Health-related quality of life in pediatric patients with irritable bowel syndrome: A comparative analysis

Journal of Developmental and Behavioral Pediatrics

Volumn 27, Issue 6, 2006, Pages 451-458

  Varni, James W ^a,b   Lane, Mariella M ^a   Burwinkle, Tasha M ^c   Fontaine, Eve N ^a   Youssef, Nader N ^d   Schwimmer, Jeffrey B ^e   Pardee, Perrie E ^e   Pohl, John F ^c   Easley, David J ^c  

^a TEXAS A AND M UNIVERSITY   (United States)

^b TEXAS A M COLLEGE OF MEDICINE   (United States)

^c TEXAS A AND M HEALTH SCIENCE CENTER   (United States)

^d Atlantic Health   (United States)

^e RADY CHILDREN'S HOSPITAL   (United States)

Author keywords

Children; Functional gastrointestinal disorders; Gastroenterology; Health related quality of life; Irritable bowel syndrome; Pediatrics; PedsQL

Indexed keywords

ABDOMINAL PAIN; ADOLESCENT; ADULT; ARTICLE; CHILD; CONTROLLED STUDY; DISEASE ASSOCIATION; FEMALE; GASTROINTESTINAL DISEASE; HUMAN; IRRITABLE COLON; MAJOR CLINICAL STUDY; MALE; PEDIATRICS; PRIORITY JOURNAL; QUALITY OF LIFE; RATING SCALE; STATISTICAL SIGNIFICANCE; SYMPTOM;

ABDOMINAL PAIN; ADOLESCENT; CHILD; CHILD, PRESCHOOL; FEMALE; HEALTH STATUS; HUMANS; IRRITABLE BOWEL SYNDROME; MALE; NEEDS ASSESSMENT; QUALITY OF LIFE; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX;

EID: 33845730721     PISSN: 0196206X     EISSN: None     Source Type: Journal    
DOI: 10.1097/00004703-200612000-00001     Document Type: Article

References (36)

1. Fayers PM, Machin D. Quality of Life: Assessment, Analysis, and Interpretation. NewYork: Wiley; 2000.
2. Spilker B. Quality of Life and Pharmaco Economics in Clinical Trials, 2nd ed. Philadelphia: Lippincott-Raven; 1996.
3. Varni JW, Seid M, Kurtin PS. Pediatric health-related quality of life measurement technology: a guide for healthcare decision makers. J Clin Outcomes Manage. 1999;6:33-40.
4. Smith KW, Avis NE, Assmann SF. Distinguishing between quality of life and health status in quality of life research: a meta-analysis. Qual Life Res. 1999;8:447-459.
5. World Health Organization. Constitution of the World Health Organization Basic Document. Geneva, Switzerland: World Health Organization; 1948.
6. Hyams JS. Recurrent abdominal pain and irritable bowel syndrome in children. J Pediatr Gastroenterol Nutr. 1997;25:S16-S17.
7. Hyams JS, Burke G, Davis PM, et al. Abdominal pain and irritable bowel syndrome in adolescents: a community based study. J Pediatr. 1996;129:220-226.
8. Hyams JS, Treem WR, Justinich CJ, et al. Characterization of symptoms in children with recurrent abdominal pain: resemblance to irritable bowel syndrome. J Pediatr Gastroenterol Nutr. 1995;20: 209-214.
9. Walker LS, Guite JW, Duke M, et al. Recurrent abdominal pain: a potential precursor of irritable bowel syndrome in adolescents and young adults. J Pediatr. 1998;132:1010-1015.
10. Staiano A, Corazziari E. Irritable bowel syndrome: contrasts and comparisons between children and adults. J Pediatr Gastroenterol Nutr. 2001;32:S32-S34.
11. Rasquin-Weber A, Hyman PE, Cucchiara S, et al. Childhood functional gastrointestinal disorders. Gut. 1999;45(suppl II):II60-II68.
12. Drossman DA. The functional gastrointestinal disorders and the Rome II process. Gut. 1999;45(suppl II):II1-II5.
13. Thompson WG. The road to Rome. Gut. 1999;45(suppl II):II80.
14. Lea R, Whorwell PJ. Quality of life in irritable bowel syndrome. Pharmacoeconomics. 2001;19:643-653.
15. Frank L, Kleinman L, Rentz A, et al. Health-related quality of life associated with irritable bowel syndrome: comparison with other chronic diseases. Clin Ther. 2002;24:675-689.
16. El-Serag HB, Olden K, Bjorkman D. Health-related quality of life among persons with irritable bowel syndrome: a systematic review. Ailment Pharmacol Ther. 2002;16:1171-1185.
17. Chang L. Review article: epidemiology and quality of life in functional gastrointestinal disorders. Aliment Pharmacol Ther. 2004;20(Suppl 7):31-39.
18. Gralnek IM, Hays RD, Kilbourne A, et al. The impact of irritable bowel syndrome on health-related quality of life. Gastroenterology. 2000;119:654-660.
19. Luscombe FA. Health-related quality of life and associated psychosocial factors in irritable bowel syndrome: a review. Qual Life Res. 2000;9:161-176.
20. Youssef NN, Rosh JR, Loughran M, et al. Treatment of functional abdominal pain in childhood with cognitive behavioral strategies. J Pediatr Gastroenterol Nutr. 2004;39:192-196.
21. Youssef NN, Murphy TG, Langseder AL, Rosh JR. Quality of life for children with functional abdominal pain: a comparison study of patients' and parents' perceptions. Pediatrics. 2006;117:54-59.
22. Varni JW, Seid M, Kurtin PS. PedsQLtrade; 4.0: reliability and validity of the pediatric quality of life inventory™ version 4.0 generic core scales in healthy and patient populations. Med Care. 2001;39:800-812.
23. Varni JW, Burwinkle TM, Seid M, et al. The PedsQLtrade; 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr. 2003;3:329-341.
24. Varni JW, Seid M, Knight TS, et al. The PedsQL™ in pediatric rheumatology: reliability, validity, and responsiveness of the pediatric quality of life inventory™ generic core scales and rheumatology module. Arthritis Rheum. 2002;46:714-725.
25. Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsQL™ in pediatric cancer: reliability and validity of the pediatric quality of life inventory™ generic core scales, multidimensional fatigue scale, and cancer module. Cancer. 2002;94:2090-2106.
26. Varni JW, Burwinkle TM, Jacobs JR, et al. The PedsQL™ in Type 1 and Type 2 diabetes: reliability and validity of the pediatric quality of life inventory™ generic core scales and type 1 diabetes module. Diabetes Care. 2003;26:631-637.
27. Felder-Puig R, Frey E, Proksch K, et al. Validation of the German version of the pediatric quality of life inventory™ (PedsQL™) in childhood cancer patients off treatment and children with epilepsy. Qual Life Res. 2004;13:223-234.
28. Bastiaansen D, Koot HM, Bongers IL, et al. Measuring quality of life in children referred for psychiatric problems: psychometric properties of the PedsQL™ 4.0 generic core scales. Qual Life Res. 2004;13:489-495.
29. Powers SW, Patton SR, Hommel KA, et al. Quality of life in childhood migraines: clinical impact and comparison to other chronic illnesses. Pediatrics. 2003;112:e1-e5.
30. Nunnally JC, Bernstein IR. Psychometric Theory, 3rd ed. New York: McGraw-Hill; 1994.
31. Cohen J. Statistical Power Analysis for the Behavioral Sciences, 2nd ed. Hillsdale, NJ: Erlbaum; 1988.
32. Bartko JJ. The intraclass correlation coefficient as a measure of reliability. Psychol Rep. 1966;19:3-11.
33. Thompson RJ, Gustafson KE. Adaptation to Chronic Childhood Illness. Washington, DC: American Psychological Association; 1996.
34. Wallander JL, Varni JW. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry. 1998;39:29-46.
35. Janicke DM, Finney JW, Riley AW. Children's health care use: a prospective investigation of factors related to care-seeking. Med Care. 2001;39:990-1001.
36. Seid M, Varni JW, Segall D, et al. Health-related quality of life as a predictor of pediatric healthcare costs: a two-year prospective cohort analysis. Health Qual Life Outcomes. 2004;2:1-10.