Quality of life in acromegaly

Neuroendocrinology

Volumn 83, Issue 3-4, 2006, Pages 224-229

  Webb, Susan M ^a  

^a UNIVERSITAT AUTÒNOMA DE BARCELONA   (Spain)

Author keywords

Acromegaly; AcroQol questionnaire; Growth hormone; Health related quality of life; Insulin like growth factor I

Indexed keywords

GROWTH HORMONE; SOMATOMEDIN C;

ACROMEGALY; AGING; ARTHROPATHY; CONFERENCE PAPER; CORRELATION ANALYSIS; DISEASE ACTIVITY; DISEASE DURATION; DISEASE SEVERITY; EVALUATION; GERMANY; HUMAN; LONGITUDINAL STUDY; NETHERLANDS; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; REMISSION; RISK FACTOR; SCORING SYSTEM; SEX DIFFERENCE; SPAIN; TEST RETEST RELIABILITY; TURKEY (REPUBLIC); UNITED KINGDOM;

ACROMEGALY; FEMALE; HEALTH STATUS; HUMAN GROWTH HORMONE; HUMANS; INSULIN-LIKE GROWTH FACTOR I; MALE; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SENSITIVITY AND SPECIFICITY; SEX FACTORS;

EID: 33750060058     PISSN: 00283835     EISSN: None     Source Type: Journal    
DOI: 10.1159/000095532     Document Type: Conference Paper

References (15)

1. Sonino N, Scarpa E, Paoletta A, Fallo F, Boscaro M: Slow-release lanreotide treatment in acromegaly: effects on quality of life. Psychother Psychosom 1999;68:165-167.
2. Patrick DL, Erickson P: Health States and Health Policy: Quality of Life in Health Care Evaluation and Resource Allocation. New York, Oxford University Press, 1993.
3. McKenna SP, Doward LC, Alonso J, Kohlmann T, Niero M, Prieto L, Wirén L: The QoL-AGHDA: an instrument for the assessment of quality of life in adults with growth hormone deficiency. Qual Life Res 1999;8:373-383.
4. Rosilio M, Blum WF, Edwards DJ, Shavrikova EP, Valle D, Lamberts SWJ, Erfurth EM, Webb SM, Ross RJ, Chihara K, Henrich G, Herschbach P, Attanasio AF: Long-term improvement of quality of life during growth hormone (GH) replacement therapy in adults with GH deficiency, as measured by QLS-H®. J Clin Endocrinol Metab 2004;89:1684-1693.
5. Webb SM, Prieto L, Badia X, Albareda M, Catalá M, Gaztambide S, Lucas T, Páramo C, Picó A, Lucas A, Halperin I, Obiols G, Astorga R: Acromegaly Quality of Life Questionnaire (AcroQoL) a new health-related quality of life questionnaire for patients with acromegaly: development and psychometric properties. Clin Endocrinol 2002;57:251-258.
6. Webb S, Badia X, Lara N, for the Spanish AcroQoL Study Group: Validity and clinical applicability of the Acromegaly Quality of Life Questionnaire (AcroQoL): a six months prospective study. Eur J Endocrinol, in press.
7. Badia X, Webb S, Prieto L, Lara N: Acromegaly Quality of Life Questionnaire (AcroQoL). Health Qual Life Outcomes 2004;2:13.
8. Rasch G: Probabilistic Models for Some Intelligence and Attainment Tests. Chicago, Mesa Press, 1993.
9. Nunnally J: Psychometric Theory, ed 2. New York, McGraw-Hill, 1978.
10. Hays RD, Anderson R, Revicki D: Psychometric considerations in evaluating health-related quality of life measures. Qual Life Res 1993;2:441-449.
11. Rowles SV, Prieto L, Badia X, Shalet SM, Webb SM, Trainer PJ: Quality of life (QOL) in patients with acromegaly is severely impaired: use of a novel measure of QOL: acromegaly quality of life questionnaire. J Clin Endocrinol Metab 2005;90:3337-3341.
12. Biermasz NK, Van Thiel SW, Pereira AM, Hoftijzer HC, Van Hemert AM, Smit JW, Romijn JA, Roelfsema F: Decreased quality of life in patients with acromegaly despite long-term cure of growth hormone excess. J Clin Endocrinol Metab 2004;89:5369-5376.
13. Biermasz NK, Pereira AM, Smit JWA, Romijn JA, Roelfsema F: Morbidity after long-term remission for acromegaly: persisting joint-related complaints cause reduced quality of life. J Clin Endocrinol Metab 2005;90:2731-2739.
14. Trepp R, Everts R, Stettler C, Fischli S, Allemann S, Webb SM, Christ ER: Assessment of quality of life in patients with uncontrolled versus controlled acromegaly using the acromegaly quality of life questionnaire (AcroQoL). Clin Endocrinol 2005;63:103-110.
15. Deyneli O, Yavuz D, Gozu H, Aydin H, Bicer D, Topcouglu V, Akalin SN: Evaluation of quality of life in Turkish patients with acromegaly (abstract). Proc 84th Annu Meet Endocr Soc, Philadelphia, 2003, 3-508.