Living with incurable cancer at the end of life - Patients' perceptions on quality of life

Cancer Nursing

Volumn 29, Issue 5, 2006, Pages 391-399

  Johansson, Christina Melin ^a,b   Axelsson, Bertil ^c   Danielson, Ella ^a  

^a UNIVERSITY OF GOTHENBURG   (Sweden)

^b MID SWEDEN UNIVERSITY   (Sweden)

^c ÖSTERSUND HOSPITAL   (Sweden)

Author keywords

Focus group; Palliative care; Qualitative research; Quality of life; Terminally ill

Indexed keywords

ADULT; AGED; ARTICLE; CANCER; CANCER PATIENT; CLINICAL ARTICLE; CONTENT ANALYSIS; CREATIVITY; DAILY LIFE ACTIVITY; EMOTIONAL DISORDER; FAMILY RELATION; FEMALE; HUMAN; INFORMATION PROCESSING; INTERPERSONAL COMMUNICATION; LIFE; MALE; MEMORY; PERCEPTION; PERFORMANCE; PRIORITY JOURNAL; PROBLEM SOLVING; QUALITY OF LIFE; SAMPLING; SOCIAL LIFE;

ACTIVITIES OF DAILY LIVING; AGED; EMOTIONS; FEMALE; FOCUS GROUPS; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PROGNOSIS; QUALITY OF LIFE; SOCIAL SUPPORT; TERMINAL CARE;

EID: 33749241679     PISSN: 0162220X     EISSN: None     Source Type: Journal    
DOI: 10.1097/00002820-200609000-00007     Document Type: Article

References (48)

1. Rustoen T. Livskvalitet - En Utmaning för Sjuksköterskan. [Quality of Life. A Challenge for Nurses.] Oslo: Almqvist and Wiksell; 1993.
2. Glaus A. Quality of life - a measure of the quality of nursing care? Support Care. 1993;1:119-123.
3. Socialstyrelsen. Sjukvården i Sverige1998 (Swe) [Health Care in Sweden 1998]. Available at: www.sos.se/fulltext/9800-99/9800-99d.htm. Accessed November 4, 2002.
4. World Health Organization. National Cancer Control Programmes: Policies and Managerial Guidelines. 2nd ed. Geneva; 2002. Available at: http://www.who.int/cancer/media/en/408.pdf. Accessed March 9, 2005.
5. Socialstyrelsen. Dödsorsaker 2002 (Swe) [Causes of Death 2002]. Available at: http://www.socialstyrelsen.se/NR/rdonlyres/05714583-0572-4EDF- 9E1C-96E5DC0DA947/2721/2004425reviderad.pdf. Accessed March 30, 2005.
6. Lamb GS. Conceptual and methodological issues in nurse case management. Adv Nurs Sci. 1992;15:16-24.
7. Wennman-Larsen A, Tishelman C. Advanced home care for cancer patients at the end of life: a qualitative study of hopes and expectations of family caregivers. Scand J Caring Sci. 2002;16:240-247.
8. King CR, Haberman M, Berry DL, et al. Quality of life and the cancer experience: the state-of-the-knowledge. Oncol Nurs Forum. 1997;24:27-41.
9. Matzo ML, Sherman DW. Palliative care nursing: ensuring competent care at the end of life. Geriatr Nurs. 2001;22:288-292.
10. Annells M, Koch T. 'The real stuff': implications for nursing assessing and measuring a terminally ill person's quality of life. J Clin Nurs. 2001;10:806-812.
11. Osse BHP, Vernooij-Dassen MJFJ, Shade E, Grol RPTM. The problems experienced by patients with cancer and their needs for palliative care. Support Care Cancer. 2005. Available at: http://www.springerlink.com/media/ HA03EAP9XM7TYJBDHN2G/Contributions/X/A/B/M/XABM1U2WJ9R20676_html/fulltext.html. Accessed March 4, 2005.
12. Kaya F, Feuer D. Prostate cancer: palliative care and pain relief. Prostate Cancer Prostatic Dis. 2004;7:311-315.
13. Soothill K, Morris SM, Harman J, Francis B, Thomas C, McIllmurray MB. The significant unmet needs of cancer patients: probing psychosocial concerns. Support Care Cancer. 2001;9:597-605.
14. Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P. The unmet supportive care needs of patients with cancer. Cancer. 2000;88:226-237.
15. Osse BHP, Vernooij-Dassen MJFJ, Schade E, de Vree B, van den Muijsenbergh METC, Grol RPTM. Problems to discuss with cancer patients in palliative care: a comprehensive approach. Patient Educ Couns. 2002;47:195-204.
16. George LK. Research design in end-of-life research: state of science. Gerontologist. 2002;42:86-98.
17. Stewart AL, Teno J, Patrick DL, Lynn J. The concept of quality of life of dying persons in the context of health care. J Pain Symp Manage. 1999;17:93-108.
18. Axelsson B, Sjödén PO. Quality of life of cancer patients and their spouses in palliative home care. Palliat Med. 1998;12:29-39.
19. Calman KC. Quality of life in cancer patients - an hypothesis. J Med Ethics. 1984;10:124-127.
20. Kaasa S, Loge JH. Quality of life in palliative care: principles and practice. Palliat Med. 2003;17:11-20.
21. Cooley M. Quality of life in persons with non-small cell lung cancer: a concept analysis. Cancer Nurs. 1998;21:151-161.
22. Haas BK. A multidisciplinary concept analysis of quality of life. West J Nurs Res. 1999;21:728-742.
23. Zhan L. Quality of life: conceptual and measurement issues. J Adv Nurs. 1992;17:795-800.
24. Meeberg GA. Quality of life: a concept analysis. J Adv Nurs. 1993;18:32-38.
25. Krueger RA, Casey MA. Focus Groups. A Practical Guide for Applied Research. 3rd ed. Thousands Oaks: Sage; 2000.
26. Hudson P. Focus group interviews: a guide for palliative care researcher and clinicians. Int J Palliat Nurs. 2003;9:202-207.
27. Krippendorff K. Content Analysis. An Introduction to its Methodology, 2nd ed. London: Sage; 2004.
28. Blomqvist K, Edberg AK. Living with persistent pain: experiences of older people receiving home care. J Adv Nurs. 2002;40:297-306.
29. Larsson G, Haglund K, Von Essen L. Distress, quality of life and strategies to "keep a good mood" in patients with carcinoid tumours: patient and staff perceptions. Eur J Cancer Care. 2002;12:46-57.
30. Kralik D. The quest for ordinariness: transition experienced by midlife women living with chronic illness. J Adv Nurs. 2002;39:146-154.
31. O'Baugh J, Wilkes LM, Luke S, George A. 'Being positive': perceptions of patients with cancer and their nurses. J Adv Nurs. 2003;44:262-270.
32. Hartrick G. Relational capacity: the foundation for interpersonal nursing practice. J Adv Nurs. 1997;26:523-528.
33. Jarrett NJ, Payne SA. Creating and maintaining 'optimism' in cancer care communication. Int J Nurs Stud. 2000;37:81-90.
34. Fredriksson L. Modes on relating in caring conversation: a research synthesis on presence, touch and listening. J Adv Nurs. 1999;5:1167-1176.
35. Strang P. Cancer pain - a provoker of emotional, social and existential distress. Acta Oncol. 1998;37:641-644.
36. Zimmerman L, Story KT, Gaston-Johansson F, Rowles JR. Psychological variables and cancer pain. Cancer Nurs. 1996;19:44-53.
37. Tierney RM, Horton SM, Hannan TJ, Tierney WM. Relationship between symptom relief, quality of life, and satisfaction with hospice care. Palliat Med. 1998;12:333-344.
38. Rehnsfeldt A, Eriksson K. The progression of suffering implies alleviated suffering. Scand J Caring Sci. 2004;18:264-272.
39. Öhlen J, Bengtsson J, Skott C, Segesten K. Being in a lived retreat - embodied meaning of alleviated suffering. Cancer Nurs. 2002;25:318-325.
40. Jakobsson U, Hallberg IR, Westergren A. Pain management in elderly persons who require assistance with activities of daily living: a comparison of those living at home with those in special accommodations. Eur J Pain. 2004;8:335-344.
41. Lansbury G. Chronic pain management: qualitative study of elderly people's preferred coping strategies and barriers to management. Disabil Rehabil. 2000;22:2-14.
42. Rhiner M, Ferell BR, Ferell BA, Grant MM. A structured intervention program for cancer pain. Cancer Pract. 1993;1:137-143.
43. Thomas-MacLean R. Memories of treatment: the immediacy of breast cancer. Qual Health Res. 2004;14:628-643.
44. Adamson H, Murgo M, Boyle M, Kerr S, Crawford M, Elliott D. Memories of intensive care and experiences of survivors of a critical illness: an interview study. Intensive Crit Care Nurs. 2004;20:257-263.
45. Goldbeck R. Denial in physical illness. J Psychosom Res. 1997;6:575-593.
46. Albaugh JA. Spirituality and life-threatening illness: a phenomenologic study. Oncol Nurs Forum. 2003:4593-4598.
47. Kralik D, Koch T, Price K, Howard N. Chronic illness self-management: taking action to create order. J Clin Nurs. 2004;13:259-267.
48. Nakashima M, Canda ER. Positive dying and resiliency in later life: a qualitative study. J Aging Stud. 2005;19:109-125.