The decision-making process of parents regarding organ donation of their brain dead child: A Greek study

Social Science and Medicine

Volumn 64, Issue 2, 2007, Pages 439-450

  Bellali, Thalia ^a   Papadatou, Danai ^a  

^a UNIVERSITY OF ATHENS   (Greece)

Author keywords

Bereavement; Child; Decision; Family; Greece; Organ donation; Parents

Indexed keywords

BRAIN; CHILD; DECISION MAKING; QUALITATIVE ANALYSIS;

ADOLESCENT; ARTICLE; BEREAVEMENT; BRAIN DEATH; CHILD; CHILD DEATH; CHILD HOSPITALIZATION; CHILD PARENT RELATION; CULTURAL FACTOR; DECISION MAKING; EXPERIENCE; FAMILY COUNSELING; FEMALE; GREECE; GROUNDED THEORY; HUMAN; INFORMED CONSENT; INTENSIVE CARE; INTERVIEW; KNOWLEDGE; MALE; NORMAL HUMAN; ORGAN DONOR; QUALITATIVE RESEARCH; REFUSAL TO PARTICIPATE; SOCIAL ASPECT; SOCIAL SUPPORT;

ADOLESCENT; ADULT; BRAIN DEATH; CHILD; CHILD, PRESCHOOL; DECISION MAKING; FEMALE; GREECE; HUMANS; INTERVIEWS; MALE; PARENTS; TISSUE AND ORGAN PROCUREMENT;

ATHENS [ATTICA]; ATTICA; EURASIA; EUROPE; GREECE; SOUTHERN EUROPE;

EID: 33845407713     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2006.09.006     Document Type: Article

References (43)

1. Bartucci M.R. Organ donation: A study of the donor family perspective. Journal of Neuroscience Nursing 19 (1987) 305-309
2. Batten H.L. The social construction of altruism in organ donation. In: Shanteau J., and Harris R.J. (Eds). Organ donation and transplantation: Psychological and behavioral factors (1990), American Psychological Association, Washington, DC 83-97
3. Bellali, T., & Papadatou, D. (2006). Parental grief following the brain death of a child: Does consent or refusal to organ donation affect their grief? Death Studies, accepted for publication.
4. Buckley P.B. The delicate question of the donor family. Transplantation Proceedings 21 (1989) 1411-1412
5. Burroughs T.E., Hong B.A., Kappel D.F., and Freedman B.K. The stability of family decisions to consent or refuse organ donation: Would you do it again?. Psychosomatic Medicine 60 (1998) 156-162
6. Cleiren M., and Zoelen A. Post-mortem organ donation and grief: A study of consent, refusal and well-being in bereavement. Death Studies 26 (2002) 838-849
7. Coupe, D. (1991). A study of relative's nurses' and doctors' attitudes of the support and information given to the families of potential organ donors. Unpublished MPhil thesis, University of Wales College of Medicine, Cardiff.
8. Crombie A. Gift of life. Nursing Times 89 (1993) 25
9. Dejong W., Franz H.G., Wolfe S.M., Nathan H., Payne D., Reitsma W., et al. Requesting organ donation: An interview study of donor and non-donor families. American Journal of Critical Care 7 (1998) 13-23
10. Douglass G.E., and Daly M. Donor families' experience of organ donation. Anesthesia Intensive Care 23 (1995) 96-98
11. Etzioni A. Normative-affective factors: Toward a new decision-making model. In: Zey M. (Ed). Decision making alternatives to rational choice models (1992), Sage Newbury Park, London 110-133
12. Fulton J., Fulton R., and Simmons R. The cadaver donor and the gift of life. In: Simmons R., Marine S.K., and Simmons R R. (Eds). Gift of life. The effect of organ transplantation on individual, family, and societal dynamics (1987), Transaction Books, New Brunswick, USA 338-376
13. Gordon A.K., Herzog A., and Lightenfeld D. Surveying donor families: A comparison of two organ procurement organizations. Clinical Transplantation 9 (1995) 141-145
14. Guy B.S., and Patton W.E. The marketing of altruistic causes: Understanding why people help. The Journal of Consumer Marketing 6 (1989) 19-30
15. Israeli A., Admon D., Hite Y., Woolfson N., Israeli N., and Ayalon A. Factors influencing consent to organ donation among Israeli families. Transplantation Proceedings 8 (1996) 2991-2996
16. Kent B., and Owens R. Conflicting attitudes to corneal and organ donation: A study of nurses' attitudes to organ donation. International Journal of Nursing Studies 32 (1995) 484-492
17. La Spina L., Sedda L., Pizzi C., Verlatto R., Boselli L., and Candiani A.l. Donor families attitude toward organ donation. Transplantation Proceedings 25 (1993) 1699-1701
18. Lenehan G.P. The gift of life: Organ donation and the emergency nurse. Journal of Emergency Nursing 12 (1986) 186-191
19. Mavroforou A., Giannoukas A., and Michalodimitrakis E. Organ and tissue transplantation in Greece: The law and an insight into the social context. Medicine Law 23 (2004) 111-125
20. Morris J.A., Wilcox T.R., and Frist W.H. Pediatric organ donation: The paradox of organ shortage despite the remarkable willingness of families to donate. Pediatrics 89 (1992) 411-415
21. Morton J.B., and Leonard D.R. Cadaver nephrectomy: An operation on the donor's family. British Medical Journal 1 (1979) 239-241
22. Nuss B., Cavalier M., Guirado N., and Boularan A. Study of 303 families regarding organ donation. Transplantation Proceedings 28 (1996) 137-138
23. Painter L.M., Langlands J.M., and Walker J.I. Donor families experience of organ donation: A New Zealand study. New Zealand Medicine Journal 108 (1995) 295-296
24. Papazoglou, K., Sianidou, L., & Papadatos, J. (1993). Organ donation in a pediatric intensive care unit. In Abstracts in 6th European congress on pediatric, Surgical and Neonatal Intensive Care, Athens.
25. Parkes C.M. Guidelines for conducting ethical bereavement research. Death Studies 19 (1995) 171-181
26. Patton M.Q. Qualitative evaluation and research methods (1990), Thousand Oaks, Sage Publications, California
27. Pearson I.Y., Bazeley P., and Spencer-Plane T. A survey of families of brain dead patients: Their experiences, attitudes to organ donation and transplantation. Anesthesia Intensive Care 23 (1995) 88-95
28. Pelletier M. The organ donor family member's perception of stressful situations during the organ donation experience. Journal of Advanced Nursing 17 (1992) 482-484
29. Rubin H.J., and Rubin I.S. Qualitative interviewing (1995), Sage, Thousand Oaks CA
30. Savaria D.T., Rovelli M.A., and Schweizer R.T. Donor families' surveys provide useful information for organ procurement. Transplantation Proceedings 22 (1990) 316-317
31. Shih F.J., Lai M.K., Lin M.H., Lin H.Y., Tsao C.I., Duh B.R., et al. The dilemma of "to-be or not-to-be": Needs and expectations of the Taiwanese cadaveric organ donor families during the pre-donation transition. Social Science & Medicine 53 (2001) 693-706
32. Silverman D. Doing qualitative research (2000), Sage, London
33. Siminoff L.A., Gordon N., Hewlett J., and Arnold R.M. Factors influencing families consent for donation of solid organs for transplantation. Journal of the American Medical Association 286 (2001) 71-77
34. Siminoff L.A., and Lawrence R.H. Knowing patient's preferences about organ donation: Does it make difference?. Journal of Trauma 53 (2002) 754-760
35. Simmons R.G., Marine S.K., and Simmons R.L. Gift of life. The effect of organ transplantation on individual, family, and societal dynamics (1987), Transaction Books, New Brunswick, USA (pp. 233-285)
36. Soukup M. Organ donation from the family of a totally brain dead donor: Professional responsiveness. Critical Care Nursing 13 (1991) 8
37. Sque M., Long T., and Payne S. Organ donation: Key factors influencing families' decision making. Transplantation Proceedings 37 (2005) 543-546
38. Sque M., and Payne S.A. Dissonant loss: The experiences of donor relatives. Social Science & Medicine 43 (1996) 1359-1370
39. Sque M., Payne S., and Vlachonikolis I. Cadaveric donotransplantation: Nurses' attitudes, knowledge and behavior. Social Science & Medicine 50 (2000) 541-552
40. Strauss A., and Corbin J. Basics of qualitative research. 2nd ed (1998), Sage, Newbury Park, CA
41. Strang P. Qualitative research methods in palliative medicine and palliative oncology. Acta Oncologica 39 (2000) 911-917
42. Tymstra T.J., Heyink J.W., Pruim J., and Slooff M.J.H. Experience of bereaved relatives who granted or refused permission for organ donation. Family Practitioner 9 (1992) 141-144
43. Weiss A.H., Fortinsky R.H., Laughlin J., Lo B., Adler N.E., and Mudge C. Parental consent for pediatric cadaveric organ donation. Transplantation Proceedings 29 (1997) 1896-1901