Is my story so different from yours? Comparing life stories, experiences of institutionalization and self-advocacy in England and Iceland

British Journal of Learning Disabilities

Volumn 34, Issue 3, 2006, Pages 157-166

  Hreinsdóttir, Eygló Ebba ^a   Stefánsdóttir, Gudrún ^a   Lewthwaite, Anne ^b   Ledger, Sue ^b   Shufflebotham, Lindy ^c  

^a UNIVERSITY OF ICELAND   (Iceland)

^b OPEN UNIVERSITY   (United Kingdom)

^c Yarrow Housing   (United Kingdom)

Author keywords

Cross cultural comparisons; Life history; Self advocacy

Indexed keywords

EID: 33748257251     PISSN: 13544187     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1468-3156.2006.00417.x     Document Type: Article

References (40)

1. Atkinson D. (1997) An auto/biographical approach to learning disability research. Aldershot, Ashgate.
2. Atkinson D. (1998) Reclaiming our past: Empowerment through oral history and personal stories. In: Ward L. editor. Innovations in advocacy and empowerment for people with intellectual disabilities. Chorley, Lisieux Hall.
3. Atkinson D., McCarthy M., Walmsley J. et.al. (2000) Good times, bad times: Women with learning difficulties telling their stories. Kidderminster: BILD Publications.
4. Barker D. (1983) How to curb fertility of the unfit. Oxford Rev Educ, 9: 197-211.
5. Bersani H. (1998) From social clubs to social movement. In: Ward L. editor. Innovations in advocacy and empowerment. Chorley: Lisieux Hall: 63.
6. Birren J. & Deutchman D. (1991) Guiding autobiography groups for older adults. London: John Hopkins University Press.
7. Carnaby S. (ed.) (2002) Learning disability today key issues for providers, managers, practitioners and users. Brighton, Pavillion.
8. Chapman R. & McNulty N. (2004) Building bridges? The role of research support in self-advocacy. Br J Learn Disabil 32: 77-85.
9. Chappell A. (2000) Emergence of participatory methodology in learning disability research: Understanding the context. Br J Learn Disabil 28: 38-43.
10. Cooper M. (1997) Mabel Cooper's life story. In: Atkinson D., Jackson M. and Walmsley J., editors. Forgotten lives. Exploring the history of learning disability. Kidderminster, BILD Publications.
11. Department of Health (1959) Mental Health Act. London, HMSO.
12. Department of Health (1990) NHS and Community Care Act. London, HMSO.
13. Department of Health (2001) Valuing People: A new strategy for learning disability for the 21st century. London, HMSO.
14. Department of Health (2004) Commissioning service close to home: Note of clarification for commissioners and regulation and inspection authorities. London, HMSO.
15. Department of Health and Social Security (1971) Better services for the mentally handicapped. London, HMSO.
16. Fido R., and Potts M. (1997) Using oral histories. In: Atkinson D., Jackson M., Walmsley J. editors. Forgotten lives. Exploring the history of learning disability. Kidderminster, BILD Publications.
17. Fyson R., McBride G. & Myers B. (2004) Progress on participation? Self-advocate involvement in learning disability partnership boards. Learn Disabil Rev 9: 27-36.
18. Grove N. & Ledger S. (2002) See what i mean? -Researching with people with high support needs. Paper given at Open University Seminar October 2002, Milton Keynes, UK.
19. Hersov J. (1996) The rise of self-advocacy in Britain. In: Dybwad G., Bersani H., editors. New voices: Self-advocacy by people with difficulties. Massachusetts, Cambridge: Brookline Books.
20. Hreinsdóttir E. & Stefánsdóttir G. (2004) Rádstefna íEnglandi: Saga sjálfsákvördunarhópa (Proskahjálp). 2, 26: 23-29.
21. Jones K. (1972) A history of the mental health services. London, Routledge and Kegan Paul.
22. Karlsdóttir U.B. (1998) Mannkynbætur. Reykjavík, Háskólaútgáfan.
23. Kinsella P. (1993) Supported living: A new paradigm? Manchester, National Development Team.
24. Margeirsdóttir M. (2001) Fötlun og samfélag. Reykjavík, Háskólaútgáfan.
25. McNicol J. (1987) In pursuit of the underclass. J Soc Policy 16: 293-318.
26. Mitchell D., Traustadóttir R., Chapman R., Townson L., Ingham I. et al. (2006) Exploring experiences of advocacy by people with learning difficulties. London, Jessica Kingsley.
27. Nirje B. (1969) The normalization principle and it's human management implications. In: Kugel R. and Wolfensberger W., editors. Changing patterns in residential services for the mentally retarded. Washington, Presidential Committee on Mental Retardation.
28. Nirje B. (1980) The normalisation principle. In: Flynn R.J., Nitsch K.E., editors. Normalisation, social integration and community services. Austin, TX: Pro-Ed.
29. Robinson S. (2001) How to help people with severe learning disabilities to discover their past. Conference Paper given at Past, Present and Future Conference. London, Pavillion/Horizon NHS Trust.
30. Rolph S. (1999) The history of community care for people with learning difficulties in Norfolk 1930-1980: The role of two hostels. Unpublished PhD Thesis, Milton Keynes: Open University.
31. Rolph S., Atkinson D., Nind M., Welshman J., Brigham L. et al. (2005) Witnesses to change. Kidderminster, BILD publications.
32. Sigurjónsdóttir H.B. & Traustadóttir R. (2001) Ósýnilegar fjölskyldur Seinfærar/ Proskaheftar mædur og börn Peirra. Reykjavík, Háskólaútgáfan.
33. Stefánsdóttir G (2003) Lífssaga Ragnheidar Gudmundsdóttur. In: Traustadóttir R, editor. Fötlunarfrædi. Reykjavík: Háskólaútgáfan.
34. Stefánsdóttir G. (2004) Birtingamyndir andófs og mótspyrnu ílífssögum Priggja kvenna medproskahömlun. In: Hauksson U., editor. Rannsóknir ífélagsvísindum V. Reykjavík: Háskólaútgáfan.
35. Tilley L. (2006) Resistance in Mencap's history. In: Mitchell D., Traustadóttir R., Chapman R., Townson L., Ingham I., Ledger S., editors. Exploring experiences of advocacy by people with learning difficulties. London, Jessica Kingsley.
36. Traustadóttir R. (2004) Learning about self-advocacy from life history: Lessons from Tom Allen's Life. Paper given at Open University Conference 'The History of Self-advocacy for People with learning difficulties: International Comparisons', Milton Keynes, UK, May 2004.
37. Traustadóttir R. & Johnson K. (2000) Women with intellectual disabilities: Finding a place in the world. London, Jessica Kingsley.
38. Valuing People Support Team Website (2006) http://www.Valuingpeople.gov.uk.
39. Wolfensberger W. (1972) The principle of normalization in human services. Toronto, National Institute on Mental Retardation.
40. Wolfensberger W. (1975) The origin and nature of our institutional models. Syracuse, NY, Human Policy Press.