The importance of assessing quality of life in patients with neuromuscular disorders

American Journal of Hospice and Palliative Medicine

Volumn 23, Issue 6, 2006, Pages 493-497

  Carter, Gregory T ^a,d   Han, Jay J ^c   Abresch, R Ted ^b   Jensen, Mark P ^a  

^a UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^b Neuromuscular Disease Research and Training Center   (United States)

^c UNIVERSITY OF CALIFORNIA   (United States)

^d NONE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EMPATHY; HUMAN; HUMAN RELATION; METHODOLOGY; NEEDS ASSESSMENT; NEUROMUSCULAR DISEASE; PALLIATIVE THERAPY; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUALITY OF LIFE; REVIEW;

EMPATHY; HUMANS; NEEDS ASSESSMENT; NEUROMUSCULAR DISEASES; PALLIATIVE CARE; PROFESSIONAL-PATIENT RELATIONS; PSYCHOMETRICS; QUALITY OF LIFE;

EID: 33846387467     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909106295278     Document Type: Review

References (15)

1. World Health Organization. Available at: http://www.who.int/en/. Accessed Sept 18, 2006.
2. Abresch RT, Carter GT, Jensen MP, Kilmer DD. Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease. Am J Hosp Palliat Care. 2002;19:39-48.
3. Abresch RT, Jensen MP, Carter GT. Health quality of life in peripheral neuropathy. Phys Med Rehabil Clin N Am. 2001;12:461-472.
4. Krivickas LS, Shockley L, Mitsumoto H. Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci. 1997;1:S82-S89.
5. Krivickas LS, Carter GT. Amyotrophic lateral sclerosis: clinical commentary. J Spinal Cord Med. 2002;25:274-276.
6. Krivickas LS, Carter GT. Motor neuron disease. In: DeLisa JA, Gans BM, Walsh NE, Bockeneck WL, Frontera WR, eds. Physical Medicine and Rehabilitation: Principles and Practice. 4th ed. Philadelphia, Penn: Lippincott, Williams, & Wilkins; 2005:931-956.
7. Jensen MP, Abresch RT, Carter GT, McDonald CM. Chronic pain in persons with neuromuscular disorders. Arch Phys Med Rehabil. 2005;86:1155-1163.
8. Carter GT, Jensen MP, Galer BS, et al. Neuropathic pain in Charcot Marie Tooth disease. Arch Phys Med Rehabil. 1998;79:1560-1564.
9. Fowler WM Jr, Abresch RT, Aitkens SA, et al. Impairment and disability profiles of neuromuscular diseases. Am J Phys Med Rehabil. 1995;74:S62-69.
10. Carter GT, Abresch RT, Fowler WM Jr, et al. Profiles of neuromuscular disease: hereditary motor and sensory neuropathy, types I and II. Am J Phys Med Rehabil: 1995;74:S140-149.
11. Carter GT, Abresch RT, Fowler WM, Johnson ER, Kilmer DD, McDonald CM. Profiles of neuromuscular disease: spinal muscular atrophy. Am J Phys Med Rehabil. 1995;74:S150-S159.
12. Jensen MP, Abresch RT, Carter GT. The reliability and validity of a self-reported version of the functional independence measure in persons with neuromuscular disease and chronic pain. Arch Phys Med Rehabil. 2005;86: 116-122.
13. Han JJ, Carter GT, Hecht TW, Schuman NE, Weiss MD, Krivickas LS. The amyotrophic lateral sclerosis center: a model of multidisciplinary management. In: Grabois M, Henely EJ, eds. Critical Reviews in Physical Medicine and Rehabilitation. Vol 15. New York, NY: Begell House, Inc; 2003:21-40.
14. Carter GT. Discontinuing life support: whose call? A physician's perspective. Am J Hosp Palliat Care. 2004;21: 61-65.
15. Bach JR, Campagnolo DI, Hoeman S. Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. Am J Phys Med Rehabil. 1991;70:129-135.