Assessment of health-related quality of life in children with functional defecation disorders

Jornal de Pediatria

Volumn 82, Issue 6, 2006, Pages 421-425

  Faleiros, Francisca T V ^a   Machado, Nilton C ^a  

^a SÃO PAULO STATE UNIVERSITY UNESP   (Brazil)

Author keywords

Constipation; Defecation disorders; Quality of life

Indexed keywords

ANTHROPOMETRY; ARTICLE; CHILD; CONSTIPATION; CONTROLLED STUDY; DEFECATION DISORDER; DEMOGRAPHY; DISEASE CLASSIFICATION; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL ASSESSMENT; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; SCORING SYSTEM; SOCIAL PSYCHOLOGY; WELLBEING;

CHILD; CHILD WELFARE; CHILD, PRESCHOOL; CHRONIC DISEASE; CONSTIPATION; FECAL INCONTINENCE; HUMANS; PARENTS; QUALITY OF LIFE; QUESTIONNAIRES; SICKNESS IMPACT PROFILE; TREATMENT OUTCOME;

EID: 33845493275     PISSN: 00217557     EISSN: None     Source Type: Journal    
DOI: 10.2223/JPED.1530     Document Type: Article

References (29)

1. Levine MD. Children with encopresis: a descriptive analysis. Pediatrics. 1979;56:412-6.
2. Loening-Baucke V. Constipation in early childhood: patient characteristics, treatment, and long-term follow up. Gut. 1993;34:1400-4.
3. Loening-Baucke V. Chronic constipation in children. Gastroenterology. 1993;105:1557-64.
4. Staiano A, Ciarla C. Pelvic floor syndromes: infant dyschezia, functional fecal retention and nonretentive soiling. In: Hyman PE, editor. Pediatric functional gastrointestinal disorders. New York: Academy Professional Information Services; 1999. p. 1-21.
5. Ahmad T, Steffen R, Banez G, Mahajan L, Feinberg L, Worley S. Defecation anxiety in children with functional constipation. J Pediatr Gastroenterol Nutr. 2004;39 Suppl 1:S238.
6. Jenney ME, Campbell S. Measuring quality of life. Arch Dis Child. 1997;77:347-50.
7. Najman JM, Levine S. Evaluating the impact of medical care and technologies on the quality of life. A review and critique. Soc Sci Med. 1981;15:107-15.
8. The World Health Organization Quality of Life Assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995;41:1403-9.
9. Bullinger M, Ravens-Sieberer V. Health related quality of life assessment in children : A review of the literature. Eur Rev Appl Psychol. 1995;45:245-54.
10. Chambers CT, Johnston C. Developmental differences in children.s use of rating scales. J Pediatr Psychol. 2002;27:27-36.
11. McHomey CA. Generic health measurements: past accomplishments and measurement paradigm for the 21rst century. Ann Int Med. 1997;127:743-50.
12. Landgraf JM, Abetz l, Ware JE. The CHQ: a user's manual. 2nd ed. Boston (MA): The Health Institute, New England Medical Center; 1999.
13. Machado CS, Ruperto N, Silva CH, Ferriani VPL, Roscoe I, Campos LM, et al. The Brazilian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol. 2001;19(4 Suppl 23):S25-9.
14. Sood MR, Jameson R, Beninga M, Tapas M, Adrian T. Quality of life in children with constipation. J Pediatr Gastroenterol Nutr. 2004;39 Suppl 1:S234.
15. Youssef NN, Langseder AL, Verga BJ, Mones RL, Rosh JR. Chronic childhood constipation is associated with impaired quality of life: a case controlled study. J Pediatr Gastroenterol Nutr. 2005;41:56-60.
16. Kinservik M. Quality of life of children with constipation and encopresis and impact of pediatric nurse practitioner intervention. J Pediatr Gastroenterol Nutr. 2005;41:561-2.
17. Voskuijl WP, Van Der Zaag-Loonen HJ, Ketel IJG, Grootenhuis MA, Derkx BHF, Beninga MA. Health related quality of life in disorders of defecation: the Defecation Disorder List. Arch Dis Child. 2004:89:1124-7.
18. Rasquim-Weber A, Hyman PE, Cucchiara S, Fleisher DR, Hymans JS, Milla PJ, et al. Childhood functional gastrointestinal disorders. Gut. 1999;45 Suppl 2:II60-8.
19. Center for Disease Control and Prevention. Epi Info 2002. Atlanta: CDC; 2004. http: www.cdc.gov//epiinfo.htm. Access: 06/06/2004.
20. Guyatt GH, Feeny D, Patrick DL. Measuring health-related quality of life. Ann Intern Med. 1993;118:622-9.
21. Irvine EJ. Measuring quality of life: a review. Scand J Gastroenterol Suppl. 1996;221:5-7.
22. Theunissen NC, Vogels TG, Koopman HM, Verrips GH, Zwinderman KA, Verloove-Vanhorick SP, et al. The proxy problem: child report versus parent report in health-related quality of life research. Qual Life Res. 1998;7:387-97.
23. Tucker LB. Whose life is it anyway? Understanding quality of life in children with rheumatic diseases. J Rheumatol. 2000;27:8-11.
24. Loening-Baucke V, Cruikshank B, Savage C. Defecation dynamics and behaviour profiles in encopretic children. Pediatrics. 1987;80:672-9.
25. Nolan T, Debelle G, Oberklaid F, Coffey C. Randomized trial of laxatives in treatment of childhood encopresis. Lancet. 1991;338:523-7.
26. Costa CD, Inneco PF, Barakat F, Veloso VM. Aspectos clínicos e psicológicos da encoprese. Rev Paul Pediatr. 2005;23:35-40.
27. Benninga MA, Voskuijl WP, Akkerhuis GW, Taminiau JA, Buller HA. Colonic transit times and behaviour profiles in children with defecation disorders. Arch Dis Child. 2004;89:13-6.
28. Brasil TB, Ferriani VPL, Machado CSM. Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis. J Pediatr (Rio J). 2003;79:63-8.
29. Wake M, Hesketh K, Cameron F. The Child Health Questionnaire in children with diabetes: cross-sectional survey of parent and adolescent-reported functional health status. Diabet Med. 2000;17:700-7.