Quality of life in systemic lupus erythematosus

Clinical and Developmental Immunology

Volumn 13, Issue 2-4, 2006, Pages 321-324

  Panopalis, Pantelis ^a   Clarke, Ann E ^b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b MONTREAL GENERAL HOSPITAL   (Canada)

Author keywords

Drug development; Outcome measures; Quality of life; Systemic lupus erythematosus

Indexed keywords

ARTICLE; DISEASE ACTIVITY; ECONOMIC ASPECT; HEALTH CARE COST; HUMAN; OUTCOMES RESEARCH; PATIENT CARE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SHORT FORM 36; SYSTEMIC LUPUS ERYTHEMATOSUS; WELLBEING;

HUMANS; LUPUS ERYTHEMATOSUS, SYSTEMIC; OUTCOME ASSESSMENT (HEALTH CARE); QUALITY OF LIFE; QUESTIONNAIRES; RESEARCH DESIGN;

EID: 33845648793     PISSN: 17402522     EISSN: 10292357     Source Type: Journal    
DOI: 10.1080/17402520600877760     Document Type: Article

References (28)

1. Bae SC, Koh HK, Chang DK, Kim MH, Park JK, Kim SY. 2001. Reliability and validity of systemic lupus activity measure-revised (SLAM-R) for measuring clinical disease activity in systemic lupus erythematosus. Lupus 10(6):405-409.
2. Bergner M, Bobbitt RA, Carter WB, Gilson BS. 1981. The sickness impact profile: Development and final revision of a health status measure. Med Care 19(8):787-805.
3. Bombardier C, Gladman DD, Urowitz MB, Caron D, Chang C. The committee on prognosis studies in SLE 1992. Derivation of the SLEDAI. A disease activity index for lupus patients. Arthritis Rheum 35:630-640.
4. Burckhardt CS, Archenholtz B, Bjelle A. 1993. Quality of life of women with systemic lupus erythematosus: A comparison with women with rheumatoid arthritis. J Rheumatol 20(6):977-981.
5. Fries JF, Spitz PW, Kraines RG, Holman HR. 1980. Measurement of patient outcome in arthritis. Arthritis Rheum 23:127-134.
6. Gladman DD, Ginzler EM, Goldsmith CH, Fortin PR, Liang MH, Urowitz MB, et al. 1996. The development and initial validation of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index for systemic lupus erythematosus. Arthritis Rheum 39:363-369.
7. Gladman DD, Urowitz MB, Goldsmith CH, Fortin PR, Ginzler EM, Gordon C, et al. 1997. The reliability of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index in patients with systemic lupus erythematosus. Arthritis Rheum 40:809-813.
8. Grootscholten C, Ligtenberg G, Derksen RHWM, Schreurs KMG, Glas-Vos JW, Hagen EC, et al. 2003. Health-related quality of life in patients with systemic lupus erythematosus: Development and validation of a lupus specific symptom checklist. Qual Life Res 12(6):635-644.
9. Hochberg MC, Sutton JD. 1988. Physical disability and psychosocial dysfunction in systemic lupus erythematosus. J Rheumatol 15(6):959-964.
10. Hunt SM, McKenna SP, McEwen J, Williams J, Papp E. 1981. The Nottingham health profile: Subjective health status and medical consultations. Soc Sci Med [A] 15(3 Pt 1):221-229.
11. Khanna S, Pal H, Pandey RM, Handa R. 2004. The relationship between disease activity and quality of life in systemic lupus erythematosus. Rheumatology (Oxford) 43(12):1536-1540.
12. Kind P. 1996. The Euroqol instrument: An index of health-related quality of life. In: Spiker B, editor. Quality of life and pharmacoeconomics in clinical trials. Philadelphia, PA: Lippincott-Raven Publishers. p 191-201.
13. Leong KP, Kong KO, Thong BY, Koh ET, Lian TY, Teh CL, et al. 2005. Development and preliminary validation of a systemic lupus erythematosus- specific quality-of-life instrument (SLE-QOL). Rheumatology 44(10):1267-1276.
14. Luo N, Chew LH, Fong KY, Koh DR, Ng SC, Yoon KH, et al. 2003a. Validity and reliability of the EQ-5D self-report questionnaire in English-speaking Asian patients with rheumatic diseases in Singapore. Qual Life Res 12(1):87-92.
15. Luo N, Chew LH, Fong KY, Koh DR, Ng SC, Yoon KH, et al. 2003b. Validity and reliability of the EQ-5D self-report questionnaire in Chinese-speaking patients with rheumatic diseases in Singapore. Ann Acad Med Singapore 32(5):685-690.
16. Meenan RF, Gertman PM, Mason JH, Dunaif R. 1982. The arthritis impact measurement scales. Further investigations of a health status measure. Arthritis Rheum 25(9):1048-1053.
17. Meenan RF, Mason JH, Anderson JJ, Guccione AA, Kazis LE. 1992. AIMS2. The content and properties of a revised and expanded arthritis impact measurement scales health status questionnaire. Arthritis Rheum 35(1):1-10.
18. Milligan SE, Hom DL, Ballou SP, Persse LJ, Svilar GM, Coulton CJ. 1993. An assessment of the health assessment questionnaire functional ability index among women with systemic lupus erythematosus. J Rheumatol 20(6):972-976.
19. Stoll TS, Stucki G, Malik J, Pyke S, Isenberg DA. 1996. Further validation of the BILAG disease activity index in patients with systemic lupus erythematosus. Ann Rheum Dis 55(10):756-760.
20. Stoll T, Gordon C, Seifert B, Richardson K, Malik J, Bacon PA, et al. 1997. Consistency and validity of patient administered assessment of quality of life by the MOS SF-36; its association with disease activity and damage in patients with systemic lupus erythematosus. J Rheumatol 24:1608-1614.
21. Strand V, Gladman D, Isenberg D, Petri M, Smolen J, Tugwell P. 2000. Endpoints: Consensus recommendations from OMERACT IV. Outcome measures in rheumatology. Lupus 9(5):322-327.
22. Strand V, Aranow C, Cardiel MH, Alarcon-Segovia D, Furie R, Sherrer Y, et al. 2003. Improvement in health-related quality of life in systemic lupus erythematosus patients enrolled in a randomized clinical trial comparing LJP 394 treatment with placebo. Lupus 12(9):677-686.
23. Sutcliffe N, Clarke AE, Levinton C, Frost C, Gordon C, Isenberg DA. 1999. Associates of health status in patients with SLE. J Rheumatol 26:2352-2356.
24. Teh L, McElhone K, Bruce IN, et al. 2005. Development and validation for a disease specific quality of life measure for adults with systemic lupus erythematosus, the LupusQoL. Arthritis and Rheum 52(Suppl. 9):S188.
25. The EuroQol Group 1990. EuroQol: A new facility for the measurement of health-related quality of life. Health Policy 16:199-208.
26. The WHOQOL Group 1998. Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychol Med 28(3):551-558.
27. Wang C, Mayo NE, Fortin PR. 2001. The relationship between health related quality of life and disease activity and damage in systemic lupus erythematosus. J Rheumatol 28(3):525-532.
28. Ware JE, Jr, Sherbourne CD. 1992. The MOS36 item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 30:473-483.