Involving users in service planning: A focus group approach

European Journal of Oncology Nursing

Volumn 10, Issue 4, 2006, Pages 283-293

  Kelly, Lorraine ^a   Caldwell, Kay ^b   Henshaw, Lynne ^b  

^a ROYAL FREE LONDON NHS FOUNDATION TRUST   (United Kingdom)

^b MIDDLESEX UNIVERSITY   (United Kingdom)

Author keywords

Breast cancer; Focus group; Follow up service; Participatory research; User involvement

Indexed keywords

ADULT; AFTERCARE; ARTICLE; BREAST TUMOR; FEMALE; GENERAL HOSPITAL; HEALTH CARE PLANNING; HEALTH CARE POLICY; HUMAN; INFORMATION PROCESSING; METHODOLOGY; MIDDLE AGED; NATIONAL HEALTH SERVICE; NEEDS ASSESSMENT; NONBIOLOGICAL MODEL; NURSING METHODOLOGY RESEARCH; ORGANIZATION; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PATIENT EDUCATION; PATIENT PARTICIPATION; PSYCHOLOGICAL ASPECT; PUBLIC HOSPITAL; QUALITATIVE RESEARCH; QUESTIONNAIRE; UNITED KINGDOM;

ADULT; AFTERCARE; BREAST NEOPLASMS; CONTINUITY OF PATIENT CARE; DECISION MAKING, ORGANIZATIONAL; FEMALE; FOCUS GROUPS; HEALTH CARE REFORM; HEALTH PLANNING; HEALTH POLICY; HOSPITALS, DISTRICT; HOSPITALS, GENERAL; HUMANS; LONDON; MIDDLE AGED; MODELS, ORGANIZATIONAL; NEEDS ASSESSMENT; NURSING METHODOLOGY RESEARCH; PATIENT EDUCATION; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; QUALITATIVE RESEARCH; QUESTIONNAIRES; RESEARCH DESIGN; STATE MEDICINE;

EID: 33748578362     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2005.12.008     Document Type: Article

References (62)

1. Adewuyi-Dalton R., Ziebland S., Grunfield E., and Hall A. Patients' views of routine hospital follow-up: a qualitative study of women with breast cancer in remission. Psycho-Oncology 7 5 (1998) 436-439
2. Andrews J., Manthorpe J., and Watson R. Involving older people in intermediate care. Journal of Advanced Nursing 46 (2004) 303-310
3. Arman M., Rehnsfeldt A., Lindholm L., and Harmin E. The face of suffering among women with breast cancer-being in a field of forces. Cancer Nursing 25 2 (2002) 96-103
4. Arnstein S. A ladder of citizen participation. Journal of the American Institute of Planners 35 4 (1969) 216-224
5. Barnes M., and Bennett G. Frail bodies, courageous voices: older people influencing community care. Health and Social Care in the Community 6 2 (1998) 102-111
6. Barton M., Harris R., and Fletcher S.W. Does this patient have breast cancer? The screening clinical breast examination: should it be done? How?. Journal of the American Medical Association 282 13 (1999) 1270-1280
7. Beauchamp T.L., and Childress J. Principles of Biomedical Ethics. fifth ed (2001), Oxford University Press, New York
8. Beresford P., and Croft S. Citizen Involvement. A Practical Guide for Change (1993), Macmillan Press, London
9. Brada M. Is there a need to follow-up cancer patients?. European Journal of Cancer 31A 5 (1995) 655-657
10. Brown I. Involving the public in general practice in an urban district: levels and type of activity and perceptions of obstacles. Health and Social Care in the Community 8 4 (2000) 251-259
11. Bulmer C. Clinical decisions; defining meaning through focus groups. Nursing Standard 12 20 (1998) 34-36
12. Burnard P. A method of analysing interview transcripts in qualitative research. Nurse Education Today 11 6 (1991) 461-466
13. Burnet K., Chapman D., Wishart G., and Purushotham A. Nurse specialists in breast care: a developing role. Nursing Standard 18 45 (2004) 38-42
14. Carroll S. Role of breast role of the breast clinical nurse specialist in facilitating decision-making for treatment choice: a practice profile. European Journal of Oncology Nursing 2 1 (1998) 34-42
15. Clarke A. Focus Group interviews in health care research. Professional Nurse 14 6 (1999) 395-397
16. Cormie J. The Fife User Panels Project: empowering older people. In: Barnes M., and Warren L. (Eds). Paths to Empowerment (1999), The Policy Press, Bristol
17. Department of Health. Working for Patients (1989), HMSO, London
18. Department of Health. The Patients Charter (1991), HMSO, London
19. Department of Health. A Policy Framework for Commissioning Cancer Services; a Report of the Expert Advisory Group on Cancer to the Chief Medical Officers of England and Wales (Calman-Hine Report) (1995), DOH, London
20. Department of Health. The New NHS: Modern, Dependable (1997), HMSO, London
21. Department of Health. The Cancer Plan (2000), The Stationary Office, London
22. Department of Health. The NHS Plan. A plan for investment. A plan for reform (2000), The Stationary Office, London
23. Department of Health. Shifting the Balance of Power within the NHS (2001), The Stationary Office, London
24. Department of Health. Involving Patients and Public in Healthcare: A Discussion Document (2001), The Stationary Office, London
25. Dewar J. Follow-up in breast cancer: a suitable case for reappraisal. British Medical Journal 310 (1995) 685-686
26. Dinsdale P. Nurses in waiting. Nursing Standard 13 51 (1999) 12
27. Dirksen S.R. Predicting well-being among breast cancer survivors. Journal of Advanced Nursing 32 4 (2000) 937-943
28. Field P.A., and Morse J.M. Nursing Research: The Application of Qualitative Approaches (1990), Chapman & Hall, London
29. Gilbert H. Redressing the Balance: A Brief Survey of the Literature on Patient Empowerment (1995), NHS Executive, London
30. GIVIO Investigators. Impact of follow-up testing on survival and health related quality of life in breast cancer patients. Journal of American Medical Association 271 (1994) 1587-1592
31. Goss S., and Miller C. From Margin to Mainstream. Developing User-and Carer Centred Community Care (1995), Joseph Rowentree Foundation, York
32. Gott M., Stevens T., Small N., and Hjelmeland A. User Involvement in Cancer Care. Exclusion and Empowerment. The Policy Press, Bristol (2000)
33. Grunfield E., Fitzpatrick R., Mant D., Yudkin P., Adeewuyi-Dalton R., Stewart J., Cole D., and Vessey M. Comparison of breast cancer patient satisfaction with follow-up in primary care versus specialist care: results from a randomised controlled trial. British Journal of General Practice 49 (1999) 705-710
34. Hirschman A. Exit, Voice and Loyalty: Response to Decline in Firms, Organisations and States (1970), Harvard University Press, Cambridge, MA
35. Jensen K., Bäck-Petterson S., and Segesten K. The meaning of "not giving in". Lived experiences among women with breast cancer. Cancer Nursing 23 1 (2000) 6-11
36. Kingry M.J., Tiedje L.B., and Friedman L.L. Focus Group; a research technique for nursing. Nursing Research 39 2 (1990) 124-125
37. Kitzinger J. Qualitative research: introducing focus groups. British Medical Journal 311 7000 (1995) 299-302
38. Krueger R.A. Focus Groups: a Practical Guide for Applied Research. second ed (1994), Sage, London
39. Leydon G., Boulton M., Moynihan C., Jones A., Mossman J., Boudioni M., and Mc Pherson K. Faith, hope, and charity: an in-depth interview study of cancer patients' information needs and information-seeking behaviour. Western Journal of Medicine 173 1 (2000) 26-32
40. MacBride S., and Whyte F. Attendance at cancer follow-up clinic: does it increase anxiety or provide reassurance for men successfully treated for testicular cancer. Cancer Nursing 22 6 (1999) 448-455
41. Maguire P., Brook M., and Tait A. The effect of counselling on physical disability and recovery after breast cancer. Clinical Oncology 9 (1983) 319-324
42. Mansell I., Bennett G., Northway R., Mead D., and Moseley L. The learning curve: the advantages and disadvantages in the use of focus groups as a method of data collection. Nurse Researcher 11 4 (2004) 79-88
43. McDaniel R., and Bach C. Focus group research: the question of scientific rigor. Rehabilitation Nursing Research 5 2 (1996) 53-59
44. Millar B., Maggs C., Warner V., and Whale Z. Creating consensus about nursing outcomes. 1. An exploration of focus group methodology. Journal of Clinical Nursing 5 3 (1996) 193-197
45. Molassiotis A., Chan C.W., Yam B.M., and Chan S.J. Quality of life in Chinese women with gynaecological cancers. Supportive Care in Cancer 8 5 (2000) 414-422
46. Moore. Supportive models. Nursing Standard 11 43 (1997) 26-27
47. Morgan D. Successful Focus Groups (1993), Sage, London
48. National Health Service Executive. A First Class Service. Quality in the New NHS (1998), NHSE, London
49. National Institute for Clinical Excellence. Supportive and Palliative Care for People with Cancer (2004), NICE, London. www.nice.org.uk
50. Parahoo K. Nursing Research; Principles, Process and Issues (1997), Macmillan, London
51. Pennery E., and Mallet J. A preliminary study of patients perceptions of routine follow-up after treatment for breast cancer. European Journal of Oncology Nursing 4 3 (2000) 138-147
52. Peto R., Boreham J., Clarke M., Davies C., and Beral V. UK and USA breast cancer deaths down 25% in year 2000 at ages 20-69 years. Lancet 355 9217 (2000) 1822
53. Reed J., Parton V., and Roskell R. Focus groups: issues of analysis and interpretation. Journal of Advanced Nursing 26 4 (1997) 765-771
54. Robson C. Real world enquiry. In: Robson C. (Ed). Real World Research: resource for social scientists and practitioners-researchers (1993), Blackwell, Oxford
55. Rosselli Del Turco M., Palli D., Caridd A., et al. Intensive diagnostic follow up after treatment for primary breast cancer. Journal of American Medical Association 271 (1994) 1587-1592
56. Sandelowski M. Telling stories: narrative approaches in qualitative research. (Use of storytelling to provide order and meaning and its use in understanding research). Journal of Nursing Scholarship 23 3 (1991) 161-166
57. Sloan G. Focus Group interviews: defining clinical supervision. Nursing Standard 12 42 (1998) 40-43
58. Small N., and Rhodes P. Too Ill to Talk? User Involvement and Palliative Care (2000), Routeledge, London
59. Smith T.J., Davidson N.E., Schapira D.V., Grunfeld E., Muss H.B., Vogel III V.G., Mark R., and Somerfields M.R. American Sociology and clinical oncology 1998 Update of recommended breast cancer surveillance guidelines. Journal of Clinical Oncology 17 3 (1999) 1080-1082
60. Spurgeon D. Breast self examination may do more harm than good. British Medical Journal 323 7303 (2001) 11
61. Stewart D.W., and Shamdasani P.N. Focus Groups: Theory and Practice (1990), Sage, Newbury Park
62. Taylor G., Brown K., Caldwell K., Ghazi F., Henshaw L., and Vernon L. User Involvement in Primary Care; a case study examining the work of one Patient Participation Group attached to a primary care practice in North London. Research Policy and Planning 22 1 (2004) 21-30