European patient perspectives on the impact of psoriasis: The EUROPSO patient membership survey

British Journal of Dermatology

Volumn 155, Issue 4, 2006, Pages 729-736

  Dubertret, L ^a   Mrowietz, U ^b   Ranki, A ^c   Van De Kerkhof, P C M ^d   Chimenti, S ^e   Lotti, T ^f   Schafer G ^g  

^a SAINT LOUIS HOSPITAL   (France)

^b UNIVERSITY HOSPITAL SCHLESWIG HOLSTEIN   (Germany)

^c HELSINKI UNIVERSITY CENTRAL HOSPITAL   (Finland)

^d RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^e TOR VERGATA UNIVERSITY HOSPITAL   (Italy)

^f UNIVERSITY OF FLORENCE   (Italy)

^g NONE   (Germany)

Author keywords

Impact; Psoriasis; Psoriasis Disability Index; Quality of life

Indexed keywords

CALCIPOTRIOL; CYCLOSPORIN A; ETRETIN; ETRETINATE; FUMARIC ACID; HYDROXYUREA; METHOTREXATE; PSORALEN; STEROID; TAZAROTENE;

ACUPUNCTURE; ADULT; BODY SURFACE; CONTROLLED STUDY; DAILY LIFE ACTIVITY; DISEASE CLASSIFICATION; DISEASE SEVERITY; EUROPE; FEMALE; HEALTH SURVEY; HUMAN; INTROSPECTION; LIFESTYLE; MAJOR CLINICAL STUDY; MALE; MEDICAL SOCIETY; PATIENT ATTITUDE; PATIENT SATISFACTION; PHOTOTHERAPY; PRIORITY JOURNAL; PSORIASIS; PUVA; QUALITY OF LIFE; QUESTIONNAIRE; REVIEW; SCORING SYSTEM; SYMPTOMATOLOGY; ULTRAVIOLET B RADIATION; WELLBEING;

ACTIVITIES OF DAILY LIVING; ADULT; AGE OF ONSET; DERMATOLOGIC AGENTS; EUROPE; FEMALE; HEALTH SURVEYS; HUMANS; LIFE STYLE; MALE; PSORIASIS; QUALITY OF LIFE; SEVERITY OF ILLNESS INDEX; TREATMENT OUTCOME;

EID: 33748448266     PISSN: 00070963     EISSN: 13652133     Source Type: Journal    
DOI: 10.1111/j.1365-2133.2006.07405.x     Document Type: Review

References (32)

1. Finlay AY, Kelly SE. Psoriasis - an index of disability. Clin Exp Dermatol 1987; 12:8-11.
2. Ginsburg IH. The psychosocial impact of skin disease. An overview. Dermatol Clin 1996; 14:473-84.
3. Rapp SR, Feldman SR, Exum ML et al. Psoriasis causes as much disability as other major medical diseases. J Am Acad Dermatol 1999; 41:400-7.
4. Finlay AY, Coles EC. The effect of severe psoriasis on the quality of life of 369 patients. Br J Dermatol 1995; 132:236-44.
5. Ramsay B, O'Reagan M. A survey of the social and psychological effects of psoriasis. Br J Dermatol 1988; 118:195-201.
6. Griffiths CEM, Richards HL. Psychological influences in psoriasis. Clin Exp Dermatol 2001; 26:338-42.
7. Fried RG, Friedman S, Paradis C et al. Trivial or terrible? The psychosocial impact of psoriasis. Int J Dermatol 1995; 34:101-5.
8. Fortune DG, Main CJ, O'Sullivan TM, Griffiths CEM. Quality of life in patients with psoriasis: contribution of clinical variables and psoriasis-specific stress. Br J Dermatol 1997; 137:755-60.
9. McHenry PM, Doherty VR. Psoriasis: an audit of patients' views on the disease and its treatment. Br J Dermatol 1992; 127:13-17.
10. Finlay AY, Khan GK. Dermatology Life Quality Index (DLQI) - a simple practical measure for routine clinical use. Clin Exp Dermatol 1994; 19:210-16.
11. Ginsburg IH, Link BG. Feelings of stigmatization in patients with psoriasis. J Am Acad Dermatol 1989; 20:53-63.
12. Ginsburg IH, Link BG. Psychosocial consequences of rejection and stigma feelings in psoriasis patients. Int J Dermatol 1993; 32:587-91.
13. Gupta MA, Gupta AK. Age and gender differences in the impact of psoriasis on quality of life. Int J Dermatol 1995; 34:700-3.
14. McKenna KE, Stern RS. The impact of psoriasis on the quality of life of patients from the 16-center PUVA follow-up cohort. J Am Acad Dermatol 1997; 36:388-94.
15. O'Neill P, Kelly P. Postal questionnaire study of disability in the community associated with psoriasis. BMJ 1996; 313:919-21.
16. Wahl A, Burckhardt C, Wiklund I, Hanestad BR. The Norwegian version of the Quality of Life Scale (QOLS-N). A validation and reliability study in patients suffering from psoriasis. Scand J Caring Sci 1998; 12:215-22.
17. Wahl A, Moum T, Hanestad BR et al. The relationship between demographic and clinical variables, and quality of life aspects in patients with psoriasis. Qual Life Res 1999; 8:319-26.
18. Krueger G, Koo J, Lebwohl M et al. The impact of psoriasis on quality of life: results from a 1998 National Psoriasis Foundation patient-membership survey. Arch Dermatol 2001; 137:280-4.
19. Zachariae R, Zachariae H, Blomqvist K et al. Quality of life in 6497 Nordic patients with psoriasis. Br J Dermatol 2002; 146:1006-16.
20. Fortune DG, Richards HL, Main CJ, Griffiths CEM. What patients with psoriasis believe about their condition. J Am Acad Dermatol 1998; 39:196-201.
21. Salek MS, Finlay AY. Cyclosporin improves quality of life in psoriasis - does this matter? Br J Dermatol 1993; 129 (Suppl. 42): 32 (abstract).
22. Nichol MB, Margolies JE, Lippa E et al. The application of multiple quality-of-life instruments in individuals with mild-to-moderate psoriasis. Pharmacoeconomics 1996; 10:644-53.
23. Zachariae H, Zachariae R, Blomqvist K et al. Treatment of psoriasis in the Nordic countries: a questionnaire survey from 5739 members of the psoriasis associations data from the Nordic Quality of Life Study. Acta Derm Venereol (Stockh) 2001; 81:116-21.
24. National Psoriasis Foundation. Homepage at http://www.psoriasis.org/home/ [last accessed 11 June 2006].
25. Root S, Kent G, al-Abadie MS. The relationship between disease severity, disability and psychological distress in patients undergoing PUVA treatment for psoriasis. Dermatology 1994; 189:234-7.
26. Kirby B, Richards HL, Woo P et al. Physical and psychologic measures are necessary to assess overall psoriasis severity. J Am Acad Dermatol 2001; 45:72-6.
27. Koo J. Population-based epidemiologic study of psoriasis with emphasis on quality of life assessment. Dermatol Clin 1996; 14:485-96.
28. van de Kerkhof PCM. The Psoriasis Area and Severity Index and alternative approaches for the assessment of severity: persisting areas of confusion. Br J Dermatol 1997; 137:661-2.
29. Ferrandiz C, Pujol RM, Garcia-Patos V et al. Psoriasis of early and late onset: a clinical and epidemiologic study from Spain. J Am Acad Dermatol 2002; 46:867-73.
30. Finzi AF, Benelli C. A clinical survey of psoriasis in Italy: 1st AISP report. Interdisciplinary Association for the Study of Psoriasis. J Eur Acad Dermatol Venereol 1998; 10:125-9.
31. Scarpa R, Oriente P, Pucino A et al. Psoriatic arthritis in psoriatic patients. Br J Rheumatol 1984; 23:246-50.
32. Gladman DD. Current concepts in psoriatic arthritis. Curr Opin Rheumatol 2002; 14:361-6.