The training & support programme for parents of children with ataxia: A pilot study

Psychology, Health and Medicine

Volumn 12, Issue 1, 2007, Pages 64-69

  Barlow, J H ^a   Cullen Powell, L A ^a   Williams, Hannah ^a  

^a Institute for Clean Growth and Future Mobility   (United Kingdom)

Author keywords

Ataxia; Children; Massage; Parents

Indexed keywords

ADULT; ARTICLE; ATAXIA TELANGIECTASIA; CHILD; CLINICAL ARTICLE; CONTROLLED STUDY; FACIAL EXPRESSION; FEMALE; FOLLOW UP; HAPPINESS; HEALTH PROGRAM; HEALTH STATUS; HUMAN; LIFE SATISFACTION; MALE; MASSAGE; MOBILIZATION; MOOD; MOTHER CHILD RELATION; MOTOR ACTIVITY; PARENTAL ATTITUDE; PARENTAL BEHAVIOR; PRIORITY JOURNAL; QUESTIONNAIRE; RATING SCALE; SELF CONCEPT; SLEEP PATTERN; STATISTICAL SIGNIFICANCE; STRESS;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; ANXIETY; CHILD; CHILD, PRESCHOOL; DEPRESSION; EDUCATION; FEMALE; FOLLOW-UP STUDIES; FRIEDREICH ATAXIA; GREAT BRITAIN; HUMANS; INFANT; MALE; MASSAGE; MIDDLE AGED; PARENT-CHILD RELATIONS; PILOT PROJECTS; QUALITY OF LIFE; QUESTIONNAIRES; SELF EFFICACY; SICK ROLE; SOCIAL SUPPORT;

EID: 33750855572     PISSN: 13548506     EISSN: None     Source Type: Journal    
DOI: 10.1080/13548500600580931     Document Type: Article

References (16)

1. Ataxia UK, Winchester House, Kennington Park, London.
2. Bailey, D. B., Blasco, P. M., & Simeonsson, R. J. (1992). Needs expressed by mothers and fathers of young children with disabilities. American Journal on Mental Retardation, 97(1), 1-10.
3. Barlow, J. H., & Cullen, L. A. (2000). Coming together through touch. The experiences of parents of children with disabilities learning the principles of massage. Early Child Development and Care, 161, 93-105.
4. Barlow, J. H., Cullen-Powell, L. A., & Gilchrist, M. (2005 in press). The influence of the Training and Support Programme on the self-efficacy and psychological well-being of parents of children with disabilities: A controlled trial. Complementary Therapies in Clinical Practice.
5. Barlow, J. H., Shaw, K., & Wright, C. C. (2000). Development and preliminary validation of a self-efficacy measure for use among parents of children with juvenile idiopathic arthritis. Arthritis Care & Research, 13(4), 227-236.
6. Breslau, N., Staruch, K., & Mortimer, E. (1982). Psychological distress in mothers of disabled children. American Journal of Diseases of Children, 136, 682-686.
7. Cohen, S., & Williamson, G. (1988). Perceived stress in a probability sample of the United States. In S. Spacapan & S. Oskamp (Eds.), The social psychology of health (pp. 31-67). Newbury Park, CA: Sage.
8. Crawford, J. R., Henry, J. D., Crombie, C., & Taylor, E. P. (2001). Brief report: Normative data for the HADS from a large non-clinical sample. British Journal of Clinical Psychology, 40, 429-434.
9. Cullen, L. A., & Barlow, J. H. (2002). Parents' experiences of caring for children with autism and attending a touch therapy program. Child Care in Practice, 8(1), 35-47.
10. Cullen, L. A., & Barlow, J. H. (2004). A training and support programme for caregivers of children with disabilities: An exploratory study. Patient Education and Counselling, 55, 203-209.
11. Diener, E., Emmons, R. A., Larson, R. J., & Griffin, S. (1985). The Satisfaction with Life Scale. Journal of Personality Assessment, 49, 71-76.
12. Dyson, L. L. (1997). Fathers and mothers of school age children with developmental disabilities: Parental stress, family functioning and social support. American Journal on Mental Retardation, 102(3), 267-279.
13. Eiser, C. (1993). Growing up with a chronic disease: The impact on children and their families. London: Jessica Kingsley Publishers Ltd.
14. Field, T., Hernandez-Reif, M., Quintino, O., Schanberg, S., & Kuhn, C. (1998). Elder retired volunteers benefit from giving massage therapy to infants. Journal of Applied Gerontology, 17, 229-239.
15. Hagborg, W. J. (1989). A comparative study of parental stress among mothers and fathers of deaf school-age children. Journal of Community Psychology, 2, 92-94.
16. Zigmond, A. S., & Snaith, R. P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67, 361-370.