S, Bahu T, Ong K et al. Current methods of transfer of young people with type 1 diabetes to adult services. Diabetic Medicine 2002;19:649-54.
49. McDonagh JE, Southwood TR, Shaw KL. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology 2006; June 20 [Epub ahead of print].
50. Flume PA, Anderson DL, Hardy KK, Gray S. Transition programs in cystic fibrosis centers: Perceptions of pediatric and adult program directors. Pediatr Pulmonol 2001;31:443-50.
51. Rosen DS. Between two worlds: Bridging the cultures of child health and adult medicine. J Adol Health 1995;17:10-6.