Informal care in Sweden: A typology of care and caregivers

International Journal of Social Welfare

Volumn 15, Issue 4, 2006, Pages 332-343

  Jegermalm, Magnus ^a,b  

^a STOCKHOLM UNIVERSITY   (Sweden)

^b Ersta Skondal University College   (Sweden)

Author keywords

Informal care; Support services; Typology

Indexed keywords

EID: 33748772251     PISSN: 13696866     EISSN: 14682397     Source Type: Journal    
DOI: 10.1111/j.1468-2397.2006.00400.x     Document Type: Article

References (66)

1. Allen I, Perkins E, eds (1995). The Future of Family Care for Older People. London, HMSO.
2. Anttonen A (1990). The Feminization of the Scandinavian Welfare State. In: Simonen L, ed. Finnish Debates on Women's Studies. University of Tampere, Research Institute for Social Science.
3. Anttonen A, Baldock J, SipiläJ, eds (2003). The Young, the Old and the State: Social Care Systems in Five Industrial Nations. Cheltenham, Elgar.
4. Arber S, Ginn J (1990). The Meaning of Informal Care: Gender and the Contribution of Elderly People. Ageing and Society 10: 429-454.
5. Arno PS, Levine C, Memmott MM (1999). The Economic Value of Informal Caregiving. Health Affairs 18: 182-188.
6. Atkin K, Rollings J (1992). Informal care in Asian and Afro-Caribbean communities: A literature review. British Journal of Social Work 22: 405-418.
7. Atkin K, Rollings J (1993). Community Care in Multi-Racial Britain: A Critical Review of the Literature. London, HMSO.
8. Baldock J (2003). Social Care in the United Kingdom: A Pattern of Discretionary Social Administration. In: Anttonen A, Baldock J, SipiläJ, eds. The Young, the Old and the State: Social Care Systems in Five Industrial Nations. Cheltenham, Elgar.
9. Baldock J, Evers A (1992). Innovations and Care of the Elderly: The Cutting-edge of Change for Social Welfare Systems. Examples from Sweden, the Netherlands and the United Kingdom. Ageing and Society 12: 289-312.
10. Bedini LA, Phoenix TL (1999). Recreation Programs for Caregivers of Older Adults: A Review and Analysis of Literature from 1990 to 1998. Activities, Adaptation & Aging 24 (2): 17-34.
11. Bengtson V, Rosenthal C, Burton L (1996). Paradoxes of Families and Aging. In: Binstock RH, George LK, eds. Handbook of Aging and the Social Sciences. San Diego, London, Academic Press, Inc.
12. Binstock RH, George LK, eds (1996). Handbook of Aging and the Social Sciences. San Diego, London, Academic Press, Inc.
13. Busch Zetterberg K (1996). Det civila samhället i socialstaten [The civil society in the welfare state]. Socialstatsprojektet 1996:2. Stockholm, City University Press.
14. Drewett A, Olsen R, Parker G (1994). Community Care and Informal Carers. Leicester, Nuffield Community Care Studies Unit, University of Leicester.
15. Esping-Andersen G (1990). The Three Worlds of Welfare Capitalism. Cambridge, Polity Press.
16. Esping-Andersen G (1996). Welfare States in Transition. London, Sage.
17. Esping-Andersen G (1999). Social Foundations of Postindustrial Economies. Oxford, Oxford University Press.
18. Evers A (1995). The Future of Elderly Care in Europe: Limits and Aspirations. In: Scharf F, Wenger C, eds. International Perspectives on Community Care for Older People. Aldershot, Avebury.
19. Finch J (1993). The Concept of Caring: Feminist and Other Perspectives. In: Twigg J, ed. Informal Care in Europe. York, The Social Policy Research Unit, The University of York.
20. Finch J (1995). Responsibilities, obligations and commitments. In: Allen I, Perkins E, eds. The Future of Family Care for Older People. London, HMSO.
21. Finch J, Mason J (1990). Filial Obligations and Kin Support for Elderly People. Ageing and Society 10: 151-175.
22. Finch J, Mason J (1993). Negotiating Family Responsibilities. London, Routledge.
23. Forssell E (2004). Skyddandets förnuft. En studie om anhöriga till hjälpbehövande äldre som invandrat sent i livet [The logic of protection. A study of informal caregiving to older family members in immigrant families]. Stockholm University, Department of Social Work.
24. Greene VL, Coleman PD (1995). Direct Services for Family Caregivers: Next Steps for Public Policy. In: Kane RA, Penrod JD, eds. Family Caregiving in an Ageing Society. Policy Perspectives. Family Caregiver Applications Series Volume 5. London, Sage Publications.
25. Greenlee J, Scharlach A (2001). Caregivers'Characteristics and Needs. In: Scharlach A, et al., eds. Family Caregivers in California: Needs, Interventions and Model Programs. San Francisco, University of California at Berkeley, Center for the Advanced Study of Aging Services, School of Social Welfare.
26. Horowitz W (1985). Family caregiving to the frail elderly. Annual Review of Gerontology and Geriatrics 5: 194-245.
27. Jacobs T (1993). Social Care and the Role of Women. In: Twigg J, ed. Informal Care in Europe. York, The Social Policy Research Unit, The University of York.
28. Jegermalm M (2003). Support for Carers of Older People: The Roles of the Public and Voluntary Sectors in Sweden. Social Policy and Administration 37: 756-771.
29. Jegermalm M (2004). Informal Care and Support for Carers in Sweden: Patterns of Service Receipt Among Informal Caregivers and Care Recipients. European Journal of Social Work 7: 7-24.
30. Jeppsson Grassman E (2001). Medmänniska och anhörig - en studie av informella hjälpinsatser [Fellow-being and relative - a study of informal care]. The Sköndal Institute, Occasional Papers 17. Stockholm, Ersta Sköndal University College.
31. Jeppsson Grassman E (2003). Anhöriginsatser och medborgarengagemang [Informal care and civic participation]. In: Jeppson Grassman E, ed. Anhörigskapets uttrycksformer [The nature of informal care]. Lund, Studentlitteratur.
32. Jeppsson Grassman E, Svedberg L (1999). Medborgarskapets gestaltningar -insatser i och utanför föreningslivet [Formation of citizenship -activities inside and outside associations]. In: AmnåE, ed. SOU 1999:84. Civilsamhället [Government Report 1999:84. The civil society]. The Sköndal Institute, Off-print series 8. Stockholm, Ersta Sköndal University College.
33. Johansson L (1991). Caring for the Next of Kin. Uppsala, Uppsala University.
34. Johansson L (2001). Anhörigstöd i teori och praktik [Support for carers in theory and practice]. Stockholm, Stiftelsen Stockholms läns Äldrecentrum.
35. Katbamna S, Bhakta P, Parker G, Ahmad W (1997). The Needs of Asian Carers. A Selective Literature Review. Leicester, University of Leicester, Nuffield Community Care Studies Unit.
36. Kautto M, HeikkiläM, Hvinden B, Marklund S, Ploug N (1999). The Nordic Welfare States in the 1990s. In: Kautto M, et al., eds. Nordic Social Policy. Changing Welfare States. London, Routledge.
37. Kramer BJ, Lambert JD (1999). Caregiving as a Life Course Transition Among Older Husbands: A Prospective Study. The Gerontologist 39: 658-667.
38. Leira A (1993). Concepts of Care: Loving, Thinking and Doing. In: Twigg J, ed. Informal Care in Europe. York, The Social Policy Research Unit, The University of York.
39. Minkler M, Chehimi BA (2003). A Profile of California Grandparents Raising Grandchildren. San Francisco, University of California at Berkeley, Center for the Advanced Study of Aging Services, School of Social Welfare.
40. National Alliance for Caregiving and the American Association of Retired Persons (1997). Family Caregiving in the U.S. Findings from a National Survey. Final Report. Washington, DC, American Association of Retired Persons.
41. Nolan M, Davies S, Grant G, eds (2001). Working with Older People and their Families. Key Issues in Policy and Practice. Buckingham, Open University Press.
42. Nolan M, Grant G, Keady J (1996). Understanding Family Care. Buckingham, Open University Press.
43. Parker G (1992). Counting Care: Numbers and Types of Informal Carers. In: Twigg J, ed. Carers. Research & Practice. London, HMSO.
44. Parker G (1998). Trends in Caring 1985-1995. In: Rowlands O, ed. Informal Carers. An Independent Study Carried Out by the Office for National Statistics on Behalf of the Department of Health as Part of the 1995 General Household Survey. London, The Stationery Office.
45. Parker G, Lawton D (1990). Further analysis of the general household survey data on informal care. Report 1: A Typology of Caring. York, University of York, Social Policy Research Unit.
46. Parker G, Lawton D (1994). Different Types of Care, Different Types of Carer: Evidence from the General Household Survey. London, HMSO.
47. Philp I, ed. (2001). Family Care of Older People in Europe. Amsterdam, IOS Press.
48. Rowlands O (1998). Informal Carers: An Independent Study Carried Out by the Office of Health as Part of the 1995 General Household Survey. London, The Stationery Office.
49. Salvage AV (1995). Who Will Care. Future Prospects for Family Care in the European Union. Luxembourg, Office for Official Publications of the European Communities.
50. Scharlach AE (1999). Caregiving in the 21st Century. Paper prepared for 'The Aging of California's Baby Boomers'a Joint Legislative Hearing before the California Senate Subcommittee on Aging and Long-Term Care. University of California at Berkeley, Center for the Advanced Study of Aging Services, School of Social Welfare.
51. Scharlach A, Giunta N (2003). Evaluating Caregiver Programs. San Francisco, University of California at Berkeley, Center for the Advanced Study of Aging Services, School of Social Welfare.
52. Scharlach A, Sirotnik B, Bockman S, Neiman M, Ruiz C, Dal Santo T (2003). A Profile of Family Caregivers: Results of the California Statewide Survey of Caregivers. San Francisco, University of California at Berkeley, Center for the Advanced Study of Aging Services, School of Social Welfare.
53. Silverstein M, Parrott TM (2001). Attitudes Toward Government Policies That Assist Informal Caregivers. Research on Aging 23: 349-374.
54. SipiläJ, ed. (1997). Social Care Services. The Key to the Scandinavian Welfare Model. Avery, Aldershot.
55. Smith GC, Tobin SS, Robertson-Tchabo AA, Power P, eds. (1995). Strengthening Ageing Families. Diversity in Practice and Policy. Thousands Oaks CA, Sage Publications.
56. Sundström G, Johansson L (2004). Framtidens anhörigomsorg. Kommer de anhöriga vilja, kunna, orka ställa upp för de äldre i framtiden? [The future of informal care. Will and can informal carers give care to older people in the future?]. Stockholm, National Board of Health and Welfare.
57. Szebehely M (1998). Hjälp i hemmet i nedskärningstid -hemtjänstens och anhörigas insatser för gamla kvinnor och män [Home help in times of cut-backs -formal and informal help for old women and men]. In: Sandquist A-M, ed. Åt var och en efter behov [To everyone according to need]. Stockholm, Kommentus förlag.
58. Szebehely M (1999). Omsorgsarbetets olika former. Nya klasskillnader och gamla könsmönster i äldreomsorgen [Changing forms of care work. New class distinctions and old gender patterns in care for the elderly]. Sociologisk forskning 36: 7-28.
59. Tjadens F, Pijl M (2000). The Support of Family Carers and their Organizations in Seven Western-European Countries. Utrecht, NIZW.
60. Trydegård G-B (2000). Tradition, Change and Variation. Past and Present Trends in Public Old-Age Care. Stockholm University, Department of Social Work.
61. Twigg J, Atkin K (1994). Carers Perceived. Policy and Practice in Informal Care. Buckingham, Open University Press.
62. Ungerson C (1987). Policy is Personal: Sex, Gender and Informal Care. London, Tavistock.
63. Walker AJ, Pratt CC, Eddy L (1995). Informal Caregiving to Ageing Family Members. A Critical Review. Family Relations 44: 402-411.
64. Wenger GC, Grant G, Nolan M (1996). Elderly People as Providers and Recipients of Care. In: Minichiello N, Chappell A, Walker A, Kendig H, eds. Sociology of Ageing. Melbourne, International Sociological Association.
65. Whittier S, Coon D, Aaker J (2001). Caregiver Support Interventions. In: Scharlach A, et al., eds. Family Caregivers in California: Needs, Interventions and Model Programs. San Francisco, University of California at Berkeley, Center for the Advanced Study of Aging Services, School of Social Welfare.
66. With Respect to Old Age: Long term Care -Rights and Responsibilities (1999). Research Volume 3. London, The Stationery Office.