Community participation in tribal diabetes programs

American Indian Culture and Research Journal

Volumn 30, Issue 2, 2006, Pages 85-110

  Smith Morris, Carolyn ^a  

^a SOUTHERN METHODIST UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 33845741719     PISSN: 01616463     EISSN: None     Source Type: Journal    
DOI: 10.17953/aicr.30.2.8g365u624u783550     Document Type: Review

References (162)

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3. Barbara A. Israel Community-Based Participatory Research for Health, Ibid., 54-58.
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9. Stone, "Cultural Crossroads of Community Participation in Development: A Case from Nepal."
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11. Robert Wilson et al., "Community Approaches to Diabetes Prevention," in Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples, ed. Jennie R. Joe and Robert S. Young (New York: Mouton de Gruyter, 1994).
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17. E.g., Lynn M. Morgan, "Dependency Theory in the Political Economy of Health: An Anthropological Critique," Medical Anthropology Quarterly 1, no. 2 (1987);
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25. American Diabetes Association, "Partners in the Fight: Awakening the Spirit and University of New Mexico Native American Diabetes Project," Diabetes Forecast 51, no. 12 (1998);
26. Mark Daniel et al., "Effectiveness of Community-Directed Diabetes Prevention and Control in a Rural Aboriginal Population in British Columbia, Canada," Social Science and Medicine 48 (1999);
27. Gregory W. Heath et al., "Community-Based Exercise and Weight Control: Diabetes Risk Reduction and Glycemic Control in Zuni Indians," American Journal of Clinical Nutrition 53 (1991);
28. Virginia L. Hood et al., "A Native American Community Initiative to Prevent Diabetes," Ethnicity and Health 2, no. 4 (1997);
29. Georgia Perez, "Through the Eyes of the Eagle: Interweaving Health with Tradition," Diabetes Forecast 51, no. 12 (1998);
30. David L. Stewart, "The Baltimore Alliance for the Prevention and Control of Hypertension and Diabetes: A Model for Developing a Colorectal Cancer Community Outreach Program," Journal of the Association for Academic Minority Physicians 10, no. 3 (1999).
31. Marshall H. Chin et al., "Quality of Diabetes Care in Community Health Centers," American Journal of Public Health 90 (2000);
32. Elinor R. Schoenfeld et al., "Recruiting Participants for Community-Based Research: The Diabetic Retinopathy Awareness Program," Annals of Epidemiology 10, no. 7 (2000).
33. Mark Nichter, "Project Community Diagnosis: Participatory Research as a First Step toward Community Involvement in Primary Health Care," Social Science Medicine 19, no. 3 (1984).
34. Israel et al., "Critical Issues in Developing and Following Community Based Participatory Research Principles."
35. See also, Israel et al., "Critical Issues in Developing and Following Community Based Participatory Research Principles."
36. Schwartz, "Anthropological Views of Community and Community Development";
37. Hood et al., "A Native American Community Initiative to Prevent Diabetes";
38. George M. Foster, "Part 4: Community Development and Primary Health Care: Their Conceptual Similarities," Medical Anthropology 6 (1982).
39. See especially, Morgan, Community Participation in Health: The Politics of Primary Care in Costa Rica;
40. Woelk, "Cultural and Structural Influences in the Creation of and Participation in Community Health Programmes."
41. Schwartz, "Anthropological Views of Community and Community Development,";
42. Stewart, "The Baltimore Alliance for the Prevention and Control of Hypertension and Diabetes: A Model for Developing a Colorectal Cancer Community Outreach Program."
43. Hood et al., "A Native American Community Initiative to Prevent Diabetes," 283.
44. T. N. Madan, "Community Involvement in Health Policy: Socio-Structural and Dynamic Aspects of Health Beliefs," Social Science Medicine 25 (1987).
45. Hood et al., "A Native American Community Initiative to Prevent Diabetes";
46. Nichter, "Project Community Diagnosis: Participatory Research as a First Step toward Community Involvement in Primary Health Care";
47. Leslie M. Cortes et al., "Formative Research to Inform Intervention Development for Diabetes Prevention in the Republic of the Marshall Islands," Health, Education and Behavior 28, no. 6 (2001);
48. Joel Gittelsohn et al., "Developing Diabetes Interventions in an Ojibwa-Cree Community in Northern Ontario: Linking Qualitative and Quantitative Data," Chronic Diseases in Canada 16, no. 4 (1995).
49. Schoenfeld et al., "Recruiting Participants for Community-Based Research: The Diabetic Retinopathy Awareness Program."
50. Nichter, "Project Community Diagnosis: Participatory Research as a First Step toward Community Involvement in Primary Health Care."
51. Nichter, "Project Community Diagnosis: Participatory Research as a First Step toward Community Involvement in Primary Health Care." Ibid., 248.
52. E.g., Susan B. Rifkin, Community Participation in Maternal and Child Health Family Planning Programs (Geneva: WHO, 1990);
53. Esme Fuller-Thomson and Meredith Minkler, "American Indian/Alaska Native Grandparents Raising Grandchildren: Findings from the Census 2000 Supplementary Survey," Social Work 50, no. 2 (2005);
54. Caroline C. Wang et al., "Flint Photovoice: Community Building among Youths, Adults, and Policymakers," American Journal of Public Health 94, no. 6 (2004).
55. Mary Burden, "Tailoring Diabetes Education to Suit the Individual," Community Nurse 5, no. 1 (1999).
56. E.g., Brenda A. Broussard, Mary Ann Bass, and M. Yvonne Jackson, "Reasons for Diabetic Diet Noncompliance among Cherokee Indians," Journal of Nutrition Education 14, no. 2 (1982).
57. Ronald C. Plotnikoff, Sharon Brez, and Stephen B. Hotz, "Exercise Behavior in a Community Sample with Diabetes: Understanding the Determinants of Exercise Behavioral Change," The Diabetes Educator 26, no. 3 (2000);
58. Julie A. Griffin et al., "Participant Satisfaction with a Culturally Appropriate Diabetes Education Program: The Native American Diabetes Project," The Diabetes Educator 25, no. 3 (1999);
59. Cynthia Fryhling Corbett, "Research-Based Practice Implications for Patients with Diabetes: Part II-Diabetes Self-Efficacy," Home Healthcare Nurse 17, no. 9 (1999).
60. Hochbaum (1979) cited in Broussard, Bass, and Jackson, "Reasons for Diabetic Diet Noncompliance among Cherokee Indians."
61. Wang et al., "Flint Photovoice: Community Building among Youths, Adults, and Policymakers";
62. Jennie R. Joe, "Perceptions of Diabetes by Indian Adolescents," in Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples, ed. Jennie R. Joe and Robert S. Young (Berlin and New York: Mouton de Gruyter, 1994).
63. Fuller-Thomson and Minkler, "American Indian/Alaska Native Grandparents Raising Grandchildren: Findings from the Census 2000 Supplementary Survey."
64. Bonnie Duran et al., "Prevalence and Correlates of Mental Disorders among Native American Women in Primary Care," American Journal of Public Health 94, no. 1 (2004).
65. Israel et al., "Critical Issues in Developing and Following Community Based Participatory Research Principles";
66. Amy J. Schulz et al., "Engaging Women in Community Based Participatory Research for Health: The East Side Village Health Worker Partnership," in Minkler and Wallerstein, Community-Based Participatory Research for Health.
67. Yasumaro et al., "Community Involvement in a Dengue Prevention Project in Marilia, Sao Paulo State, Brazil";
68. Sara Ashencaen Crabtree, Christina M. Wong, and Faizah Mas'ud, "Community Participatory Approaches to Dengue Prevention in Sarawak, Malaysia," Human Organization 60, no. 3 (2001);
69. Morgan, "'Political Will' and Community Participation in Costa Rican Primary Health Care," 232-45;
70. and Duran et al., "Prevalence and Correlates of Mental Disorders among Native American Women in Primary Care," 71-77.
71. For critiques of some of these errors, see Sauerborn, Nougtara, and Diesfeld, "Low Utilization of Community Health Workers: Results from a Household Interview Survey in Burkina Faso";
72. Mark Nichter, "Kyasanur Forest Disease: An Ethnography of a Disease of Development," Political Ecology December (1987), 406-23.
73. Stone, "Cultural Crossroads of Community Participation in Development: A Case from Nepal";
74. Foster, "Part 4: Community Development and Primary Health Care: Their Conceptual Similarities."
75. Sauerborn, Nougtara, and Diesfeld, "Low Utilization of Community Health Workers: Results from a Household Interview Survey in Burkina Faso";
76. Bastien, "Community Health Workers in Bolivia: Adapting to Traditional Roles in the Andean Community";
77. Peter Berman, Barbara A. Ormond, and Ascobat Gani, "Treatment Use and Expenditure on Curative Care in Rural Indonesia," Health Policy and Planning 2 (1987).
78. Bastien, "Community Health Workers in Bolivia: Adapting to Traditional Roles in the Andean Community";
79. Berman, Ormond, and Gani, "Treatment Use and Expenditure on Curative Care in Rural Indonesia";
80. A. Brownlea, "Participation: Myths, Realities, Prognosis," Social Science and Medicine 25 (1987).
81. Chen-Yen Wang et al., "Development of a Community-Based Diabetes Management Program for Pacific Islanders," The Diabetes Educator 25, no. 5 (1999).
82. Yvette D. Roubideaux et al., "Diabetes Education Materials: Recommendations of Tribal Leaders, Indian Health Professionals, and American Indian Community Members," The Diabetes Educator 26, no. 2 (2000).
83. Ellen Vogel et al., "Gestational Diabetes Mellitus: A 'Kitchen Table' Approach," Canadian Journal of Dietetic Practice and Research 62, no. 4 (2001);
84. Special Working Group of the Cree Regional Child and Family Services Committee, "Planning Research for Greater Community Involvement and Long-Term Benefit," Canadian Medical Association Journal 163, no. 10 (2000).
85. Kevin G. Rowley et al., "Effectiveness of a Community-Directed 'Healthy Lifestyle' Program in a Remote Australian Aboriginal Community," Australian and New Zealand Journal of Public Health 24 (2000), 136-43.
86. Kevin G. Rowley "Effectiveness of a Community-Australian and New Zealand Journal of Public Health 24 (2000), 136-43. Ibid.
87. The Diabetes Prevention Program Research Group, "The Diabetes Prevention Program: Design and Methods for a Clinical Trial in the Prevention of Type 2 Diabetes," Diabetes Care 22, no. 4 (1999).
88. Benjamin D. Paul and William J. Demarest, "Citizen Participation Overplanned: The Case of a Health Project in the Guatemalan Community of San Pedro La Laguna," Social Science Medicine 19, no. 3 (1984).
89. S. C. Boyages, J. Sheridan, and G. Close, "Beyond Evidence-Based Guidelines to Implementation: A Model for Integrating Care for People with Diabetes," Journal of Quality in Clinical Practice 19 (1999);
90. Vanessa Jones Briscoe and James W. Pichert, "Evaluation of a Program to Promote Diabetes Care Via Existing Agencies in African American Communities," The ABNF Journal (September/October 1999).
91. Griffin et al., "Participant Satisfaction with a Culturally Appropriate Diabetes Education Program: The Native American Diabetes Project";
92. Rebecca Hagey, "The Native Diabetes Program: Rhetorical Process and Praxis," Medical Anthropology 12 (1989);
93. K. Hawthorne, "Effect of Culturally Appropriate Health Education on Glycaemic Control and Knowledge of Diabetes in British Pakistani Women with Type 2 Diabetes Mellitus," Health Education Research 16, no. 3 (2001);
94. Tony R. Sanchez, Judith A. Plawecki, and Henry M. Plawecki, "The Delivery of Culturally Sensitive Health Care to Native Americans," Journal of Holistic Nursing 14, no. 4 (1996);
95. Lisa M. Stolarczyk et al., "Knowledge, Attitudes and Behaviors Related to Physical Activity among Native Americans with Diabetes," Ethnicity and Disease 9 (1999).
96. Christiana E. Miewald, "Is Awareness Enough? The Contradictions of Self-Care in a Chronic Disease Clinic," Human Organization 56, no. 3 (1997).
97. Robert Michielutte et al., "Cultural Issues in the Development of Cancer Control Programs for American Indian Populations," Journal of Health Care for the Poor and Underserved 5, no. 4 (1994).
98. Robert Michielutte "Cultural Journal of Health Care for the Poor and Underserved 5, no. 4 (1994). Ibid., 291.
99. American Diabetes Association, "Partners in the Fight: Awakening the Spirit and University of New Mexico Native American Diabetes Project."
100. Perez, "Through the Eyes of the Eagle: Interweaving Health with Tradition."
101. Israel et al., "Critical Issues in Developing and Following Community Based Participatory Research Principles," 57.
102. Stone, "Cultural Influences in Community Participation in Health";
103. Woelk, "Cultural and Structural Influences in the Creation of and Participation in Community Health Programmes."
104. Stone, "Cultural Influences in Community Participation in Health";
105. Morgan, "'Political Will' and Community Participation in Costa Rican Primary Health Care."
106. Jennie Joe, "The Delivery of Health Care to American Indians: History, Policies and Prospects," in American Indians: Social Justice and Public Policy, ed. D. E. Green and T. V. Tonnesen (Madison: University of Wisconsin, Institute on Race and Ethnicity, 1991).
107. Toni Tripp-Reimer et al., "Cultural Barriers to Care: Inverting the Problem," Diabetes Spectrum 14, no. 1 (2001).
108. Craig J. Janes, "Going Global in Century XXI: Medical Anthropology and the New Primary Health Care," Human Organization 63, no. 4 (2004).
109. Suzette Brewer, "The Road to Wellness: Tribal College Establishes Health Programs for Native Community," Native Peoples 15, no. 1 (2001).
110. Donna L. Armstrong, "A Community Diabetes Education and Gardening Project to Improve Diabetes Care in a Northwest American Indian Tribe," The Diabetes Educator 26, no. 1 (2000).
111. Russell E. Glasgow et al., "If Diabetes Is a Public Health Problem, Why Not Treat It as One? A Population-Based Approach to Chronic Illness," Annals of Behavioral Medicine 21, no. 2 (1999).
112. E.g., Nichter, "Project Community Diagnosis: Participatory Research as a First Step toward Community Involvement in Primary Health Care."
113. Miewald, "Is Awareness Enough? The Contradictions of Self-Care in a Chronic Disease Clinic."
114. Woelk, "Cultural and Structural Influences in the Creation of and Participation in Community Health Programmes."
115. Heath et al., "Community-Based Exercise and Weight Control: Diabetes Risk Reduction and Glycemic Control in Zuni Indians."
116. Daniel et al., "Effectiveness of Community-Directed Diabetes Prevention and Control in a Rural Aboriginal Population in British Columbia, Canada."
117. Scott Bamber, Kevin Hewison, and Peter Underwood, "Chapter 3: Dangerous Liaisons: A History of Sexually Transmitted Diseases in Thailand," in Sex, Disease, and Society: A Comparative History of Sexually Transmitted Diseases and HIV/AIDS in Asia and the Pacific, ed. Milton Lewis, Scott Bamber, and Michael Waugh (Westport, CT: Greenwood Press, 1997). Italics added.
118. Frank Vinicor, "Is Diabetes a Public-Health Disorder?," Diabetes Care 17, Supplement 1 (1994).
119. David L. Kozak, "Surrendering to Diabetes: An Embodied Response to Perceptions of Diabetes and Death in the Gila River Indian Community," OMEGA 35, no. 4 (1997).
120. Jennie R. Joe and Robert S. Young, eds., Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples (New York: Mouton de Gruyter, 1994).
121. Carolyn Smith-Morris, Diabetes among the Pima: Stories of Survival (Tucson: University of Arizona Press, 2006).
122. William C. Knowler et al., "Diabetes Mellitus in the Pima Indians: Incidence, Risk Factors and Pathogenesis," Diabetes/Metabolism Reviews 6, no. 1 (1990).
123. Kelly M. West, "Diabetes in American Indians," Advances in Metabolic Disorders 9 (1978);
124. Kenneth M. Weiss et al., "Diabetes Mellitus in American Indians: Characteristics, Origins and Preventive Health Care Implications," Medical Anthropology 11 (1989);
125. William C. Knowler et al., "Diabetes Mellitus in the Pima Indians: Genetic and Evolutionary Considerations," American Journal of Physical Anthropology 62 (1983);
126. Terri D'Arrigo, "Women, Type 2, and Cardiovascular Risk," Diabetes Forecast 52, no. 1 (1999).
127. Weiss et al., "Diabetes Mellitus in American Indians: Characteristics, Origins and Preventive Health Care Implications";
128. D'Arrigo, "Women, Type 2, and Cardiovascular Risk";
129. K. M. Venkat Narayan, "Diabetes Mellitus in Native Americans: The Problem and Its Implications," Population Research and Policy Review 16 (1997).
130. Narayan, "Diabetes Mellitus in Native Americans: The Problem and Its Implications," 178.
131. Jo C. Scheder, "A Sickly-Sweet Harvest: Farmworker Diabetes and Social Equality," Medical Anthropology Quarterly 2, no. 3, Health and Industry (1988);
132. Gretchen Chesley Lang, "Chapter 15: Talking About a New Illness with the Dakota: Reflections on Diabetes, Food, and Culture," in Culture and the Anthropological Tradition, ed. Robert H. Winthrop (New York: University Press of America, 1990);
133. Alan Harwood, Ethnicity and Medical Care (Cambridge, MA: Harvard University Press, 1981).
134. Jeffrey M. Newman et al., "Diabetes-Associated Mortality in Native Americans," Diabetes care 16, no. 1 (1993).
135. Lang, "Chapter 15: Talking About a New Illness with the Dakota: Reflections on Diabetes, Food, and Culture";
136. Keith H. Basso, Wisdom Sits in Places: Landscape and Language among the Western Apache (Albuquerque: University of New Mexico Press, 1996);
137. Theresa D. O'Nell, "Telling About Whites, Talking About Indians: Oppression, Resistance, and Contemporary American Indian Identity," Cultural Anthropology 9, no. 1 (1994).
138. Knowler et al., "Diabetes Mellitus in the Pima Indians: Incidence, Risk Factors and Pathogenesis."
139. Peter H. Bennett, Thomas A. Burch, and Max Miller, "Diabetes Mellitus in American (Pima) Indians," The Lancet ii (1971), 1-27.
140. Narayan, "Diabetes Mellitus in Native Americans: The Problem and Its Implications," 173.
141. Carolyn Smith-Morris, "Reducing Diabetes in Indian Country: Lessons from the Three Domains Influencing Pima Diabetes," Human Organization 63, no. 1 (2004).
142. James V. Neel, "Diabetes Mellitus: A Thrifty' Genotype Rendered Detrimental by 'Progress'?," American Journal of Human Genetics 14 (1962);
143. James V. Neel, "The Thrifty Genotype Revisited," in The Genetics of Diabetes Mellitus, ed. J. Kobberling and R. Tattersall (New York: Academic Press, 1982).
144. Daniel C. Benyshek, John F. Martin, and Carol C. Johnston, "A Reconsideration of the Origins of the Type 2 Diabetes Epidemic among Native Americans and the Implications for Intervention Policy," Medical Anthropology 20, no. 1 (2001).
145. Daniel C. Benyshek, John F. Martin, and Carol C. Johnston, "A Reconsideration of the Origins of the Type 2 Diabetes Epidemic among Native Americans and the Implications for Intervention Policy," Medical Anthropology 2001). no. 1 (20, Ibid., 35.
146. Education and Welfare US Department of Health, "Indians on Federal Reservations in the United States-A Digest," in Indians on Reservations in the U.S.A., Phoenix Area-Arizona, California, Nevada, Utah (Washington, DC: Public Health Service, 1961);
147. Carolyn Smith-Morris, "Diagnostic Controversy: Gestational Diabetes and the Meaning of Risk for Pima Indian Women," Medical Anthropology 24, no. 2 (2005).
148. Frank Russell, "The Pima Indians," in Twenty-Sixth Annual Report of the B.A. Ethnology to the Society of the Smithsonian Institution (1904-1905) (Washington, DC: Government Printing Office, 1908).
149. E. P. Joslin, "The Universality of Diabetes," JAMA 115 (1940).
150. Peter H. Bennett and William C. Knowler, "Increasing Prevalence of Diabetes in the Pima (American) Indians over a Ten Year Period," in Proceedings of the 10th Congress of the IDF, ed. W. K. Waldhausl (Amsterdam: Excerpta Medica, 1979).
151. Peter H. Bennett and William C. Knowler, "Increasing Prevalence of Diabetes in the Pima (American) Indians over a Ten Year Period," in Proceedings of the 10th Congress of the IDF, 1979). Ibid.
152. Vinicor, "Is Diabetes a Public-Health Disorder?"
153. Kozak, "Surrendering to Diabetes: An Embodied Response to Perceptions of Diabetes and Death in the Gila River Indian Community";
154. H. Lewis Kuller, "Diabetes in American Indians," Diabetes Care 16, no. 1 (1993);
155. R. Arlen Price et al., "Obesity in Pima Indians: Large Increases among Post-World War II Birth Cohorts," American Journal of Physical Anthropology 92 (1993);
156. Eric Ravussin et al., "Effects of a Traditional Lifestyle on Obesity in Pima Indians," Diabetes Care 17, no. 9 (1994);
157. Cheryl Kay Ritenbaugh, "The Pattern of Diabetes in a Pima Community," PhD diss. (Los Angeles: University of California-Los Angeles, 1974);
158. Cynthia J. Smith, Elaine M. Manahan, and Sally G. Pablo, "Food Habit and Cultural Changes among the Pima Indians," in Diabetes as a Disease of Civilization: The Impact of Culture Change on Indigenous Peoples, ed. Jennie R. Joe and Robert S. Young (New York: Mouton de Gruyter, 1994).
159. Hood et al., "A Native American Community Initiative to Prevent Diabetes."
160. E.g., Cortes et al., "Formative Research to Inform Intervention Development for Diabetes Prevention in the Republic of the Marshall Islands."
161. See the "diabetes group visit clinic" in Smith-Morris, "Reducing Diabetes in Indian Country: Lessons from the Three Domains Influencing Pima Diabetes."
162. Benyshek et al., "A Reconsideration of the Origins."