Providing end-of-life palliative care for the developmentally disabled and their families

Journal of Hospice and Palliative Nursing

Volumn 8, Issue 5, 2006, Pages 270-275

  Goldsmith, Barbara ^a   Hendrix, Cristina C ^b   Gentry, Jennifer ^b  

^a WAKE FOREST BAPTIST HEALTH   (United States)

^b DUKE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 33748769524     PISSN: 15222179     EISSN: 15390705     Source Type: Journal    
DOI: 10.1097/00129191-200609000-00012     Document Type: Article

References (10)

1. Last Passages. Sharing information and promising practices to enhance end of-life care for persons with developmental disabilities. LP Brochure; 2004.
2. Lohiya G, Tan-Figueroa L, Crinella FM. EOL care for a man with developmental disabilities. J Am Board Fam Pract. 2003; 16(1): 58-62.
3. Patient Self-Determination Act. Sect 4206, 4751, 104, Stat 1388, 1388-115, 1388-204; 42 USC 1395cc(f), Medicare, 1396a(w) Medicaid. Omnibus Budget Reconciliation Act of 1990: HR 5835, Public Law 101-508, 101st Congress. Baltimore, Md: Department of Health and Human Services, Social Security Administration, Office of Legislation and Congressional Affairs; 1993.
4. American Association for the Mentally Retarded. Position statement on caring at the end of life. June 2005. Available at: http://www.aamr.org. Accessed September 13, 2005.
5. Stein GL. New Jersey project to improve EOL care for people with developmental disabilities. February 22, 2005. Available at: http://www.uic.edu/orgs/rrtcamr/New_Jersey_End_of_Life_Care.doc. Accessed September 13, 2005.
6. Meier D. The case for hospital-based palliative care. Center to Advance Palliative Care "Brochure; 2002.
7. Weissman DE. Decision making at a time of crisis near the end of life. JAMA. 2004;292(14):1738-1744.
8. Nelson LJ. Respect for the developmentally disabled and forgoing life-sustaining treatment. Mental Retard Dev Disabil. 2003;9:3-9.
9. Bullock M. The grief-relief process: coping with the life and death of physically and mentally disabled children. Orthop Clin North Am. 1981;12(1):193-200.
10. Genzlinger N. Planning: lifelong concerns for a special child. New York Times. March 12, 2002.