Lay-led self-management in chronic illness: A review of the evidence

Chronic Illness

Volumn 2, Issue 4, 2006, Pages 249-261

  Newbould, Jennifer ^a   Taylor, David ^a   Bury, Michael ^a  

^a UNIVERSITY OF LONDON   (United Kingdom)

Author keywords

Chronic illness; Expert patient programme; Lay led; Self help; Self management

Indexed keywords

ARTHRITIS; CHRONIC DISEASE; CLINICAL EFFECTIVENESS; DATA BASE; EVIDENCE BASED MEDICINE; HEALTH CARE POLICY; HEALTH PROGRAM; HUMAN; MEDICAL DOCUMENTATION; PUBLIC HEALTH SERVICE; PUBLICATION; REVIEW; SELF CARE; SOCIOLOGY; SYSTEMATIC REVIEW; UNITED KINGDOM; UNITED STATES;

CHRONIC DISEASE; EVIDENCE-BASED MEDICINE; HUMANS; SELF CARE;

EID: 33846418359     PISSN: 17423953     EISSN: 17459206     Source Type: Journal    
DOI: 10.1179/174592006X157508     Document Type: Review

References (55)

1. Gray A, ed. World health and disease. Buckingham: Open University Press, 2001.
2. Taylor DG. Medical care in developing countries. London: Office of Health Economics, 1972.
3. Taylor DG, Bloor K. Health care, health promotion and the future of general practice. London: Nuffield Provincial Hospitals Trust, 1994.
4. Department of Health Saving lives: our healthier nation. London: Stationery Office, 1999.
5. Department of Health The NHS Plan, a plan for investment, a plan for reform. London: Stationery Office, 2000.
6. Department of Health. The expert patient: a new approach to chronic disease management for the 21st century. London: Department of Health, 2001.
7. Donaldson L. Expert patients usher in a new era of opportunity for the NHS. BMJ 2003; 326: 1279-80.
8. Department of Health. Self care: a real choice: self-care support, a practical option. London: Department of Health, 2005.
9. Department of Health. Supporting people with long term conditions. An NHS and self care model to support local innovation and integration. London: Department of Health, 2005.
10. Bury M, Newbould J, Taylor D. A rapid review of the current state of knowledge regarding lay-led self-management of chronic illness. London: National Institute of Health and Clinical Excellence, 2005.
11. Glaser B, Strauss A. Awareness of dying. Chicago: Aldine, 1965.
12. Strauss A. America: in sickness and in health. Society 1973; 19: 33-9.
13. Lorig K. Partnerships between expert patients and physicians. Lancet 2002; 359: 814-15.
14. Strauss AL. Chronic illness and the quality of life. St Louis: Mosby, 1975.
15. Corbin J, Strauss AL. Managing chronic illness at home: three lines of work. Qualitative Sociol. 1985; 8: 224-47.
16. Corbin J, Strauss A. Unending work and care: managing chronic illness at Home. San Francisco: Josey Bass, 1988.
17. Bury M. Chronic illness as biographical disruption. Sociol. Health Illness 1982; 4: 167-82.
18. Bury M. Meanings at risk: the experience of arthritis. In: Anderson R, Bury M, eds. Living with chronic illness: the experiences of patients and their families. London: Unwin Hyman, 1988: 89-116.
19. Bury M. Illness narratives: fact or fiction? Sociol. Health Illness 2001; 23: 263-85.
20. Williams SJ. Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept. Sociol Health Illness 1984; 22: 40-67.
21. Anderson R. The quality of life of stroke patients and their carers. In: Anderson R, Bury M, eds. Living with chronic Illness: the experiences of Patients and their Families. London: Unwin Hyman, 1988: 14-42.
22. Canam C. Common adaptive tasks facing parents of children with chronic conditions. J Advanced Nurs 1993; 18: 46-53.
23. Charmaz K. Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illness 1983; 5: 168-95.
24. Charmaz K. Experiencing chronic illness. In: Albrecht GL, Fitzpatrick R, Scrimshaw SC, eds. The handbook of social studies in health and medicine. London: Sage, 2000: 277-92.
25. Kelly M, Field D. Medical sociology, chronic illness and the body. Sociol Health Illness 1996; 18: 241-57.
26. Frank AW. The wounded storyteller: body, illness and ethics. Chicago: University of Chicago Press, 1995.
27. Pound P, Gompertz P, Ebrahim S. Illness in the context of older age: the case of stroke. Sociol Health Illness 1998; 20: 489-506.
28. Sanders C, Donovan J, Dieppe P. The significance and consequence of having painful and disabled joints in older age: co-existing accounts of normal and disrupted biographies. Sociol Health Illness 2002; 24: 227-53.
29. Carricaburu D, Pierret J. From biographical disruption to biographical reinforcement: the case of HIV-positive men. Sociol Health Illness 1995; 17: 65-88.
30. Lawton J. Lay experiences of health and illness: past research and future agendas. Sociol Health Illness 2003; 25: 23-40.
31. Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns 2002; 48: 177-87.
32. Newman S, Steed L, Mulligan K. Self-management interventions for chronic illness. Lancet 2004; 364: 1523-37.
33. Robinson A, Thompson DG, Wilkin D, Roberts C, Northwest Gastrointestinal Research Group. Guided self-management and patient-directed follow-up of ulcerative colitis: a randomised trial. Lancet 2001; 358: 976-81.
34. Kennedy A, Nelson E, Reeves D, et al. A randomised controlled trial to assess the impact of a package comprising a patient-oriented, evidence based self-help guidebook and patient centred consultations on disease management and satisfaction in inflammatory bowel disease. Health Technol Assess 2003; 7: 1-126.
35. Lorig K, Feigenbaum P, Regan C, Ung E, Chastain RL, Holman HR. A comparison of lay-taught and professional-taught arthritis self management courses. J Rheumatol 1986; 13: 763-7.
36. Lorig K, Mazonson PD, Holman H. Evidence suggesting that health education for self-management in patients with chronic arthritis has sustained health benefits while reducing health care costs. Arthritis Rheum 1993; 36: 439-46.
37. Bandura A. Social foundations of thought and action. Upper Saddle River, NJ: Prentice Hall, 1986.
38. Bandura A. Self-efficacy. In: Ramachaudran VS, ed. Encyclopedia of human behavior. Vol. 4. New York: Academic Press, 1994: 71-81.
39. Barlow JH, Turner AP, Wright CC. A randomized controlled study of the Arthritis Self-Management Programme in the UK. Health Educ Res 2000; 15: 665-80.
40. Lorig KR, Ritter PL, Laurent DD, Fries JF. Long-term randomized controlled trial of tailored-print and small-group arthritis self-management interventions. Med Care 2004; 42: 346-54.
41. Weingarten SR, Henning JM, Badamgarav E, et al. Interventions used in disease management programmes for patients with chronic illness - which ones work? Meta-analysis of published reports. BMJ 2002; 325: 925-33.
42. Chodosh J, Morton SS, Mojica W, et al. Meta-analysis: chronic disease self management programs for older adults. Ann Intern Med 2005; 143: 427-38.
43. Lorig K. The integration of chronic condition self-management into health systems - a world view. Paper presented at Guiding Us Forward - National Chronic Condition Self-Management Conference, November, Melbourne, Australia, 2003.
44. Stanford University website: http://patienteducation.stanford.edu/ programs/psmp.html (accessed May 2005).
45. Sobel DR, Lorig KR, Hobbs M. Chronic disease self-management program: from development to dissemination. Permanente J 2002; 6: 15-22.
46. Lorig K, Sobel DS, Stewart AL, et al. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization, a randomized trial. Med Care 1999; 37: 5-14.
47. Lorig KR, Ritter P, Stewart AL, et al. Chronic disease self-management program, 2-year health status and health care utilization outcomes. Med Care 2001; 39: 1217-23.
48. Expert Patients Programme website: http://www.expenpatients.nhs.uk/ (accessed July 2006).
49. Wright CC, Barlow JH, Turner AP, Bancroft GV. Self-management training for people with chronic disease: an exploratory study. Br J Health Psychol 2003; 8: 464-76.
50. Kennedy A, Rogers A. The process of implementing a self-management policy within the English national health system. Paper presented at Guiding Us Forward - National Chronic Condition Self-Management Conference, November, Sydney, Australia, 2003.
51. EPP Evaluation Team. Process evaluation of the EPP - Report II. University of Manchester: National Primary Care Research and Development Centre, 2005.
52. Tattersall R. The expert patient: a new approach to chronic disease management for the twenty-first century. Clin Med 2002; 2: 227-9.
53. Fu D, Fu F, McGowan P, et al. Implementation and qualitative evaluation of chronic disease self management programme in Shanghai, China: a randomized controlled trial. Bull WHO 2003; 81: 174-82.
54. Griffiths C, Motlib J, Azad A, et al. Randomised controlled trial of a lay-led self-management programme for Bangladeshi patients with chronic illness. Br J Gen Pract 2005; 55: 831-7.
55. Department of Health. Our health, our care, our say: a new direction for community services. London: Department of Health, 2006.