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Volumn 27, Issue 2, 2006, Pages 60-67

Patients' opinions on privacy, consent and the disclosure of health information for medical research

Author keywords

Confidentiality; Informed consent; Privacy; Secondary data

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADULT; ARTICLE; CONTROLLED STUDY; FEMALE; HEALTH SURVEY; HUMAN; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; MEDICAL RESEARCH; MENTAL DISEASE; MULTIPLE SCLEROSIS; PATIENT ATTITUDE; PATIENT IDENTIFICATION; PATIENT PARTICIPATION; PRIVACY;

EID: 33751209201     PISSN: 02288699     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article
Times cited : (16)

References (22)
  • 1
    • 0034727367 scopus 로고    scopus 로고
    • Using patient-identifiable data for observational research and audit
    • Al-Shahi R, Warlow C. Using patient-identifiable data for observational research and audit. BMJ 2000;321(1031):1032.
    • (2000) BMJ , vol.321 , Issue.1031 , pp. 1032
    • Al-Shahi, R.1    Warlow, C.2
  • 2
    • 0035941713 scopus 로고    scopus 로고
    • Undermining data privacy in health information: New powers to control patient information contribute nothing to health
    • Anderson R. Undermining data privacy in health information: new powers to control patient information contribute nothing to health. BMJ 2001;322:443-4.
    • (2001) BMJ , vol.322 , pp. 443-444
    • Anderson, R.1
  • 3
    • 85008270784 scopus 로고    scopus 로고
    • Rights involve responsibilities for patients
    • Doll R, Peto R. Rights involve responsibilities for patients. BMJ 2001;322:730.
    • (2001) BMJ , vol.322 , pp. 730
    • Doll, R.1    Peto, R.2
  • 4
    • 0033793430 scopus 로고    scopus 로고
    • Medical information privacy and the conduct of biomedical research
    • Korn D. Medical information privacy and the conduct of biomedical research. Academic Medicine 2000;75(10):963-8.
    • (2000) Academic Medicine , vol.75 , Issue.10 , pp. 963-968
    • Korn, D.1
  • 5
    • 0037129623 scopus 로고    scopus 로고
    • Consent, confidentiality and the threat to public health surveillance
    • Verity C, Nicoll A. Consent, confidentiality and the threat to public health surveillance. BMJ 2002;324:1210-13.
    • (2002) BMJ , vol.324 , pp. 1210-1213
    • Verity, C.1    Nicoll, A.2
  • 6
    • 0027914898 scopus 로고
    • Personal privacy v. public health
    • Goodwin C. Personal privacy v. public health. New Scientist 1993:25-7.
    • (1993) New Scientist , pp. 25-27
    • Goodwin, C.1
  • 9
    • 33751250321 scopus 로고    scopus 로고
    • Available at (accessed March 21, 2006)
    • The Gallup Organization. Public attitudes towards medical privacy. Available at www. forhealthfreedom.org/Gallupsurvey/IHF-Gallup.pdf, (accessed March 21, 2006).
    • Public Attitudes Towards Medical Privacy
  • 10
    • 33751204569 scopus 로고    scopus 로고
    • National Health System Information Authority in conjunction with The Consumer's Association and Health Which? 2002-1A-1099. UK, Crown
    • National Health System Information Authority in conjunction with The Consumer's Association and Health Which? Share with care! Peoples' views on consent and confidentiality of patient information. 2002-1A-1099. UK, Crown.
    • Share with Care! Peoples' Views on Consent and Confidentiality of Patient Information
  • 11
    • 0037442380 scopus 로고    scopus 로고
    • Patient consent preferences for research uses of information in electronic medical records: Interview and survey data
    • Willison DJ, Keshavjee K, Nair K, Goldsmith C, Holbrook AM. Patient consent preferences for research uses of information in electronic medical records: interview and survey data. BMJ 2003;326:373-7.
    • (2003) BMJ , vol.326 , pp. 373-377
    • Willison, D.J.1    Keshavjee, K.2    Nair, K.3    Goldsmith, C.4    Holbrook, A.M.5
  • 12
    • 0033112013 scopus 로고    scopus 로고
    • The creation of a database for cancer screening: Is the consent of the clients required?
    • Kotalik JF, Holloway G, Woodbeck H. The creation of a database for cancer screening: is the consent of the clients required? Cancer Prev Contr 1999;3(2):119-24.
    • (1999) Cancer Prev Contr , vol.3 , Issue.2 , pp. 119-124
    • Kotalik, J.F.1    Holloway, G.2    Woodbeck, H.3
  • 13
    • 33751223971 scopus 로고    scopus 로고
    • College Station, TX: Stata Corporation
    • STATA 6. College Station, TX: Stata Corporation, 1999.
    • (1999) STATA 6
  • 14
    • 7644225987 scopus 로고    scopus 로고
    • To tell or not to tell? Professional and lay perspectives on the disclosure of personal health information in community-based dementia care
    • Tracy CS, Drummond N, Ferris LE, Globerman J, Hebert PC, Pringle DM et al. To tell or not to tell? Professional and lay perspectives on the disclosure of personal health information in community-based dementia care. Can J Age 2004;23(3):203-15.
    • (2004) Can J Age , vol.23 , Issue.3 , pp. 203-215
    • Tracy, C.S.1    Drummond, N.2    Ferris, L.E.3    Globerman, J.4    Hebert, P.C.5    Pringle, D.M.6
  • 15
    • 0004130687 scopus 로고
    • Institute of medicine (IOM). Washington DC: National Academy Press
    • Institute of medicine (IOM). Health data in the information age. Washington DC: National Academy Press, 1994.
    • (1994) Health Data in the Information Age
  • 16
    • 0036992858 scopus 로고    scopus 로고
    • DNA databanks, public opinion and the law
    • Caulfield T, Outerbridge T. DNA databanks, public opinion and the law. Clin Invest Med 2002;25(6):252-6.
    • (2002) Clin Invest Med , vol.25 , Issue.6 , pp. 252-256
    • Caulfield, T.1    Outerbridge, T.2
  • 17
    • 0033088936 scopus 로고    scopus 로고
    • Medical records: Enhancing privacy, preserving the common good
    • Etzioni A. Medical records: enhancing privacy, preserving the common good. Hastings Center Report 1999;29(2):14-23.
    • (1999) Hastings Center Report , vol.29 , Issue.2 , pp. 14-23
    • Etzioni, A.1
  • 18
    • 0035661369 scopus 로고    scopus 로고
    • Health information: Reconciling personal privacy with the public good of human health
    • Gostin LO. Health information: reconciling personal privacy with the public good of human health. Health Care Analysis 2001;9:321-35.
    • (2001) Health Care Analysis , vol.9 , pp. 321-335
    • Gostin, L.O.1
  • 19
    • 33751207842 scopus 로고    scopus 로고
    • Government of Alberta. Health Information Act. RSA 2000, c. H-5, ss. 48-56
    • Government of Alberta. Health Information Act. RSA 2000, c. H-5, ss. 48-56.
  • 20
    • 0035569943 scopus 로고    scopus 로고
    • Privacy issues and the monitoring of sumatriptan in the new Zealand Intensive Medicines Monitoring Programme
    • Coulter DM. Privacy issues and the monitoring of sumatriptan in the new Zealand Intensive Medicines Monitoring Programme. Pharmacoepi Drug Safety 2001;10:663-7.
    • (2001) Pharmacoepi Drug Safety , vol.10 , pp. 663-667
    • Coulter, D.M.1
  • 22
    • 0034877291 scopus 로고    scopus 로고
    • Informational privacy and the public's health: The model state public health privacy act
    • Gostin LO, Hodge Jr JG, Valdiserri RO. Informational privacy and the public's health: the model state public health privacy act. Am J Pub Health 2001;91(9):1388-92.
    • (2001) Am J Pub Health , vol.91 , Issue.9 , pp. 1388-1392
    • Gostin, L.O.1    Hodge Jr., J.G.2    Valdiserri, R.O.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.