Meaning construction in palliative care: The use of narrative, ritual, and the expressive arts

American Journal of Hospice and Palliative Medicine

Volumn 23, Issue 4, 2006, Pages 309-316

  Romanoff, Bronna D ^a   Thompson, Barbara E ^a  

^a Russell Sage College   (United States)

Author keywords

Expressive arts; Meaning construction; Narrative; Palliative care; Ritual

Indexed keywords

ARTICLE; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; CULTURAL FACTOR; FAMILY RELATION; HUMAN; HUMAN RELATION; METHODOLOGY; PALLIATIVE THERAPY; SELF CONCEPT; SYMBOLISM; VERBAL COMMUNICATION;

ATTITUDE TO DEATH; ATTITUDE TO HEALTH; CEREMONIAL BEHAVIOR; CULTURAL CHARACTERISTICS; FAMILY RELATIONS; HUMANS; INTERPERSONAL RELATIONS; NARRATION; PALLIATIVE CARE; SELF CONCEPT;

EID: 33748507587     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909106290246     Document Type: Article

References (77)

1. Russell R, Wandrei M. Narrative and the process of psychotherapy. In: Rosen H, Kuchlwein K, eds. Constructing Realities. San Francisco, Calif: Jossey-Bass; 1996:307-335.
2. Sarbin TR. The narrative as a root metaphor for psychology. In: Sarbin TR, ed. Narrative Psychology: The Storied Nature of Human Conduct. New York, NY: Praeger; 1986:3-21.
3. Neimeyer RA. The language of loss: grief therapy as a process of meaning reconstruction. In: Neimeyer RA, ed. Meaning Reconstruction and the Experience of Loss. Washington, DC: American Psychological Association; 2001:261-292.
4. Pronk K. Role of the doctor in relieving spiritual distress at the end of life. Am J Hosp Palliat Med. 2005;22:419-425.
5. Farber EW, Mirssalimi H, Williams K, McDaniel S. Meaning of illness and psychological adjustment to HIV/AIDS. Psychosomatics. 2005;44:485-491.
6. Park C, Folkman S, Bostrom A. Appraisals of controllability and coping in caregivers and HIV positive men: testing the goodness-of-fit hypothesis. J Consult Clin Psychol. 2001;69:481-488.
7. Sarna L, Brown J, Cooley ME, et al. Quality of life and meaning of illness of women with lung cancer. Oncol Nurs Forum. 2005;32(1):E9-E19.
8. Lin HR, Bauer WS. Psycho-spiritual well-being in patients with advanced cancer: an integrative review of the literature. J Adv Nurs. 2003;44:69-80.
9. Taylor SE, Kemeny M, Bower J, Grunewald T, Reed G. Psychological resources, positive illusions, and health. Am Psychol. 2000;55:99-109.
10. Davis CG, Wortman CB, Lehman DR, Silver RC. Searching for meaning in loss: are clinical assumptions correct? Death Stud. 2000;24:497-539.
11. Fife BL. The role of constructed meaning in adaptation to the onset of life threatening illness. Soc Sci Med. 2005;61:2132-2143.
12. Milo EM. The death of a child with a developmental disability. In: Neimeyer RA, ed. Meaning Reconstruction and the Experience of Loss. Washington, DC: American Psychological Association; 2001:113-136.
13. Davis CG. The tormented and the transformed: understanding responses to loss and trauma. In: Neimeyer RA, ed. Meaning Reconstruction and the Experience of Loss. Washington, DC: American Psychological Association; 2001:137-156.
14. Romanoff BD. When a child dies: special considerations for providing mental health counseling for bereaved parents. J Ment Health Couns. 1993;15:384-393.
15. Jonsson H, Josephsson S. Occupation and meaning. In: Christiansen CH, Baum CM, eds. Occupational Therapy: Performance, Participation, and Well-being. Thorofare, NJ: Slack; 2005:117-132.
16. Fife B. The conceptualization of meaning in illness. Soc Sci Med. 1994;38:309-316.
17. Park CL, Folkman S. Meaning in the context of stress and coping. Rev Gen Psychol. 1997;1:115-144.
18. Bonanno G, Kaltman S. Toward an integrative perspective on bereavement. Psychol Bull. 1999;127:760-776.
19. Collie K, Long B. Considering "meaning" in the context of breast cancer. J Health Psychol. 2005;10:843-853.
20. Padilla R. Clara: a phenomenology of disability. Am J Occup Ther. 2003;57:413-422.
21. Janoff-Bulman R. Shattered Assumptions: Toward a New Psychology of Trauma. New York, NY: Free Press; 1992.
22. Aciero G, Guidano V. Experience, explanation, and the quest for coherence. In: Neimeyer R, Raskin J, eds. Constructions of Disorder. Meaning Making Frameworks for Psychotherapy. Washington, DC: American Psychological Association; 2000:91-118.
23. Buckley J, Herth K. Fostering hope in terminally ill patients. Nurs Stand. 2004;19(10):33-41.
24. McClain C, Rosenfeld B, Breitbart W. Effects of spiritual well-being on end-of-life despair in terminally ill cancer patients. Lancet. 2003;361:1603-1607.
25. Breitbart W, Gibson C, Poppito S, Berg A. Psychotherapeutic interventions at the end of life: a focus on meaning and spirituality. Can J Psychol. 2004;49:366-372.
26. Doka K. Disenfranchised Grief. Recognizing Hidden Sorrow. Lexington, Mass: Lexington Books; 1989.
27. Frank A. The Wounded Storyteller. Body, Illness, and Ethics. Chicago, Ill: University of Chicago Press; 1995.
28. Gergen KJ, Gergen MM. Narrative form and the construction of psychological science. In: Sarbin TR, ed. Narrative Psychology: The Storied Nature of Human Conduct. New York, NY: Praeger; 1986:22-44.
29. Neimeyer RA. Limits and lessons of constructivism: some critical reflections. J Constructivist Psychol. 1995;8:339-361.
30. Neimeyer RA. Narrative disruptions in the construction of the self. In: Neimeyer RA, Raskin JD, eds. Constructions of Disorder. Meaning Making Frameworks for Psychotherapy. Washington, DC: American Psychological Association; 2000:207-242.
31. Wright K. Relationships with death: the terminally ill talk about dying. J Marital Fam Ther. 2003;29:439.
32. Bury M. Illness narratives: fact or fiction? Social Health Illn. 2001;23:263-285.
33. Romanoff BD. Research as therapy. In: Neimeyer RA, ed. Meaning Reconstruction and the Experience of Loss. Washington, DC: American Psychological Association; 2001:245-257.
34. White M, Epston D. Narrative Means to Therapeutic Ends. New York, NY: Norton; 1990.
35. Kirsh B, Welch A. Opening the door to spiritual expression: the power of narrative in occupational therapy. In: McColl MA, ed. Spirituality and Occupational Therapy. Ottawa, Canada: CAOT Publications; 2003:161-179.
36. Gauthier DM. The meaning of healing near the end of life. J Hosp Palliat Nurs. 2002;4:220-227.
37. Frankl VE. Man's Search for Meaning: An Introduction to Logotherapy. Boston, Mass: Beacon; 1963.
38. Unruh AM, Versnel J, Kerr N. Spirituality in the context of occupation: a theory to practice application. In: Molineaux M, ed. Occupation for Occupational Therapists. Malden, Mass: Oxford Publishing; 2004: 32-45.
39. Manning D. Don't Take My Grief Away From Me. Oklahoma City, Okla: Insight Press; 1979.
40. Hurwitz C, Duncan J, Wolfe J. Caring for the child with cancer at the close of life: "there are people who make it and I'm hoping I'm one of them." JAMA. 2004;292:2141-2150.
41. Kleinman, A. The Illness Narratives: Suffering, Healing and the Human Condition. New York, NY: Basic Books; 1998.
42. McGrath P. Affirming the connection: comparative findings on communication issues from hospice patients and hematology survivors. Death Stud. 2004;28:829-848.
43. Peck L. Looking back at life and its influence on subjective well-being. J Gerontol Soc Work. 2001;35:3-20.
44. Price L. Life stories of the terminally ill: therapeutic and anthropological paradigms. Hum Organ. 1995;54:462-469.
45. Walter J. Spirituality in palliative care: opportunity or burden? Palliat Med. 2002;16:133-139.
46. Eustler NE, Martinez JM. The interdisciplinary team. In: Forman WB, Kitzes JA, Anderson RP, Sheehan DK, eds. Hospice and Palliative Care: Concepts and Practices. 2nd ed. Boston, Mass: Jones & Bartlett; 2003:13-34.
47. Carlick A, Biley FC. Thoughts on the therapeutic use of narrative in the promotion of coping in cancer care. Eur J Cancer Care. 2004;13:308-317.
48. Kirsh B. A narrative approach to addressing spirituality in occupational therapy: exploring personal meaning and purpose. Can J Occup Ther. 1996;1:55-61.
49. Kielhofner G, Mallison T. Gathering narrative data through interviews: empirical observations and suggested guidelines. Scand J Occup Ther. 1995;2:63-68.
50. Mattingly C, Lawlor M. Learning from stories: narrative interviewing in cross cultural research. Scand J Occup Ther. 2000;7:4-14.
51. Creswell J. Qualitative Inquiry and Research Design: Choosing Among Five Traditions. Thousand Oaks, Calif: Sage; 1998.
52. Hoskins J. Biographical Objects: How Things Tell the Stories of People's Lives. New York, NY: Routledge; 1998.
53. Thompson B. The expressive arts and the experience of loss. The Forum. 2003:29(2):1-3.
54. Levine S. Poesis and postmodernism: the search for a foundation in expressive arts therapy. In: Levine SK, Levine EG, eds. Foundations of Expressive Arts Therapy: Theoretical and Clinical Perspectives. Philadelphia, Pa: Jessica Kingsley; 1999:28-31.
55. Knill PJ. The essence in a therapeutic process: an alternative experience of worlding? Poesis. 2001;2:6-14.
56. Knill PJ. Unlimiting limits: principles of an "oeuvre-oriented" expressive arts therapy. Poesis. 2001;2:70-75.
57. McNiff S. Art as Medicine. Boston, Mass: Shambhala; 1992.
58. Crepeau EB. Rituals. In: Royeen CB, ed. AOTA Self-Study Series. Bethesda, Md: American Occupational Therapy Association; 1995:5-32.
59. Hasselkus BH. The Meaning of Everyday Occupation. Thorofare, NJ: Slack; 2002.
60. Farnsworth L, Fossey E. Occupational terminology: interactive dialogue. J Occup Sci. 2003;10:150-153.
61. Shordike A, Pierce D. Cooking up Christmas in Kentucky: occupation and tradition in the stream of time. J Occup Sci. 2005;12:140-148.
62. Fiese BH, Tomcho TJ, Douglas M, Josephs K, Poltrock S, Baker TI. A review of 50 years of research on naturally occurring family routines and rituals: cause for celebration? J Fam Psychol. 2002;16:381-390.
63. Romanoff BD, Terenzio M. Rituals and the grieving process. Death Stud. 1998;22:697-711.
64. Myers GE. Restoration or transformation? Choosing ritual strategies for end-of-life care. Mortality. 2003;8:372-387.
65. Jacques ND, Thompson B. Occupational therapy. In: Jacques ND, Thompson B, eds. The National Hospice Association: Allied Therapist's Resource Handbook. Arlington, Va: National Hospice Organization; 2001.
66. Jacques ND, Hasselkus BH. The nature of occupation surrounding death and dying. Occup Ther J Res. 2004;24(2):44-53.
67. Johnson LS. Facilitating spiritual meaning-making for the individual with a diagnosis of a terminal illness. Couns Values. 2003;47:230-241.
68. Fiese B, Wamboldt FS. Coherent accounts of coping with a chronic illness: convergences and divergences in family measurement using a narrative analysis. Fam Process. 2003;42:439-451.
69. McGoldrick M, Walsh F. A time to mourn: death and the family life cycle. In: Walsh F, McGoldrick M, eds. Living Beyond Loss: Death in the Family. New York, NY: W.W. Norton; 1991:30-49.
70. Nadeau JW. Family construction of meaning. In: Neimeyer RA, ed. Meaning Reconstruction and the Experience of Loss. Washington, DC: American Psychological Association; 2001:95-112.
71. Nadeau JW. Families Making Sense of Death. Thousand Oaks, Calif: Sage; 1998.
72. Noble A, Jones C. Benefits of narrative therapy: holistic interventions at the end of life. Br J Nurs. 2005;14:330-334.
73. Cheron R, Montello M. Stories Matter: The Role of Narrative in Medical Ethics. New York, NY: Routledge: 2002.
74. Rabow MW, Hauser JM, Adams J. Supporting families at the end of life: "they don't know what they don't know." JAMA. 2004;291:483.
75. Duhamel F, Dupuis F. Families in palliative care: exploring family and health care professionals' beliefs. Int J Palliat Nurs. 2003;9:113-118.
76. Murphy NM. The Wisdom of Dying: Practices for Living. Boston, Mass: Element; 1999.
77. Frank AW. Just listening: narrative and deep illness. Fam Syst Health. 1998;16:197-212.