A review of the alpha-1 foundation: Its formation, impact, and critical success factors

Respiratory Care

Volumn 51, Issue 5, 2006, Pages 526-531

  Walsh, John W ^a   Snider, Gordon L ^a,b   Stoller, James K ^c,d  

^a Alpha 1 Foundation   (United States)

^b BOSTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c CLEVELAND CLINIC LERNER COLLEGE OF MEDICINE   (United States)

^d LERNER RESEARCH INSTITUTE   (United States)

Author keywords

Alpha 1 antitrypsin deficiency; Organization; Patient advocacy

Indexed keywords

ALPHA 1 ANTITRYPSIN DEFICIENCY; CLINICAL FEATURE; CLINICAL RESEARCH; DISEASE COURSE; FINANCIAL MANAGEMENT; FUNDING; GOVERNMENT; HEALTH CARE ORGANIZATION; HUMAN; NON PROFIT ORGANIZATION; PATIENT ADVOCACY; PROFESSIONAL PRACTICE; REVIEW; SCIENTIST; ARTICLE; ECONOMICS; ORGANIZATION AND MANAGEMENT; UNITED STATES;

ALPHA 1-ANTITRYPSIN DEFICIENCY; FOUNDATIONS; FUND RAISING; HUMANS; PATIENT ADVOCACY; UNITED STATES;

EID: 33750108670     PISSN: 00201324     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (8)

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2. Stoller JK, Aboussouan LS. Alpha 1-antitrypsin deficiency. Lancet 2005;365(9478):2225-2236.
3. American Thoracic Society/European Respiratory Society statement. Standards for the diagnosis and management of individuals with alpha-1 antitrypsin deficiency. Am J Respir Crit Care Med 2003;168(7):818-900.
4. http://www.alpha1.org/about/goals.asp. Accessed Feb 17, 2006.
5. Wewers MD, Casolaro MA, Sellers SE, Swayze SC, McPhaul KM, Wittes JT, Crystal RG. Replacement therapy for alpha 1-antitrypsin deficiency associated with emphysema. N Engl J Med 1987;316(17):1055-1062.
6. Alpha-1 Association. www.alpha1.org. Accessed Feb 17, 2006.
7. Shermock KM, Gildea TR, Singer M, Stoller JK. Cost-effectiveness of population screening for alpha-1 antitrypsin deficiency: a decision analysis. COPD 2005;4:411-418.
8. Stoller JK, Brantly M, Fleming LE, Bean JA, Walsh J. Formation and current results of a patient-organized registry for alpha(1)-antitrypsin deficiency. Chest 2000;118(3):843-848.