Making sense of suffering and death: How health care providers' construct meanings in a neonatal intensive care unit

Journal of Religion and Health

Volumn 45, Issue 2, 2006, Pages 248-263

  Cadge, Wendy ^a,b   Catlin, Elizabeth A ^c,d  

^a BOWDOIN COLLEGE   (United States)

^b HARVARD UNIVERSITY   (United States)

^c MASSACHUSETTS GENERAL HOSPITAL   (United States)

^d HARVARD MEDICAL SCHOOL   (United States)

Author keywords

Death; Health care providers; Neonatology; Religion and spirituality; Suffering

Indexed keywords

EID: 33748299063     PISSN: 00224197     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10943-006-9012-2     Document Type: Article

References (52)

1. Anspach, R.R. (1987). Prognostic conflict in life-and-death decisions: The organization as an ecology of knowledge. Journal of Health and Social Behavior, 28(3), 215-231.
2. Anspach, R.R. (1993). Deciding Who Lives: Fateful Choices in the Intensive-Care Nursery. Berkeley: University of California Press.
3. Armbruster, C.A., Chibnall, J.T., and Legett, S. (2003). Pediatrician beliefs about spirituality and religion in medicine: Associations with clinical practice. Pediatrics, 111, e227-e235.
4. Arnetz, B. (2001). Psychosocial challenges facing physicians today. Social Science and Medicine, 52(2), 203-213.
5. Baker, J. (1996). The Machine in the Nursery: Incubator Technology and the Origins of Newborn Intensive Care. Baltimore: The Johns Hopkins University Press.
6. Berger, P., and Luckmann, T. (1966). The Social Construction of Reality: A Treatise in the Sociology of Knowledge. Garden City NY: Doubleday.
7. Catlin, E.A., Guillemin, J.H., Thiel, M.M., Hammond, S., Wang, M., and O'Donnell, J. (2001). Spiritual and religious components of patient care in the neonatal intensive care unit: Sacred themes in a secular setting. Journal of Perinatology, 21, 426-430.
8. Chopra, S.S., Sotile, W.M., and Sotile, M.O. (2004). Physician burnout. Student Journal of the American Medical Association, 291(5), 633.
9. Clarke, T.A. (1984). Job satisfaction and stress among neonatologists. Pediatrics, 74, 52-57.
10. Cone, T.E. Jr. (1985). History of the Care and Feeding of the Premature Infant. Boston: Little Brown and Company.
11. Desmond, M.M. (1998). Newborn Medicine and Society; European Background and American Practice (1750) / 1975). Austin: Eakin Press.
12. Downey, V., Bengiamin, M., Heuer, L., and Juhl, N. (1995). Dying babies and associated stress in NICU nurses. Neonatal Network, 14(1), 41-46.
13. Farah, A. (1996). The history of the neonatal nurse practitioner in the United States. Neonatal Network, 15(5), 11-21.
14. Fox, R. (1988). The human condition of health professionals. In Essays in Medical Sociology: Journeys into the Field (pp. 572-587). New Brunswick: Transaction Books.
15. Foxall, M.J., Zimmerman, L., Standley, R., and Bene, B. (1990). A comparison of frequency and sources of nursing job stress perceived by intensive care, hospice and medical-surgical nurses. Journal of Advanced Nursing, 15(5), 577-584.
16. Frohock, F.M. (1986). Special Care: Medical Decisions at the Beginning of Life. Chicago: University of Chicago Press.
17. Grant, D., O'Neil, K., and Stephens, L. (2004). Spirituality in the workplace: New empirical directions in the study of the sacred. Sociology of Religion, 65(3), 265-283.
18. Guillemin, J. (1984). Priceless lives and medical costs: The case of newborn intensive care. Research in the Sociology of Health Care, 3, 115-134.
19. Guillemin, J.H., and Holmstrom, L.L. (1986). Mixed Blessings: Intensive Care for Newborns. New York: Oxford University Press.
20. Guntupalli, K.K., and Fromm, R.E. Jr. (1996). Burnout in the Internist-Intensivist. Intensive Care Medicine, 22(7), 625-630.
21. Hall, D.D., (ed.), (1997). Lived Religion in America: Toward a History of Practice. Princeton: Princeton University Press.
22. Heimer, C. (1999). Competing institutions: Law, medicine, and family in neonatal intensive care. Law & Society Review, 33(1), 17-66.
23. Heimer, C.A., and Staffen, L.R. (1995). Interdependence and reintegrative social control: Labeling and reforming 'inappropriate' parents in neonatal intensive care units. American Sociological Review, 60(5), 635-654.
24. Heimer, C.A., and Stevens, M.L. (1997). Caring for the organization: Social workers as frontline risk managers in neonatal intensive care units. Work and Occupations, 24(2), 133-163.
25. Hoff, T., Whitcomb, W.F., and Nelson, J.R. (2002). Thriving and surviving in a new medical career: The case of hospitalist physicians. Journal of Health and Social Behavior, 43(1), 72-91.
26. Lake, E.T. (1998). Advances in understanding and predicting nurse turnover. Research in the Sociology of Health Care, 15, 147-171.
27. Landzelius, K.M. (2003). Humanizing the imposter: Object relations and illness equations in the neonatal intensive care unit. Culture, Medicine, and Psychiatry, 27, 1-28.
28. Lantos, J.D. (2001). The Lazarus Case: Life and Death Issues in Neonatal Intensive Care. Baltimore: The Johns Hopkins University Press.
29. Leigh, J.P., Kravitz, R.L., Schembri, M., Samuels, S.J., and Mobley, S. (2002). Physician career satisfaction across specialties. Archives of Internal Medicine, 162, 1577-1584.
30. Lussky, R.C. (1999). A century of neonatal medicine. Minnesota Medicine, 82, 1-8.
31. Lyon, J. (1985). Playing God in the Nursery. New York: W. W. Norton & Company.
32. Mansfield, C.J., Mitchell, J., and King, D.E. (2002), The doctor As God's mechanic? Beliefs in the Southeastern United States. Social Science and Medicine, 54, 399-409.
33. McNamara, B., Waddell, C., and Colvin, M. (1995). Threats to the good death: The cultural context of stress and coping among hospice nurses. Sociology of Health and Illness, 17(2), 222-244.
34. Messikomer, C.M., and Craemer, W.De. (2002). The spirituality of academic physicians: An ethnography of a scripture-based group in an academic medical center. Academic Medicine, 77(6), 562-573.
35. Neuer, L., Bengiamin, M., Downey, V.W., and Imler, N.J. (1996). Neonatal Intensive Care Nurse Stressors: An American study. British Journal of Nursing, 5(18), 1126-1130.
36. Oehler, J.M., and Davidson, M.G. (1992). Job stress and burnout in acute and nonacute pediatric nurses. American Journal Critical Care, 1(2), 81-90.
37. Orfali, K. (2004). Parental role in medical decision-making: Fact or fiction? A comparative study of ethical dilemmas in French and American neonatal intensive care units. Social Sciences and Medicine, 58(10), 2009-2022.
38. Palmer, C.E., and Noble, D.N. (1985). Nurse-neonate relationships: The creation of symbolic interaction within a neonatal intensive care unit. Sociological Spectrum, 5, 331-345.
39. Pinch, W.J.E. (2002). When the Bough Breaks: Parental Perceptions of Ethical Decision-Making in NICU. New York: University Press of America.
40. Puchalski, C.M., and Larson, D.B. (1998). Developing curricula in spirituality and medicine. Academic Medicine, 73, 970-974.
41. Raju, T.N. (2002). A.A. Fanaroff and R.J. Martin, (eds.), From Infant Hatcheries to Intensive Care: Some Highlights of the Century of Neonatal Medicine. Neonatal-Perinatal Medicine, Mosby.
42. Rashotte, J., Fothergill-Bourbonnais, F., and Chamberlain, M. (1997). Pediatric intensive care nurses and their grief experiences: A phenomenological study. Heart Lung, 26(5), 372-386.
43. Reddick, B.H., Catlin, E.A., and Jellinek, M.S. (2001). Crisis within crisis: Recommendations for defining, preventing, and coping with stressors in the neonatal intensive care unit. Journal of Clinical Ethics, 12(3), 254-265.
44. Robinson, S.E., Roth, S.L., Keim, J., Levenson, M., Flentje, J.R, and Bashor, K. (1991). Nurse burnout: Work related and demographic factors as culprits. Research in Nursing and Health, 14(3), 223-228.
45. Shugerman, R., Linzer, M., Nelson, K., Douglas, J., Williams, R., and Konrad, R., for the Career Satisfaction Group. (2001). Pediatric generalists and subspecialists: Determinants of career satisfaction. Pediatrics 108, 1-6.
46. Sosnowitz, B.G. (1984). Managing parents on neonatal intensive care units. Social Problems, 31(4), 390-402.
47. Strauss, A.L. (1968). The intensive care unit: Its characteristics and social relationships. Nursing Clinics of North America, 3, 7-15.
48. Strauss, A.L., and Corbin, J. (1990). Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Newbury Park, CA: Sage.
49. Thomas, N.K. (2004). Resident burnout. Journal of the American Medical Association, 292(23), 2880-2889.
50. Weir, R. (1984). Selective Nontreatment of Handicapped Newborns: Moral Dilemmas in Neonatal Medicine. New York: Oxford University Press.
51. Wuthnow, R. (1998). After Heaven: Spirituality in America Since the (1950)s. Berkeley: University of California Press.
52. Zupancic, J.A., and Richardson, D.K. (2002). Characterization of neonatal personnel time inputs and prediction from clinical variables - a time a motion study. Journal of Perinatology, 22(8), 658-663.