Walking a tightrope: The loss and grief of parents of children with cancer in shanghai

Death, Dying and Bereavement: A Hong Kong Chinese Experience

Volumn , Issue , 2006, Pages 241-250

  Lou, Vivian Wei Qun ^a   Chan, Cecilia Lai Wan ^b  

^a CHINESE UNIVERSITY OF HONG KONG   (Hong Kong)

^b UNIVERSITY OF HONG KONG   (Hong Kong)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 33749583479     PISSN: None     EISSN: None     Source Type: Book    
DOI: None     Document Type: Chapter

References (46)

1. Cao JL. A survey on the causes of childhood death under five years old in Lian Yun Gang from 1997 to 1999. Journal of Qiqihar Medical College 2001; 22: 1320-1. (In Chinese
2. The National Collaborative Group for Survey of Deaths of Children Under Five. A survey on deaths of children under the age of five years in China. Chinese Journal of Pediatry 1994; 32: 149-52. (In Chinese
3. Wang YG. An analysis on causes of death of children from birth to fourteen years old in Xu Hui District Shanghai. Shanghai Journal of Preventive Medicine 1996; 8: 506-8. (In Chinese
4. Hu YM. Setting up a medical centre for children with leukaemia. China Oncology 2002; 11:8. (In Chinese
5. Gu LJ. Increasing disease-free survival rate for childhood ALL by developing standardized treatment protocol. China Journal ofHaematology 1999; 20: 341-2. (In Chinese
6. The Leukemia 8c Lymphoma Society website: Http://www.leukemia-lymphoma. org/all-faq.adp?item-id=9454. Retrieved on 2 April 2005.
7. Chen J, Gu LJ, Yao HY, Shen LX. Quality of life of twenty-two survivals of acute nonlymphobastic leukaemia. China Journal ofPediatric 2000; 38:111-2. (In Chinese
8. Stein RE. Reissman CK The development of an Impact-on-Family Scale. Medical Care 1980; XVIII: 465-72.
9. Sawyer MG, Antoniou G, Toogood I, Rice, M, Baghurst PA. A prospective study of the psychological adjustment of parents and families of children with cancer. Journal of Pediatric Child Health 1993; 29: 352-6.
10. Sharan P. Mehta M, Chaudhry VP. Psychiatric disorders among parents of children suffering from acute lymphoblastic leukemia. Pediatric Hematology and Oncology 1999; 16: 43-7.
11. Blount RL, Davis N, Powers S, Roberts MC. The influence of environmental factors and coping style on children's coping and distress. Clinical Psychology Review 1991; 11:93-116.
12. Rosenblatt PC. A social constructionist perspective on cultural differences in grief. In: Stroebe MS, Hansson RO, Stroebe W, Schut H, editors. Handbook of bereavement research: Consequences, coping and care. Washington DC: American Psychological Association, 1991: 285-300.
13. Bronfenbrenner U. The ecology of human development. Cambridge, MA: Harvard University Press, 1979.
14. Bronfenbrenner U. Ecology of the family as a context for human development: Research perspectives. Developmental Psychology 1986; 22: 723-42.
15. Wu DYH. Chinese childhood socialization. In Bond MH, editor. The handbook of Chinese psychology. Hong Kong: Oxford University Press, 1986: 143-54.
16. Bond MH, Hwang KK. The social psychology of Chinese people. In: Bond MH, editor. The psychology of the Chinese people. Hong Kong: Oxford University Press, 1986: 213-66.
17. Goodwin R, Tang CS. Chinese personal relationships. In: Bond MH, editor. The handbook of Chinese psychology. Hong Kong: Oxford University Press, 1996: 294-308.
18. Gong S. Health-care system for employers in state-owned enterprises: Historical review and prospect. Internal report no. 4. Beijing: Social Development Department, Development Research Centre, State Council, 2004. (In Chinese
19. Gong S. China's financial health input and the analysis of its performance since economic reform. Internal report no. 2. Beijing: Social Development Department, Development Research Centre, State Council, 2004. (In Chinese
20. World Health Organization. World health report 2000-health system: Improving performance. Geneva: WHO, 2000. Available at http://www.who.int/ whr2001. 2001/achives/2000/en/index.htm.
21. World Health Organization. World health report. Geneva: WHO, 2003.
22. Shanghai Statistics Bureau. Statistical yearbook of Shanghai 2001. Shanghai: Author, 2001.
23. Gu LJ, Yao HY, Xue HL, Zhao, HJ, Wang YP, Gu MY, et al. Initial and continuous intensive chemotherapy for childhood acute lymphoblastic leukaemia (ALL): The clinical results in treatment of 57 cases with XH-88 protocol. Chinese Journal of Haematology 1994; 15: 76-9.
24. Gu LJ, Sun GX, Lu XT, Tang JY, Wu MY. Suggested treatment protocol for childhood acute lymphocytic leukaemia (ALL). Chinese Journal of Pediatry 1999; 37: 305-7. (In Chinese
25. Zhang YP, Zhang XC, Zheng CJ, Xu JH, Guo LC, Li CY, et al. Logistic regression analysis of risk factors in child leukaemia. China Journal of Pediatry 1999; 37: 625-8. (In Chinese
26. Chen J, Gu LJ, Xu YP, Yao HY A survey on psychological behavioural characteristics of children with leukaemia. In: Proceedings of the 1st National Symposium on Psychosocial Oncology for Cancer Patients, 15-17 April 2002, Shanghai: 94-7. (In Chinese
27. Fu XY, Meng F, Li CB, Liang AB, Xie XT, Mei Z. A survey on personality and behavioural problems among children with blood cancer. In: Proceedings of the 1st National Symposium on Psychosocial Oncology for Cancer Patients, 15-17 April 2002, Shanghai: 100-3. (In Chinese
28. Shen NP, Xu LH. An exploratory study on parents stress, feeling of uncertainty and needs of parents who have children with leukaemia. In: Proceedings of the 1st National Symposium on Psychosocial Oncology for Cancer Patients, 15-17 April 2002, Shanghai: 105-9. (In Chinese
29. Brown RT, Kaslow NJ, Madan-Swain A, Koepke KJ, Sexson SB, Hill LJ. Parental psychopathology and children's adjustment to leukemia. Journal of the American Academy of Child and Adolescent Psychiatry 1993; 32: 554-61.
30. Kazak AE, Penati B, Boyer BA, Himelstein B, Brophy P, Waibel MK, et al. A randomized controlled prospective outcome study of a psychological and pharmacological intervention protocol for procedural distress in pediatric leukemia. Journal of Pediatric Psychology 1996; 21: 615-31.
31. Wills BS. The experiences of Hong Kong Chinese parents of children with acute lymphocytic leukemia. Journal of Pediatric Nursing 1999; 14: 231-8.
32. Zhu YM. Psychosocial support for parents of children with cancer. In: Proceedings of the 1st National Symposium on Psychosocial Oncology for Cancer Patients, 15-17 April 2002, Shanghai: 1-4. (In Chinese
33. Weiss R. Loss and recovery. In: Stroebe MS, Stroebe W, Hansson RO, editors. Handbook of bereavement: Theory, research and intervention. Cambridge: Cambridge University Press, 1993: 271-84.
34. Bowlby J. Attachment and loss vol. 1. Attachment. London: Hogarth, 1969.
35. Bowlby J. Attachment and loss vol. 2. Separation: Anxiety and anger. London: Hogarth, 1973.
36. Ho SMY, Chow AYM, Chan CLW, Tsui YKY. The assessment of grief among Hong Kong Chinese: A preliminary report. Death Studies 2002; 26: 91-8.
37. Tsui YKY Other-focused grief. Paper presented at the 8th Hong Kong International Cancer Congress, September 2001, Hong Kong.
38. Tutty LM, Rothery M, Grinnell RM. Qualitative research for social workers: Phrases, steps, & tasks. Boston, MA: Allyn 8c Bacon, 1996.
39. Denzin NK, Lincoln YS. Strategies of qualitative inquiry. London: Sage Publications, 1998.
40. Russell JA, Yik MSM. Emotion among the Chinese. In: Bond MH, editor. The handbook of Chinese psychology. Hong Kong: Oxford University Press, 1996: 166-88.
41. Jackson AC, Tsantefski M, Goodman H, Johnson B, Rosenfeld J. The psychosocial impacts on families of low-incidence, complex conditions in children: The case of craniopharyngioma. Social Work in Health Care 2003; 38: 81-107.
42. Helson R. Comparing longitudinal studies of adult development: Toward a paradigm of tension between stability and change. In: Funder D, Parke R, Tomiinson-Keasey C, Widarman K, editors. Studying lives through time: Personality development. Washington, DC: American Psychological Association, 1993: 93-119.
43. Ronka A, Kinnunen U, Pulkkinen L. The accumulation of problems of social functioning as a long-term process: Women and men compared. International Journal of Behavioral Development 2000; 24: 442-50.
44. Lou VWQ Shen NP, Zhao HJ, Shen GM. Mental health of parents of children with leukemia in China. World Federation for Mental Health Biennial Congress 2003; Melbourne, Australia 23-28, February.
45. Kupst MJ, Schulman JL. Long term coping with pediatric leukemia: A six-year follow-up study. Journal of Pediatric Psychology 1988; 13: 7-22.
46. Kupst MJ, Natta MB, Richardson CC, Schulman JL, Lavigne JV, Das L. Family coping with pediatric leukemia: Ten years after treatment. Journal of Pediatric Psychology 1995; 20: 601-17.