Psychological distress and well-being of latina and non-latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards coresidence status

American Journal of Orthopsychiatry

Volumn 76, Issue 3, 2006, Pages 346-357

  Magaña, Sandra ^a   Smith, Matthew J ^a  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

Author keywords

Autism; Caregiving and well being; Culture; Latina

Indexed keywords

ADULT; ATTITUDE; AUTISM; CAUCASIAN; CONTROLLED STUDY; CULTURAL ANTHROPOLOGY; DEMOGRAPHY; DISTRESS SYNDROME; ETHNOLOGY; FAMILY FUNCTIONING; FEMALE; HISPANIC; HUMAN; JUVENILE; MAJOR CLINICAL STUDY; MOTHER; PSYCHOLOGICAL WELL BEING; QUALITATIVE ANALYSIS; REVIEW; SATISFACTION;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AUTISTIC DISORDER; CAREGIVERS; CHILD BEHAVIOR DISORDERS; COST OF ILLNESS; CROSS-CULTURAL COMPARISON; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; HISPANIC AMERICANS; HUMANS; INTERNAL-EXTERNAL CONTROL; LONGITUDINAL STUDIES; MALE; MASSACHUSETTS; MIDDLE AGED; MOTHER-CHILD RELATIONS; MOTHERS; PERSONAL SATISFACTION; QUALITY OF LIFE; SOCIOECONOMIC FACTORS; STRESS, PSYCHOLOGICAL; WISCONSIN;

EID: 33749006594     PISSN: 00029432     EISSN: None     Source Type: Journal    
DOI: 10.1037/0002-9432.76.3.346     Document Type: Review

References (54)

1. Abbeduto, L., Seltzer, M. M., Shattuck, P. T., Krauss, M. W., Orsmond, G. I., & Murphy, M. (2004). Psychological well-being and coping of mothers of youths with autism, Down Syndrome, or Fragile X Syndrome. American Journal on Mental Retardation, 109, 237-254.
2. Adams, B., Aranda, M., Kemp, B., & Takagi, K. (2002). Ethnic and gender differences in distress among Anglo-American, African-American, Japanese-American and Mexican-American spousal caregivers of persons with dementia. Journal of Clinical Geropsychology, 8, 279-301.
3. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.
4. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed. rev.). Washington, DC: Author.
5. Aranda, M., & Knight, B. (1997). The influence of ethnicity on the caregiver stress and coping process: A sociocultural review and analysis. The Gerontologist, 37, 342-354.
6. Baron, R., & Kenny, D. (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51, 1173-1182.
7. Blacher, J. (2001). The transition to adulthood: Mental retardation, families, and culture. American Journal on Mental Retardation, 106, 173-188.
8. Blacher, J., Shapiro, J., Lopez, S., Diaz, L., & Fusco, J. (1997). Depression in Latina mothers of children with mental retardation: A neglected concern. American Journal on Mental Retardation, 101, 483-496.
9. Bruininks, R. H., Hill, B. K., Weatherman, R. F., & Woodcock, R. W. (1986). Inventory for Client and Agency Planning. Allen, TX: DLM Teaching Resources.
10. Calderón, V., & Tennstedt, S. (1998). Ethnic differences in the expression of caregiver burden: Results of a qualitative study. Journal of Gerontological Social Work, 30, 159-178.
11. Carter, B., & McGoldrick, M. (1989). The changing family life cycle. Needham Heights MA: Allyn and Bacon.
12. Cho, M. J., Moćicki, E. K., Narrow, W. E., Rae, D. S., Locke, B. Z., & Regier, D. A. (1993). Concordance between two measures of depression in the Hispanic Health and Nutrition Exam Survey. Social Psychiatry and Psychiatric Epidemiology, 28, 156-163.
13. Comas-Diaz, L. (1982). Mental health needs of Puerto Rican women in the United States. In R. Zambrana (Ed.), Work, family and health: Latina women in transition (Monograph No. 7). New York: Fordham University, Hispanic Research Center.
14. Donovan, A. (1988). Family stress and ways of coping with adolescents who have handicaps: Maternal perceptions. American Journal on Mental Retardation, 92, 502-509.
15. Dyches, T., Wilder, L., Sudweeks, R., Obiakor, F., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disorders, 34, 211-222.
16. Fernández, C. A., Fernández, E. M. A., & Pesqueira, G. S. (2000). Problemas semánticos en la adaptación del POMS al castellano [Semantic problems in the Spanish adaptation of the POMS]. Psicothema, 12, 47-51.
17. Gray, D. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual & Developmental Disability, 27, 215-222.
18. Greenberg, J. S., Seltzer, M. M., Krauss, M. W., Chou, R., & Hong, J. (2004). The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: The mediating role of optimism. American Journal of Orthopsychiatry, 74, 14-25.
19. Guarnaccia, P. J., Angel, R., & Worobey, J. L. (1989). The factor structure of the CES-D in the Hispanic Health and Nutrition Examination Survey: The influences of ethnicity, gender and language. Social Science & Medicine, 29, 85-94.
20. Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47, 231-237.
21. Heller, T., & Factor, A. (1994). Facilitating future planning and transitions out of the home. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age. Washington DC: American Association on Mental Retardation.
22. Heller, T., Markwardt, R., Rowitz, L., & Farber, B. (1994). Adaptation of Hispanic families to a member with mental retardation. American Journal on Mental Retardation, 99, 289-300.
23. Horton, R., & Shweder, R. A. (2004). Ethnic conservatism, psychological well-being, and the downside of mainstreaming: Generational differences. In O. G. Brim, C. D. Ryff, & Kessler, R. C., (Eds), How Healthy Are We? (pp. 37-63). Chicago: University of Chicago Press.
24. Kaye, J. M., Lawton, M. P., Gitlin, L. N., Kleban, M. H., Windsor, L. A., & Kaye, D. (1988). Older people's performance on the profile of mood states (POMS). Clinical Gerontologist, 7, 35-56.
25. Kling, K. C., Seltzer, M. M., & Ryff, C. D. (1997). Distinctive late-life challenges: Implications for coping and well-being. Psychology and Aging, 12, 288-295.
26. Koegel, R., Schreibman, L., Loos, L., Dirlich-Wilhelm, H., Dunlap, G., Robbings, F., et al. (1992). Consistent stress profiles in mothers of children with autism. Journal of Autism and Developmental Disorders, 22, 205-215.
27. Krauss, M. W., Seltzer, M. M., & Jacobson, H. T. (2005). Adults with autism living at home or in non-family settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research, 49, 111-124.
28. Kurtines, W. M., & Szapocznik, J. (1995). Cultural competence in assessing Hispanic youths and families: Challenges in the assessment of treatment needs and treatment evaluation for Hispanic drug abusing adolescents. In E. Rahdert & D. Czechowicz (Eds.), Adolescent drug abuse: Clinical assessment and therapeutic interventions (NIDA Research 23 Monograph No. 156, NIDA Publication No. 95-3908, pp. 172-189). Rockville, Maryland: National Institute on Drug Abuse.
29. Magaña, S. (1999). Puerto Rican families caring for an adult with mental retardation: The role of familism. American Journal on Mental Retardation, 104, 466-482.
30. Magaña, S., Seltzer, M. M., & Krauss, M. W. (2004). Cultural context of caregiving: Differences in depression between Puerto Rican and non-Latina White mothers of adults with mental retardation. Mental Retardation, 42, 1-11.
31. Magaña, S., Seltzer, M. M., Krauss, M. W., Rubert, M., & Szapocznik, J. (2002). Well-being and family role strains among Cuban American and Puerto Rican mothers of adults with mental retardation. Journal of Human Behavior in the Social Environment, 5, 31-55.
32. Magilvy, J., Congdon, J., Martinez, R., Davis, R., & Averill, J. (2000). Caring for our own: Health care experiences of rural Hispanic elders. Journal of Aging Studies, 14, 171-191.
33. Marin, G., & Marin, B. (1991). Research with Hispanic populations. Newbury Park: Sage.
34. McAdoo, H. P. (Ed.) (1993). Family ethnicity: Strength in diversity. Newbury Park, CA: Sage Publications.
35. McNair, D. M., Lorr, M., & Droppleman, L. F. (1981): EdITS manual: Profile of Mood States. San Diego, CA: Educational and Industrial Testing Service.
36. Milstein, G., Guarnaccia, P., & Midlarsky, E. (1995). Ethnic differences in the interpretation of mental illness: Perspectives of caregivers. Research in Community and Mental Health, 8, 155-178.
37. Montero, D. (1993). Educación de la conducta adaptativa en personas con discapacidades. Adaptación y validación del ICAP. Bilbao: Instituto de Ciencias de la Educación, Universidad de Deusto (Tercera edición en Bilbao: Ediciones Mensajero, 1999).
38. [Evaluation of adaptive behavior of persons with disabilities: Adaptation and evaluation of the ICAP. Bilbao: Institute of science in education, Deusto University (third edition in Balbao: Messenger Edition, 1999)].
39. Radloff, L. (1977). The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385-401.
40. Ramos, B. (2004). Culture, ethnicity, and caregiver stress among Puerto Ricans. The Journal of Applied Gerontology, 23, 469-486.
41. Ryff, C. (1989). In the eye of the beholder: Views of psychological well-being among middle-aged and older adults. Psychology and Aging, 4, 195-210.
42. Sánchez-Ayéndez, M. (1989). Puerto Rican elderly women: The cultural dimension of social support networks. Women and Health, 14, 239-252.
43. Sabogal, F., Marin, G., Otero-Sabogal, R., Marin, B. V., & Perez-Stable, E. J. (1987). Hispanic familism and acculturation: What changes and what doesn't. Hispanic Journal of Behavioral Science, 9, 397-412.
44. Santisteban, D., & Mitrani, V. (2002). The influence of acculturation processes on the family. In K. Chun, P. Organista, & Marín, G. (Eds.), Acculturation: Advances in theory, measurement and applied research. Washington DC: American Psychological Association.
45. Seltzer, M. M., & Krauss, M. W. (1989). Aging parents with adult mentally retarded children: Family risk factors and sources of support. American Journal on Mental Retardation, 94, 303-312.
46. Seltzer, M. M., & Krauss, M. W. (1994). Aging parents with coresident adult children: The impact of lifelong caregiving. In M. M. Seltzer, M. W. Krauss, & M. P. Janicki (Eds.), Life course perspectives on adulthood and old age. Washington DC: American Association on Mental Retardation.
47. Seltzer, M. M., Krauss, M. W., Orsmond, G. I., & Vestal, C. (2000). Families of adolescents and adults with autism: Uncharted territory. International Review of Research in Mental Retardation, 23, 267-294.
48. Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G. I., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders, 33, 565-581.
49. Shurgot, G., & Knight, B. (2004). Preliminary study investigating acculturation, cultural values, and psychological distress in Latino caregivers of dementia patients. Journal of Mental Health and Aging, 10, 183-194.
50. Skinner, D., Rodriquez, P., & Bailey, D. B. (1999). Qualitative analysis of Latino parents' religious interpretations of their child's disability. Journal of Early Intervention, 22, 271-285.
51. Stroup-Benham, C. A., Lawrence, R. H., & Treviño, F. M. (1992). CES-D factor structure among Mexican American and Puerto Rican women from single- and couple-headed households. Hispanic Journal of Behavioral Sciences, 14, 310-326.
52. Vrancic, D., Nanclares, V., Soares, D., Kulesz, A., Mordzinski, C., Plebst, C., et al. (2002). Sensitivity and specificity of the Autism Diagnostic Inventory-telephone screening in Spanish. Journal of Autism and Developmental Disorders, 32, 313-320.
53. Woods, N. F., & Mitchell, E. S. (1997). Pathways to depressed mood for midlife women: Observations from the Seattle midlife women's health survey. Research in Nursing & Health, 20, 119-129.
54. World Health Organization. (1992). International statistical classification of diseases and related health problems (10th ed.). Geneva, Switzerland: Author.