Life experiences with systemic lupus erythematosus as reported in outpatients' perspective: A clinical-qualitative study in Brazil;Vivencias con lupus eritematoso sistémico como relatadas en la perspectiva de pacientes ambulatoriales: Un estudio clínico-cualitativo en Brasil

Revista Latino-Americana de Enfermagem

Volumn 14, Issue 4, 2006, Pages 475-482

  Mattje, Gilberto Dari ^a,b   Turato, Egberto Ribeiro ^b  

^a UNIVERSIDADE ANHANGUERA UNIDERP   (Brazil)

^b UNIVERSITY OF CAMPINAS   (Brazil)

Author keywords

Adaptation, psychological; Chronic disease; Interview, psychological; Lupus; Psychosomatic medicine; Qualitative research; Self concept; Skin and connective tissue diseases

Indexed keywords

EID: 33748672523     PISSN: 01041169     EISSN: None     Source Type: Journal    
DOI: 10.1590/S0104-11692006000400002     Document Type: Article

References (17)

1. World Health Organization [homepage on the Internet]. International Statistical Classification of Diseases and Related Health Problems, 10th Revision. [updated 2003 03 June; cited 2005 June 28]. Available from: http://www3.who.int/icd/vol1htm2003/fr-icd.htm.
2. American College of Rheumatology [homepage on the Internet]. Atlanta: Systemic Lupus Erythematosus. [updated May 2004; cited 2005 June 28]. Available from: http://www.rheumatology.org/public/factsheets/sle_new.asp?aud=pat.
3. Sociedade Brasileira de Reumatologia [Homepage na Internet]. São Paulo: A Sociedade. Outras Doenças - Lúpus Eritematoso Sistêmico [Acesso em 28 junho 2005]. Disponível em: http://www.reumatologia.com.br/doe6.htm.
4. Omdal R, Waterloo K, Koldingsnes W, Husby G, Mellgren SI. Fatigue in patients with systemic lupus erythematosus: the psychosocial aspects. J Rheumatol. 2003 February; 30(2):283-7.
5. Neri F, Chimini L, Filippini E, Motta M, Faden D, Tincani A. Pregnancy in patients with rheumatic diseases: psychological implication of a chronic disease and neuropsychological evaluation of the children. Lupus. 2004; 13(9):666-8.
6. Yen JC, Abrahamowicz M, Dobkin PL, Clarke AE, Battista RN, Fortin PR. Determinants of discordance between patients and physicians in their assessment of lupus disease activity. J Rheumatol. 2003 September; 30(9):1967-76.
7. Giffords ED. Understanding and managing systemic lupus erythematosus (SLE). Soc Work Health Care. 2003; 37(4):57-72.
8. Otto R, Mackay IR. Psycho-social and emotional disturbance in systemic lupus erythematosus. Med J Aust. 1967 September; 2(11):488-93.
9. Mello J Filho. Concepção Psicossomática: Visão Atual. 9a ed. São Paulo (SP): Casa do Psicólogo; 2002.
10. Alexander F. Psychosomatic Medicine: Its Principles and Applications. Reissue edition. New York: W W Norton; 1987.
11. Turato ER. Tratado da metodologia da pesquisa clínico-qualitativa: construção teórico-epistemológica, discussão comparada e aplicação nas áreas da saúde e humanas. 2a ed. Petrópolis (RJ): Vozes; 2003.
12. Kozora E, Ellison MC, Waxmonsky JA, Wamboldt FS, Patterson TL. Major life stress, coping styles, and social support in relation to psychological distress in patients with systemic lupus erythematosus. Lupus. 2005; 14(5):363-72.
13. Ward MM, Marx AS, Barry NN. Psychological distress and changes in the activity of systemic lupus erythematosus. Rheumatology. 2002 February; 41(2):184-8.
14. Santoantonio J, Yazigi L, Sato E. Adolescentes com Lúpus Eritematoso Sistêmico: um estudo por meio do método de Rorschach. Psicologia: Teoria e Pesquisa. 2004 Agosto, 20(2):145-51.
15. Khanna S, Pal H, Pandey RM, Handa R. The relationship between disease activity and quality of life in systemic lupus erythematosus. Rheumatology. 2004 December; 43(12):1536-40.
16. Turato ER. Qualitative and quantitative methods in health: definitions, differences and research subjects. Rev Saude Publica. 2005 June; 39(3):507-14.
17. Lupus Foundation of Minnesota [homepage on the Internet]. Bloomington: The Foundation. Education: Self Image and the Lupus Patient [cited 2005 June 28]. Available from: http://www.lupusmn.org/Education/Articles/ SelfImageandtheLupusPatient.htm.