Understanding the information needs of general practitioners managing a rare genetic disorder (osteogenesis imperfecta)

Community Genetics

Volumn 9, Issue 4, 2006, Pages 260-267

  Zack, Philip ^a,b   DeVile, Catherine ^a   Clark, Christine ^a   Surtees, Robert ^a  

^a GREAT ORMOND STREET HOSPITAL   (United Kingdom)

^b GUY S HOSPITAL   (United Kingdom)

Author keywords

General practitioners; Information; Osteogenesis imperfecta; Primary care; Rare genetic disorders

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CHILD; COMPARATIVE STUDY; CONSULTATION; FEMALE; GENERAL PRACTITIONER; GENETIC DISORDER; GEOGRAPHIC DISTRIBUTION; HUMAN; INFORMATION RETRIEVAL; INFORMATION SYSTEM; INTERVIEW; KNOWLEDGE; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; OPEN-ENDED QUESTIONNAIRE; OSTEOGENESIS IMPERFECTA; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; RARE DISEASE; RECOGNITION; SEMI STRUCTURED INTERVIEW; STRUCTURED QUESTIONNAIRE; TERTIARY HEALTH CARE; UNITED KINGDOM;

ADOLESCENT; ADULT; AGED; CHILD; CHILD, PRESCHOOL; EDUCATION, MEDICAL, CONTINUING; FEMALE; GENETIC DISEASES, INBORN; GENETICS, MEDICAL; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INFORMATION SERVICES; INTERVIEWS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; NEEDS ASSESSMENT; OSTEOGENESIS IMPERFECTA; PHYSICIANS, FAMILY; QUESTIONNAIRES;

EID: 33748997362     PISSN: 14222795     EISSN: None     Source Type: Journal    
DOI: 10.1159/000094475     Document Type: Article

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