Parental reactions to information about increased genetic risk of type 1 diabetes mellitus in infants

Archives of Pediatrics and Adolescent Medicine

Volumn 160, Issue 11, 2006, Pages 1131-1136

  Simonen, Paula ^a,b   Korhonen, Tapio ^a   Simell, Tuula ^a   Keskinen, Päivi ^c   Kärkkäinen, Maarit ^a   Knip, Mikael ^d   Ilonen, Jorma ^a   Simell, Olli ^a  

^a UNIVERSITY OF TURKU   (Finland)

^b Satakunta Hospital District   (Finland)

^c TAMPERE UNIVERSITY OF TECHNOLOGY   (Finland)

^d UNIVERSITY OF HELSINKI   (Finland)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ANXIETY; ARTICLE; CONTROLLED STUDY; COPING BEHAVIOR; EMOTION; FEMALE; GENETIC RISK; GENETIC SCREENING; HIGH RISK POPULATION; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; LIFE EVENT; MALE; MEDICAL INFORMATION; PARENTAL ATTITUDE; PRIORITY JOURNAL; QUESTIONNAIRE; STATE TRAIT ANXIETY INVENTORY; THINKING;

EID: 33750810630     PISSN: 10724710     EISSN: 10724710     Source Type: Journal    
DOI: 10.1001/archpedi.160.11.1131     Document Type: Article

References (27)

1. Johnson SB, Riley WJ, Hansen CA, Nurick MA. Psychological impact of isletcell antibody screening: preliminary results. Diabetes Care. 1990;13:93-97.
2. Bennett Johnson S, Tercyak KP Jr. Psychological impact of islet cell antibody screening for IDDM on children, adults, and their family members. Diabetes Care. 1995;18:1370-1372.
3. Hahl J, Simell T, Ilonen J, Knip M, Simell O. Costs of predicting IDDM. Diabetologia. 1998;41:79-85.
4. Kupila A, Muona P, Simell T, et al. Feasibility of genetic and immunological prediction of type I diabetes in a population-based birth cohort. Diabetologia. 2001;44:290-297.
5. Kukko M, Kimpimäki T, Korhonen S, et al. Dynamics of diabetes-associated autoantibodies in young children with human leukocyte antigen-conferred risk of type 1 diabetes recruited from the general population. J Clin Endocrinol Metab. 2005;90:2712-2717.
6. Holmes TH, Rahe RH. The Social Readjustment Rating Scale. J Psychosom Res. 1967;11:213-218.
7. Spielberger C, Gorsuch RL, Lushene R. Manual for the State-Trait Anxiety Inventory. Palo Alto, Calif: Consulting Psychologists Press; 1970.
8. Knight RG, Waal-Manning HJ, Spears GF. Some norms and reliability data for the State-Trait Anxiety Inventory and the Zung Self-Rating Depression Scale. Br J Clin Psychol. 1983;22:245-249.
9. Lazarus RS. Patterns of Adjustment. New York, NY: McGraw-Hill; 1976.
10. Folkman S, Lazarus RS, Dunkel-Schetter C, DeLongis A, Gruen RJ. Dynamics of a stressful encounter: cognitive appraisal, coping, and encounter outcomes. J Pers Soc Psychol. 1986;50:992-1003.
11. Lazarus RS. From psychological stress to the emotions: a history of changing outlooks. Annu Rev Psychol. 1993;44:1-21.
12. Lazarus RS, Folkman S. Stress, Appraisal and Coping. New York, NY: Springer Publishing Co; 1984.
13. Folkman S, Lazarus RS. An analysis of coping in a middle-aged community sample. J Health Soc Behav. 1980;21:219-239.
14. Mennie ME, Gilfillan A, Compton M, et al. Prenatal screening for cystic fibrosis. Lancet. 1992;340:214-216.
15. Watson EK, Myall ES, Lamb J, Chapple J, Williamson R. Psychological and social consequences of community carriers screening programme for cystic fibrosis. Lancet. 1992;340:217-220.
16. Clow CL, Scriver CR. Knowledge about and attitudes toward genetic screening among high-school students: the Tay-Sachs experience. Pediatrics. 1977;59:86-90.
17. Blomhoff S, Malt U, Weisaeth L. Psychosocial aspects in presymptomatic testing for genetic diseases: experiences after 2 years of counseling in Huntington disease [in Norwegian]. Tidsskr Nor Laegeforen. 1995;115:27-29.
18. McNeil TF, Thelin T, Aspegren-Jansson E, Sveger T. Identifying children at high somatic risk: possible long-term effects on parental conceptualizations of the children's personality and behavior. Acta Psychiatr Scand. 1985;72:498-504.
19. Thelin T, McNeil TF, Aspegren-Jansson E, Sveger T. Psychological consequences of neonatal screening for α1-antitrypsin deficiency: parental reactions to the first news of their infants' deficiency. Acta Paediatr Scand. 1985;74:787-793.
20. Thelin T, McNeil TF, Aspegren-Jansson E, Sveger T. Psychological consequences of neonatal screening for α1-antitrypsin deficiency (ATD): parental attitudes toward "ATD-check-ups" and parental recommendations regarding future screening. Acta Paediatr Scand. 1985;74:841-847.
21. Thelin T, McNeil TF, Aspegren-Jansson E, Sveger T. Identifying children at high somatic risk: parents' long-term emotional adjustment to their children's α1-antitrypsin deficiency. Acta Psychiatr Scand. 1985;72:323-330.
22. Posa T. Ultrasono-graphically Detected Fetal Defect as a Parental Crisis [PhD thesis]. Oulu, Finland: Oulu University; 1998.
23. Hietala M, Hakonen A, Aro AR, Niemelä P, Peltonen L, Aula P. Attitudes toward genetic testing among the general population and relatives of patients with severe genetic disease: a survey from Finland. Am J Hum Genet. 1995;56:1493-1500.
24. Marteau TM, Johnston M. Determinants of beliefs about illness: a study of parents of children with diabetes, asthma, epilepsy, and no chronic illness. J Psychosom Res. 1986;30:673-683.
25. Abramowitz JS, Schwartz SA, Moore KM, Luenzmann KR. Obsessive-compulsive symptoms in pregnancy and the puerperium: a review of the literature. J Anxiety Disord. 2003;17:461-478.
26. Wenzel A, Haugen EN, Jackson LC, Brendle JR. Anxiety symptoms and disorders at eight weeks postpartum. J Anxiety Disord. 2005;19:295-311.
27. Otto MW, Smits JA, Reese HE. Cognitive-behavioral therapy for the treatment of anxiety disorders. J Clin Psychiatry. 2004;65(suppl 5):34-41.