Quality of life in patients with home mechanical ventilation;Lebensqualität bei patienten mit häuslicher beatmung

Pneumologie

Volumn 60, Issue 9, 2006, Pages 539-546

  Windisch, Wolfram ^a   Criee C P ^b  

^a UNIVERSITY OF FREIBURG   (Germany)

^b Sleep Laboratory   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

ARTIFICIAL VENTILATION; CHRONIC DISEASE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL TRIAL; COST BENEFIT ANALYSIS; DAILY LIFE ACTIVITY; DISABILITY; FUNCTIONAL STATUS; HEALTH CARE COST; HEALTH STATUS; HOME CARE; HUMAN; HUMAN RELATION; NEUROMUSCULAR DISEASE; PATIENT CARE; PHYSICAL ACTIVITY; PRIORITY JOURNAL; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; QUESTIONNAIRE; REVIEW; THORAX DISEASE;

ANXIETY; ATTITUDE TO HEALTH; DEPRESSION; HEALTH STATUS; HOME CARE SERVICES; HUMANS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITY OF LIFE; RESPIRATION, ARTIFICIAL;

EID: 33750290680     PISSN: 09348387     EISSN: None     Source Type: Journal    
DOI: 10.1055/s-2006-932152     Document Type: Review

References (73)

1. Lenfant C. Shattuck lecture-clinical research to clinical practice - lost in translation? N Engl J Med 2003; 349: 868-874
2. Petermann F, Krischke N, Deuchert M. Methodische Probleme bei der Erfassung der Lebensqualität. In: Petermann F, Bergmann KC (Hrsg). Lebensqualität und Asthma. Berlin, München: Quintessenz, 1994: 29-42
3. Windisch W, Friedel K, Matthys H et al. Gesundheitsbezogene Lebensqualität bei Patienten mit Heimbeatmung. Pneumologie 2002; 10: 610-620
4. Hoffman LG, Rouse MW, Brin BN. Quality of life: a review. Journal of the American Optometric Association 1995; 66: 281-289
5. Wood-Dauphinee S. Assessing quality of life in clinical research: from where have we come and where are we going? J Clin Epidemiol 1999; 52: 355-363
6. Testa MA, Simonson DC. Assesment of quality-of-life outcomes. N Engl J Med 1996; 334(13): 835-840
7. Lienert G, Raats U. Testaufbau und Testanalyse. Weinheim: Verlags Union, 1998
8. Hunt SM, McKenna SP, McEwen J et al. The Nottingham Health Profile: subjective health status and medical consultations. Soc Sci Med 1981; 15: 221-229
9. Bergner M, Bobbitt RA, Pollard WE et al. The sickness impact profile: validation of a health status measure. Medical Care 1976; 14: 57-67
10. Bergner M, Bobbitt RA, Carter WB et al. The Sickness Impact Profile: development and final revision of a health status measure. Medical Care 1981; 19: 787-805
11. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care 1992; 30: 473-483
12. Ware JE Jr, Kosinski M, Bayliss MS et al. Comparison of methods for the scoring and statistical analysis of SF-36 health profile and summary measures: summary of results from the Medical Outcomes Study. Medical Care 1995; 33 (4 Suppl): AS264-279
13. Ware JE Jr. The SF-36 Health Survey. In: Spilker B (Hrsg). Quality of Life and Pharmacoeconomics in Clinical Trials., 1996: 337-345
14. Bullinger M, Kirchberger I. SF-36 Fragebogen zum Gesundheitszustand - Handanweisung. 1998
15. Aaronson NK, Acquadro C, Alonso J et al. International Quality of Life Assessment (IQOLA) Project. Qual Life Res 1992; 1: 349-351
16. Bullinger M. German translation and psychometric testing of the SF-36 Health Survey: preliminary results from the IQOLA Project. International Quality of Life Assessment. Soc Sci Med 1995; 41: 1359-1366
17. Wagner AK, Gandek B, Aaronson NK et al. Cross-cultural comparisons of the content of SF-36 translations across 10 countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998; 51: 925-932
18. Ware JE Jr, Kosinski M, Gandek B et al. The factor structure of the SF-36 Health Survey in 10 countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998; 51: 1159-1165
19. Ware JE Jr, Gandek B, Kosinski M et al. The equivalence of SF-36 summary health scores estimated using standard and country-specific algorithms in 10 countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998; 51: 1167-1170
20. Ware JE Jr, Gandek B. Overview of the SF-36 Health Survey and the International Quality of Life Assessment (IQOLA) Project. J Clin Epidemiol 1998; 51: 903-912
21. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica 1983; 67: 361-370
22. Guyatt GH, Berman LB, Townsend M et al. A measure of quality of life for clinical trials in chronic lung disease. Thorax 1987; 42: 773-778
23. Jones PW, Quirk FH, Baveystock CM. The St George's Respiratory Questionnaire. Respir Med 1991; 85 (Suppl B): 25-31
24. Windisch W, Petermann F, Laier-Groeneveld G et al. Lebensqualität bei Heimbeatmung. Med Klin 1997; 92 (Suppl 1): 95-100
25. Carone M, Bertolotti G, Anchisi F et al. Analysis of factors that characterize health impairment in patients with chronic respiratory failure. Quality of Life in Chronic Respiratory Failure Group. Fur Respir J 1999; 13: 1293-1300
26. Windisch W, Freidel K, Schucher B et al. The Severe Respiratory Insufficiency (SRI) Questionnaire: a specific measure of health-related quality of life in patients receiving home mechanical ventilation. J Clin Epidemiol 2003; 56: 752-759
27. Windisch W, Budweiser S, Heinemann F et al. The Severe Respiratory Insufficiency (SRI) Questionnaire: a specific measure of health-related quality of life (HRQL) in patients with COPD receiving home mechanical ventilation (HMV). Eur Respir J 2005; 26 (Suppl.49): 85s
28. López-Campos JL, Martínez IF, Jiménez AL et al. Transcultural adaptation and validation of the SRl questionnaire in Spanish patients receiving home mechanical ventilation. Eur Respir J 2005; 26 (Suppl.49): 5s
29. Pehrsson K, Olofson J, Larsson S et al. Quality of life of patients treated by home mechanical ventilation due to restrictive ventilatory disorders. Respir Med 1994; 88: 21-26
30. Simonds AK, Elliott MW. Outcome of domiciliary nasal intermittent positive pressure ventilation in restrictive and obstructive disorders. Thorax 1995; 50: 604-609
31. Windisch W, Freidel K, Schucher B et al. Evaluation of health-related quality of life using the MOS 36-Item Short-Form Health Status Survey in patients receiving noninvasive positive pressure ventilation. Intensive Care Med 2003; 29: 615-621
32. Dellborg C, Olofson J, Midgren B et al. Quality of life in patients with chronic alveolar hypoventilation. Eur Respir J 2002; 19: 113-120
33. Juniper EF, Guyatt GH, Epstein RS et al. Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials. Thorax 1992; 47: 76-83
34. Bach JR. A comparison of long-term ventilatory support alternatives from the perspective of the patient and care giver. Chest 1993; 104: 1702-1706
35. Euteneuer S, Windisch W, Suchi S et al. Health-related quality of life in patients with chronic respiratory failure after long-term mechanical ventilation. Respir Med 2006, in press
36. Windisch W, Dreher S, Storre J et al. Nocturnal non-invasive positive pressure ventilation: Physiological effects on spontaneous breathing. Respir Physiol Neurobiol 2006, in press
37. Hurel D, Loirat P, Saulnier F et al. Quality of life 6 months after intensive care: results of a prospective multicenter study using a generic health status scale and a satisfaction scale. Intensive Care Med 1997; 23: 331-337
38. Seemungal TA, Donaldson CC, Paul EA et al. Effect of exacerbation on quality of life in patients with chronic obstructive pulmonary disease. Am J Respir Crit Care Med 1998; 157: 1418-1422
39. Ambrosino N, Bruletti G, Scala V et al. Cognitive and perceived health status in patient with chronic obstructive pulmonary disease surviving acute on chronic respiratory failure: a controlled study. Intensive Care Med 2002; 28: 170-177
40. Paditz E, Zieger S, Bickhard J et al. Lebensqualität im Kindes-, Jugend- und jungen Erwachsenenalter: unterschiedliche Sichtweisen von Eltern und Kindern. Somnologie 2000; 4: 13-19
41. Anonymous. Clinical indications for noninvasive positive pressure ventilation in chronic respiratory failure due to restrictive lung disease, COPD, and nocturnal hypoventilation - a consensus conference report. Chest 1999; 116: 521-534
42. Schönhofer B, Köhler D. Effect of non-invasive mechanical ventilation on sleep and nocturnal ventilation in patients with chronic respiratory failure. Thorax 2000; 55: 308-313
43. Mehta S, Hill NS. Noninvasive ventilation. Am J Respir Crit Care Med 2001; 163: 540-577
44. Shneerson JM, Simonds AK. Noninvasive ventilation for chest wall and neuromuscular disorders. Eur Respir J 2002; 20: 480-487
45. Simonds AK. Home ventilation. Eur Respir J 2003; 47 (Suppl): 38s-46s
46. Leger P, Bedicam JM, Cornette A et al. Nasal intermittent positive pressure ventilation. Long-term follow-up in patients with severe chronic respiratory insufficiency. Chest 1994; 105: 100-105
47. Buyse B, Meersseman W, Demedts M. Treatment of chronic respiratory failure in kyphoscoliosis: oxygen or ventilation? Eur Respir J 2003; 22: 525-528
48. Domenech-Clar RF, Nauffal-Manzur DF, Perpina-Tordera MF et al. Home mechanical ventilation for restrictive thoracic diseases: effects on patient quality-of-life and hospitalizations. Respir Med 2003; 97: 1320-1327
49. Nauffal D, Domenech R, Martinez Garcia MA et al. Noninvasive positive pressure home ventilation in restrictive disorders: outcome and impact on health-related quality of life. Respir Med 2002; 96: 777-783
50. Sawicka EH, Loh L, Branthwaite MA. Domiciliary ventilatory support: an analysis of outcome. Thorax 1988; 43: 31-35
51. Schönhofer B, Ardes P, Geibel M et al. Evaluation of a movement detector to measure daily activity in patients with chronic lung disease. Eur Respir J 1997; 10: 2814-2819
52. Simonds AK, Muntoni F, Heather S et al. Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy. Thorax 1998; 53: 949-952
53. Bach JR, Campagnolo DI, Hoeman S. Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. Am J Phys Med Rehabil 1991; 70: 129-135
54. Kohler M, Clarenbach CF, Boni L. et al. Quality of life, physical disability, and respiratory impairment in duchenne muscular dystrophy. Am J Respir Crit Care Med 2005; 172: 1032-1036
55. Pinto AC, Evangelista T, Carvalho M et al. Respiratory assistance with a non-invasive ventilator (Bipap) in MND/ALS patients: survival rates in a controlled trial. J Neurol Sci 1995; 129 (Suppl): 19-26
56. Lyall RA, Donaldson N, Polkey MI et al. Respiratory muscle strength and ventilatory failure in amyotrophic lateral sclerosis. Brain 2001; 124: 2000-2013
57. Bourke SC, Shaw PJ, Gibson CJ. Respiratory function vs sleep-disordered breathing as predictors of QOL in ALS. Neurology 2001; 57: 2040-2044
58. Brochard L, Mancebo J, Wysocki M et al. Noninvasive ventilation for acute exacerbations of chronic obstructive pulmonary disease. N Engl J Med 1995; 333: 817-822
59. Plant PK, Owen JL, Elliott MW. Early use of non-invasive ventilation for acute exacerbations of chronic obstructive pulmonary disease on general respiratory wards: a multicentre randomised controlled trial. Lancet 2000; 355: 1931-1935
60. Lightowler JV, Wedzicha JA, Elliott MW et al. Non-invasive positive pressure ventilation to treat respiratory failure resulting from exacerbations of chronic obstructive pulmonary disease: Cochrane systematic review and meta-analysis. BMJ 2003; 326: 185
61. Hill NS. Noninvasive ventilation for chronic obstructive pulmonary disease. Respir Care 2004; 49: 72-89
62. Strumpf DA, Millman RP, Carlisle CC et al. Nocturnal positive-pressure ventilation via nasal mask in patients with severe chronic obstructive pulmonary disease. Am Rev Respir Dis 1991; 144: 1234-1239
63. Meecham Jones DJ, Paul EA, Jones PW et al. Nasal pressure support ventilation plus oxygen compared with oxygen therapy alone in hypercapnic COPD. Am J Respir Crit Care Med 1995; 152: 538-544
64. Gay PC, Hubmayr RD, Stroetz RW. Efficacy of nocturnal nasal ventilation in stable, severe chronic obstructive pulmonary disease during a 3-month controlled trial. Mayo Clin Proc 1996; 71: 533-542
65. Casanova C, Celli BRF, Tost L et al. Long-term controlled trial of nocturnal nasal positive pressure ventilation in patients with severe COPD. Chest 2000; 118: 1582-1590
66. Clini E, Sturani C, Rossi A et al. The Italian multicentre study on noninvasive ventilation in chronic obstructive pulmonary disease patients. Eur Respir J 2002; 20: 529-538
67. Wijkstra PJ, Lacasse Y, Guyatt GH et al. A meta-analysis of nocturnal noninvasive positive pressure ventilation in patients with stable COPD. Chest 2003; 124: 337-343
68. Wijkstra PJ. Non-invasive positive pressure ventilation (NIPPV) in stable patients with chronic obstructive pulmonary disease (COPD). Respir Med 2003; 97: 1086-1093
69. Elliott MW, Simonds AK, Carroll MP et al. Domiciliary nocturnal nasal intermittent positive pressure ventilation in hypercapnic respiratory failure due to chronic obstructive lung disease: effects on sleep and quality of life. Thorax 1992; 47: 342-348
70. Sivasothy P, Smith IE, Shneerson JM. Mask intermittent positive pressure ventilation in chronic hypercapnic respiratory failure due to chronic obstructive pulmonary disease. Eur Respir J 1998; 11: 34-40
71. Perrin C, El Far Y, Vandenbos F et al. Domiciliary nasal intermittent positive pressure ventilation in severe COPD: effects on lung function and quality of life. Eur Respir J 1997; 10: 2835-2839
72. 2. Respir Med 2002; 96: 572-579
73. 2. Chest 2005; 128: 657-662